8,462
Views
141
CrossRef citations to date
0
Altmetric
Original Article

Emotional impact of dementia diagnosis: Exploring persons with dementia and caregivers’ perspectives

, , &
Pages 281-290 | Received 31 Mar 2006, Accepted 26 Jul 2006, Published online: 01 Jun 2007

References

  • Agarwal , MR , Ferran , J and Wolson , KC . 1996 . Ethics of ‘informed consent’ in dementia research- the debate continues . International Journal of Geriatric Psychiatry , 11 : 801 – 806 .
  • Bahro , M , Silber , E and Sunderland , T . 1995 . How do patients with Alzheimer's disease cope with their illness? A clinical experience report . Journal of the American Geriatrics Society , 43 : 41 – 46 .
  • Bamford , C , Lamont , S , Eccles , M , Robinson , L May , C . 2004 . Disclosing a diagnosis of dementia: A systematic review . International Journal of Geriatric Psychiatry , 19 : 151 – 169 .
  • Bender , MP and Cheston , R . 1997 . Inhabitants of a lost kingdom: A model of the subjective experiences of dementia . Aging and Society , 17 : 513 – 532 .
  • Biernacki , C . 2003 . Should dementia patients be informed about their diagnosis? . Professional Nurse , 19 : 198 – 202 .
  • Bond , J and Corner , L . 2001 . Researching dementia: Are there unique methodological challenges for health service research? . Aging and Society , 21 : 95 – 116 .
  • Bryden , C . 2002 . A person-centred approach to counselling, psychotherapy and rehabilitation of people diagnosed with dementia in the early stages . Dementia , 1 : 141 – 156 .
  • Burns , A , Guthrie , E , Marino-Francis , F Busby , C . 2005 . Brief psychotherapy in Alzheimer's disease: Randomized controlled trial . British Journal of Psychiatry , 187 : 143 – 147 .
  • Cheston , R . 1998 . Psychotherapeutic work with people with dementia: A review of the literature . British Journal of Medical Psychology , 71 : 211 – 231 .
  • Cheston , R and Bender , M . 1999 . Brains, minds, and selves: Changing conceptions of the losses involved in dementia . British Journal of Medical Psychology , 72 : 203 – 216 .
  • Cheston , R , Jones , K and Gilliard , J . 2003 . Group psychotherapy and people with dementia . Aging and Mental Health , 7 : 452 – 461 .
  • Clare , L . 2003 . Managing threats to self: Awareness in early stage Alzheimer's disease . Social Science & Medicine , 57 : 1017 – 1029 .
  • Cohen , D , Kennedy , G and Eisdorfer , C . 1984 . Phases of change in the patient with Alzheimer's dementia: A conceptual dimension of defining health care management . Journal of the American Geriatrics Society , 32 : 11 – 15 .
  • Connell , CM , Roise , L , Stuckey , JC , Holmes , SB and Hudson , ML . 2004 . Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians . The Gerontologist , 44 : 500 – 507 .
  • Dewing , J . 2002 . From ritual to relationship: A person-centred approach to consent in qualitative research with older people who have a dementia . Dementia , 1 : 157 – 171 .
  • Fearnley , K , Mclennan , J and Weaks , D . 1997 . The right to know? Sharing the diagnosis of dementia. . Alzheimer Scotland Action on Dementia ,
  • Groopman , J . 2002 . The anatomy of hope: How people prevail in the face of illness , New York : Random House .
  • Gwyther , LP . 1997 . The perspective of the person with Alzhemier disease: Which outcomes matter in early to middle stages of dementia? . Alzheimer Disease and Associated Disorders , 11 : 18 – 24 .
  • Harman , G and Clare , L . 2006 . Illness representations and lived experience in early-stage dementia . Qualitative Health Research , 16 : 484 – 502 .
  • Henderson , CS and Andrews , N . 1998 . Partial view: An Alzheimer's journal , Dallas : Southern Methodist University Press .
  • Husband , HJ . 2000 . Diagnosis disclosure in dementia: An opportunity for intervention? . International Journal of Geriatric Psychiatry , 15 : 544 – 547 .
  • Husband , HJ . 1999 . The psychological consequences of learning a diagnosis of dementia: Three case examples . Aging and Mental Health , 3 : 179 – 183 .
  • Jha , A , Tabet , N and Orrell , M . 2001 . To tell or not to tell: Comparison of older patients’ reaction to their diagnosis of dementia and depression . International Journal of Geriatric Psychiatry , 16 : 879 – 885 .
  • Johnson , H , Bouman , WP and Pinner , G . 2000 . Dementia: On telling the truth in Alzheimer's disease – a pilot study of current practice and attitudes . International Psychogeriatrics , 12 : 221 – 229 .
  • Katsuno , T . 2005 . Dementia for the inside: How people with early stage dementia evaluate their quality of life . Aging and Society , 25 : 197 – 214 .
  • Keady , J and Nolan , M . 1995 . IMMEL 2: Working to augment coping responses in early dementia . British Journal of Nursing , 4 : 377 – 380 .
  • Kitwood , T . 1990 . The dialectics of dementia: With particular reference to Alzheimer's disease . Aging and Society , 10 : 177 – 196 .
  • Mckillop , J and Wilkinson , H . 2004 . Make it easy on yourself! Advice to researchers from someone with dementia on being interviewed . Dementia , 3 : 117 – 125 .
  • Markova , IS , Clare , L , Wange , M , Romero , B and Kenny , G . 2005 . Awareness in dementia: Conceptual issues . Aging & Mental Health , 9 : 386 – 393 .
  • Pearce , A , Clare , L and Pistrang , N . 2002 . Managing sense of self: Coping in the early stages of Alzheimer's disease . Dementia , 1 : 173 – 192 .
  • Pinner , G and Bouman , WP . 2002 . To tell or not to tell: On disclosing the diagnosis of dementia . International Psychogeriatrics , 14 : 127 – 137 .
  • Pinner , G . 2000 . Truth telling and the diagnosis of dementia . British Journal of Psychiatry , 176 : 514 – 515 .
  • Post , SG , Whitehouse , PJ and Fairhill . 1995 . Guidelines on Ethics of the Care of People with Alzheimer's Disease: A Clinical Summary . Journal of American Geriatric Society , 43 : 1423 – 1429 .
  • Post , SG . 1992 . Ethics and dementia: Current issues- biological markers and truth telling . Alzheimer Disease and Associated Disorders , 6 : 201 – 203 .
  • Poveda , AM . 2003 . An anthropological perspective of Alzheimer disease . Geriatric Nursing , 24 : 26 – 31 .
  • Pratt , R and Wilkinson , H . 2001 . Tell me the truth: The effect of being told the diagnosis of dementia from the perspective of the person with dementia. , Centre for Social Research on Dementia, University of Stirling .
  • Rohde , K , Peskind , ER and Raskind , MA . 1995 . Suicide in two patients with Alzheimer's disease . Journal of the American Geriatrics Society , 43 : 187 – 189 .
  • Smith , A , King , E , Hindley , N , Barnetson , L Barton , J . 1998 . The experience of research participation and the value of diagnosis in dementia: Implications for practice . Journal of Mental Health , 7 : 309 – 321 .
  • Watkins , R , Cheston , R , Jones , K and Gillard , J . 2006 . ‘Coming out’ with Alzheimer's disease: Changes in awareness during a psychotherapy group for people with dementia . Aging & Mental Health , 10 : 166 – 176 .
  • Wilkinson , H and Milne , AJ . 2003 . Sharing a diagnosis of dementia- learning from the patient perspective . Aging and Mental Health , 7 : 300 – 307 .
  • Woods , RT . 2001 . Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects . Aging and Mental Health , 5 : S7 – S16 .
  • Woods , B and Pratt , B . 2005 . Awareness in dementia: Ethical and legal issues in relation to people with dementia . Aging & Mental Health , 9 : 423 – 429 .
  • Yale , R . 1999 . Support groups and other services for individuals with early-stage Alzheimer's disease . Generations , 23 : 57 – 61 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.