Variables associated to quality of life among nursing home patients with dementia

References

• Banerjee, S., Samsi, K., Petrie, C.D., Alvir, J., Treglia, M., Schwam, E.M., & Valle, M. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 25, 15–24. doi:10.1002/gps.2090
   Web of Science ®Google Scholar
• Barca, M.L., Engedal, K., Laks, J., & Selbaek, G. (2011). Quality of life among elderly patients with dementia in institutions. Geriatric Cognitive Disorders, 31(6), 435–442. doi:000328969 [pii] 10.1159/000328969
   PubMed Web of Science ®Google Scholar
• Barca, M.L., Selbæk, G., Laks, J., & Engedal, K. (2009). Factors associated with depression in Norwegian nursing homes. Journal of Geriatric Psychiatry, 24(4), 417–425. doi:10.1002/gps.2139
   Google Scholar
• Beer, C., Flicker, L., Horner, B., Bretland, N., Scherer, S., Lautenschlager, N.T., … Almeida, O.P. (2010). Factors associated with self and informant ratings of the quality of life of people with dementia living in care facilities: A cross sectional study. PLoS One, 5(12), e15621. doi:10.1371/journal.pone.0015621
   PubMed Web of Science ®Google Scholar
• Beerens, H.C., Zwakhalen, S.M., Verbeek, H., Ruwaard, D., & Hamers, J.P. (2013). Factors associated with quality of life of people with dementia in long-term care facilities: A systematic review. International Journal of Nursing Studies, 50(9), 1259–1270. doi:S0020-7489(13)00044-8 [pii] 10.1016/j.ijnurstu.2013.02.005
   Google Scholar
• Bruvik, F.K., Ulstein, I.D., Ranhoff, A.H., & Engedal, K. (2012). The quality of life of people with dementia and their family carers. Geriatric Cognitive Disorders, 34(1), 7–14. doi:000341584 [pii] 10.1159/000341584
   PubMed Web of Science ®Google Scholar
• Cadigan, R.O., Grabowski, D.C., Givens, J.L., & Mitchell, S.L. (2012). The quality of advanced dementia care in the nursing home: The role of special care units. Med Care, 50(10), 856–862. doi:10.1097/MLR.0b013e31825dd713 [pii] 00005650-201210000-00006
   PubMed Web of Science ®Google Scholar
• Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D.A., & Gornbein, J. (1994). The neuropsychiatric inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308–2314.
   PubMed Web of Science ®Google Scholar
• Engedal, K., & Haugen, P.K. (1993). The prevalence of dementia in a sample of elderly Norwegians. International Journal of Geriatric Psychiatry, 8, 565–570.
   Web of Science ®Google Scholar
• Ettema, T.P., Droes, R.M., de Lange, J., Mellenbergh, G.J., & Ribbe, M.W. (2007). QUALIDEM: Development and evaluation of a dementia specific quality of life instrument–validation. International Journal of Geriatric Psychiatry, 22(5), 424–430. doi:10.1002/gps.1692
   PubMed Web of Science ®Google Scholar
• Fillenbaum, G.G., Peterson, B., & Morris, J.C. (1996). Estimating the validity of the clinical Dementia Rating Scale: The CERAD experience. Consortium to Establish a Registry for Alzheimer's Disease. Aging (Milano), 8(6), 379–385.
   PubMedGoogle Scholar
• Garre-Olmo, J., Planas-Pujol, X., Lopez-Pousa, S., Weiner, M.F., Turon-Estrada, A., Juvinya, D., … Vilalta-Franch, J. (2010). Cross-cultural adaptation and psychometric validation of a Spanish version of the Quality of Life in Late-Stage Dementia Scale. Quality of Life Research, 19(3), 445–453. doi:10.1007/s11136-010-9594-8
   PubMed Web of Science ®Google Scholar
• Gerritsen, D.L., Jongenelis, K., Steverink, N., Ooms, M.E., & Ribbe, M.W. (2005). Down and drowsy? Do apathetic nursing home residents experience low quality of life? Aging & Mental Health, 9(2), 135–141. doi:10.1080/13607860412331336797
   PubMed Web of Science ®Google Scholar
• Gonzalez-Salvador, T., Lyketsos, C.G., Baker, A., Hovanec, L., Roques, C., Brandt, J., & Steele, C. (2000). Quality of life in dementia patients in long-term care. International Journal of Geriatric Psychiatry, 15(2), 181–189.
   PubMed Web of Science ®Google Scholar
• Hoe, J., Hancock, G., Livingston, G., & Orrell, M. (2006). Quality of life of people with dementia in residential care homes. British Journal of Psychiatry, 188, 460–464. doi:188/5/460 [pii] 10.1192/bjp.bp.104.007658
   PubMed Web of Science ®Google Scholar
• Hoe, J., Hancock, G., Livingston, G., Woods, B., Challis, D., & Orrell, M. (2009). Changes in the quality of life of people with dementia living in care homes. Alzheimer Disease and Associated Disorders, 23(3), 285–290.
   PubMed Web of Science ®Google Scholar
• Hoe, J., Katona, C., Orrell, M., & Livingston, G. (2007). Quality of life in dementia: Care recipient and caregiver perceptions of quality of life in dementia: The LASER-AD study. International Journal of Geriatric Psychiatry, 22(10), 1031–1036. doi:10.1002/gps.1786
   PubMed Web of Science ®Google Scholar
• Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia- the LASER-AD study. Age & Ageing, 34, 130–135. doi:10.1093/ageing/afi030
   PubMed Web of Science ®Google Scholar
• Hughes, C.P., Berg, L., Danziger, W.L., Coben, L.A., & Martin, R.L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566–572.
   PubMed Web of Science ®Google Scholar
• Hurt, C., Bhattacharyya, S., Burns, A., Camus, V., Liperoti, R., Marriott, A., … Byrne, E.J. (2008). Patient and caregiver perspectives of quality of life in dementia. An investigation of the relationship to behavioural and psychological symptoms in dementia. Geriatric Cognitive Disorders, 26(2), 138–146. doi:000149584 [pii] 10.1159/000149584
   PubMed Web of Science ®Google Scholar
• Jongenelis, K., Pot, A.M., Eisses, A.M., Beekman, A.T., Kluiter, H., & Ribbe, M.W. (2004). Prevalence and risk indicators of depression in elderly nursing home patients: The AGED study. Journal of Affective Disorders, 83(2–3), 135–142. doi:10.1016/j.jad.2004.06.001
   PubMed Web of Science ®Google Scholar
• Kaufer, D.I., Cummings, J.L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., … DeKosky, S.T. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and the Clinical Neurosciences, 12(2), 233–239.
   PubMed Web of Science ®Google Scholar
• Kirkevold, Ø. (2005). Use of restraints in Norwegian nursing homes, focusing on persons with dementia. Oslo: Faculty of Medicine, University of Oslo.
   Google Scholar
• Lawton, M.P. (1994). Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 8 (Suppl 3), 138–150.
   PubMed Web of Science ®Google Scholar
• Lawton, M.P., & Brody, E.M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179–186.
   PubMed Web of Science ®Google Scholar
• Leon-Salas, B., Olazaran, J., Cruz-Orduna, I., Aguera-Ortiz, L., Dobato, J.L., Valenti-Soler, M., … Martinez-Martin, P. (2013). Quality of life (QOL) in community-dwelling and institutionalized Alzheimer's disease (AD) patients. Archives of Gerontology and Geriatrics, 57(3), 257–262. doi:10.1016/j.archger.2013.04.013
   PubMed Web of Science ®Google Scholar
• Logsdon, R.G., Gibbons, L.E., McCurry, S.M., & Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510–519.
   PubMed Web of Science ®Google Scholar
• Lyketsos, C.G., & Olin, J. (2002). Depression in Alzheimer's disease: Overview and treatment. Society of Biological Psychiatry, 52, 243–252.
   PubMed Web of Science ®Google Scholar
• Lyketsos, C.G., Steinberg, M., Tschanz, J.T., Norton, M.C., Steffens, D.C., & Breitner, J.C. (2000). Mental and behavioral disturbances in dementia: Findings from the Cache County Study on Memory in Aging. American Journal of Psychiatric, 157(5), 708–714.
   PubMed Web of Science ®Google Scholar
• Martin-Cook, K., Hynan, L.S., Rice-Koch, K., Svetlik, D.A., & Weiner, M.F. (2005). Responsiveness of the quality of life in late-stage dementia scale to psychotropic drug treatment in late-stage dementia. Geriatric Cognitive Disorders, 19(2–3), 82–85. doi:82353 [pii] 10.1159/000082353
   PubMed Web of Science ®Google Scholar
• McKeith, I.G., Dickson, D.W., Lowe, J., Emre, M., O’Brien, J.T., Feldman, H., … Yamada, M. (2005). Diagnosis and management of dementia with Lewy bodies: Third report of the DLB Consortium. Neurology, 65(12), 1863–1872. doi:01.wnl.0000187889.17253.b1 [pii] 10.1212/01.wnl.0000187889.17253.b1
   PubMed Web of Science ®Google Scholar
• Mjørud, M., Kirkevold, M., Røsvik, J., & Engedal, K. (2013). Principal component analysis of the Norwegian version of the quality of life in late stage dementia (QUALID) scale. Dementia Geriatric Cognitive Disorders, 37(5–6), 265–275.
   PubMed Web of Science ®Google Scholar
• Moyle, W., & Murfield, J.E. (2013). Health-related quality of life in older people with severe dementia: Challenges for measurement and management. Expert Review of Pharmacoeconomics & Outcomes Research, 13(1), 109–122. doi:10.1586/erp.12.84
   PubMed Web of Science ®Google Scholar
• Nakanishi, K., Hanihara, T., Mutai, H., & Nakaaki, S. (2011). Evaluating the quality of life of people with dementia in residential care facilities. Geriatric Cognitive Disorders, 32(1), 39–44. doi:10.1159/000329443
   PubMed Web of Science ®Google Scholar
• Neary, D., Snowden, J.S., Gustafson, L., Passant, U., Stuss, D., Black, S., … Benson, D.F. (1998). Frontotemporal lobar degeneration: A consensus on clinical diagnostic criteria. Neurology, 51(6), 1546–1554.
   PubMed Web of Science ®Google Scholar
• Nygaard, H.A., & Ruths, S. (2003). Missing the diagnosis: Senile dementia in patients admitted to nursing homes. Scandinavian Journal of Primary Health Care, 21, 148–152.
   PubMed Web of Science ®Google Scholar
• Næss, S., Mastekaasa, A., Moum, T., & Sørensen, T. (2001). Livskvalitet som psykisk velvære [Quality of life as psychological wellbeing]. Norsk institutt for forskning om oppvekst, velferd og aldring (NOVA). (pp. 3–146). Oslo: Centre for Welfare and Labour Research.
   Google Scholar
• O’Bryant, S.E., Waring, S.C., Cullum, C.M., Hall, J., Lacritz, L., Massman, P.J., … Texas Alzheimer's Research, Consortium. (2008). Staging dementia using Clinical Dementia Rating Scale Sum of Boxes scores: A Texas Alzheimer's Research Consortium study. Archives of Nneurology, 65(8), 1091–1095. doi:10.1001/archneur.65.8.1091
   PubMed Web of Science ®Google Scholar
• Rabins, P.V., Kasper, J.D., Kleinman, L., Black, B.S., & Patrick, D.L. (1999). Concepts and methods in development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer's disease. Journal of Mental Health and Aging, 5(1), 33–48.
   Google Scholar
• Rokstad, A.M., Rosvik, J., Kirkevold, O., Selbaek, G., Saltyte Benth, J., & Engedal, K. (2013). The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: A 10-month randomized controlled trial. Geriatric Cognitive Disorders, 36(5–6), 340–353. doi:10.1159/000354366
   PubMed Web of Science ®Google Scholar
• Røen, I. (2009). The reliability and validity of the Norwegian version of the Quality of Life in Late-stage Dementia (QUALID) scale. Paper presented at the IPA, Montreal, September.
   Google Scholar
• Schiffczyk, C., Romero, B., Jonas, C., Lahmeyer, C., Muller, F., & Riepe, M.W. (2010). Generic quality of life assessment in dementia patients: A prospective cohort study. BioMedCentral Neurology, 10, 48. doi:10.1186/1471-2377-10-48
   PubMed Web of Science ®Google Scholar
• Selbaek, G., & Engedal, K. (2012). Stability of the factor structure of the Neuropsychiatric Inventory in a 31-month follow-up study of a large sample of nursing-home patients with dementia. International Psychogeriatrics, 24(1), 62–73. doi:10.1017/S104161021100086X
   PubMed Web of Science ®Google Scholar
• Selbaek, G., Kirkevold, O., & Engedal, K. (2007). The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes. International Journal of Geriatric Psychiatry, 22(9), 843–849. doi:10.1002/gps.1749
   PubMed Web of Science ®Google Scholar
• Selwood, A., Thorgrimsen, L., & Orrell, M. (2005). Quality of life in dementia – A one-year follow-up study. International Journal of Geriatric Psychiatry, 20, 232–237.
   PubMed Web of Science ®Google Scholar
• Shin, I.S., Carter, M., Masterman, D., Fairbanks, L., & Cummings, J.L. (2005). Neuropsychiatric symptoms and quality of life in Alzheimer disease. American Journal of Geriatric Psychiatry, 13(6), 469–474. doi:10.1176/appi.ajgp.13.6.469
   PubMed Web of Science ®Google Scholar
• Weiner, M.F., Martin-Cook, K., Svetlik, D.A., Saine, K., Foster, B., & Fountaine, C.S. (2000). The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors Association, 1(3), 114–116.
   PubMedGoogle Scholar
• Wetzels, R.B., Zuidema, S.U., de Jonghe, J.F., Verhey, F.R., & Koopmans, R.T. (2010a). Course of neuropsychiatric symptoms in residents with dementia in nursing homes over 2-year period. American Journal of Geriatric Psychiatry, 18(12), 1054–1065.
   PubMed Web of Science ®Google Scholar
• Wetzels, R.B., Zuidema, S.U., de Jonghe, J.F., Verhey, F.R., & Koopmans, R.T. (2010b). Determinants of quality of life in nursing home residents with dementia. Geriatric Cognitive Disorders, 29(3), 189–197. doi:10.1159/000280437
   PubMed Web of Science ®Google Scholar
• Weyerer, S., Schaufele, M., & Hendlmeier, I. (2010). Evaluation of special and traditional dementia care in nursing homes: Results from a cross-sectional study in Germany. International Journal of Geriatric Psychiatry, 25(11), 1159–1167. doi:10.1002/gps.2455
   PubMed Web of Science ®Google Scholar
• Whitehouse, P.J., Orgogozo, J.M., Becker, R.E., Gauthier, S., Pontecorvo, M., Erzigkeit, H., … Dal-Bianco, P. (1997). Quality-of-life assessment in dementia drug development. Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Disease and Associated Disorders, 11(Suppl 3), 56–60.
   PubMed Web of Science ®Google Scholar
• World Health Organization. (1993). The ICD-10 classification of mental and behavioural disorders: Diagnostic criteria for research. Geneva: World Health Organization.
   Google Scholar
• World Health Organisation Quality of Life GROUP. (1995). The World Health Organisation Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403–1409.
   PubMedGoogle Scholar
• Zhao, H., Novella, J.L., Drame, M., Mahmoudi, R., Barbe, C., di Pollina, L., … Jolly, D. (2012). Factors associated with caregivers’ underestimation of quality of life in patients with Alzheimer's disease. Geriatric Cognitive Disorders, 33(1), 11–17. doi:10.1159/000333070
   PubMed Web of Science ®Google Scholar