Using the salutogenic approach to unravel informal caregivers’ resources to health: Theory and methodology

References

• Andrén , S and Elmståhl , S . 2008 . The relationship between caregiver burden, caregivers’ perceived health and their sense of coherence in caring for elders with dementia . Journal of Clinical Nursing , 17 : 790 – 799 .
   PubMed Web of Science ®Google Scholar
• Andrén , S and Elmståhl , S . 2005 . Family caregivers’ subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence . Scandinavian Journal of Caring Sciences , 19 : 157 – 168 .
   PubMed Web of Science ®Google Scholar
• Antonovsky , A . 1987 . Unraveling the mystery of health. How people manage stress and stay well , San Francisco : Jossey-Bass Publishers .
   Google Scholar
• Antonovsky , A . (1990). Salutogenesis. Studying health vs. studying disease. (Lecture at the Congress for Clinical Psychology and Psychotherapy, Berlin, 19 February 1990). Retrieved from http://www.angelfire.com/ok/soc/aberlim.html
   Google Scholar
• Antonovsky, A. (1991). Hälsans mysterium. [Unravelling the mystery of health. How people manage stress and stay well]. Stockholm: Natur och Kultur
   Google Scholar
• Antonovsky , A . 1993 . The structure and properties of the sense of coherence scale . Social Science and Medicine , 36 : 725 – 733 .
   PubMed Web of Science ®Google Scholar
• Antonovsky , A . 1996 . The salutogenic model as a theory to guide health promotion . Health Promotion International , 11 : 11 – 18 .
   Web of Science ®Google Scholar
• Balducci , C , Mnich , E , McKee , KJ , Lamura , G , Beckmann , A , Krevers , B Öberg , B . 2008 . Negative impact and positive value in caregiving: validation of the COPE Index in six-country sample of carers . The Gerontologist , 48 : 276 – 286 .
   PubMed Web of Science ®Google Scholar
• Benzein , EG , Hagberg , M and Saveman , B-I . 2008 . Being appropriately unusual: A challenge for nurses in health-promoting conversations with families . Nursing Inquiry , 15 : 106 – 115 .
   PubMed Web of Science ®Google Scholar
• Blair , T and Minkler , M . 2009 . Participatory action research with older adults: Key principles in practice . The Gerontologist , 49 : 651 – 662 .
   PubMed Web of Science ®Google Scholar
• Chumbler , NR , Rittman , MR and Wu , SS . 2008 . Associations in sense of coherence and depression in caregivers of stroke survivors across 2 years . The Journal of Behavioral Health Service & Research , 35 : 226 – 234 .
   PubMed Web of Science ®Google Scholar
• Clarke , P . 2009 . Understanding the experience of stroke: A mixed-method research agenda . The Gerontologist , 49 : 293 – 302 .
   PubMed Web of Science ®Google Scholar
• Coe , RM , Miller , DK and Flaherty , J . 1992 . Sense of coherence and perception of caregiving burden . Behavior, Health, and Aging , 2 : 93 – 98 .
   Google Scholar
• Cohen , CA , Colantonio , A and Vernich , L . 2002 . Positive aspects of caregiving: Rounding out the caregiver experience . International Journal of Geriatric Psychiatry , 17 : 184 – 188 .
   PubMed Web of Science ®Google Scholar
• Cowley , S and Billings , JR . 1999 . Resources revisited: salutogenesis from a lay perspective . Journal of Advanced Nursing , 29 : 994 – 1004 .
   PubMed Web of Science ®Google Scholar
• Council of Europe (2007). Achieving full participation through Universal Design. (Resolution ResAP (2007) 3 adopted by the Committee of Ministers on 12 December 2007 at the 1014th meeting of the Ministers’ Deputies). Retrieved from https://wcd.coe.int/wcd/ViewDoc.jsp?id=1226267
   Google Scholar
• Eriksson , M . 2007 . Unraveling the mystery of Salutogenesis – The evidence base of the salutogenic research as measured by Antonovsky's sense of coherence scale. Doctoral dissertation, Research Report No 2007:1 , Helsinki : Folkhälsan Research Centre, Health Promotion Research Programme .
   Google Scholar
• Eriksson , M and Lindström , B . 2005 . Validity of Antonovsky's sense of coherence scale: A systematic review . Journal of Epidemiology and Community Health , 59 : 460 – 466 .
   PubMed Web of Science ®Google Scholar
• Eriksson , M and Lindström , B . 2006 . Antonovsky's sense of coherence scale and the relationship with health: A systematic review . Journal of Epidemiology and Community Health , 60 : 376 – 381 .
   PubMed Web of Science ®Google Scholar
• Eriksson , M and Lindström , B . 2008 . A salutogenic interpretation of the Ottawa Charter . Health Promotion International , 23 : 190 – 199 .
   PubMed Web of Science ®Google Scholar
• Farran , CJ , Miller , BH , Kaufman , JE , Donner , E and Fogg , L . 1999 . Finding meaning through caregiving: Development of an instrument for family caregivers to persons with Alzheimer's disease . Journal of Clinical Psychology , 55 : 1107 – 1125 .
   PubMed Web of Science ®Google Scholar
• Forsberg-Wärleby , G , Möller , A and Blomstrand , C . 2002 . Spouses of first-ever stroke victims: Sense of coherence in the first phase after stroke . Journal of Rehabilitation Medicine , 34 : 128 – 133 .
   PubMed Web of Science ®Google Scholar
• Gallagher , TJ , Wagenfeld , MO , Baro , F and Haepers , K . 1994 . Sense of coherence and caregiver role overload . Social Science and Medicine , 39 : 1615 – 1622 .
   PubMed Web of Science ®Google Scholar
• Gibson , CH . 1991 . A concept analysis of empowerment . Journal of Advanced Nursing , 16 : 354 – 361 .
   PubMed Web of Science ®Google Scholar
• Goodman , C . 1986 . Research on the informal carer: A selected literature review . Journal of Advanced Nursing , 11 : 705 – 712 .
   PubMed Web of Science ®Google Scholar
• Guberman , N , Nicholas , E , Nolan , M , Rembicki , D , Lundh , U and Keefe , J . 2003 . Impacts on practitioners of using research-based carer assessment tools: Experiences from the UK, Canada and Sweden, with insights from Australia . Health and Social Care in the Community , 11 : 345 – 355 .
   PubMed Web of Science ®Google Scholar
• Hollnagel , H and Malterud , K . 1995 . Shifting attention from risk factors to patients’ self-assessed health resources: A clinical model for general practice . Family Practice , 12 : 423 – 429 .
   PubMed Web of Science ®Google Scholar
• Hollnagel , H and Malterud , K . 2000 . From risk factors to health resources in medical practice . Medicine, Health Care and Philosophy , 3 : 257 – 264 .
   PubMedGoogle Scholar
• Kramer , BJ . 1997 . Gain in the caregiving experience: Where are we? What next? . The Gerontologist , 37 : 218 – 232 .
   PubMed Web of Science ®Google Scholar
• Krevers , B . 2006 . Magnusson, H., Johansson, L., & Öberg, B. , The National Survey Report for Sweden. In EUROFAMCARE Consortium (Eds.) Services for supporting family carers of older dependent people in Europe: Characteristics, coverage and usage. (Deliverable 18). Retrieved from http://www.uke.de/extern/eurofamcare/documents/deliverables/nasure_se.pdf
   Google Scholar
• Kristensson Ekwall , A and Rahm Hallberg , I . 2007 . The association between caregiving satisfaction, difficulties and coping among older family caregivers . Journal of Clinical Nursing , 16
   Web of Science ®Google Scholar
• Kristensson Ekwall , A , Sivberg , B and Rahm Hallberg , I . 2007 . Older caregivers’ coping strategies and sense of coherence in relation to quality of life . Journal of Advanced Nursing , 57 : 584 – 596 .
   PubMed Web of Science ®Google Scholar
• Lawton , MP , Moss , M , Kleban , MH , Glicksman , A and Rovine , M . 1991 . A two-factor model of caregiving appraisal and psychological well-being . Journal of Gerontology , 46 : 181 – 189 .
   PubMedGoogle Scholar
• Lindström , B and Eriksson , M . 2009 . The salutogenic approach to the making of HiAP/healthy public policy: Illustrated by a case study . Global Health Promotion , 16 : 17 – 28 .
   PubMedGoogle Scholar
• Louderback , P . 2000 . Elder care: A positive approach to caregiving . Journal of the American Academy of Nurse Practitioners , 12 : 97 – 99 .
   PubMedGoogle Scholar
• Malterud , K . 2001 . Qualitative research: Standards, challenges, and guidelines . The Lancet , 358 : 483 – 488 .
   PubMed Web of Science ®Google Scholar
• Malterud , K and Hollnagel , H . 1998 . Talking with women about personal health resources in general practice. Key questions about salutogenesis . Scandinavian Journal of Primary Health Care , 16 : 66 – 71 .
   PubMed Web of Science ®Google Scholar
• Malterud , K and Hollnagel , H . 1999 . Encouraging the strengths of women patients. A case study from general practice on empowering dialogues . Scandinavian Journal of Public Health , 27 : 254 – 259 .
   PubMed Web of Science ®Google Scholar
• McKee , K , Spazzafumo , L , Nolan , M , Wojszel , B , Lamura , G and Bien , B . 2009 . Components of the difficulties, satisfactions and management strategies of carers of older people: A principal component analysis of CADI-CASI-CAMI . Aging & Mental Health , 13 : 255 – 264 .
   PubMed Web of Science ®Google Scholar
• Malterud , K and Hollnagel , H . 2004 . Positive self-assessed health in patients with medical problems. A qualitative study from general practice . Scandinavian Journal of Primary Health Care , 22 : 11 – 15 .
   PubMed Web of Science ®Google Scholar
• Milberg , A and Strang , P . 2004 . Exploring comprehensibility and manageability in palliative home care: An interview study of dying cancer patients’ informal carers . Psycho-Oncology , 13 : 605 – 618 .
   PubMed Web of Science ®Google Scholar
• Milberg , A and Strang , P . 2007 . What to do when ‘there is nothing more to do’? A study within a salutogenic framework of family members’ experience of palliative home care staff . Psycho-Oncology , 16 : 741 – 751 .
   PubMed Web of Science ®Google Scholar
• Miller , B and Lawton , MP . 1997 . Positive aspects of caregiving. Introduction: Finding balance in caregiver research . The Gerontologist , 37 : 216 – 217 .
   Web of Science ®Google Scholar
• Mockler , D , Riordan , J and Murphy , M . 1998 . Psychosocial factors associated with the use/non-use of mental health services by primary caregivers of individuals with dementia . International Journal of Geriatric Psychiatry , 13 : 310 – 314 .
   PubMed Web of Science ®Google Scholar
• National Board of Health and Welfare. (2001). Närståendes vård av äldre. Anhörigas och professionellas perspektiv. (Anhörig 300), [Next of kins' care of the elderly. The perspective of Carers and professionals (Next-of-kin 300)]. Retrieved from http://www.socialstyrelsen.se/publikationer2001/2001-124-6
   Google Scholar
• National Board of Health and Welfare (2007). ICF – en grund för tvärprofessionell journaldokumentation – Förstudie 2006-10-01 (Publication No: 2007-131-11). [ICF – a base for trans-professional patient medical record information systems – Pre-study 2006-10-01]. Retrieved from http://www.socialstyrelsen.se/Lists/Artikelkatalog/Attachments/9265/2007-131-11_rev_200713112.pdf
   Google Scholar
• Nolan , M , Grant , G and Keady , J . 1998 . Assessing the needs of family carers. A guide for practitioners , Brighton : Pavilion Publishing (Brighton) Limited .
   Google Scholar
• Nolan , M , Keady , J and Grant , G . 1995 . Developing a typology of family care: Implications for nurses and other service providers . Journal of Advanced Nursing , 21 : 256 – 265 .
   PubMed Web of Science ®Google Scholar
• Nolan , M . & Lundh, U. (1999). Satisfaction and coping strategies of family carers. British Journal of Community Nursing, 4, 470–475
   Google Scholar
• Nolan , M , Lundh , U , Grant , G and Keady , J . 2003 . Partnership in family care: Understanding the caregiver career , Berkshire : Open University Press .
   Google Scholar
• Nolan , M . Mesthenos, L., Kofahl, C., Johansson, L., Melchiorre, G., & Pedich, W. (2006). Issues and challenges in carer support: A consideration of the literature. In EUROFAMCARE Consortium (Eds.) Services for supporting family carers of older dependent people in Europe: Characteristics, coverage and usage. (Deliverable 19, pp. 15–40). Retrieved from http://www.uke.de/extern/eurofamcare/documents/deliverables/teusure_web_080215.pdf
   Google Scholar
• Pearlin , LI , Mullan , JT , Semple , SJ and Skaff , MM . 1990 . Caregiving and the stress process: An overview of concepts and their measures . The Gerontologist , 30 : 583 – 594 .
   PubMed Web of Science ®Google Scholar
• Pretorius , C , Walker , S and Heyns , PA . 2009 . Sense of coherence amongst male caregivers in dementia . Dementia , 8 : 79 – 94 .
   Google Scholar
• Potgieter , JC and Heyns , PM . 2006 . Caring for a spouse with Alzheimer's disease: Stressors and strengths . South African Journal of Psychology , 36 : 547 – 563 .
   Web of Science ®Google Scholar
• Skelton , R . 1994 . Nursing and empowerment: Concepts and strategies . Journal of Advanced Nursing , 19 : 415 – 423 .
   PubMed Web of Science ®Google Scholar
• Swedish Council for Research in the Humanities and Social Sciences – HSFR (2002). Forskningsetiska principer inom humanistisk-samhällsvetenskaplig forskning. Retrieved from http://www.codex.vr.se/en/texts/HSFR.pdf. (Homepage, English guidelines: CODEX http://www.codex.vr.se/en/forskningmanniska.shtml)
   Google Scholar
• United Nations (1991). Implementation of the International Plan of Action on Ageing and related activities. ANNEX The United Nations Principles for Older Persons. To add life to the years that have been added to life. (A/Res/46/91, 74th plenary meeting). Retrieved from http://www.un.org/documents/ga/res/46/a46r091.htm
   Google Scholar
• Waldrop , DP and Rinfrette , ES . 2009 . Can short hospice enrollment be long enough? Comparing the perspectives of hospice professionals and family caregivers . Palliative and Supportive Care , 7 : 37 – 47 .
   PubMedGoogle Scholar
• World Health Organization (1986). The Ottawa Charter on Health Promotion. Retrieved from http://www.wpro.who.int/NR/rdonlyres/798A711D-DC30-4E27-8DD6-19561EB969CC/0/ottawa_charter.pdf
   Google Scholar
• World Health Organization (2002). Active Ageing Policy Framework. Retrieved from http://www.who.int/ageing/publications/active/en/index.html
   Google Scholar
• World Health Organization (2010). International Classification of Functioning, Disability and Health (ICF). Retrieved from http://www.who.int/classifications/icf/en/
   Google Scholar
• Zarit , SH . 2006 . The history of caregiving in dementia. In S.M. LoboPrabhu & V.A. Lomax (Eds.), Supporting the caregiver in dementia A guide for health care professionals (pp. 3–22). , Baltimore, MD , , US : John Hopkins University Press . Retrieved from http://site.ebrary.com/lib/gubselibrary/Doc?id=10188487&ppg=20
   Google Scholar