Psychosocial interventions in dementia care research: The INTERDEM manifesto

References

• Aguirre , E , Spector , A , Hoe , J , Russell , IT , Knapp , M , Woods , RT and Orrell , M . 2010 . Maintenance cognitive stimulation therapy (CST) for dementia: A single-blind, multi-centre, randomized controlled trial of maintenance CST vs. CST for dementia . Trials , 11 : 46 doi:10.1186/1745-6215-11-46
   PubMedGoogle Scholar
• Breuil , V , de Rotrou , J , Forette , F , Tortrat , D , Ganasia-Ganem , A , Frambourt , A Boller , F . 1994 . Cognitive stimulation of patients with dementia: Preliminary results . International Journal of Geriatric Psychiatry , 9 : 211 – 217 .
   Web of Science ®Google Scholar
• Brodaty , H and Gresham , M . 1989 . Effect of a training programme to reduce stress in carers of patients with dementia . British Medical Journal , 299 : 1375 – 1379 .
   PubMed Web of Science ®Google Scholar
• Charlesworth , G , Shepstone , L , Wilson , E , Reynolds , S , Mugford , M , Price , D Poland , F . 2008 . Befriending carers of people with dementia: Randomised controlled trial . British Medical Journal , 336 : 1295 doi:10.1136/bmj.39549.548831
   PubMed Web of Science ®Google Scholar
• Clare , L . 2010 . Linden, D.E.J., Woods, R.T., Whitaker, R., Evans, S.J., Parkinson, C.H., … , Rugg, M.D. , Goal-oriented cognitive rehabilitation for people with early-stage Alzheimer's disease: A single-blind randomized controlled trial of clinical efficacy. American Journal of Geriatric Psychiatry, 18, 928–939
   Google Scholar
• Clare , L , Markova , I , Verhey , F and Kenny , G . 2005 . Awareness in dementia: A review of assessment methods and measures . Aging & Mental Health , 9 : 394 – 413 .
   PubMed Web of Science ®Google Scholar
• Clare , L , Romero , B and Wenz , M . 2004 . Krankheitseinsicht bei Kranken mit beginnender Demenz: Bericht über ein europäisches Projekt . Zeitschrift für Gerontopsychologie und –psychiatrie , 17 : 135 – 138 .
   Google Scholar
• Dartigues , JF . (2008–2012). ETNA3: Efficacy assessment of three nonpharmacological therapies in Alzheimer's disease. ClinicalTrials.gov. Retrieved from http://clinicaltrials.gov/ct2/show/NCT00646269
   Google Scholar
• De Lepeleire , J , Wind , AW , Iliffe , S , Moniz-Cook , E and Wilcock , J . 2008 . González, V.M., … , INTERDEM Group , The diagnosis of dementia in primary care in Europe: An analysis using multidisciplinary multinational expert groups. Aging & Mental Health, 12, 568–576
   Google Scholar
• Downs , M , Turner , S , Bryans , M , Wilcock , J , Keady , J , Levin , E Lliffe , S . 2006 . Effectiveness of educational interventions in improving detection and management of dementia in primary care: Cluster Randomised controlled study . British Medical Journal , 332 : 692 – 696 .
   PubMed Web of Science ®Google Scholar
• Draskovic , I , Vernooij-Dassen , M , Verhey , M , Scheltens , P and Rikkert , M . 2008 . Development of quality indicators for memory clinics . International Journal of Geriatric Psychiatry , 23 : 119 – 128 .
   PubMed Web of Science ®Google Scholar
• Dröes , RM , Meiland , FJ , Smitz , M and van Tilburg , W . 2004 . Effect of combined support for people with dementia and carers versus regular day care on behaviour and mood of persons with dementia: Results from a multi-centre implementation study . International Journal of Geriatric Psychiatry , 19 : 673 – 684 .
   PubMed Web of Science ®Google Scholar
• Eloniemi-Suklava , U , Sarrenheimo , M , Laakkonen , ML , Pietila , M , Savikko , N , Kautiainen , H Pitka , KH . 2009 . Family care as collaboration: Effectiveness of a multi-component support program for elderly couples with dementia. Randomized controlled intervention study . Journal of the American Geriatric Society , 57 : 2200 – 2208 .
   Google Scholar
• Fernandes , L , Gonçalves-Pereira , M , Leuschner , A , Martins , S , Sobral , M , Azevedo , L Orrell , M . 2008 . Validation study of the Camberwell Assessment of Need for the Elderly (CANE) in Portugal . International Psychogeriatrics , 21 : 94 – 102 .
   Google Scholar
• Fossey , J , Ballard , C , Juszczak , E , James , I , Alde , N , Jacoby , R and Howard , R . 2006 . Effect of enhanced psychosocial care on antipsychotic use in nursing homes residents with severe dementia: Cluster randomised trial . British Medical Journal , 332 : 7544
   Google Scholar
• Graff , M . van Melick, M., Thijssen, M., Verstraten, P., & Zajec, J. (2010). Ergotherapie bij ouderen met dementia en hun mantelzorgers. Het EDOMAH programma. [Occupational therapy in older people with dementia. The COTiD program] Houten/Netherlands, Bohn, Stafleu en van Loghum [in Dutch]
   Google Scholar
• Graff , MJ , Vernooij-Dassen , MJ , Thijssen , M , Dekker , J , Hoefnagels , WH and Rikkert , MG . 2006 . Community based occupational therapy for patients with dementia and their care givers: Randomised controlled trial . British Medical Journal , 333 : 1196
   PubMed Web of Science ®Google Scholar
• Graff , ML , Vernooij-Dassen , MM , Thijssen , M , Dekker , J , Hoefnagels , WL and Olde Rikkert , MM . 2007 . Ergotherapie aan huis bij patiënten met dementie en hun mantelzorgers. Een gerandomiseerd gecontroleerd onderzoek. Community occupational therapy for dementia patients and their primary caregivers: A randomized controlled trial . Dutch Journal of Occupational Therapy , 35 : 20 – 27 .
   Google Scholar
• Günther , V , Fuchs , D , Schett , P , Meise , U and Rhomberg , HP . 1991 . Kognitives training bei organischem psychosyndrom [Cognitive training in psycho-organic syndromes] . Dtsch Med Wochenschr , 116 : 846 – 851 .
   Google Scholar
• Hinchliffe , AC , Hyman , LL , Blizard , B and Livingston , G . 1995 . Behavioural complications of dementia: Can they be treated? . International Journal of Geriatric Psychiatry , 10 : 839 – 847 .
   Web of Science ®Google Scholar
• Iliffe , S . 2005 . De Lepeleire, J., van Hout, H., Kenny, G., Lewis, A., Vernooij-Dassen, M., & The Diadem – INTERDEM group , Understanding obstacles to the recognition of and response to dementia in different european countries: A modified focus group approach using multinational, multi-disciplinary expert groups. Aging & Mental Health, 9(1), 1–6
   Google Scholar
• Iliffe , S . Manthorpe, J., Knapp, M., Drennan, V., Goodman, C., Rait, G., & Warner, J. (2007–2012). EVIDEM-Evidence based interventions in dementia: Changing practice in dementia care in the community: Developing evidence-based-based interventions from timely diagnosis to end of life. DoH NIHR programme grant
   Google Scholar
• Joling , KJ , van Hout , HP , Scheltens , P , Vernooij-Dassen , M , van den Berg , B , Bosmans , J van Marwijk , HW . 2008 . Cost-effectiveness of family meetings on indicated prevention of anxiety and depressive symptoms and disorders of primary family caregivers of patients with dementia: Design of a randomized controlled trial . BMC Geriatrics , 21 : 2
   Google Scholar
• Josephsson , S , Backmann , L , Borrell , L , Bernspang , B , Nygard , L and Ronnberg , L . 1993 . Supporting everyday activities in dementia: An intervention study . International Journal of Geriatric Psychiatry , 8 : 395 – 400 .
   Web of Science ®Google Scholar
• Knapp , M , Thorgrimsen , L , Patel , A , Spector , A , Hallam , A , Woods , B and Orrell , M . 2006 . Cognitive stimulation therapy for dementia: Is it cost effective? . British Journal of Psychiatry , 188 : 574 – 580 .
   PubMed Web of Science ®Google Scholar
• Knopman , DS , DeKosky , MD , Cummings , JL , Chui , H , Corey-Bloom , J , Relkin , N Stevens , JC . 2001 . Praxtice parameter: Diagnosis of dementia (an evidence based review). Report of the Quality Stadards Subcommitte of the American Academy of Neurology . Neurology , 56 : 1143 – 1153 .
   PubMed Web of Science ®Google Scholar
• Kurz , A , Cramer , B , Egert , S , Frölich , L , Gertz , HJ , Knorr , C Werheid , K . 2008 . Neuropsychologisch fundierte kognitive Verhaltenstherapie für Patienten mit Alzheimer-Krankheit im Frühstadium: Die KORDIAL-Studie . Zeitschrift für Gerontopsychologie und–psychiatrie , 21 : 157 – 161 .
   Google Scholar
• Logsdon , R , Pike , K , McCurry , S , Hunter , P , Maher , J , Snyder , L and Teri , L . 2010 . Early-stage memory loss support groups: Outcomes from a randomized controlled clinical trial . Journal of Gerontology B: Psychological Sciences and Social Sciences , 65B : 691 – 697 .
   Web of Science ®Google Scholar
• Manthorpe , J . Bond, J., Keady, J., Drennan, V., Goodman, C., Warner, J., … , Robinson, L. (2008–2010). Transition from cognitive impairment to Dementia, DoH SDO Programme award
   Google Scholar
• Meiland , FJ , Dröes , RM , de Lange , J and Vernooij-Dassen , MJ . 2005 . Facilitators and barriers in the implementation of the meeting centre's model for people with dementia and their carers . Health Policy , 71 : 243 – 253 .
   PubMed Web of Science ®Google Scholar
• Mittelman , MS , Ferris , SH , Shulman , E , Steinberg , G and Levin , B . 1996 . A family intervention to delay nursing home placement of patients with Alzheimer disease: A randomized controlled trial . The Journal of the American Medical Association , 276 : 1725 – 1731 .
   PubMed Web of Science ®Google Scholar
• Moniz-Cook , ED , Agar , S , Gibson , G , Win , T and Wang , M . 1998 . A preliminary study of the effects of early intervention with people with dementia and their families in a memory clinic . Aging & Mental Health , 2 : 199 – 211 .
   Web of Science ®Google Scholar
• Moniz-Cook , ED . Manthorpe, J. (Eds.). (2009). Psychosocial interventions in early dementia: Evidence based practice. London: Jessica Kingsley
   Google Scholar
• Moniz-Cook , ED . Manthorpe, J. (Eds.). (2010). Frühe Diagnose Demenz: rechtzeitige evidenzbasierte psychosoziale Intervention bei Menschen mit Demenz. Bern: Huber
   Google Scholar
• Moniz-Cook , ED . Mason, A., Woods, B., Mozley, C., Russell, I., Campion, P., … , Orrell, M. (2007–2012). Challenge Demcare: Challenging behaviour in dementia at home and in care homes. DoH NIHR programme grant
   Google Scholar
• Moniz-Cook , ED . 2008 . Vernooij-Dassen, M., Woods, R., Verhey, F., Chattat, R., de Vugt, M., … , for the INTERDEM group. , A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging & Mental Health, 12, 14–25
   Google Scholar
• Moniz-Cook , ED . Wang, M. (1997–1999). Early detection and psychosocial rehabilitation to maintain quality of life in dementia: A training package, funding agency, European Commission. File no. SOC97 201452 05F03
   Google Scholar
• Olazaran , J , Reisberg , B , Clare , L , Cruz , I , Pena-Casanova , J , del Ser , T Muniz , R . 2010 . Non-pharmacological therapies in Alzheimer's disease: A systematic review of efficacy . Dementia and Geriatric Cognitive Disorders , 30 : 161 – 178 .
   PubMed Web of Science ®Google Scholar
• Onder , G , Zanetti , O , Giacobini , E , Frisoni , GB , Bartorelli , L , Carbone , G Bernabei , R . 2005 . Reality orientation therapy combined with cholinesterase inhibitors in Alzheimer's disease: Randomised controlled trial . British Journal of Psychiatry , 187 : 450 – 455 .
   PubMed Web of Science ®Google Scholar
• Orrell , M . Hancock, G. (Eds.) (2004). CANE: Camberwell assessment of need for the elderly. London: Gaskell
   Google Scholar
• Orrell , M , Spector , A , Thorgrimsen , L and Woods , B . 2005 . A pilot study examining the effectiveness of maintenance cognitive stimulation therapy (MCST) for people with dementia . International Journal of Geriatric Psychiatry , 20 : 446 – 451 .
   PubMed Web of Science ®Google Scholar
• Orrell , M and Woods , B . 1996 . Editorial comment. Tacarine and psychological therapies in dementia – No contest? . International Journal of Geriatric Psychiatry , 11 : 189 – 192 .
   Web of Science ®Google Scholar
• Orrell , M . Woods, B., Russell, I., Challis, D., Moniz-Cook, E.D., Knapp, M., … , Wilson, J. (2007–2012). SHIELD: Support at Home – Interventions to Enhance Life in Dementia. DoH NIHR programme grant
   Google Scholar
• Orrell , M . Woods, B., Russell, I., Moniz-Cook, E.D., Knapp, M., Spector, A., & Burns, A. (2010–2013). iCST Trial: Individual cognitive stimulation therapy for dementia. DoH HTA trial grant
   Google Scholar
• Perry , M , Draskovic , I , van Achterberg , T , van Eijken , M , Lucassen , P , Vernooij-Dassen , M and Olde Rikkert , M . 2010 . Development and validation of quality indications for dementia: Diagnosis and management in a primary care setting . Journal of the American Geriatric Society , 58 : 557 – 563 .
   PubMed Web of Science ®Google Scholar
• Powell-Proctor , L and Miller , E . 1982 . Reality orientation: A critical appraisal . British Journal of Psychiatry , 140 : 457 – 463 .
   PubMed Web of Science ®Google Scholar
• Schoenmakers , B , Buntinx , F and De Lepeleire , J . 2010 . Supporting family carers of community dwelling elder with cognitive decline: A randomised controlled trial . International Journal of Family Medicine , 2010 : 9
   Google Scholar
• Schweitzer , P and Bruce , E . 2008 . Remembering yesterday caring today: Reminiscence in dementia care: A guide to good practice , London : Jessica Kingsley .
   Google Scholar
• Schweitzer , P and Bruce , E . 2010 . Das Reminiszenz-Buch: Praxisleitfaden zur Biografie – und Erinnerungsarbeit mit alten Menschen , Bern : Huber .
   Google Scholar
• Spector , A , Orrel , LM , Davies , S and Woods , B . 2001 . The development of an evidence based package of psychological therapies for dementia groups . Neuropsychological Rehabilitation , 11 : 377 – 397 .
   Web of Science ®Google Scholar
• Spector , A , Thorgrimsen , L , Woods , B and Orrell , M . 2005 . Our time: An evidence based group program to offer cognitive stimulation to people with dementia – manual for group leaders , Iowa : Freiberg Press .
   Google Scholar
• Spector , A , Thorgrimsen , L , Woods , B and Orrell , M . 2006 . Making a difference: An evidence-based group programme to offer cognitive stimulation therapy (CST) to people with dementia , London : Hawker .
   Google Scholar
• Spector , A , Thorgrimsen , L , Woods , RT , Royan , L , Davies , S , Butterworth , M and Orrell , M . 2003 . Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia: Randomised controlled trial . British Journal of Psychiatry , 183 : 248 – 254 .
   PubMed Web of Science ®Google Scholar
• Tárraga , L , Boada , M , Modinos , G , Espinosa , A , Diego , S , Morera , A Becker , J . 2006 . A randomised pilot study to assess the efficacy of an interactive, multimedia tool of cognitive stimulation in Alzheimer's disease . Journal of Neurology, Neurosurgery and Psychiatry , 77 : 1116 – 1121 .
   PubMed Web of Science ®Google Scholar
• Taulbee , LR and Folsom , JC . 1966 . Reality orientation for geriatric patients . Hospital and Community Psychiatry , 17 : 133 – 135 .
   PubMedGoogle Scholar
• Teri , L , Gibbons , L , McCurry , S , Logsdon , R , Buchner , D , Barlow , W Larson , E . 2003 . Exercise plus behavioral management in patients with Alzheimer disease: A randomized controlled trial . JAMA , 290 : 2015 – 2022 .
   PubMed Web of Science ®Google Scholar
• Teri , L , Logsdon , R , Uomoto , J and McCurry , S . 1997 . Behavioral treatment of depression in dementia patients: A controlled clinical trial . Journal of Gerontology B: Psychological Sciences , 52 : 159 – 166 .
   PubMed Web of Science ®Google Scholar
• Ulstein , ID , Sandvik , L , Brunn , T and Engedal , K . 2007 . A one-year randomized controlled psychosocial intervention study among family carers of dementia patients: Effects on patients and carers . Dementia and Geriatric Cognitive Disorders , 24 : 469 – 475 .
   PubMed Web of Science ®Google Scholar
• van Vliet , D , Bakker , C , Koopmans , RT , Vernooij-Dassen , MJ , Verhey , FR and de Vugt , ME . 2010 . Research protocol of the NeedYD-study (needs in young onset dementia): A prospective cohort study on the needs and course of early onset dementia . BMC Geriatrics , 12 : 10 – 13 .
   Google Scholar
• Verhey , F , Aalten , P , Wortmann , M , Clare , L , Canning , R , Driver , B Litherland , R . 2004 . AWARE: Een onderzoek naar ziektebesef bij vroege stadia van dementie. Een verslag van een internationale bijeenkomst over ziektebesef Dutch Alz Soc . Tijdschrift voor Gerontologie en Geriatrie , 35 : 33 – 35 .
   Google Scholar
• Vernooij-Dassen , M , Huygen , F , Felling , A and Persoon , J . 1995 . Home care for dementia patients . Journal of the American Geriatric Society , 43 : 456 – 457 .
   PubMed Web of Science ®Google Scholar
• Vernooij-Dassen , M . 2005 . Moniz-Cook, E.D., Woods, R., De Lepeleire, J., Leuschner, A., Zanetti, O., … , the INTERDEM group. , Factors affecting timely recognition and diagnosis of dementia across Europe: From awareness to stigma. International Journal of Geriatric Psychiatry, 20, 377–386
   Google Scholar
• Vernooij-Dassen , M . 2010 . Vasse, E., Cantegreil-Kallen, I., Iliffe, S., Franco, M., Charras, K., … , Moniz-Cook, E. , Quality indicators for psychosocial interventions in Europe. Abstracted paper 25th International Conference of Alzheimers Disease International, Thessaloniki, Greece, 10–13 March
   Google Scholar
• Voigt-Radloff , S , Graff , M , Leonhart , M , Vernooij Dassen , M , Olde-Rikkert , M and Huell , M . 2009 . WHEDA study: Effectiveness of occupational therapy at home for older people with dementia and their caregivers – the design of a pragmatic randomized controlled trial evaluation of a Dutch trial in seven German Centres . BMC Geriatrics , 9 : 44
   Google Scholar
• Waldorff , F . 2010 . Eckermann, A., Buus, D., Vogel, V., Hansen, M., & Waldemar, G. , Multifaceted psycho-social intervention for patients with mild AD and their primary caregivers (DAISY study): A rater-blinded, randomized trial with 36 months follow-up. Abstracted paper 25th International Conference of Alzheimers Disease International, Thessaloniki, Greece, 10–13 March
   Google Scholar
• Werheid , K . Thöne-Otto, A.I.T. (2010). Alzheimerkrankheit – Ein neuropsychologisch-verhaltenstherapeutisches Behandlungsprogramm. Reihe Therapiematerialien für die Praxis. Weinheim: Beltz-Gelberg
   Google Scholar
• Woods , B . 2003 . Evidence based practice in psychosocial intervention in dementia: How can it be achieved? . Aging in Mental Health , 7 : 5 – 6 .
   PubMedGoogle Scholar
• Woods , RT , Bruce , E , Edwards , RT , Hounsome , B , Keady , J , Moniz-Cook , ED Russell , IT . 2009 . Reminiscence groups for people with dementia and their family carers: Pragmatic eight-centre randomised trial of joint reminiscence and maintenance versus usual treatment: A protocol . Trials , 10 : 4
   Google Scholar
• Woods , B . 2003 . Moniz-Cook, E.D., Iliffe, S., Campion, P., Vernooij-Dassen, M., Zanetti, O., … , INTERDEM members. , Dementia: Issues in early recognition and intervention in primary care. Journal of the Royal Society of Medicine, 96, 320–324
   Google Scholar
• Zanetti , O , Binetti , G , Magni , E , Rozzini , L , Bianchetti , A and Trabucchi , M . 1997 . Procedural Memory stimulation in Alzheimers’ disease: Impact of a training programme . Acta Neurologica Scandinavica , 95 : 152 – 157 .
   PubMed Web of Science ®Google Scholar
• Zanetti , O , Frisoni , GB , De Leo , D , Buono , MD , Bianchetti , A and Trabucci , M . 1995 . Reality orientation therapy in Alzheimer's disease: Useful or not? A controlled study . Alzheimer's Disease & Associated Disorders , 9 : 132 – 138 .
   PubMed Web of Science ®Google Scholar
• Zarit , S , Anthony , CR and Boutselis , M . 1987 . Interventions with caregivers of dementia patients: Comparison of two approaches . Psychology and Aging , 2 : 225 – 232 .
   PubMed Web of Science ®Google Scholar