Awareness of social and emotional functioning in people with early-stage dementia and implications for carers

References

• Ablitt , A , Jones , G and Muers , J . 2010 . Awareness of carer distress in people with dementia . International Journal of Geriatric Psychiatry , 25 : 1246 – 1252 .
   Google Scholar
• Agnew , SK and Morris , RG . 1998 . The heterogeneity of anosognosia for memory impairment in Alzheimer's disease: A review of the literature and a proposed model . Aging and Mental Health , 2 : 7 – 19 .
   Web of Science ®Google Scholar
• American Psychiatric Association . 2000 . Diagnostic and statistical manual of mental disorders (text revision), , 4th , Washington, DC : Author .
   Google Scholar
• Baumgarten , M , Battista , RN , Infante-Rivard , C , Hanley , JA , Becker , R and Gauthier , S . 1992 . The psychological and physical health of family members caring for an elderly person with dementia . Journal of Clinical Epidemiology , 45 : 61 – 70 .
   PubMed Web of Science ®Google Scholar
• Bediou , B , Ryff , I , Mercier , B , Milliery , M , Henaff , MA , D’Amato , T Krolak-Salmon , P . 2009 . Impaired social cognition in mild Alzheimer disease . Journal of Geriatric Psychiatry and Neurology , 22 : 130 – 140 .
   PubMed Web of Science ®Google Scholar
• Bengtson , VL and Schrader , SS . 1982 . “ Parent-child relationship ” . In Research instruments in social gerontology , Edited by: Mangon , D.J. and Peterson , W.A. Vol. 2 , 115 – 185 . Minneapolis, MN : Minnesota Press .
   Google Scholar
• Bozeat , S , Gregory , CA , Lambon Ralph , MA and Hodges , JR . 2000 . Which neuropsychiatric and behavioural features distinguish frontal and temporal variants of frontotemporal dementia from Alzheimer's disease? . Journal of Neurology, Neurosurgery and Psychiatry , 69 : 178 – 186 .
   PubMed Web of Science ®Google Scholar
• Bramham , J , Morris , RG , Hornak , J , Bullock , P and Polkey , CE . 2009 . Social and emotional functioning following bilateral and unilateral neurosurgical prefrontal cortex lesions . Journal of Neuropsychology , 3 : 125 – 143 .
   PubMed Web of Science ®Google Scholar
• Bramham, J., Morris, R.G., Hornak, J., & Rolls, E.T. (2002). The socio-emotional questionnaire. Paper presented at the Rotman Research Institute 12th Annual Conference, Toronto
   Google Scholar
• Burridge , AC , Williams , WH , Yates , PJ , Harris , A and Ward , C . 2007 . Spousal relationship satisfaction following acquired brain injury: The role of insight and socio-emotional skill . Neuropsychological Rehabilitation , 17 : 95 – 105 .
   PubMed Web of Science ®Google Scholar
• Calabria , M , Cotelli , M , Adenzato , M , Zanetti , O and Miniussi , C . 2009 . Empathy and emotion recognition in semantic dementia: A case report . Brain and Cognition , 70 : 247 – 252 .
   PubMed Web of Science ®Google Scholar
• Cattell , R . 1996 . The scree test for the number of factors . Multivariate Behavioral Research , 1 : 245 – 276 .
   Web of Science ®Google Scholar
• Clare, L., Nelis, S.M., Martyr, A., Roberts, J., Whitaker, C., Markova, I., … , Morris, R.G. (2011). The influence of psychological, social and contextual factors on the expression and measurement of awareness in early-stage dementia: Testing a biopsychosocial model. International Journal of Geriatric Psychiatry. doi: 10.1002/gps.2705
   Google Scholar
• Clare , L , Whitaker , C and Nelis , SM . 2010 . Appraisal of memory functioning and memory performance in healthy ageing and early-stage Alzheimer's disease . Aging, Neuropsychology, and Cognition , 17 : 462 – 491 .
   PubMed Web of Science ®Google Scholar
• Cronbach , L . 1951 . Coefficient alpha and the internal structure of tests . Psychometrika , 16 : 297 – 334 .
   Web of Science ®Google Scholar
• DeBettignies , BH , Mahurin , RK and Pirozzolo , FJ . 1990 . Insight for impairment in independent living skills in Alzheimer's disease and multi-infarct dementia . Journal of Clinical and Experimental Neuropsychology , 12 : 355 – 363 .
   PubMed Web of Science ®Google Scholar
• Dourado , M , Marinho , V , Soares , C , Engelhardt , E and Laks , J . 2007 . Awareness of disease in Alzheimer's dementia: Description of a mild to moderate sample of patient and caregiver dyads in Brazil . International Psychogeriatrics , 19 : 733 – 744 .
   PubMed Web of Science ®Google Scholar
• Folstein , MF , Folstein , SE and McHugh , PR . 1975 . Mini-mental state: A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
   PubMed Web of Science ®Google Scholar
• Green , JG , Smith , R , Gardiner , M and Timbury , GC . 1982 . Measuring behavioural disturbance of elderly demented patients in the community and its effect on relatives . Age and Ageing , 11 : 121 – 126 .
   PubMedGoogle Scholar
• Gregory , CA and Hodges , JR . 1996 . Clinical features of frontal lobe dementia in comparison to Alzheimer's disease . Journal of Neural Transmission. Supplementum , 47 : 103 – 123 .
   PubMedGoogle Scholar
• Gregory , CA , Lough , S , Stone , V , Erzinclioglu , S , Martin , L , Baron-Cohen , S and Hodges , JR . 2002 . Theory of mind in patients with frontal variant frontotemporal dementia and Alzheimer's disease: Theoretical and practical implications . Brain , 125 : 752 – 764 .
   PubMed Web of Science ®Google Scholar
• Horn , J . 1965 . A rationale and test for the number of factors in factor analysis . Psychometrika , 30 : 179 – 185 .
   PubMed Web of Science ®Google Scholar
• Kaiser , H . 1960 . The application of electronic computers to factor analysis . Educational and Psychological Measurement , 20 : 141 – 151 .
   Web of Science ®Google Scholar
• Kaufer , DI , Cummings , JL , Ketchel , P , Smith , V , MacMillan , A , Shelley , T DeKosky , ST . 2000 . Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory . Journal of Neuropsychiatry and Clinical Neurosciences , 12 : 233 – 239 .
   PubMed Web of Science ®Google Scholar
• Kihlstrom , JF and Tobias , BA . 1991 . “ Anosognosia, consciousness, and the self ” . In Awareness of deficit following brain injury: Theoretical and clinical aspects , Edited by: Prigatano , G.P. and Schacter , D.L. 198 – 222 . New York, NY : Oxford University Press .
   Google Scholar
• Klein , SB , Cosmides , L and Costabile , K . 2003 . Preserved knowledge of self in a case of Alzheimer's disease . Social Cognition , 21 : 157 – 165 .
   Web of Science ®Google Scholar
• Kohler , CG , Anselmo-Gallagher , G , Bilker , W , Karlawish , J , Gur , RE and Clark , CM . 2005 . Emotion-discrimination deficits in mild Alzheimer disease . American Journal of Geriatric Psychiatry , 13 : 926 – 933 .
   PubMed Web of Science ®Google Scholar
• Lavenu , I and Pasquier , F . 2005 . Perception of emotion on faces in frontotemporal dementia and Alzheimer's disease: A longitudinal study . Dementia and Geriatric Cognitive Disorders , 19 : 37 – 41 .
   PubMed Web of Science ®Google Scholar
• Logsdon , R , Gibbons , LE , McCurry , SM and Teri , L . 2002 . Assessing quality of life in older adults with cognitive impairment . Psychosomatic Medicine , 64 : 510 – 519 .
   PubMed Web of Science ®Google Scholar
• Luzzi , S , Piccirilli , M and Provinciali , L . 2007 . Perception of emotions on happy/sad chimeric faces in Alzheimer disease: Relationship with cognitive functions . Alzheimer Disease and Associated Disorders , 21 : 130 – 135 .
   PubMed Web of Science ®Google Scholar
• Marková , IS and Berrios , GE . 2001 . The object of insight assessment: Relationship to insight structure . Psychopathology , 34 : 245 – 252 .
   PubMed Web of Science ®Google Scholar
• Michon , A , Deweer , B , Pillon , B , Agid , Y and Dubois , B . 1994 . Relation of anosognosia to frontal lobe dysfunction in Alzheimer's disease . Journal of Neurology, Neurosurgery and Psychiatry , 57 : 805 – 809 .
   PubMed Web of Science ®Google Scholar
• Ott , BR , Lafleche , G , Whelihan , WM , Buongiorno , GW , Albert , MS and Fogel , BS . 1996 . Impaired awareness of deficits in Alzheimer disease . Alzheimer Disease and Associated Disorders , 10 : 68 – 76 .
   PubMed Web of Science ®Google Scholar
• Rankin , KP , Baldwin , E , Pace-Savitsky , C , Kramer , JH and Miller , BL . 2005 . Self awareness and personality change in dementia . Journal of Neurology, Neurosurgery and Psychiatry , 76 : 632 – 639 .
   PubMed Web of Science ®Google Scholar
• Rankin , KP , Kramer , JH and Miller , BL . 2005 . Patterns of cognitive and emotional empathy in frontotemporal lobar degeneration . Cognitive and Behavioral Neurology , 18 : 28 – 36 .
   PubMed Web of Science ®Google Scholar
• Ready , RE , Ott , BR and Grace , J . 2004 . Patient versus informant perspectives of quality of life in mild cognitive impairment and Alzheimer's disease . International Journal of Geriatric Psychiatry , 19 : 256 – 265 .
   PubMed Web of Science ®Google Scholar
• Ready , RE , Ott , B and Grace , J . 2006 . Insight and cognitive impairment: effects on quality-of-life reports from mild cognitive impairment and Alzheimer's disease . American Journal of Alzheimer's Disease and Other Dementias , 21 : 242 – 248 .
   PubMedGoogle Scholar
• Robert , PH , Clairet , S , Benoit , M , Koutaich , J , Bertogliati , C , Tible , O Bedoucha , P . 2002 . The apathy inventory: Assessment of apathy and awareness in Alzheimer's disease, Parkinson's disease and mild cognitive impairment . International Journal of Geriatric Psychiatry , 17 : 1099 – 1105 .
   PubMed Web of Science ®Google Scholar
• Salmon , E , Ruby , P , Perani , D , Kalbe , E , Laureys , S , Adam , S and Collette , F . 2005 . “ Two aspects of impaired consciousness in Alzheimer's disease ” . In The boundaries of consciousness: Neurobiology and neuropathology , Edited by: Laureys , S. Vol. 150 , 287 – 298 . Amsterdam : Elsevier Science BV .
   Google Scholar
• Seeley , WW , Allman , JM , Carlin , DA , Crawford , RK , Macedo , MN , Greicius , MD Miller , BL . 2007 . Divergent social functioning in behavioral variant frontotemporal dementia and Alzheimer disease: Reciprocal networks and neuronal evolution . Alzheimer Disease and Associated Disorders , 21 : S50 – S57 .
   PubMed Web of Science ®Google Scholar
• Seltzer , B , Vasterling , JJ , Mathias , CW and Brennan , A . 2001 . Clinical and neuropsychological correlates of impaired awareness of deficits in Alzheimer disease and Parkinson disease: A comparative study . Neuropsychiatry Neuropsychology and Behavioral Neurology , 14 : 122 – 129 .
   PubMedGoogle Scholar
• Seltzer , B , Vasterling , JJ , Yoder , J and Thompson , KA . 1997 . Awareness of deficit in Alzheimer's disease: Relation to caregiver burden . The Gerontologist , 37 : 20 – 24 .
   PubMed Web of Science ®Google Scholar
• Shimokawa , A , Yatomi , N , Anamizu , S , Torii , S , Isono , H , Sugai , Y and Kohno , M . 2001 . Influence of deteriorating ability of emotional comprehension on interpersonal behavior in Alzheimer-type dementia . Brain and Cognition , 47 : 423 – 433 .
   PubMed Web of Science ®Google Scholar
• Smyth , KA , Neundorfer , MM , Koss , E , Geldmacher , DS , Ogocki , PK and Whitehouse , PJ . 2002 . Quality of life and deficit identification in dementia . Dementia , 1 : 345 – 358 .
   Google Scholar
• Snow , AL , Kunik , ME , Molinari , VA , Orengo , CA , Doody , R , Graham , DP and Norris , MP . 2005 . Accuracy of self-reported depression in persons with dementia . Journal of the American Geriatrics Society , 53 : 389 – 396 .
   PubMed Web of Science ®Google Scholar
• Stevens , J . 1996 . Applied multivariate statistics for the social sciences, , 3rd , Mahwah, NJ : Lawrence Erlbaum Associates .
   Google Scholar
• Sultzer , DL , Levin , HS , Mahler , ME , High , WM and Cummings , JL . 1992 . Assessment of cognitive, psychiatric, and behavioral disturbances in patients with dementia: The neurobehavioral rating scale . Journal of the American Geriatrics Society , 40 : 549 – 555 .
   PubMed Web of Science ®Google Scholar
• Trosset , MW and Kaszniak , AW . 1996 . Measures of deficit unawareness for predicted performance experiments . Journal of the International Neuropsychological Society , 2 : 315 – 322 .
   PubMedGoogle Scholar
• Van Wielingen , LE , Tuokko , HA , Cramer , K , Mateer , CA and Hultsch , DF . 2004 . Awareness of financial skills in dementia . Aging and Mental Health , 8 : 374 – 380 .
   PubMed Web of Science ®Google Scholar
• Vasterling , JJ , Seltzer , B , Carpenter , BD and Thompson , KA . 1997 . Unawareness of social interaction and emotional control deficits in Alzheimer's disease . Aging, Neuropsychology, and Cognition , 4 : 280 – 289 .
   PubMed Web of Science ®Google Scholar
• Vasterling , JJ , Seltzer , B , Foss , JW and Vanderbrook , V . 1995 . Unawareness of deficit in Alzheimer's disease: Domain-specific differences and disease correlates . Neuropsychiatry Neuropsychology and Behavioral Neurology , 8 : 26 – 32 .
   Google Scholar
• Verdon , CM , Fossati , P , Verny , M , Dieudonne , B , Teillet , L and Nadel , J . 2007 . Social cognition: An early impairment in dementia of the Alzheimer type . Alzheimer Disease and Associated Disorders , 21 : 25 – 30 .
   PubMed Web of Science ®Google Scholar
• Wall, S., Williams, W., Morris, R.G., & Bramham, J. (in press). The development of a new measure of social-emotional functioning for young adolescents. Journal of Child Psychology and Psychiatry
   Google Scholar
• Whitehouse , P . 1999 . Quality of life in Alzheimer's disease: Future directions . Journal of Mental health and Aging , 5 : 107 – 111 .
   Google Scholar
• World Health Organization . 1992 . International statistical classification of diseases and related health problems, 10th revision (ICD-10) , Geneva, , Switzerland : Author .
   Google Scholar