2,742
Views
41
CrossRef citations to date
0
Altmetric
General Articles

Exploring caregiving experiences: caregiver coping and making sense of illnessFootnote

, &
Pages 600-609 | Received 06 Aug 2013, Accepted 23 Oct 2013, Published online: 04 Dec 2013

References

  • Aubeeluck, A., & Buchanan, H. (2006). Capturing the Huntington's disease spousal carer experience: A preliminary investigation using the photovoice method. Dementia, 5, 95–116. doi:10.1177/1471301206059757
  • Banjeree, S., Hellier, J., Romeo, R., Dewey, M., Knapp, M., Ballard, C., … Burns, A. (2013). Study of the use of antidepressants for depression in dementia: The HTA-SADD trial – a multicentre, randomised, double-blind, placebo-controlled trial of the clinical effectiveness and cost-effectiveness of Sertraline and Mirtazapine. Health Technology Assessment, 17, 1–166. doi:10.3310/hta17070
  • Brereton, L. (1997). Preparation for family care-giving: Stroke as a paradigm case. Journal of Clinical Nursing, 6, 425–434. doi:10.1111/j.1365-2702, 1997.tb00339.x
  • Bruvik, F.K., Ulstein, I.D., Ranhoff, A.H., & Engedal, K. (2013). The effect of coping on the burden in family carers of persons with dementia. Aging & Mental Health, 17, 973–978. doi: 10.1080/13607863.2013.790928
  • Bukowski, K., & Buetow, S. (2011). Making the invisible visible: A photovoice exploration of homeless women's health and lives in central Auckland. Social Science & Medicine, 72, 739–746. doi:10.1016/j/socscimed.2010.11.029
  • Burton, C., & Gibbon, B. (2005). Expanding the role of the stroke nurse: A pragmatic clinical trial. Journal of Advanced Nursing, 52, 640–650. doi:10.1111/j.1365-2648.2005.03639.x
  • Carers UK. (2010). The voice of carers: New to caring. Retrieved from http://www.carersuk.org/Information/Newtocaring
  • Carlisle, A.C.S., John, A.M.H., Fife-Schaw, C., & Lloyd, M. (2005). The self-regulatory model in women with rheumatoid arthritis: Relationships between illness representations, coping strategies, and illness outcome. British Journal of Health Psychology, 10, 571–587. doi:10.1348/135910705X52309
  • Carpenter, J. (2008). Metaphors in qualitative research: Shedding light or casting shadows. Research in Nursing & Health, 31, 274–282. doi:10.1002/nur.20253
  • Carver, C.S., Scheier, M.F., & Weintraub, J.K. (1989). Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology, 56, 267–283. doi:10.1037/0022-3514.56.2.267
  • Draper, P., & Brocklehurst, H. (2007). The impact of stroke on the well-being of the patient's spouse: An exploratory study. Journal of Clinical Nursing, 16, 264–271. doi:10.1111/j.1365-2702.2006.01575.x
  • Etters, L., Goodall, D., & Harrison, B.E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioner, 20, 423–428. doi:10.1111/j.1745-7599.2008.00342.x
  • Folkman, S. (1997). Positive psychological states and coping with severe stress. Social Science & Medicine, 45, 1207–1221. doi:10.1016/S0277-9536(97)00040-3
  • Folkman, S. (2010). Stress, coping, and hope. Psycho-Oncology, 19, 901–908. doi:10.1002/pon.1836
  • Folkman, S., & Tedlie-Moskowitz, J. (2000a). Positive affect and the other side of coping. American Psychologist, 55, 647–654. doi:10.1037/0003-066X.55.6.647
  • Folkman, S., & Tedlie-Moskowitz, J. (2000b). Stress, positive emotion, and coping. Current Directions in Psychological Science, 9, 115–118. doi:10.1111/1467-8721.00073
  • Forsberg-Warleby, G., Moller, A., & Bloomstrand, C. (2001). Spouses of first-ever stroke patients: Psychological well-being in the first phase after stroke. Stroke, 32, 1646–1651. doi:10.1161/01.STR.32.7.1646
  • Greenglass, E.R., & Fiksenbaum, L. (2009). Proactive coping, positive affect, and well-being: Testing for mediation using path analysis. European Psychologist, 14, 29–39. doi: 10.1027/1016-9040.14.1.29
  • Hagger, M.S., & Orbell, S. (2003). A meta-analytic review of the common-sense model of illness representations. Psychology & Health, 18, 141–184. doi:10.1080/088704403100081321
  • Hill, K., Higgins, A., Dempster, M., & McCarthy, A. (2009). Father's views and understanding of their roles in families with a child with acute lymphoblastic leukaemia. An interpretative phenomenological analysis. Journal of Health Psychology, 14, 1268–1280. doi:10.1177/1359105309342291
  • Hunt, D., & Smith, J.A. (2004). The personal experience of carers of stroke survivors: An interpretative phenomenological analysis. Disability and Rehabilitation, 26, 1000–1011. doi:10.1080/09638280410001702423
  • Hunter, A., Lusardi, P., Zucker, D., Jacelon, C., & Chandler, G. (2002). Making meaning: The creative component in qualitative research. Qualitative Health Research, 12, 388–398. doi:10.1177/104973202129119964
  • Kim, Y., Baker, F., Spillers, R.L., & Wellisch, D.K. (2006). Psychological adjustment of cancer caregivers with multiple roles. Psycho-Oncology, 15, 795–804. doi:10/1002/pon.1013
  • Kramer, B.J.C. (1997a). Differential predictors of strain and gain among husbands caring for wives with dementia. The Gerontologist, 37, 239–249. doi:10.1093/geront/37.2.239
  • Kramer, B.J.C. (1997b). Gain in the caregiving experience. Where are we. What next. The Gerontologist, 37, 218–232. doi:10.1093/geront/37.2.218
  • Lawrence, J.A., Goodnow, J.J., Woods, K., & Karantzas, G. (2002). Distributions of caregiving tasks among family members: The place of gender and availability. Journal of Family Psychology, 16, 493–509. doi:10.1037/0893-3200.16.4.493
  • Lawton, M.P., Moss, M., Kleban, M.H., Glicksman, A., & Rovine, M. (1991). A two-factor model of caregiving appraisal and psychological well-being. Journal of Gerontology, 46, 181–189. doi:10.1093/geronj/46.4.P181
  • Lazarus, R.S. (1999). Stress and emotion: A new synthesis. London: Free Association Books.
  • Lazarus, R.S., & Folkman, S. (1984). Stress, appraisal and coping. New York, NY: Springer.
  • Lee, C. (1999). Health, stress, and coping among women caregivers: A review. Journal of Health Psychology, 4, 27–40. doi:10.1177/135910539900400104
  • Lee, C., & Gramotnev, H. (2007). Transitions into and out of caregiving: Health and social characteristics of mid-age Australian women. Psychology & Health, 22, 193–209. doi:10.1080/14756360600682202
  • Leventhal, H., Leventhal, E.A., & Cameron, L. (2001). Representation, procedures, and affect in illness self-regulation: A perceptual-cognitive model. In A. Baum, T.A. Revenson, & J.E. Singer (Eds.), Handbook of health psychology (pp. 19–48). London: Erlbaum.
  • Lopez, E.D.S., Eng, E., Randall-David, E., & Robinson, N. (2005). Quality-of-life concerns of African American breast cancer survivors within rural north Carolina: Blending the techniques of photovoice and grounded theory. Qualitative Health Research, 15, 99–115. doi:10.1177/1049732304270766
  • Moss-Morris, R., Weinman, J., Petrie, K., Horne, R., Cameron, L., & Buick, D. (2002). The revised illness perception questionnaire (IPQ-R). Psychology & Health, 17, 1–16. doi:10.1080/08870440290001494
  • Neufeld, A., & Harrison, M.J. (2003). Unfulfilled expectations and negative interactions: Nonsupport in the relationships of women caregivers. Journal of Advanced Nursing, 41, 323–331. doi:10.1046/j.1365-2648.2003.02530.x
  • Parveen, S., Morrison, V., & Robinson, C.A. (2011). Ethnic variations in the caregiver role: A qualitative study. Journal of Health Psychology, 16, 862–872. doi:10.1177/1359105310392416
  • Parveen, S., Morrison, V., & Robinson, C.A. (2013a). Does coping mediate the relationship between familism and caregiver outcomes. Aging & Mental Health. Advanced online publication. doi:10.1080/13607863.2013.827626
  • Parveen, S., Morrison, V., & Robinson, C.A. (2013b). Ethnicity, familism and willingness to care: Important influences on caregiver mood. Aging & Mental Health, 17, 115–124. doi:10.1080/13607863.2012.717251
  • Pinquart, M. & Sorensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250–267. doi:10.1037/0882-7974.18.2.250
  • Pinquart, M., & Sorensen, S. (2004). Associations of caregiver stressors and uplifts with subjective well-being and depressive mood: A meta-analytic comparison. Aging & Mental Health, 8, 438–449. doi:10.1080/13607860410001725036
  • Quinn, C., Clare, L., Pearce, A., & van Dijkhuizen, M. (2008). The experience of providing care in the early stages of dementia: An interpretative phenomenological analysis. Aging & Mental Health, 12, 769–778. doi:10.1080/13607860802380623
  • Radley, A., & Taylor, D. (2003). Images of recovery: A photo-elicitation study on the hospital ward. Qualitative Health Research, 13, 77–99. doi:10.1177/1049732302239412
  • Rapp, S.R., & Chao, D. (2000). Appraisals of strain and of gain: Effects on psychological wellbeing of caregivers of dementia patients. Aging & Mental Health, 4, 142–147. doi:10.1080/13607860050008664
  • Roberts, J.S., & Connell, C.M. (2000). Illness representations among first-degree relatives of people with Alzheimer disease. Alzheimer Disease & Associated Disorders, 14, 129–136. Retrieved from http://journals.Iww.com/alzheimer'sjournal/toc/2000/07000
  • Roesch, S.C., & Weiner, B. (2001). A meta-analytic review of coping with illness: Do causal attributions matter? Journal of Psychosomatic Research, 50, 205–219. doi:10.1016/S0022-3999(01)00188-X
  • Samuelsson, A.M., Annerstedt, L., Elmstahl, S., Samuelsson, S., & Grafstrom, M. (2001). Burden of responsibility experienced by family caregivers of elderly dementia sufferers. Scandinavian Journal of Caring Science, 15, 25–33. doi:10.1046/j.1471-6712.2001.1510025.x
  • Sanders, S., Ott, C.H., Kelber, S.T., & Noonan, P. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer's disease and related dementia. Death Studies, 32, 495–523. doi:10.1080/07481180802138845
  • Schroevers, M., Kraaij, V., & Garnefski, N. (2007). Goal disturbance, cognitive coping strategies, and psychological adjustment to different types of stressful life event. Personality and Individual Differences, 43, 413–423. doi:10.1016/j.paid.2006.12.009
  • Schulz, R., & Beach, S.R. (1999). Caregiving as a risk factor for mortality: The caregiver health effects study. The Journal of the American Medical Association, 282, 2215–2219. doi:10.1001/jama.282.23.22.2215
  • Schulz, R., Beach, S.R., Cook, T.B., Martire, L.M., Tomlinson, J.M., & Monin, J.K., (2012). Predictors and consequences of perceived lack of choice in becoming an informal caregiver. Aging & Mental Health, 16, 712–712. doi:10.1080/13607863.2011.651439
  • Semiatin, A.M., & O’Connor, M.K. (2012). The relationship between self-efficacy and positive aspects of caregiving in Alzheimer's disease caregivers. Aging & Mental Health, 6, 683–688. doi:10.1080/13607863.2011.651437
  • Smith, C.A., Haynes, K.N., Lazarus, R.S., & Pope, L.K. (1993). In search of hot cognitions: Attributions, appraisals and their relation to emotion. Journal of Personality and Social Psychology, 65, 916–929. doi:10.1037/0022-3514.65.5.916
  • Smith, J.A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. London: Sage.
  • Stanton, A.L., Revenson, T.A., & Tennen, H. (2007). Health Psychology: Psychological adjustment to chronic disease. Annual Reviews in Psychology, 58, 565–592. doi:10.1146/annurev.psych.58.110405.085615
  • Tennen, H., Affleck, G., Armeli, S., & Carney, M.A. (2000). A daily process approach to coping: Linking theory, research and practice. American Psychologist, 55, 626–636. doi:10.1037/0003-066X.55.6.626
  • The Stroke Association. (2011). Facts and Figures. Retrieved from http://www.stroke.org.uk
  • Vitaliano, P.P., Zhang, J., & Scanlan, J.M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129, 946–972. doi:10.1037/0033-2909.129.6.946
  • Wang, C., & Burris, M.A. (1994). Empowerment through Photo Novella: Portraits of participation. Health Education & Behavior, 21, 171–186. doi:10.1177/109019819402100204
  • Wang, C., & Burris, M.A. (1997). Photovoice: Concept, methodology and use for participatory needs assessment. Health Education & Behavior, 24, 369–387. doi:10.1177/109019819702400309
  • Wang, C.C., Yi, W.K., Tao, Z.W., & Carovano, K. (1998). Photovoice as a participatory health promotion strategy. Health Promotion International, 13, 75–86. doi:10.1093/heapro/13.1.75
  • Weinman, J., Petrie, K.J., Sharpe, N., & Walker, S. (2000). Causal attributions in patients and spouses following first-time myocardial infarction and subsequent lifestyle changes. British Journal of Health Psychology, 5, 263–273. doi:10.1348/135910700168900
  • Williams, K.L., Morrison, V., & Robinson. (2011). Longitudinal predictors of carer coping and outcomes. In gaining insight into caregiving experiences and motivation. (Unpublished doctoral dissertation). Bangor University, Bangor, UK.
  • Williams, K.L., Morrison, V., & Robinson. (2013). Exploring caregiving outcomes: A qualitative approach. Manuscript in preparation.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.