When I can be my whole authentic self, I feel safe and know that I belong: a photovoice study exploring what culturally safe pregnancy care is to Karen women of refugee background in Victoria, Australia

References

• Ager, A., and A. Strang. 2008. “Understanding Integration: A Conceptual Framework.” Journal of Refugee Studies 21 (2): 166–191. https://doi.org/10.1093/jrs/fen016.
   Web of Science ®Google Scholar
• Australian Bureau of Statistics. 2021. Census of Population and Housing: Cultural Diversity Data Summary, 2021. https://www.abs.gov.au/statistics/people/people-and-communities/cultural-diversity-census/latest-release.
   Google Scholar
• Australian Living Evidence Collaboration. 2023 version 1. Australian Pregnancy Care Guidelines. https://leappguidelines.org/.
   Google Scholar
• Bailey, Z. D., N. Krieger, M. Agénor, J. Graves, N. Linos, and M. T. Bassett. 2017. “Structural Racism and Health Inequities in the USA: Evidence and Interventions.” The Lancet 389 (10077): 1453–1463. https://doi.org/10.1016/S0140-6736(17)30569-X.
   PubMed Web of Science ®Google Scholar
• Baird, M. B., and J. S. Boyle. 2011. “Well-being in Dinka Refugee Women of Southern Sudan.” Journal of Transcultural Nursing 23 (1): 14–21. https://doi.org/10.1177/104365961142383.
   PubMed Web of Science ®Google Scholar
• Biggs, L. J., R. Coe, S. Papadopoullos, F. Hearn, A. Deng, M. Essa, S. Hydari, et al. 2023. Know Our Story: A Toolkit for Social Equity and Inclusion. https://www.strongerfutures.org.au/know-our-story.
   Google Scholar
• Braun, V., and V. Clarke. 2021. Thematic Analysis: A Practical Guide. London: SAGE Publications.
   Google Scholar
• Braun, V., and V. Clarke. 2024. “Supporting Best Practice in Reflexive Thematic Analysis Reporting in Palliative Medicine: A Review of Published Research and Introduction to the Reflexive Thematic Analysis Reporting Guidelines (RTARG).” Palliative Medicine Mar 12:2692163241234800: 1–9. https://doi.org/10.1177/02692163241234800.
   Google Scholar
• Browne, A. J., and C. Varcoe. 2006. “Critical Cultural Perspectives and Health Care Involving Aboriginal Peoples.” Contemporary Nurse 22 (2): 155–168. https://doi.org/10.5172/conu.2006.22.2.155.
   PubMedGoogle Scholar
• Callander, E., M. Sidebotham, D. Lindsay, and J. Gamble. 2021. “The Future of the Australian Midwifery Workforce – Impacts of Ageing and Workforce Exit on the Number of Registered Midwives.” Women and Birth 34 (1): 56–60. https://doi.org/10.1016/j.wombi.2020.02.023.
   PubMed Web of Science ®Google Scholar
• Carr, W., and S. Kemmis. 1986. Becoming Critical: Education, Knowledge and Action Research. London: The Falmer Press.
   Google Scholar
• Clark, N. 2018. “Exploring Community Capacity: Karen Refugee Women's Mental Health.” International Journal of Human Rights in Healthcare 11 (4): 244–256. https://doi.org/10.1108/IJHRH-02-2018-0025.
   PubMedGoogle Scholar
• Curtis, E., R. Jones, D. Tipene-Leach, C. Walker, B. Loring, S. J. Paine, and P. Reid. 2019. “Why Cultural Safety Rather than Cultural Competency is Required to Achieve Health Equity: A Literature Review and Recommended Definition.” International Journal for Equity in Health 18 (1): 1–17. https://doi.org/10.1186/s12939-019-1082-3.
   PubMed Web of Science ®Google Scholar
• de Anstiss, H., H. Savelsberg, and T. Ziaian. 2019. “Relationships in a New Country: A Qualitative Study of the Social Connections of Refugee Youth Resettled in South Australia.” Journal of Youth Studies 22 (3): 346–362. https://doi.org/10.1080/13676261.2018.1508824.
   Web of Science ®Google Scholar
• Department of Health and Aged Care. 2020. Clinical Practice Guidelines: Pregnancy Care. https://www.health.gov.au/resources/pregnancy-care-guidelines.
   Google Scholar
• Due, C., A. Ziersch, M. Walsh, and E. Duivesteyn. 2022. “Housing and Health for People with Refugee- and Asylum-Seeking Backgrounds: A Photovoice Study in Australia.” Housing Studies 37 (9): 1598–1624. https://doi.org/10.1080/02673037.2020.1857347.
   Web of Science ®Google Scholar
• Freire, P. (1968) 2018. Pedagogy of the Oppressed (50th Anniv). London: Bloomsbury Publishing.
   Google Scholar
• Grant, J., Y. Parry, and P. Guerin. 2013. “An Investigation of Culturally Competent Terminology in Healthcare Policy Finds Ambiguity and Lack of Definition.” Australian and New Zealand Journal of Public Health 37 (3): 250–256. https://doi.org/10.1111/1753-6405.12067.
   PubMed Web of Science ®Google Scholar
• Harris, P. A., R. Taylor, B. L. Minor, V. Elliott, M. Fernandez, L. O’Neal, L. McLeod, et al. 2019. “The REDCap Consortium: Building an International Community of Software Platform Partners.” Journal of Biomedical Informatics 95: 103208. https://doi.org/10.1016/j.jbi.2019.103208.
   PubMed Web of Science ®Google Scholar
• Hearn, F., L. Biggs, S. Brown, L. Tran, S. Shwe, T. M. P. Noe, S. Toke, et al. 2022. “Having a Say in Research Directions: The Role of Community Researchers in Participatory Research with Communities of Refugee and Migrant Background.” International Journal of Environmental Research and Public Health 19 (8): 1–14. https://doi.org/10.3390/ijerph19084844.
   Web of Science ®Google Scholar
• Herman, J. 1992. Trauma and Recovery: The Aftermath of Violence – from Domestic Abuse to Political Terror. Ann Arbor: Basic Books.
   Google Scholar
• Hickey, S., S. Kildea, K. Couchman, K. Watego-Ivory, R. West, S. Kruske, R. Blackman, S. Watego, and Y. L. Roe. 2019. “Establishing Teams Aiming to Provide Culturally Safe Maternity Care for Indigenous Families.” Women and Birth 32 (5): 449–459. https://doi.org/10.1016/j.wombi.2019.06.019.
   PubMed Web of Science ®Google Scholar
• Joseph, J., P. Liamputtong, and W. Brodribb. 2019. “Postpartum Breastfeeding Experiences in the Traditional-Biomedical Crossroads: A Qualitative Study Using Drawing with Vietnamese and Myanmarese Refugee Women in Australia.” Journal of Advanced Nursing 75 (11): 2855–2866. https://doi.org/10.1111/jan.14110.
   PubMed Web of Science ®Google Scholar
• Jupp, J. 1995. “From ‘White Australia’ to ‘Part of Asia’: Recent Shifts in Australian Immigration Policy Towards the Region.” International Migration Review 29 (1): 207–228. https://doi.org/10.1177/019791839502900109.
   PubMed Web of Science ®Google Scholar
• Kaplan, I. 2020. Rebuilding Shattered Lives: Integrated Trauma Recovery for People of Refugee Background. 2nd ed.. Parkville: The Victorian Foundation for Survivors of Torture Inc.
   Google Scholar
• Lincoln, Y. S. 1995. “Emerging Criteria for Quality in Qualitative and Interpretive Research.” Qualitative Inquiry 1 (3): 275–289. https://doi.org/10.1177/107780049500100301.
   Google Scholar
• Manderson, L., and P. Allotey. 2003. “Storytelling, Marginality, and Community in Australia: How Immigrants Position Their Difference in Health Care Settings.” Medical Anthropology 22 (1): 1–21. https://doi.org/10.1080/01459740306767.
   PubMedGoogle Scholar
• McPherson, M. 2010. “‘I Integrate, Therefore I Am’: Contesting the Normalizing Discourse of Integrationism Through Conversations with Refugee Women.” Journal of Refugee Studies 23 (4): 546–570. https://doi.org/10.1093/jrs/feq040.
   Web of Science ®Google Scholar
• Neiman, A., E. Soh, and P. Sutan. 2008. Karen Cultural Profile. https://ethnomed.org/culture/karen/.
   Google Scholar
• Newton, M. S., H. L. McLachlan, K. F. Willis, and D. A. Forster. 2014. “Comparing Satisfaction and Burnout Between Caseload and Standard Care Midwives: Findings from Two Cross-sectional Surveys Conducted in Victoria, Australia.” BMC Pregnancy and Childbirth 14 (26): 1–16. https://doi.org/10.1186/s12884-014-0426-7.
   PubMedGoogle Scholar
• Nithianandan, N., M. Gibson-Helm, J. McBride, A. Binny, K. M. Gray, C. East, and J. A. Boyle. 2016. “Factors Affecting Implementation of Perinatal Mental Health Screening in Women of Refugee Background.” Implementation Science 11 (150): 1–12. https://doi.org/10.1186/s13012-016-0515-2.
   PubMedGoogle Scholar
• Noseworthy, D. A., S. R. Phibbs, and C. A. Benn. 2013. “Towards a Relational Model of Decision-Making in Midwifery Care.” Midwifery 29 (7): e42–e48. https://doi.org/10.1016/j.midw.2012.06.022.
   PubMed Web of Science ®Google Scholar
• O'Mahony, J., and N. Clark. 2018. “Immigrant Women and Mental Health Care: Findings from an Environmental Scan.” Issues in Mental Health Nursing 39 (11): 924–934. https://doi.org/10.1080/01612840.2018.1479903.
   PubMed Web of Science ®Google Scholar
• Owens, C., J. Dandy, and P. Hancock. 2016. “Perceptions of Pregnancy Experiences When Using a Community-Based Antenatal Service: A Qualitative Study of Refugee and Migrant Women in Perth, Western Australia.” Women and Birth 29 (2): 128–137. https://doi.org/10.1016/j.wombi.2015.09.003.
   PubMed Web of Science ®Google Scholar
• Pangas, J., O. Ogunsiji, R. Elmir, S. Raman, P. Liamputtong, E. Burns, H. G. Dahlen, and V. Schmied. 2019. “Refugee Women’s Experiences Negotiating Motherhood and Maternity Care in a New Country: A Meta-Ethnographic Review.” International Journal of Nursing Studies 90: 31–45. https://doi.org/10.1016/j.ijnurstu.2018.10.005.
   PubMed Web of Science ®Google Scholar
• Papps, E., and I. Ramsden. 1996. “Cultural Safety in Nursing: The New Zealand Experience.” International Journal for Quality in Health Care 8 (5): 491–497. https://doi.org/10.1093/intqhc/8.5.491.
   PubMed Web of Science ®Google Scholar
• Patton, M. Q. 2015. Qualitative Research and Evaluation Methods: Integrating Theory and Practice. 4th ed. London: SAGE Publications.
   Google Scholar
• Priest, N., and D. R. Williams. 2021. “Structural Racism: A Call to Action for Health and Health Disparities Research.” Ethnicity & Disease 31: 285–288. https://doi.org/10.18865/ed.31.S1.285.
   PubMed Web of Science ®Google Scholar
• Richardson, S. 2004. “Aoteaoroa/New Zealand Nursing: From Eugenics to Cultural Safety.” Nursing Inquiry 11 (1): 35–42. https://doi.org/10.1111/j.1440-1800.2004.00195.x.
   PubMedGoogle Scholar
• Richardson, A., J. Yarwood, and S. Richardson. 2017. “Expressions of Cultural Safety in Public Health Nursing Practice.” Nursing Inquiry 24 (1): 1–10. https://doi.org/10.1111/nin.12171.
   Web of Science ®Google Scholar
• Riggs, E., S. Muyeen, S. Brown, W. Dawson, P. Petschel, W. Tardiff, F. Norman, D. Vanpraag, J. Szwarc, and J. Yelland. 2017. “Cultural Safety and Belonging for Refugee Background Women Attending Group Pregnancy Care: An Australian Qualitative Study.” Birth (Berkeley, Calif ) 44 (2): 145–152. https://doi.org/10.1111/birt.12272.
   PubMed Web of Science ®Google Scholar
• Riggs, E., J. Yelland, F. K. Mensah, L. Gold, J. Szwarc, I. Kaplan, R. Small, et al. 2021. “Group Pregnancy Care for Refugee Background Women: A Codesigned, Multimethod Evaluation Protocol Applying a Community Engagement Framework and an Interrupted Time Series Design.” BMJ Open 11 (7): e048271. https://doi.org/10.1136/bmjopen-2020-048271.
   PubMed Web of Science ®Google Scholar
• Rogers, H. J., L. Hogan, D. Coates, C. S. E. Homer, and A. Henry. 2020. “Responding to the Health Needs of Women from Migrant and Refugee Backgrounds—Models of Maternity and Postpartum Care in High-Income Countries: A Systematic Scoping Review.” Health & Social Care in the Community 28 (5): 1343–1365. https://doi.org/10.1111/hsc.12950.
   PubMed Web of Science ®Google Scholar
• Services Australia. 2022. Enrolling in Medicare. https://www.servicesaustralia.gov.au/enrolling-medicare?context=60092.
   Google Scholar
• Shannon, G., R. Morgan, Z. Zeinali, L. Brady, M. T. Couto, D. Devakumar, B. Eder, et al. 2022. “Intersectional Insights into Racism and Health: Not Just a Question of Identity.” The Lancet 400 (10368): 2125–2136. https://doi.org/10.1016/S0140-6736(22)02304-2.
   PubMed Web of Science ®Google Scholar
• Singh, S., M. R. Sylvia, and F. Ridzi. 2015. “Exploring the Literacy Practices of Refugee Families Enrolled in a Book Distribution Program and an Intergenerational Family Literacy Program.” Early Childhood Education Journal 43 (1): 37–45. https://doi.org/10.1007/s10643-013-0627-0.
   Web of Science ®Google Scholar
• Stronger Futures Centre of Research Excellence. 2021. Trauma-informed Values and Principles. https://www.strongerfutures.org.au/valuesandprinciples.
   Google Scholar
• Unsplash. 2020. Stairway to Heaven. https://unsplash.com/@georges015.
   Google Scholar
• Ussher, J. M., A. Hawkey, J. Perz, P. Liamputtong, J. Sekar, B. Marjadi, V. Schmied, T. Dune, and E. Brook. 2022. “Crossing Boundaries and Fetishization: Experiences of Sexual Violence for Trans Women of Color.” Journal of Interpersonal Violence 37 (5-6): NP3552–NP3584. https://doi.org/10.1177/0886260520949149.
   PubMed Web of Science ®Google Scholar
• Varcoe, C., P. Rodney, and J. McCormick. 2003. “Health Care Relationships in Context: An Analysis of Three Ethnographies.” Qualitative Health Research 13 (7): 957–973. https://doi.org/10.1177/1049732303253483.
   PubMed Web of Science ®Google Scholar
• Wade, D. T., and P. W. Halligan. 2017. “The Biopsychosocial Model of Illness: A Model Whose Time has Come.” Clinical Rehabilitation 31 (8): 995–1004. https://doi.org/10.1177/0269215517709890.
   PubMed Web of Science ®Google Scholar
• Wallace, H. J., S. Mcdonald, S. Belton, A. I. Miranda, E. da Costa, L. da Conceicao Matos, H. Henderson, and A. Taft. 2018. “Body Mapping to Explore Reproductive Ethno-Physiological Beliefs and Knowledge of Contraception in Timor-Leste.” Qualitative Health Research 28 (7): 1171–1184. https://doi.org/10.1177/1049732317750382.
   PubMed Web of Science ®Google Scholar
• Wallerstein, N., B. Duran, J. Oetzel, and M. Minkler. 2018. Community-based Participatory Research for Health. 3rd ed. Hoboken: Jossey-Bass.
   Google Scholar
• Wang, C., and M. Burris. 1997. “Photovoice: Concept, Methodology, and use for Participatory Needs Assessment.” Health Education & Behavior 24 (3): 369–387. https://doi.org/10.1177/109019819702400309.
   PubMed Web of Science ®Google Scholar
• Watego, C., D. Singh, and A. Macoun. 2021. “Partnership for Justice in Health.” Scoping Paper on Race, Racism and the Australian Health System. In The Lowitja Institute. https://doi.org/10.48455/sdrt-sb97.
   Google Scholar
• Wille, J. 2011. “Agency and Belonging: Southern Sudanese Former Refugees’ Reflections on Life in Australia.” The Australasian Review of African Studies 32: 80–100. http://www.forcedmigration.org/guides/fmo007/.
   Google Scholar
• World Health Organization. 2017. Human Rights and Health. https://www.who.int/news-room/fact-sheets/detail/human-rights-and-health.
   Google Scholar
• Yelland, J., E. Riggs, J. Szwarc, S. Casey, P. Duell-Piening, D. Chesters, S. Wahidi, F. Fouladi, and S. Brown. 2016. “Compromised Communication: A Qualitative Study Exploring Afghan Families and Health Professionals’ Experience of Interpreting Support in Australian Maternity Care.” BMJ Quality & Safety 25 (4): 1–9. https://doi.org/10.1136/bmjqs-2014-003837.
   PubMed Web of Science ®Google Scholar