Impact of diagnostic disclosure in dementia on patients and carers: Qualitative case series analysis

References

• Bamford , C , Lamont , S , Eccles , M , Robinson , L , May , C and Bond , J . 2004 . Disclosing a diagnosis of dementia: A systematic review . International Journal of Geriatric Psychiatry , 19 : 151 – 169 .
   PubMed Web of Science ®Google Scholar
• Bender , MP and Cheston , R . 1997 . Inhabitants of a Lost Kingdom . Ageing and Society , 17 : 513 – 532 .
   Web of Science ®Google Scholar
• Britten , N . 1995 . Qualitative interviews in medical research . British Medical Journal , 311 : 251 – 253 .
   PubMed Web of Science ®Google Scholar
• Carpenter , B and Dave , J . 2004 . Disclosing a dementia diagnosis: A review of opinion and practice, and a proposed research agenda . Gerontologist , 44 : 149 – 158 .
   PubMed Web of Science ®Google Scholar
• Clare , L . 2002 . We’ll fight it as long as we can: Coping with the onset of Alzheimer's disease . Aging & Mental Health , 6 : 139 – 148 .
   PubMed Web of Science ®Google Scholar
• Clare , L . 2003 . Managing threats to self: Awareness in early stage Alzheimer's disease . Social Science & Medicine , 57 : 1017 – 1029 .
   PubMed Web of Science ®Google Scholar
• Connell , CM and Gallant , MP . 1996 . Spouse caregivers’ attitudes toward obtaining a diagnosis of a dementing illness . Journal of the American Geriatric Society , 44 : 1003 – 1009 .
   PubMed Web of Science ®Google Scholar
• Corbin , J and Strauss , A . 1990 . Grounded theory research: Procedures, canons and evaluative criteria . Qualitative Sociology , 13 : 3 – 21 .
   Web of Science ®Google Scholar
• Derksen , E , Vernooij-Dassen , M , Gillissen , F , Olde Rikkert , M and Scheltens , P . 2005 . The impact of diagnostic disclosure in dementia: A qualitative case analysis . International Psychogeriatrics , 17 : 319 – 326 .
   Google Scholar
• Doraiswamy , PM , Steffens , DC , Pitchumoni , S and Tabrizi , S . 1998 . Early recognition of Alzheimer's disease: What is consensual? What is controversial? What is practical? . Journal of Clinical Psychiatry , 59 ( Suppl. 13 ) : 6 – 18 .
   PubMed Web of Science ®Google Scholar
• Fahy , M . 2003 . Secrets and lies: The dilemma of disclosing the diagnosis to an adult with dementia . Age & Ageing , 32 : 439 – 441 .
   Google Scholar
• Gillon , R . 1985 . Telling the truth and medical ethics . British Medical Journal (Clinical Research Edition) , 291 : 1556 – 1557 .
   Google Scholar
• Husband , HJ . 2000 . Diagnostic disclosure in dementia: An opportunity for intervention? . International Journal of Geriatric Psychiatry , 15 : 544 – 547 .
   PubMed Web of Science ®Google Scholar
• Jha , A , Tabet , N and Orrell , M . 2001 . To tell or not to tell—comparison of older patients’ reaction to their diagnosis of dementia and depression . International Journal of Geriatric Psychiatry , 16 : 879 – 885 .
   PubMed Web of Science ®Google Scholar
• Marzanski , M . 2000 . Would you like to know what is wrong with you? On telling the truth to patients with dementia . Journal of Medical Ethics , 26 : 108 – 113 .
   PubMed Web of Science ®Google Scholar
• Meyers , B . 1997 . Telling patients they have Alzheimer's disease . British Medical Journal , 314 : 321 – 323 .
   PubMed Web of Science ®Google Scholar
• Pinner , G and Bouman , WP . 2002 . To tell or not to tell . International Psychogeriatrics , 14 : 127 – 137 .
   PubMed Web of Science ®Google Scholar
• Pope , C and Mays , N . 1995 . Reaching the parts other methods cannot reach: An introduction to qualitative methods in health and health services research . British Medical Journal , 311 : 42 – 45 .
   PubMed Web of Science ®Google Scholar
• Rice , K , Warner , N , Tye , T and Bayer , A . 1997 . Telling the diagnosis to patients with Alzheimer's disease. Geriatricians’ and psychiatrists’ practice differs . British Medical Journal , 314 : 376
   Google Scholar
• Rymer , S . 2002 . Impaired awareness, behaviour disturbance and caregiver burden in Alzheimer Disease . Alzheimer Disease & Associated Disorders , 16 : 248 – 253 .
   PubMed Web of Science ®Google Scholar
• van Hout , H , Vernooij-Dassen , M , Hoefnagels , W and Grol , R . 2001 . Measuring the opinions of memory clinic users: Patients, relatives and general practitioners . International Journal of Geriatric Psychiatry , 16 : 846 – 851 .
   PubMed Web of Science ®Google Scholar
• Vernooij-Dassen , M . 2003 . Information for dementia patients and their caregivers . Aging & Mental Health , 7 : 34 – 38 .
   PubMed Web of Science ®Google Scholar
• Wester , F . 1995 . Strategies for qualitative research [Strategieën voor kwalitatief onderzoek] , Bussum, , The Netherlands : Coutinho .
   Google Scholar
• Woods , RT , Moniz-Cook , E , Iliffe , S , Campion , P , Vernooij-Dassen , M Zanetti , O . 2003 . Dementia: Issues in early recognition and intervention in primary care . Journal of the Royal Society of Medicine , 96 : 320 – 324 .
   PubMed Web of Science ®Google Scholar