What is meaningful activity for people with dementia living in care homes? A comparison of the views of older people with dementia, staff and family carers

References

• Allen , CK . 1985 . Occupational therapy for psychiatric diseases; measurement and management of cognitive disabilities , Boston, MA : Little, Brown and Co .
   Google Scholar
• Altus , DE , Engleman , KK and Mathews , RM . 2002 . Using family-style meals to increase participation and communication in persons with dementia . Journal of Gerontological Nursing , 28 ( 9 ) : 47 – 53 .
   PubMedGoogle Scholar
• American Psychiatric Association . 1994 . Diagnostic and statistical manual of mental disorders , 4th , Washington, DC : American Psychiatric Association .
   Google Scholar
• Arthur , A , Mathews , R , Jagger , C and Lindesay , J . 2002 . Factors associated with antidepressant treatment in residential care: Changes between 1990 and 1997 . International Journal of Geriatric Psychiatry , 17 ( 1 ) : 54 – 60 .
   PubMedGoogle Scholar
• Atwal , A , Owen , S and Davies , R . 2003 . Struggling for occupational satisfaction: Older people in care homes . British Journal of Occupational Therapy , 66 ( 3 ) : 118 – 124 .
   Google Scholar
• Aubin , G , Hachey , R and Mercier , C . 2002 . The significance of daily activities for people with severe mental disorders . Canadian Journal of Occupational Therapy , 69 ( 4 ) : 218 – 227 .
   PubMedGoogle Scholar
• Audit Commission . 2002 . Forget-me-not: Mental health services for older people , London : Audit Commission .
   Google Scholar
• Barnett , E . 2000 . Including the person with dementia in designing and delivering care: ‘I need to be me!’ , London : Jessica Kingsley .
   Google Scholar
• Blesedell , CE , Cohn , ES and Boyt , SBA . 2003 . Willard and Spackman's occupational therapy , 10th , Philadelphia, PA : Lippincot, Williams and Wilkins .
   Google Scholar
• Bowlby-Sifton , C . 2000 . “ Maximizing the functional abilities of persons with Alzheimer's disease and related dementias ” . In Interventions in dementia care: Toward improving quality of life , Edited by: Powell Lawton , M and Rubinstein , RL . New York : Springer .
   Google Scholar
• Bowling , A . 1997 . Research methods in health, investigating health and health services , Buckingham : Open University Press .
   Google Scholar
• Brooker , D and Duce , L . 2000 . Wellbeing and activity in dementia: A comparison of group reminiscence therapy, structured goal-directed group activity and unstructured time . Aging and Mental Health , 4 ( 4 ) : 354 – 358 .
   Web of Science ®Google Scholar
• Buzan , T and Buzan , B . 2003 . The mind map book , Harlow : BBC Active .
   Google Scholar
• Centre for Policy on Ageing . 1996 . A better home life: A code of good practice for residential and nursing home care for older people , London : Centre for Policy on Ageing .
   Google Scholar
• Coleman , PG . 2005 . Uses of reminiscence: Functions and benefits . Aging and Mental Health , 9 ( 4 ) : 291 – 294 .
   PubMed Web of Science ®Google Scholar
• College of Occupational Therapists . 1998 . Submission to the royal commission on the long term care of the elderly , London : COT .
   Google Scholar
• Csikszentmihalyi , M . 1993 . Activity and happiness: Towards a science of occupation . Journal of Occupational Science, Australia , 1 ( 1 ) : 38 – 42 .
   Google Scholar
• Csikszentmihalyi , M . 1997 . Finding flow: The psychology of engagement with everyday life , New York : Harper Collins .
   Google Scholar
• Cummings , SM . 2002 . Predictors of psychological well-being among assisted-living residents . Health and Social Work , 27 ( 4 ) : 293 – 302 .
   PubMed Web of Science ®Google Scholar
• Feil , N . 1993 . The validation breakthrough , Baltimore, MD : Health Professions Press .
   Google Scholar
• Folstein , MF , Folstein , SE and McHugh , PR . 1975 . ‘Mini-mental state’. A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
   PubMed Web of Science ®Google Scholar
• Gilleard , G and Higgs , P . 2000 . Cultures of ageing, self, citizen and the body , London : Pearson Education .
   Google Scholar
• Goldberg , B , Brintnell , ES and Goldberg , J . 2002 . The relationship between engagement in meaningful activities and quality of life in persons disabled by mental illness . Occupational Therapy in Mental Health , 18 ( 2 ) : 17 – 41 .
   Google Scholar
• Gotell , E , Brown , S and Ekman , SL . 2003 . Influence of caregiver singing and background music on posture, movement and sensory awareness in dementia care . International Psychogeriatrics , 15 ( 4 ) : 411 – 430 .
   PubMed Web of Science ®Google Scholar
• Green , S and Cooper , BA . 2000 . Occupation as a quality of life constituent: A nursing home perspective . British Journal of Occupational Therapy , 63 ( 1 ) : 17 – 24 .
   Google Scholar
• Hancock , GA , Woods , RT , Challis , D and Orrell , M . 2006 . The needs of older people with dementia in residential care . International Journal of Geriatric Psychiatry , 21 ( 1 ) : 43 – 49 .
   PubMed Web of Science ®Google Scholar
• Hasselkus , BR . 2002 . The meaning of everyday occupation , New Jersey : Slack .
   Google Scholar
• Heath , H and Schofield , I . 1999 . Healthy ageing: Nursing older people , London : Harcourt .
   Google Scholar
• Hertzberg , A and Ekmen , SL . 2000 . ‘We, not them and us?’ Views on the relationships and interactions between staff and relatives of older people permanently living in nursing homes . Journal of Advanced Nursing , 31 ( 3 ) : 614 – 622 .
   PubMed Web of Science ®Google Scholar
• Hoe , J , Hancock , G , Livingston , G and Orrell , M . 2006 . Quality of life of people with dementia in residential care homes . British Journal of Psychiatry , 188 : 460 – 464 .
   PubMed Web of Science ®Google Scholar
• Holst , G and Halberg , IR . 2003 . Exploring the meaning of everyday life, for those suffering from dementia . American Journal of Alzheimer's Disease and Other Dementias , 18 : 359 – 365 .
   PubMedGoogle Scholar
• Jarrott , SE and Bruno , K . 2003 . Intergenerational activities involving persons with dementia: An observational assessment . American Journal of Alzheimer's Disease and Other Dementias , 18 : 31 – 37 .
   PubMedGoogle Scholar
• Jonas-Simpson , C , Mitchell , GJ , Fisher , A , Jones , G and Linscot , J . 2006 . The experience of being listened to: A qualitative study of older adults in long term care settings . Journal of Gerontological Nursing , 32 ( 1 ) : 46 – 53 .
   PubMed Web of Science ®Google Scholar
• Killick , J and Allan , K . 2001 . Communication and the care of people with dementia , Buckingham : Open University Press .
   Google Scholar
• Kitwood , T . 1997 . Dementia reconsidered: The person comes first , Buckingham : Open University Press .
   Google Scholar
• Kitwood , T . 1998 . Professional and moral development for care work: Some observations on the process . Journal of Moral Education , 27 ( 3 ) : 401 – 411 .
   PubMed Web of Science ®Google Scholar
• Kovach , CR and Henschel , H . 1996 . Planning activities for patients with dementia: A descriptive study of therapeutic activities on special care units . Journal of Gerontological Nursing , 22 ( 9 ) : 33 – 38 .
   PubMedGoogle Scholar
• Krueger , RA and Casey , MA . 2000 . Focus groups. A practical guide for applied research , Thousand Oaks, CA : Sage .
   Google Scholar
• Law , M . 2002 . Participation in the occupations of everyday life . American Journal of Occupational Therapy , 56 ( 6 ) : 640 – 649 .
   PubMed Web of Science ®Google Scholar
• Lawton , M and Rubenstein , RL . 2000 . Interventions in dementia care: Toward improving quality of life , New York : Springer .
   Google Scholar
• Legarth , KH , Ryan , S and Avlund , K . 2005 . The most important activity and the reasons for that experience reported by a Danish population at age 75 years . British Journal of Occupational Therapy , 68 ( 11 ) : 501 – 508 .
   Google Scholar
• Levin , E . 1989 . Noticeable problems checklist , London : National Institute for Social Work .
   Google Scholar
• Livingston , G , Johnston , K , Katona , C , Paton , J and Lyketsos , CG . 2005 . Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia . American Journal of Psychiatry , 162 : 1996 – 2021 .
   PubMed Web of Science ®Google Scholar
• Marshall , MJ and Hutchinson , SA . 2001 . A critique of research on the use of activities with persons with Alzheimer's disease: A systematic literature review . Journal of Advanced Nursing , 35 ( 4 ) : 488 – 496 .
   PubMed Web of Science ®Google Scholar
• McDonald , AJD , Carpenter , GI , Box , O , Roberts , A and Sahu , S . 2002 . Dementia and use of psychotropic medication in non-‘Elderly Mentally Infirm’ nursing homes in South East England . Age and Ageing , 31 ( 1 ) : 58 – 64 .
   PubMedGoogle Scholar
• Mee-Fang , L . 2001 . The use of music to decrease agitated behaviour of the demented elderly: The state of the science . Scandinavian Journal of Caring Sciences , 5 ( 2 ) : 165 – 173 .
   Google Scholar
• Menne , HL , Kinney , JM and Morhardt , DJ . 2002 . ‘Trying to continue to do as much as they can do’. Theoretical insights regarding continuity and meaning making in the face of dementia . Dementia , 1 ( 3 ) : 367 – 382 .
   Google Scholar
• Mozley , CG . 2001 . Exploring connections between occupation and mental health in care homes for older people . Journal of Occupational Science , 8 ( 3 ) : 14 – 19 .
   Google Scholar
• Murphy , C , Killick , J and Allan , K . 2001 . Hearing the user's voice: Encouraging people with dementia to reflect on their experiences of services , Stirling : Dementia Services Development Centre .
   Google Scholar
• National Institute of Clinical Excellence . 2006 . “ Clinical Guideline number 42 ” . In Supporting people with dementia and their carers in health and social care , London : Department of Health .
   Google Scholar
• Perrin , T . 1997a . “ The role and value of occupation in severe dementia ” . In Unpublished doctoral thesis , London : Bradford University. Available at College of Occupational Therapists .
   Google Scholar
• Perrin , T . 1997b . Occupational need in dementia care: A literature review and implications for practice . Health Care in Later Life , 2 ( 3 ) : 166 – 176 .
   Google Scholar
• Perrin , T and May , H . 2000 . Wellbeing in dementia, an occupational approach for therapists and carers , Edinburgh : Churchill Livingstone .
   Google Scholar
• Pool , J . 1999 . The Pool Activity Level (PAL) instrument: A practical resource for carers of people with dementia , London : Jessica Kingsley .
   Google Scholar
• Schreiner , AS , Yamamoto , E and Shiotani , H . 2005 . Positive affect among nursing home residents with Alzheimer's dementia: The effect of recreational activity . Aging and Mental Health , 9 ( 2 ) : 129 – 134 .
   PubMed Web of Science ®Google Scholar
• Scobbie , LM . 1994 . “ The value of user feedback in determining the quality of institutional care for older people ” . In Unpublished MSc thesis , London : University of Portsmouth. Available at the College of Occupational Therapists .
   Google Scholar
• Sherrat , K , Thornton , A and Hatton , C . 2004 . Music interventions for people with dementia: A review of the literature . Aging and Mental Health , 8 ( 1 ) : 3 – 12 .
   PubMedGoogle Scholar
• Singleton , JF and Harvey , A . 1995 . Stage of lifecycle and time spent in activities . Journal of Occupational Science: Australia , 2 ( 1 ) : 3 – 12 .
   Google Scholar
• Train , GH , Nurock , SA , Manela , M , Kitchen , G and Livingston , GA . 2005 . A qualitative study of the views of residents with dementia, their relatives and staff about work practice in long term care settings . Aging and Mental Health , 9 ( 2 ) : 119 – 128 .
   PubMed Web of Science ®Google Scholar
• Vink , AC , Birks , JS , Bruinsma , MS and Scholten , RJPM . 2003 . “ Music therapy for people with dementia ” . In Cochrane Database of Systematic Reviews Issue 4. Retrieved 1 September 2006 from www.nelh.nhs.uk
   Google Scholar
• Voelkl , JE , Winkelhake , K , Jeffries , J and Yoshioka , N . 2003 . Examination of a nursing home environment: Are residents engaged in recreation activities? . Therapeutic Recreation Journal , 37 ( 4 ) : 300 – 314 .
   Google Scholar
• Wenborn , J , Challis , D , Pool , J , Burgess , J , Elliott , N and Orrell , M . 2008 . Assessing the validity and reliability of the Pool Activity Level (PAL) Checklist for use with older people with dementia . Aging & Mental Health , 12 : 202 – 211 .
   PubMed Web of Science ®Google Scholar
• Wilcock , A . 2003 . “ Occupational science: The study of humans as occupational beings ” . In Perspectives in human occupation, participation in life , Edited by: Kramer , P , Hinojosa , J and Royen , CB . Philadelphia, PA : Lippincott Williams and Wilkins .
   Google Scholar
• Woods , B , Spector , A , Jones , C , Orrell , M and Davies , S . 2006 . “ Reminiscence therapy for dementia ” . In Cochrane Database of Systematic Reviews 2005, Issue 2. Retrieved 1 September 2006 from www.nelh.nhs.uk
   Google Scholar
• Woods , RT . 1999 . Psychological problems of ageing, assessment, treatment and care , Wiley : Chichester .
   Google Scholar
• Wright , F . 2000 . The role of family care-givers for an older person resident in a care home . British Journal of Social Work , 30 ( 5 ) : 649 – 661 .
   Google Scholar
• Zimmerman , S , Sloane , PD , Williams , CS , Reed , PS , Preisser , JS Eckert , JK . 2005 . Dementia care and quality of life in assisted living and nursing homes . The Gerontologist , 45 ( 1 ) : 133 – 146 .
   PubMedGoogle Scholar