Dementia caregiving in spousal relationships: A dyadic perspective

References

• Alspaugh , MEL , Stephens , MAP , Townsend , AL , Zarit , SH and Greene , R . 1999 . Longitudinal patterns of risk for depression in dementia caregivers: Objective and subjective primary stress as predictors . Psychology and Aging , 14 ( 1 ) : 34 – 43 .
   PubMed Web of Science ®Google Scholar
• Baikie , E . 2002 . The impact of dementia on marital relationships . Sexual and Relationship Therapy , 17 ( 3 ) : 289 – 299 .
   Google Scholar
• Barnes , CL , Given , BA and Given , CW . 1992 . Caregivers of elderly relatives: Spouses and adult children . Health and Social Work , 17 ( 4 ) : 282 – 289 .
   PubMedGoogle Scholar
• Bertrand , RM , Fredman , L and Saczynski , J . 2006 . Are all caregivers created equal? Stress in caregivers to adults with and without dementia . Journal of Aging and Health , 18 ( 4 ) : 534 – 551 .
   PubMed Web of Science ®Google Scholar
• Bierhoff , HW and Grau , I . 1999 . Romantische Beziehungen , 106 Bern : Hans Huber .
   Google Scholar
• Bodenmann , G . 2000 . Stress und Coping bei Paaren , Göttingen : Hogrefe .
   Google Scholar
• Bondi , MW and Lange , KL . 1998 . Alzheimer's disease . Encyclopedia of Mental Health , 1 : 65 – 82 .
   Google Scholar
• Carpenter , BD , Kissel , EC and Lee , MM . 2007 . Preferences and life evaluations of older adults with and without dementia: Reliability, stability, and proxy knowledge . Psychology and Aging , 22 ( 3 ) : 650 – 655 .
   PubMed Web of Science ®Google Scholar
• Clare , L . 2002 . We’ll fight it as long as we can: Coping with the onset of Alzheimer's disease . Aging and Mental Health , 6 : 139 – 148 .
   PubMed Web of Science ®Google Scholar
• Cotrell , V and Schulz , R . 1993 . The perspective of the patient with Alzheimer's disease: A neglected dimension of dementia research . The Gerontologist , 33 ( 2 ) : 205 – 211 .
   PubMed Web of Science ®Google Scholar
• Danhauer , SC , Beckett , LA , McCann , JJ , Gilley , DW , Bienias , JL and Evans , DA . 2004 . Do behavioral disturbances in persons with Alzheimer's disease predict caregiver depression over time? . Psychology and Aging , 19 ( 1 ) : 198 – 202 .
   PubMed Web of Science ®Google Scholar
• DeVugt , ME , Stevens , F , Aalten , P , Lousberg , R , Jaspers , N Winkens , I . 2003 . Behavioural disturbances in dementia patients and quality of the marital relationship . International Journal of Geriatric Psychiatry , 18 : 149 – 154 .
   PubMed Web of Science ®Google Scholar
• Eloniemi-Sulkava , U , Notkola , IL , Hamalainen , K , Rahkonen , T , Viramo , P Hentinen , M . 2002 . Spouse caregivers’ perceptions of influence of dementia on marriage . International Psychogeriatrics , 14 ( 1 ) : 47 – 58 .
   PubMed Web of Science ®Google Scholar
• Franks , MM , Wendorf , CA , Gonzalez , R and Ketterer , M . 2004 . Aid and influence: Health-promoting exchanges of older married partners . Journal of Social and Personal Relationships , 21 ( 4 ) : 431 – 445 .
   Web of Science ®Google Scholar
• Gallagher-Thompson , D , Dal Canto , PG , Jacob , T and Thompson , LW . 2001 . A comparison of marital interaction patterns between couples in which the husband does or does not have Alzheimer's disease . The Journals of Gerontology Series B: Psychological Sciences and Social Sciences , 56 ( 3 ) : 140 – 150 .
   PubMed Web of Science ®Google Scholar
• Gaugler , JE , Davey , A , Pearlin , LL and Zarit , SH . 2000 . Modeling caregiver adaptation over time: The longitudinal impact of behavior problems . Psychology and Aging , 15 ( 3 ) : 437 – 450 .
   PubMed Web of Science ®Google Scholar
• Gergen , KJ and Gergen , MM . 1986 . Social psychology, , 2nd , New York : Springer .
   Google Scholar
• Gibbons , LE , Teri , L , Logsdon , RG and McCurry , SM . 2006 . Assessment of anxiety in dementia: An investigation into the association of different methods of measurement . Journal of Geriatric Psychiatry and Neurology , 19 ( 4 ) : 202 – 208 .
   PubMed Web of Science ®Google Scholar
• Gilhooly , ML , Sweeting , HN , Whittick , JE and McKee , K . 1994 . Family care of the dementing elderly . International Review of Psychiatry , 6 : 29 – 40 .
   Google Scholar
• Hellström , I , Nolan , M and Lundh , U . 2005 . We do things together. A case study of “couplehood” in dementia . Dementia , 4 ( 1 ) : 7 – 22 .
   Google Scholar
• Heru , AM , Ryan , CE and Iqbal , A . 2004 . Family functioning in the caregivers of patients with dementia . International Journal of Geriatric Psychiatry , 19 ( 6 ) : 533 – 537 .
   PubMed Web of Science ®Google Scholar
• Hooker , K , Bowman , SR , Coehlo , DP , Lim , SR , Kaye , J Guariglia , R . 2002 . Behavioral change in persons with dementia: Relationships with mental and physical health of caregivers . Journal of Gerontology: Psychological Sciences , 57 ( 5 ) : 453 – 460 .
   Google Scholar
• Horowitz , A and Shindelman , L . 1983 . Reciprocity and affection: Past influences on current caregiving . Journal of Gerontological Social Work , 5 ( 3 ) : 5 – 21 .
   Web of Science ®Google Scholar
• Kiecolt-Glaser , JK , Dura , JR , Speicher , CE , Trask , OJ and Glaser , R . 1991 . Spousal caregivers of dementia victims: Longitudinal changes in immunity and health . Psychosomatic Medicine , 53 : 345 – 362 .
   PubMed Web of Science ®Google Scholar
• Kneebone , I and Martin , P . 2003 . Coping and caregivers of people with dementia . British Journal of Health psychology , 8 : 1 – 17 .
   PubMed Web of Science ®Google Scholar
• Knop , DS , Bergman-Evans , B and McCabe , BW . 1998 . In sickness and in health: An exploration of the perceived quality of the marital relationship, coping, and depression in caregivers of spouses with Alzheimer's disease . Journal of Psychosocial Nursing and Mental Health Services , 36 ( 1 ) : 16 – 21 .
   PubMedGoogle Scholar
• Kramer , BJ . 1997 . Gain in the caregiving experience: where are we? What next? . The Gerontologist , 37 ( 2 ) : 218 – 232 .
   PubMed Web of Science ®Google Scholar
• Kramer , BJ . 2000 . Husbands caring for wives with dementia: A longitudinal study of continuity and change . Health and Social Work , 25 : 97 – 107 .
   PubMed Web of Science ®Google Scholar
• Lawrence , RH , Tennstedt , SL and Assmann , SF . 1998 . Quality of the caregiver-care recipient relationship: Does it offset negative consequences of caregiving for family caregivers? . Psychology and Aging , 13 ( 1 ) : 150 – 158 .
   PubMed Web of Science ®Google Scholar
• Lawton , MP , Moss , M , Hoffman , C and Perkinson , M . 2000 . Two transitions in daughters’ caregivings careers . The Gerontologist , 40 : 437 – 448 .
   PubMed Web of Science ®Google Scholar
• Lazarus , RS and Folkman , S . 1984 . Stress, appraisal, and coping , New York : Springer .
   Google Scholar
• Lee , M and Kolomer , SR . 2005 . Caregiver burden, dementia, and elder abuse in South Korea . Journal of Elder Abuse and Neglect , 17 ( 1 ) : 61 – 74 .
   PubMed Web of Science ®Google Scholar
• Lewis , ML , Hepburn , K , Narayan , S and Kirk , LN . 2005 . Relationship matters in dementia caregiving . American Journal of Alzheimer's Disease and Other Dementias , 20 ( 6 ) : 341 – 347 .
   PubMedGoogle Scholar
• Litzinger , S and Gordon , KC . 2005 . Exploring relationships among communication, sexual satisfaction, and marital satisfaction . Journal of Sex and Marital Therapy , 31 : 409 – 424 .
   PubMed Web of Science ®Google Scholar
• Lyons , KS , Zarit , SH , Sayer , AG and Whitlatch , CJ . 2002 . Caregiving as a dyadic process: Perspectives from caregiver and receiver . The journals of Gerontology. Series B: Psychological Services and Social Sciences , 58 ( 2 ) : 112 – 128 .
   Google Scholar
• Majerovitz , SD . 1995 . Role of family adaptability in the psychological adjustment of spouse caregivers to patients with dementia . Psychology and Aging , 10 ( 3 ) : 447 – 457 .
   PubMed Web of Science ®Google Scholar
• Meuser , TM and Marwit , SJ . 2001 . A comprehensive, stage-sensitive model of grief in dementia caregiving . The Gerontologist , 41 ( 5 ) : 658 – 700 .
   PubMed Web of Science ®Google Scholar
• Naglie , G , Tomlinson , G , Tansey , C , Irvine , J , Ritvo , P Black , SE . 2006 . Utility-based quality of life measures in Alzheimer's disease . Quality of Life Research , 15 ( 4 ) : 631 – 643 .
   PubMed Web of Science ®Google Scholar
• Narayan , S , Lewis , M , Tornatore , J , Hepburn , K and Corcoran-Perry , S . 2001 . Subjective responses to caregiving for a spouse with dementia . Journal of Gerontological Nursing , 27 ( 3 ) : 19 – 28 .
   PubMedGoogle Scholar
• Novella , JL , Boyer , F , Jochum , C , Jovenin , N , Morrone , I Jolly , D . 2006 . Health status in patients with Alzheimer's disease: An investigation of inter-rater agreement . Quality of Life Research , 15 ( 5 ) : 811 – 819 .
   PubMed Web of Science ®Google Scholar
• Nygard , L . 2006 . How can we get access to the experiences of people with dementia? Suggestions and reflections . Scandinavian Journal of Occupational Therapy , 13 ( 2 ) : 101 – 112 .
   PubMedGoogle Scholar
• Olson , DH . 2000 . Circumplex model of marital and family systems . Journal of Family Therapy , 22 ( 2 ) : 144 – 167 .
   Web of Science ®Google Scholar
• Pearce , A , Clare , L and Pistrang , N . 2002 . Managing sense of self. Coping in the early stages of Alzheimer's disease . Dementia , 1 ( 2 ) : 173 – 192 .
   Google Scholar
• Perren , S , Schmid , R , Herrmann , D and Wettstein , A . 2007 . The impact of attachment on dementia-related problem behavior and spousal caregivers’ well-being . Attachment & Human Development , 9 ( 2 ) : 163 – 178 .
   PubMed Web of Science ®Google Scholar
• Perren , S , Schmid , R and Wettstein , A . 2006 . Caregivers’ adaptation to change: The impact of increasing impairment of persons suffering from dementia on their caregiver's subjective well-being . Aging and Mental Health , 10 : 539 – 548 .
   PubMed Web of Science ®Google Scholar
• Polk , DM . 2005 . Communication and family caregiving for Alzheimer's dementia: Linking attributions and problematic integration . Health communication , 18 ( 3 ) : 257 – 273 .
   PubMed Web of Science ®Google Scholar
• Powers , DV , Gallagher-Thompson , D and Kraemer , HC . 2002 . Coping and depression in Alzheimer's caregivers: Longitudinal evidence of stability . The Journals of Gerontology Series B: Psychological Sciences and Social Sciences , 57 : 205 – 211 .
   PubMed Web of Science ®Google Scholar
• Pinquart , M and Soerensen , S . 2003 . Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis . Journals of Gerontology: Series B: Psychological Sciences and Social Sciences , 58 ( 2 ) : 112 – 128 .
   PubMed Web of Science ®Google Scholar
• Pinquart , M and Soerensen , S . 2006 . Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis . The Journals of Gerontology Series B: Psychological Sciences and Social Sciences , 61 : 33 – 45 .
   PubMed Web of Science ®Google Scholar
• Rankin , KP , Baldwin , E , Pace-Savitsky , C , Kramer , JH and Miller , BL . 2005 . Self awareness and personality change in dementia . Journal of Neurology, Neurosurgery and Psychiatry , 76 : 632 – 639 .
   PubMed Web of Science ®Google Scholar
• Reilly , MC , Relkin , NR and Zbrozek , AS . 2006 . Development and testing of a new outcome measure of relationship between patients with Alzheimer's disease and their partners . American Journal of Alzheimer's Disease & Other Dementias , 21 ( 4 ) : 249 – 257 .
   PubMedGoogle Scholar
• Sands , LP , Ferreira , P , Stewart , AL , Brod , M and Yaffe , K . 2004 . What explains differences between dementia patients’ and their caregivers’ ratings of patients’ quality of life? . American Journal of Geriatric Psychiatry , 12 : 272 – 280 .
   PubMed Web of Science ®Google Scholar
• Schulz , R and Williamson , GM . 1991 . A 2-year longitudinal study of depression among Alzheimer's caregivers . Psychology and Aging , 6 ( 4 ) : 569 – 578 .
   PubMed Web of Science ®Google Scholar
• Schulz , R , O’Brien , AT , Bookwala , J and Fleissner , K . 1995 . Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes . The Gerontologist , 35 ( 6 ) : 771 – 791 .
   PubMed Web of Science ®Google Scholar
• Searson , R , Hendry , AM , Ramachandran , R , Burns , A and Purandare , N . 2008 . Activities enjoyed by patients with dementia enjoyed with their spouses and psychological morbidity in carers . Aging and Mental Health , 12 ( 2 ) : 276 – 282 .
   PubMed Web of Science ®Google Scholar
• Simonelli , C , Tripodi , F , Rossi , R , Fabrizi , A , Lembo , D Cosmi , V . 2008 . The influence of caregiver burden on sexual intimacy and marital satisfaction in couples with an Alzheimer spouse . International Journal of Clinical Practice , 62 ( 1 ) : 47 – 52 .
   PubMed Web of Science ®Google Scholar
• Sink , KM , Covinsky , KE , Barnes , DE , Newcomer , RJ and Yaffe , K . 2006 . Caregiver characteristics are associated with neuropsychiatric symptoms of dementia . Journal of the American Geriatrics Society , 54 ( 5 ) : 796 – 803 .
   PubMed Web of Science ®Google Scholar
• Teri , L and Wagner , AW . 1991 . Assessment of depression in patients with Alzheimer's disease: Concordance among informants . Psychology and Aging , 6 ( 2 ) : 280 – 285 .
   PubMed Web of Science ®Google Scholar
• Thompson , RL , Lewis , SL , Murphy , MR , Hale , JM , Blackwell , PH Acton , GJ . 2004 . Are there sex differences in emotional and biological responses in spousal caregivers of patients with Alzheimer's disease? . Biological Research for Nursing , 5 ( 4 ) : 319 – 330 .
   PubMedGoogle Scholar
• Townsend , A , Noelker , L , Deimling , G and Bass , D . 1989 . Longitudinal impact of interhousehold caregiving on adult children's mental health . Psychology and Aging , 4 : 393 – 401 .
   PubMed Web of Science ®Google Scholar
• Vitaliano , PP , Zhang , J and Scanlan , JM . 2003 . Is caregiving hazardous to one's physical health? A meta-analysis . Psychological Bulletin , 129 ( 6 ) : 946 – 972 .
   PubMed Web of Science ®Google Scholar
• Walster , E , Traupmann , J and Walster , GW . 1978a . Equity and extramarital sexuality . Archives of Sexual Behavior , 7 ( 2 ) : 127 – 142 .
   PubMed Web of Science ®Google Scholar
• Walster , E , Walster , GW and Berscheid , E . 1978b . Equity: Theory and research , Boston : Allyn and Bacon .
   Google Scholar
• Weiss , RL and Heyman , RE . 1997 . “ A clinical overview of couples interactions ” . In Clinical handbook of marriage and couples interventions , Edited by: Halford , WK and Markman , HJ . 13 – 41 . New York : Wiley & Sons .
   Google Scholar
• Wright , LK . 1991 . The impact of Alzheimer's disease on the marital relationship . The Gerontologist , 31 ( 2 ) : 224 – 237 .
   PubMed Web of Science ®Google Scholar