Touch, the essence of caring for people with end-stage dementia: A mental health perspective in Namaste Care

References

• Amore , M , Tagariello , P , Laterza , C and Savoia , E M . 2007 . Subtypes of depression in dementia . Archives of Gerontology and Geriatrics , 44 : 23 – 33 . doi: 10.1016/j.archger.2007.01.004
   PubMed Web of Science ®Google Scholar
• Arendt , H . 1978 . The life of the mind , New York : Harcourt Brace Jovanovich .
   Google Scholar
• Beckett , C , Maughan , B , Rutter , M , Castle , J , Colvert , E , Groothues , C Sonuga-Barke , E JS . 2006 . Do the effects of early severe deprivation on cognition persist into early adolescence? Findings from the English and Romanian adoptees study . Child Development , 77 : 696 – 711 . doi: 10.1111/j.1467-8624.2006.00898.x
   PubMed Web of Science ®Google Scholar
• Bellelli , G , Frisoni , G B , Turco , R and Trabucchi , M . 2008 . Depressive symptoms combined with dementia affect 12-months survival in elderly patients after rehabilitation post-hip fracture surgery . International Journal of Geriatric Psychiatry , 23 : 1073 – 1077 . doi: 10.1002/gps.2035
   PubMed Web of Science ®Google Scholar
• Bidewell , J W and Chang , E . 2011 . Managing dementia agitation in residential aged care . Dementia , 10 : 299 – 315 . doi: 10.1177/1471301211407789
   Google Scholar
• Birch , D and Draper , J . 2008 . A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia in the acute hospital setting . Journal of Clinical Nursing , 17 : 1144 – 1163 . doi: 10.1111/j.1365-2702.2007.02220.x
   PubMed Web of Science ®Google Scholar
• Bird , M and Blair , A . 2010 . Clinical psychology and anxiety and depression in dementia: Three case studies . Nordic Psychology , 62 : 43 – 54 . doi: 10.1027/1901-2276/a000010
   Web of Science ®Google Scholar
• Bonitz , V . 2008 . Use of physical touch in the ‘talking cure’: A journey to the outskirts of psychotherapy . Psychotherapy: Theory, Research, Practice, Training , 45 : 391 – 404 . doi: 10.1037/a0013311
   PubMed Web of Science ®Google Scholar
• Bornstein , R F . 2012 . From dysfunction to adaptation: An interactionist model of dependency . Annual Review of Clinical Psychology , 8 : 291 – 316 . doi: 10.1146/annurev-clinpsy-032511-143058
   PubMed Web of Science ®Google Scholar
• Boyatzis , R E . 1998 . Transforming qualitative information: Thematic analysis and code development , Thousand Oaks , CA : Sage .
   Google Scholar
• Chang , E and Johnson , A . 2012 . “ Challenges in advanced dementia ” . In Contemporary and innovative practice in palliative care , Edited by: Chang , E and Johnson , A . 164 – 151 . Croatia : InTech .
   Google Scholar
• Cohen-Mansfield , J and Marx , M S . 1992 . The social network of the agitated nursing home resident . Research on Aging , 14 : 110 – 123 . doi: 10.1177/0164027592141006
   Web of Science ®Google Scholar
• Deutscher , M . 2007 . Judgment after Arendt , Aldershot : Ashgate .
   Google Scholar
• Edvardsson , D , Winblad , B and Sandman , P O . 2008 . Person-centred care of people with severe Alzheimer's disease: Current status and ways forward . Lancet Neural , 7 : 362 – 367 . doi: 10.1016/S1474-4422(08)70063-2
   PubMed Web of Science ®Google Scholar
• Etters , L , Goodall , D and Harrison , B E . 2008 . Caregiver burden among dementia patient caregivers: A review of the literature . Journal of the American Academy of Nurse Practitioners , 20 : 423 – 428 . doi: 10.1111/j.1745-7599.2008.00342.x
   PubMed Web of Science ®Google Scholar
• Field , T . 2010 . Touch for socioemotional and physical well-being: A review . Developmental Review , 30 : 367 – 383 . doi: 10.1016/j.dr.2011.01.001
   Web of Science ®Google Scholar
• Fleischer , S , Berg , A , Zimmermann , M , Wüste , K and Behrens , J . 2009 . Nurse-patient interaction and communication: A systematic literature review . Journal of Public Health , 17 : 339 – 353 . doi: 10.1007/s10389-008-0238-1
   Google Scholar
• Haggard , P . 2008 . Human volition: Towards a neuroscience of will . Nature Reviews Neuroscience , 9 : 934 – 946 . doi: 10.1038/nrn2497
   PubMed Web of Science ®Google Scholar
• Hawranik , P , Johnston , P and Deatrich , J . 2008 . Therapeutic touch and agitation in individuals with Alzheimer's disease . Western Journal of Nursing Research , 30 : 417 – 434 . doi: 10.1177/0193945907305126
   PubMed Web of Science ®Google Scholar
• Horowitz , S . 2008 . The human–animal bond: Health implications across the lifespan . Alternative and Complementary Therapies , 14 : 251 – 256 . doi: 10.1089/act.2008.14505
   Google Scholar
• Husserl , E . 1974 . The crisis of the European sciences and transcendental phenomenology , Edmondston : Northwestern University Press .
   Google Scholar
• Johnson , A , Chang , E , Daly , J , Harrison , K , Noel , M , Hancock , K and Easterbrook , S . 2009 . The communication challenges faced in adopting a palliative care approach in advance dementia . International Journal of Nursing Practice , 15 : 467 – 474 . doi: 10.1111/j.1440-172X.2009.01795.x
   Web of Science ®Google Scholar
• Kitwood , T . 1993 . Person and process in dementia . International Journal of Geriatric Psychiatry , 8 : 541 – 545 . doi: 10.1002/gps.930080702
   Web of Science ®Google Scholar
• Kitzinger , J . 1994 . The methodology of focus groups: The importance of interaction between research participants . Sociology of Health and Illness , 16 : 103 – 121 . doi: 10.1111/1467-9566.ep11347023
   Web of Science ®Google Scholar
• Kutner , N G , Brown , P J , Stavisky , R C , Clark , W S and Green , R C . 2000 . ‘Friendship’ interactions and expression of agitation among residents of a dementia care unit . Research on Aging , 22 : 188 – 205 . doi: 10.1177/0164027500222005
   Web of Science ®Google Scholar
• Long , C O . 2009 . Palliative care for advanced dementia . Journal of Gerontological Nursing , 35 : 19 – 24 . doi: 10.3928/00989134-20091001-02
   PubMed Web of Science ®Google Scholar
• Mitchell , S L , Teno , J M , Kiely , D K , Shaffer , M L , Jones , R N , Prigerson , H G Hamel , M B . 2009 . The clinical course of advanced dementia . New England Journal of Medicine , 361 : 1529 – 1538 . doi: 10.1056/NEJMoa0902234
   PubMed Web of Science ®Google Scholar
• Nelson , C A . 2007 . A neurobiological perspective on early human deprivation . Child Development Perspectives , 1 : 13 – 18 . doi: 10.1111/j.1750-8606.2007.00004.x
   Web of Science ®Google Scholar
• Panke , J A and Volicer , L . 2002 . Caring for persons with dementia: A palliative approach . Journal of Hospice and Palliative Nursing , 4 : 143 – 149 . doi: 10.1097/00129191-200207000-00013
   Google Scholar
• Porszt-Miron , L , Florian , M and Burton , J . 1988 . A pilot study on the effect of rapport on the task performance of an elderly confused population . Canadian Journal of Occupational Therapy , 55 : 255 – 258 . doi: 10.1177/000841748805500508
   Google Scholar
• Raber , C , Teitelman , J , Watts , J and Kielhofner , G . 2010 . A phenomenological study of volition in everyday occupations of older people with dementia . The British Journal of Occupational Therapy , 73 : 498 – 506 . doi: 10.4276/030802210X12892992239116
   Web of Science ®Google Scholar
• Robinson , C A , Reid , R C and Cooke , H A . 2010 . A home away from home: The meaning of home according to families of residents with dementia . Dementia , 9 : 490 – 508 . doi: 10.1177/1471301210381679
   Google Scholar
• Ruff , C C , Alexander , I M and McKie , C . 2005 . The use of focus group methodology in health disparities research . Nursing Outlook , 53 : 134 – 140 . doi: 10.1016/j.outlook.2005.03.010
   PubMed Web of Science ®Google Scholar
• Sampson , E L . 2010 . Palliative care for people with dementia . British Medical Bulletin , 96 : 159 – 174 . doi: 10.1093/bmb/ldq024
   PubMed Web of Science ®Google Scholar
• Saunders , P A , de Medeiros , K , Doyle , P and Mosby , A . 2011 . The discourse of friendship: Mediators of communication among dementia residents in long-term care . Dementia , 11 : 347 – 361 . doi: 10.1177/1471301211421187
   Google Scholar
• Shattell , M M , Starr , S S and Thomas , S P . 2007 . ‘Take my hand, help me out’: Mental health service recipients’ experience of the therapeutic relationship . International Journal of Mental Health Nursing , 16 : 274 – 284 . doi: 10.1111/j.1447-0349.2007.00477.x
   PubMed Web of Science ®Google Scholar
• Simard , J . 2007 . The end-of-life Namaste Care Program for people with dementia , Baltimore , MD : Health Professions Press .
   Google Scholar
• Skovdahl , K , Sörlie , V and Kihlgren , M . 2007 . Tactile stimulation associated with nursing care to individuals with dementia showing aggressive or restless tendencies: An intervention study in dementia care . International Journal of Older People Nursing , 2 : 162 – 170 . doi: 10.1111/j.1748-3743.2007.00056.x
   PubMedGoogle Scholar
• Sluzki , C E . 2010 . Personal social networks and health: Conceptual and clinical implications of their reciprocal impact . Families, Systems and Health , 28 ( 1 ) : 1 – 18 . doi: 10.1037/a0019061
   PubMedGoogle Scholar
• Tranter , L J and Koutstaal , W . 2008 . Age and flexible thinking: An experimental demonstration of the beneficial effects of increased cognitively stimulating activity on fluid intelligence in healthy older adults . Aging, Neuropsychology, and Cognition , 15 : 184 – 207 . doi: 10.1080/13825580701322163
   PubMed Web of Science ®Google Scholar
• Westerhof , G J and Keyes , C LM . 2010 . Mental illness and mental health: The two continua model across the lifespan . Journal of Adult Development , 17 : 110 – 119 . doi: 10.1007/s10804-009-9082-y
   PubMed Web of Science ®Google Scholar
• Wilson , V . 2012 . Research methods: Focus groups . Evidence Based Library and Information Practice , 7 : 129 – 131 .
   Google Scholar