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Original Articles

Exploring the effectiveness of an Internet-based program for reducing caregiver distress using the iCare Stress Management e-Training Program

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Pages 544-554 | Received 13 Dec 2012, Accepted 29 Jan 2013, Published online: 06 Mar 2013

References

  • Alzheimer's Disease International . 2009 . World Alzheimer Report 2009 Retrieved from http://www.alz.co.uk/research/world-report
  • Alzheimer's Disease International . 2011 . World Alzheimer Report 2011: The benefits of early diagnosis and intervention Retrieved from http://www.alz.co.uk/research/world-report
  • Andren , S. and Elmstahl , S. 2005 . Family caregivers’ subjective experience of satisfaction in dementia care: Aspects of burden, subjective health and sense of coherence . Scandinavian Journal of Caring Science , 19 : 157 – 168 . doi: 10.1111/j.1471-6712.2005.00328.x
  • Au , A. , Lau , K. M. , Koo , S. , Cheung , G. , Pan , P. C. and Wong , M. K. 2009 . The effects of informal social support on depressive symptoms and life satisfaction in dementia caregivers in Hong Kong . Hong Kong Journal of Psychiatry , 19 ( 2 ) : 92 – 99 .
  • Au , A. , Li , S. , Lee , K. , Leung , P. , Cheung , G. , Pan , P- C. and … Gallagher-Thompson , D. 2010 . The Coping with Caregiving Group Program for Chinese caregivers of patients with Alzheimer's disease in Hong Kong . Patient Education and Counseling , 78 ( 2 ) : 256 – 260 . doi: 10.1016/j.pec.2009.06.005
  • Beach , S. R. , Schulz , R. , Williamson , G. M. , Miller , L. S. , Weiner , M. F. and Lance , C. E. 2005 . Risk factors for potentially harmful informal caregiver behavior . Journal of the American Geriatric Society , 53 : 255 – 261 . doi: 10.1111/j.1532-5415.2005.53111.x
  • Belle , S. , Burgio , L. , Burns , R. , Coon , D. , Czaja , S. , Gallagher-Thompson , D. and Zhang , S. 2006 . Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial . Annals of Internal Medicine , 145 : 727 – 738 . doi: 10.7326/0003-4819-145-10-200611210-00005
  • Brodaty , H. and Donkin , M. 2010 . Family carers of people with dementia , 4th ed. , London , , UK : Hodder Arnold .
  • Burgio , L. , Collins , I. , Schmidt , B. , Wharton , T. , McCallum , D. and DeCoster , J. 2009 . Translating the REACH caregiver intervention for use by area agency on aging personnel: The REACH OUT program . The Gerontologist , 49 ( 1 ) : 103 – 116 . doi: 10.1093/geront/gnp012
  • Carretero , S. , Garces , J. , Rodenas , F. and Sanjose , V. 2009 . The informal caregiver's burden of dependent people: Theory and empirical review . Archives of Gerontology and Geriatrics , 49 ( 1 ) : 74 – 79 . doi: 10.1016/j.archger.2008.05.004
  • Cohen , S. , Kamarck , T. and Mermelstein , R. 1983 . A global measure of perceived stress . Journal of Health and Social Behavior , 24 : 385 – 396 . doi: 10.2307/2136404
  • Cohen , S. and Williamson , G. 1988 . “ Perceived stress in a probability sample of the United States ” . In The social psychology of health: Claremont Symposium on Applied Social Psychology , Edited by: Spacapan , S. and Oskamp , S. Newbury Park , CA : Sage .
  • Coon , D. W. , Rubert , M. , Solano , N. , Mausbach , B. , Kraemer , H. , Arguëlles , T. and Gallagher-Thompson , D. 2004 . Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study . Aging and Mental Health , 8 : 330 – 345 . doi: 10.1080.13607860410001709683
  • Coon , D. W. , Keaveny , M. , Valverde , I. , Dadvar , S. and Gallagher-Thompson , D. 2012 . Providing evidence-based psychological treatments for distress in family caregivers of older adults , Washington , DC : American Psychological Association Press .
  • Etters , L. , Goodall , D. and Harrison , B. 2008 . Caregiver burden among dementia patient caregivers: A review of the literature . Journal of the American Academy of Nurse Practitioners , 20 ( 8 ) : 423 – 428 . doi: 10.1111/j.1745-7599.2008.00342.x
  • EUROFAMCARE . 2006 . Services for supporting family carers of elderly people in Europe: Characteristics . coverage and usage: Summary of main findings from EUROFAMCARE , Retrieved from http://www.uke.de/extern/eurofamcare/documents/deliverables/summary_of_findings.pdf
  • Family Caregiver Alliance. 2011 . Fact sheet: Selected caregiver statistics , Retrieved from http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodei=d439
  • Gallagher , D. , Rose , J. , Rivera , P. , Lovett , S. and Thompson , L. W. 1989 . Prevalence of depression in family caregivers . The Gerontologist , 29 ( 4 ) : 449 – 456 . doi: 10.1093.geront/29.4.449
  • Gallagher-Thompson , D. , Coon , D. W. , Solano , N. , Ambler , C. , Rabinowitz , Y. and Thompson , L. W. 2003 . Change in indices of distress among Latina and Anglo female caregivers of elderly relatives with dementia: Site specific results from the REACH national collaborative study . The Gerontologist , 43 ( 4 ) : 580 – 591 . doi: 10.1093/geront/43.4.580
  • Gallagher-Thompson , D. , Gray , H. , Tang , P. , Pu , C- Y. , Tse , C. , Hsu , S. and …Thompson , L. W. 2007 . Impact of in-home intervention versus telephone support in reducing depression and stress of Chinese caregivers: Results of a pilot study . American Journal of Geriatric Psychiatry, 15 , : 425 – 434 . doi: 10.1097.JGP.obo13e3180312028
  • Gallagher-Thompson , D. , Gray , H. , Dupart , T. , Jimenez , D. and Thompson , L. 2008 . Effectiveness of cognitive/behavioral small group intervention for reduction of depression and stress in Non Hispanic White and Hispanic/Latino women dementia family caregivers: Outcomes and mediators of change . Journal of Rational-Emotive and Cognitive-Behavior Therapy, , 26 : 286 – 303 . doi: 10.1007/s10942-008-0087-4
  • Gallagher-Thompson , D. , Wang , P- C. , Liu , W. , Cheung , V. , Peng , R. , China , D. and Thompson , L. W. 2010 . Effectiveness of a psychoeducational skill training DVD program to reduce stress in Chinese American dementia caregivers . Aging and Mental Health , 14 ( 3 ) : 263 – 273 . doi: 10.1080/13607860903420989
  • Gallagher-Thompson , D. , Tzuang , M. , Au , A. , Brodaty , H. , Charlesworth , G. , Gupta , R. and Shyu , Y. 2012 . International perspectives on nonpharmacological best practices for dementia family caregivers: A review . Clinical Gerontologist , 35 ( 4 ) : 316 – 355 . doi: 10.1080/07317115.2012.678190
  • Hepburn , K. , Tornatore , J. , Center , B. and Ostwald , S. 2001 . Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes . Journal of the American Geriatrics Society , 49 ( 4 ) : 450 – 457 . doi: 10.1046/j.1532-5415.2001.49090.x
  • Hepburn , K. , Lewis , M. , Tornatore , J. , Sherman , C. and Bremer , K. 2007 . The Savvy Caregiver program: The demonstrated effectiveness of a transportable dementia caregiver psychoeducational program . Journal of Gerontological Nursing , 33 : 30 – 36 .
  • Hertzog , C. , Van Alstine , J. , Usala , P. D. , Hultsch , D. F. and Dixon , R. 1990 . Measurement properties of the Center for Epidemiological Studies Depression Scale (CES-D) in older populations . Psychological Assessment: A Journal of Consulting and Clinical Psychology , 2 ( 1 ) : 64 – 72 . doi: 10.1037/1040-3590.2.1.64
  • Hesse , B. W. , Nelson , D. E. , Kreps , G. L. , Croyle , R. T. , Arora , N. K. , Rimer , B. K. and Viswanath , K. 2005 . Trust and sources of health information. The impact of the Internet and its implications for health care providers: Findings from the first Health Information National Trends Survey . Archives of Internal Medicine , 165 : 2618 – 2264 . doi: 10.1001/archinte.165.22.2618
  • Holland , J. , Thompson , L. W. , Tzuang , M. and Gallagher-Thompson , D. 2010 . Psychosocial factors among Chinese American women dementia caregivers and their association with salivary cortisol: Results of an exploratory study . Aging International , 35 ( 2 ) : 109 – 127 . doi: 10.1007/s12126-010-9057-0
  • Holland , J. M. , Thompson , L. W. , Cucciare , M. A. , Tsuda , A. , Okamura , H. , Spiegel , D. and Gallagher-Thompson , D. 2011 . Cortisol outcomes among Caucasian and Latina/Hispanic women caring for a family member with dementia: A preliminary examination of psychosocial predictors and effects of a psychoeducational intervention . Stress and Health , 27 ( 4 ) : 334 – 346 . doi: 10.1002/smi.1375
  • Lai , C. and Chung , J. 2011 . Caregivers’ informational needs on dementia and dementia care . Asian Journal of Gerontology and Geriatrics , 2 ( 2 ) : 78 – 87 .
  • Leung , L. and Gallagher-Thompson , D. 2005 . Stress management with a Chinese female dementia caregiver . Clinical Gerontologist , 28 ( 3 ) : 87 – 89 . doi: 10.1300/J018v28n03_08
  • Lewis , M. , Hobday , J. and Hepburn , K. 2010 . Internet-based program for dementia caregivers . American Journal of Alzheimer's Disease and Other Dementias , 25 ( 8 ) : 674 – 679 . doi: 10.1177/1533317510385812
  • Losada Baltar , A. , Izal Fernandez de Troconiz , M. , Montorio Cerrato , I. , Marquez Gonzalez , M. and Perez Rojo , G. 2004 . Differential efficacy of two psychoeducational interventions for dementia family caregivers . Review of Neurology , 38 ( 8 ) : 701 – 708 .
  • Marquez-Gonzalez , M. , Losada , A. , Izel , M. , Perez-Rojo , G. and Montorio , I. 2007 . Modification of dysfunctional thoughts about caregiving in dementia family caregivers: Description and outcomes of an intervention programme . Aging and Mental Health , 11 : 616 – 625 . doi: 10.1080/13607860701368455
  • Marziali , E. and Garcia , L. 2011 . Dementia caregivers’ responses to 2 Internet-based intervention programs . American Journal of Alzheimer's Disease and Other Dementias , 26 ( 1 ) : 36 – 43 . doi: 10.1177/1533317510387586
  • Haley , M. S. , Clay , W. E. , J , O. and Roth , D. L. 2006 . Improving caregiver well-being delays nursing home placement of patients with Alzheimer's disease . Neurology , 67 : 1592 – 1597 . doi: 10.1212/01.wnl.0000242727.81172.91
  • Nielsen-Bohlman , L. , Panzer , A. , Hamlin , B. and Kindig , D. 2004 . Health literacy: A prescription to end confusion , Washington , DC : National Academies Press .
  • Nikmat , A. , Hawthorne , G. and Ahmad Al-mashoor , S. 2011 . Dementia in Malaysia: Issues and challenges . ASEAN Journal of Psychiatry , 12 ( 1 ) : 1 – 7 .
  • Norburn , J. , Patrick , D. L. , Beresford , S. A. and Stein , J. 1987 . Functional status and perceived quality of life among older persons . Proceedings of the 21st Public Health Conference on Records and Statistics . July 13–15 1987 , Washington , DC . National Center for Health Statistics .
  • Olazaran , J. , Reisberg , B. , Clare , L. , Cruz , I. , Peña-Casanova , J. , del Ser , T. and Muniz , R. 2010 . Nonpharmacological therapies in Alzheimer's disease: A systematic review of efficacy . Dementia and Geriatric Cognitive Disorders , 30 : 161 – 178 . doi: 10.1159/000316119
  • Ostwald , S. , Hepburn , K. , Caron , W. , Burns , T. and Mantell , R. 1999 . Reducing caregiver burden: A randomized psychoeducational intervention for caregivers of persons with dementia . The Gerontologist , 39 ( 3 ) : 299 – 309 . doi: 10.1093/geront/39.3.299
  • Parry , J. and Weiyuan , C. 2011 . Alzheimer's Disease International: Global perspective Retrieved from http://www.alz.co.uk/adi/pdf/gp201106.pdf
  • Patrick , D. L. , Danis , M. , Southerland , L. I. and Hong , G. 1988 . Quality of life following intensive care . Journal of General Internal Medicine , 3 ( 3 ) : 218 – 223 . doi: 10.1007/BF02596335
  • Powell , J. , Chiu , T. and Eysenbach , G. 2008 . A systematic review of networked technologies supporting carers of people with dementia . Journal of Telemedicine and Telecare , 14 ( 3 ) : 154 – 156 . doi: 10.1258/jtt.2008.003018
  • Prince , M. , Brodaty , H. , Uwakwe , R. , Acosta , D. , Ferri , C. , Guerra , M. and Liu , Z. 2011 . Strain and its correlates among carers of people with dementia in low and middle-income countries. A 10/66 Dementia Research Group population-based survey . International Journal of Geriatric Psychiatry , doi: 10.1002/gps.2727
  • Rabinowitz , Y. and Gallagher-Thompson , D. 2007 . Health behaviors among female family Alzheimer's dementia caregivers: The role of ethnicity and kinship status . Clinical Gerontologist , 31 ( 2 ) : 17 – 32 . doi: 10.1300/J018v31n02_01
  • Radloff , L. S. 1977 . The CES-D Scale: A self-report depression scale for research in the general population . Applied Psychological Measurement , 1 : 385 – 401 . doi: 10.1177/014662167700100306
  • Sorensen , S. , Duberstein , P. , Gill , D. and Pinquart , M. 2006 . Dementia care: Mental health effects, intervention strategies, and clinical implications . Lancet Neurology , 5 : 961 – 973 . doi: 10.1016/S1474-4422(06)70599-3
  • Tang , P. and Gallagher-Thompson , D. 2005 . Treatment of depressive symptoms in a Chinese female dementia caregiver: A case study using cognitive/behavioral methods . Clinical Gerontologist , 28 ( 3 ) : 81 – 85 . doi: 10.1300/J018v28no3_07
  • Teri , I. , Truax , P. , Logsdon , R. , Uomoto , J. , Zarit , S. and Vitaliano , P. 1992 . The Revised Memory and Behavior Problem Checklist . Psychology and Aging , 7 : 622 – 631 . doi: 10.1037/0882-7974.7.4.622
  • 2009 . The Alzheimer's Project Retrieved from http://www.hbo.com/alzheimers/index.html
  • Vitaliano , P. P. , Zhang , J. and Scanlan , J. M. 2003 . Is caregiving hazardous to one's physical health? A meta-analysis . Psychological Bulletin , 129 : 946 – 972 . doi: 10.1037/0033-2909.129.6.946
  • Wang , P. C. and Gallagher-Thompson , D. 2005 . Resolution of intergenerational conflict in a Chinese female dementia caregiver: A case study using cognitive/behavioral methods . Clinical Gerontologist , 28 ( 3 ) : 91 – 94 . doi: 10.1300/J018v8n03_09
  • World Health Organization . 2012 . Global brief for World Health Day 2012 Retrieved from http://whqlibdoc.who.int/hq/2012/WHO_DCO_WHD_2012.2_eng.pdf

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