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Original Articles

Awareness in dementia: Ethical and legal issues in relation to people with dementia

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Pages 423-429 | Received 03 Feb 2004, Accepted 10 Sep 2004, Published online: 19 Oct 2010

References

  • Allan K 2001 Communication and consultation: Exploring ways for staff to involve people with dementia in developing services Bristol Policy Press
  • Baldwin , C , Hughes , J , Hope , T , Jacoby , R and Ziebland , S . 2003 . Ethics and dementia: Mapping the literature by bibliometric analysis . International Journal of Geriatric Psychiatry , 18 : 41 – 54 .
  • Bamford , C , Lamont , S , Eccles , M , Robinson , L , May , C and Bond , J . 2004 . Disclosing a diagnosis of dementia: A systematic review . International Journal of Geriatric Psychiatry , 19 : 151 – 169 .
  • Bennett R Harris J 2000 Dementia and end of life decisions In J. O'Brien, D. Ames, & A. Burns (Eds.) Dementia 2nd ed. pp. 279–281 London Arnold
  • Berghmans , RLP and Ter Meulen , RHJ . 1995 . Ethical issues in research with dementia patients . International Journal of Geriatric Psychiatry , 10 : 647 – 651 .
  • Bond , J , Corner , L , Lilley , A and Ellwood , C . 2002 . Medicalization of insight and caregivers' response to risk in dementia . Dementia , 1 : 313 – 328 .
  • Bravo , G , Paquet , M and Dubois , MF . 2003 . Opinions regarding who should consent to research on behalf of an older adult suffering from dementia . Dementia , 2 : 49 – 65 .
  • Clare , L . 2002a . We'll fight it as long as we can: Coping with the onset of Alzheimer's disease . Aging & Mental Health , 6 : 139 – 148 .
  • Clare , L . 2002b . Developing awareness about awareness in early-stage dementia: The role of psychosocial factors . Dementia , 1 : 295 – 312 .
  • Clare , L . 2003 . Managing threats to self: Awareness in early-stage Alzheimer's disease . Social Science and Medicine , 57 : 1017 – 1029 .
  • Clare , L . 2004 . The construction of awareness in early-stage Alzheimer's disease: A review of concepts and models . British Journal of Clinical Psychology , 43 : 155 – 175 .
  • Cox , J . 2003 . Why do we ignore these ethical issues? . Journal of Dementia Care , 11 : 25 – 28 .
  • Downs , M , Clibbens , R , Rae , C , Cook , A and Woods , R . 2002 . What do general practitioners tell people with dementia and their families about the condition? A survey of experiences in Scotland . Dementia , 1 : 47 – 58 .
  • Fazel S 2002 Competence In R. Jacoby & C. Oppenheimer (Eds.) Psychiatry in the elderly 3rd ed. pp. 941–950 Oxford Oxford University Press
  • Forbat , L . 2003 . Relationship difficulties in dementia care: A discursive analysis of two women's accounts . Dementia , 2 : 67 – 84 .
  • Froggatt A 1988 Self-awareness in early dementia In: Gearing, B., Johnson, M., & Heller, T. (Eds) Mental health problems in an old age: a reader Chichester Wiley University Press Paper 16
  • Gillies B 1995 The subjective experience of dementia, University of Dundee
  • Gillies , B . 2000 . A memory like clockwork: accounts of living through dementia . Aging & Mental Health , 4 : 366 – 374 .
  • Holden UP Woods RT 1995 Positive approaches to dementia care (3rd ed.) Edinburgh Churchill Livingstone
  • Holroyd , S , Turnbull , Q and Wolf , AM . 2002 . What are patients and their families told about the diagnosis of dementia? Results of a family survey . International Journal of Geriatric Psychiatry , 17 : 218 – 221 .
  • Hughes JC 2002 Ethics and the psychiatry of old age In R. Jacoby & C. Oppenheimer (Eds.) Psychiatry in the elderly 3rd ed. pp. 863–895 Oxford Oxford University Press
  • Hughes , JC , Hope , T , Savulescu , J and Ziebland , S . 2002 . Carers, ethics and dementia: A survey and review of the literature . International Journal of Geriatric Psychiatry , 17 : 35 – 40 .
  • James , IA , Powell , I , Smith , T and Fairbairn , A . 2003 . Lying to residents: Can the truth sometimes be unhelpful for people with dementia? . PSIGE Newsletter , 82 : 26 – 28 .
  • Jha , A , Tabet , N and Orrell , M . 2001 . To tell or not to tell: Comparison of older patients' reaction to their diagnosis of dementia and depression . International Journal of Geriatric Psychiatry , 16 : 879 – 885 .
  • Keady , J and Nolan , M . 1995 . IMMEL: Assessing coping responses in the early stages of dementia . British Journal of Nursing , 4 : 309 – 380 .
  • Kitwood , T . 1995a . Exploring the ethics of dementia research: A response to Berghmans and ter Meulen . International Journal of Geriatric Psychiatry , 10 : 655 – 657 .
  • Kitwood , T . 1995b . Positive long-term changes in dementia: some preliminary observations . Journal of Mental Health , 4 : 133 – 144 .
  • Kitwood , T . 1997 . The experience of dementia . Aging & Mental Health , 3 : 179 – 183 .
  • Lord Chancellor's Department 1999 Making decisions: The government's proposals for making decisions on behalf of mentally incapacitated adults London HMSO
  • Lyman , K . 1989 . Bringing the social back in: A critique of the biomedicalization of dementia . Gerontologist , 29 : 597 – 604 .
  • Maguire , CP , Kirby , M , Wen , R , Coakley , D , Lawlor , BA and O'Neill , D . 1996 . Family members' attitudes towards telling the patient with AD their diagnosis . BMJ , 313 : 529 – 530 .
  • Marková , IS , Clare , L , Wang , M , Romero , B and Kenny , G . 2005 . Awareness in dementia: conceptual issues . Aging & Mental Health , 9 ( 5 ) : 386
  • O'Neill D 2000 Driving In J. O'Brien, D. Ames, & A. Burns (Eds.) Dementia 2nd ed. pp. 282–289 London Arnold
  • O'Neill D 2002 Driving and psychiatric illness in later life In R. Jacoby & C. Oppenheimer (Eds.) Psychiatry in the elderly 3rd ed. pp. 966–976 Oxford Oxford University Press
  • Posener H Jacoby R 2002 Testamentary capacity In R. Jacoby & C. Oppenheimer (Eds.) Psychiatry in the elderly 3rd ed. pp. 932–940 Oxford Oxford University Press
  • Pratt R 2002 “Nobody's ever asked how I felt.” In H. Wilkinson (Ed.) The perspectives of people with dementia: Research methods and motivations London Jessica Kingsley Publishers
  • Pratt R Wilkinson H 2001 “Tell me the truth”: The effect of being told the diagnosis of dementia from the perspective of the person with dementia London Mental Health Foundation
  • Pratt , R and Wilkinson , H . 2003 . A psychosocial model of understanding the experience of receiving a diagnosis of dementia . Dementia , 2 : 181 – 199 .
  • Sabat S 2001 The experience of Alzheimer's disease: Life through a tangled veil Oxford Blackwell
  • Sinason V 1992 The man who was losing his brain In V. Sinason (Ed.) Mental handicap and the human condition: New approaches from the Tavistock pp. 87–110 London Free Association Books
  • Wilber , KH and Zarit , SH . 1999 . To decide or not to decide for others: Competency, choice and consequences . Aging & Mental Health , 3 : 277 – 280 .
  • Woods , B . 1999 . The person in dementia care . Generations , 23 : 35 – 39 .
  • Woods , RT . 2001 . Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects . Aging & Mental Health , 5 : S7 – S16 .

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