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Articles

Autism and inclusive practices: mothers speak out

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Pages 419-434 | Received 14 May 2020, Accepted 22 Oct 2020, Published online: 09 Nov 2020

References

  • Arnett, J. J. 2014. Adolescence and Emerging Adulthood (5th edition). New Jersey: Pearson Prentice Hall.
  • Australian Bureau of Statistics. 2016. Survey of Disability, Ageing and Carers 2015. Canberra: Australian Government. https://www.abs.gov.au/statistics/health/disability-ageing-and-carers-australia-first-results/latest-release.
  • Bourke-Taylor, H., L. Howie, and M. Law. 2010. “Impact of Caring for a School-Aged Child with a Disability: Understanding Mothers’ Perspectives.” Australian Occupational Therapy Journal 57: 127–136. https://doi.org/10.1111/j.1440-1630.2009.00817.x.
  • Carter, E. W., M. E. Brock, and A. A. Trainor. 2014. “Transition Assessment and Planning for Youth with Severe Intellectual and Developmental Disabilities.” The Journal of Special Education 47 (4): 245–255. https://doi.org/10.1177/0022466912456241.
  • Clark, M., D. Adams, J. Roberts, and M. Westerveld. 2020. “How do Teachers Support Their Students on the Autism Spectrum in Australian Primary Schools?” Journal of Research in Special Educational Needs 20 (1): 38–50. https://doi.org/10.1111/1471-3802.12464.
  • Eatough, V., and J. A. Smith. 2008. “Women, Anger and Aggression: An Interpretative Phenomenological Analysis.” Journal of Interpersonal Violence 23 (12): 1767–1799. https://doi.org/10.1177/0886260508314932.
  • Elliott, R., C. T. Fischer, and D. L. Rennie. 1999. “Evolving Guidelines for Publication of Qualitative Research Studies in Psychology and Related Fields.” British Journal of Clinical Psychology 38 (3): 215–229. https://doi.org/10.1348/014466599162782.
  • Hoogsteen, L., and R. L. Woodgate. 2013. “The Lived Experience of Parenting a Child with Autism in a Rural Area: Making the Invisible Visible.” Pediatric Nursing 39 (5): 233–237.
  • Howlin, P., and P. Moss. 2012. “Adults with Autism Spectrum Disorders.” The Canadian Journal of Psychiatry 57 (5): 275–283. https://doi.org/10.1177/070674371205700502.
  • Ilias, K., K. Cornish, M. S. Park, H. Toran, and J. Golden. 2019. “Risk and Resilience among Mothers and Fathers of Primary School Age Children with ASD in Malaysia: A Qualitative Constructive Grounded Theory Approach.” Frontiers in Psychology 9 (2275). https://doi.org/10.3389/psyg.2018.02275.
  • Ilias, K., J. H. J. Liaw, K. Cornish, M. S. Park, and K. J. Golden. 2017. “Wellbeing of Mothers of Children with “A-U-T-I-S-M” in Malaysia: An Interpretative Phenomenological Analysis Study.” Journal of Intellectual & Developmental Disability 42 (1): 74–89. https://doi.org/10.3109/13668250.2016.1196657.
  • Kvale, S. 1996. Interviews: An Introduction to Qualitative Research Interviewing. California: SAGE.
  • Langdridge, D. 2007. Phenomenological Psychology: Theory, Research and Method. London: Pearson Prentice Hall.
  • Lincoln, Y. S., and E. G. Guba. 1985. Naturalistic Enquiry. California: SAGE.
  • McStay, R. L., C. Dissanayake, A. Scheeren, H. M. Koot, and S. Begeer. 2014. “Parenting Stress and Autism: The Role of Age, Autism Severity, Quality of Life and Problem Behaviour of Children and Adolescents with Autism.” Autism 18 (5): 502–510. https://doi.org/10.1177/1362361313485163.
  • Mitchell, W., and B. Beresford. 2014. “Young People with High-Functioning Autism and Asperger's Syndrome Planning for and Anticipating the Move to College: What Supports a Positive Transition?” British Journal of Special Education 41 (2): 151–171. https://doi.org/10.1111/1467-8578.12064.
  • Moodie-Dyer, A., H. D. Joyce, D. Anderson-Butcher, and J. Hoffman. 2014. “Parent–Caregiver Experiences with the Autism Spectrum Disorder Service Delivery System.” Journal of Family Social Work 17 (4): 344–362. https://doi.org/10.1080/10522158.2014.903581.
  • O’Neill, S. C., I. Strnadová, and T. M. Cumming. 2016. “Evidence-Based Transition Planning for Secondary Students with Disabilities: What Has Australia Signed Up for?” Australasian Journal of Special Education 40 (1): 39–58. https://doi.org/10.1017/jse.2015.15.
  • Pfeiffer, B., A. Piller, T. Giazzoni-Fialko, and A. Chainani. 2017. “Meaningful Outcomes for Enhancing Quality of Life for Individuals with Autism Spectrum Disorder.” Journal of Intellectual and Developmental Disability 42 (1): 90–100. https://doi.org/10.3109/13668250.2016.1197893.
  • Queensland Government. 2020. Inclusive Education Policy. Brisbane: Department of Education. http://ppr.det.qld.gov.au/pif/policies/Documents/Inclusive-education-policy.pdf.
  • Rainart, F., and C. Bond. 2018. “A Qualitative Study of Specialist Schools’ Processes of Eliciting the Views of Young People with Autism Spectrum Disorders in Planning Their Transition to Adulthood.” British Journal of Special Education 45 (1): 5–25. https://doi.org/10.1111/1467-8578.12203.
  • Smith, L. E., and K. A. Anderson. 2014. “The Roles and Needs of Families of Adolescents with ASD.” Remedial and Special Education 35 (2): 114–122. https://doi.org/10.1177/0741932513514616.
  • Smith, J.A., Flowers, P., and Larkin, M. (2009). Interpretative Phenomenological Analysis: Theory, Method and Research. London: SAGE.
  • Smith, L. E., J. S. Greenberg, and M. R. Mailick. 2012. “Adults with autism: Outcomes, family effects, and the multi-family group psychoeducation model.” Current Psychiatry Reports 14 (6): 732–738. https://doi.org/10.1007/s11920-012-0328-1
  • Snell-Rood, C., L. Ruble, H. Kleinert, J. H. McGrew, M. Adams, A. Rodgers, J. Odom, W. H. Wong, and Y. Yu. (2020). Stakeholder Perspectives on Transition Planning, Implementation, and Outcomes for Students with Autism Spectrum Disorder.” Autism 24 (5). https://doi.org/10.1177/1362361319894827.
  • Strnadová, I., and T. M. Cumming. 2014. “The Importance of Quality Transition Processes for Students with Disabilities Across Settings: Learning from the Current Situation in New South Wales.” Australian Journal of Education 58 (3): 318–336. https://doi.org/10.1177/0004944114543603.
  • Taylor, J. l., and M. R. Mailick. 2014. “A longitudinal examination of 10-year change in vocational and educational activities for adults with autism spectrum disorders.” Developmental Psychology 50 (3): 699–708. https://doi.org/10.1037/a0034297.
  • Thompson, C., S. Bolte, T. Falkmer, and S. Girdler. 2018. “To be Understood: Transitioning to Adult Life for People with Autism Spectrum Disorder.” PLoS ONE 13 (3): e0194758. https://doi.org/10.1371/journal.pone.0194758.
  • Tobin, M. C., K. D. R. Drager, and L. F. Richardson. 2014. “A Systematic Review of Social Participation for Adults with Autism Spectrum Disorders: Support, Social Functioning, and Quality of Life.” Research in Autism Spectrum Disorders 8 (3): 214–229. https://doi.org/10.1016/j.rasd.2013.12.002.
  • Willig, C. 2013. Introducing Qualitative Research in Psychology. (3rd edition). UK: Open University.
  • Yardley, L. 2008. “Demonstrating Validity in Qualitative Psychology.” In Qualitative Psychology: A Practical Guide to Research Methods, edited by J. A. Smith, 235–251. London: SAGE.

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