Transitioning from caregiver to visitor in a long-term care facility: the experience of caregivers of people with dementia

References

• Alzheimer's Disease International (2013). World Alzheimer Report 2013. Journey of Caring: An analysis of long-term care for dementia. Retrieved from: http://www.alz.co.uk/research/WorldAlzheimerReport2013.pdf
   Google Scholar
• Australian Institute of Health and Welfare (2012). Dementia in Australia Cat. No. AGE 70. Canberra. Retrieved from: http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id = 10737422943
   Google Scholar
• Bramble, M., Moyle, W., & McAllister, M. (2009). Seeking connection: Family care experiences following long-term dementia care placement. Journal of Clinical Nursing, 18(22), 3118–3125. doi:10.1111/j.1365-2702.2009.02878.x
   PubMed Web of Science ®Google Scholar
• Buhr, G.T., Kuchibhatla, M., & Clipp, E.C. (2006). Caregivers’ reasons for nursing home placement: Clues for improving discussions with families prior to the transition. Gerontologist, 46(1), 52–61. Retrieved from: http://dx.doi.org/10.1093/geront/46.1.52
   PubMed Web of Science ®Google Scholar
• Butcher, H.K., Holkup, P.A., Park, M., & Maas, M. (2001). Thematic analysis of the experience of making a decision to place a family member with Alzheimer's disease in a special care unit. Research in Nursing & Health, 24(6), 470–480. doi:10.1002/Nur.10005
   PubMed Web of Science ®Google Scholar
• Cohen, C.A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry, 17(2), 184–188. doi:10.1002/Gps.561
   PubMed Web of Science ®Google Scholar
• Covinsky, K.E., Eng, C., Lui, L.Y., Sands, L.P., Sehgal, A.R., Walter, L.C., … Yaffe, K. (2001). Reduced employment in caregivers of frail elders: Impact of ethnicity, patient clinical characteristics, and caregiver characteristics. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 56(11), M707–M713. Retrieved from: http://dx.doi.org/10.1093/gerona/56.11.M707
   PubMed Web of Science ®Google Scholar
• Davies, S., & Nolan, M. (2003). ‘Making the best of things’: Relatives’ experiences of decisions about care-home entry. Ageing and Society, 23, 429–450. doi:10.1017/S0144686×03001259
   Web of Science ®Google Scholar
• Davies, S., & Nolan, M. (2004). ‘Making the move’: Relatives’ experiences of the transition to a care home. Health & Social Care in the Community, 12(6), 517–526. doi:10.1111/j.1365-2524.2004.00535.x
   PubMed Web of Science ®Google Scholar
• Gaugler, J.E., Mittelman, M.S., Hepburn, K., & Newcomer, R. (2009). Predictors of change in caregiver burden and depressive symptoms following nursing home admission. Psychology and Aging, 24(2), 385–396. doi:10.1037/a0016052
   PubMed Web of Science ®Google Scholar
• Gaugler, J.E., Pearlin, L.I., Leitsch, S.A., & Davey, A. (2001). Relinquishing in-home dementia care: Difficulties and perceived helpfulness during the nursing home transition. American Journal of Alzheimer's Disease and Other Dementias, 16(1), 32–42. doi:10.1177/153331750101600102
   PubMedGoogle Scholar
• Gaugler, J.E., Roth, D.L., Haley, W.E., & Mittelman, M.S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer's disease during the transition to institutionalization? Results from the New York University caregiver intervention study. Journal of the American Geriatrics Society, 56(3), 421–428. doi:10.1111/j.1532-5415.2007.01593.x
   PubMed Web of Science ®Google Scholar
• Haesler, E., Bauer, M., & Nay, R. (2007). Staff-family relationships in the care of older people: A report on a systematic review. Research in Nursing & Health, 30(4), 385–398. doi:10.1002/nur.20200
   PubMed Web of Science ®Google Scholar
• Haley, W.E. (1997). The family caregiver's role in Alzheimer's disease. Neurology, 48(Suppl 6), S25–S29.
   PubMed Web of Science ®Google Scholar
• Kasuya, R.T., Polgar-Bailey, P., & Takeuchi, R. (2000). Caregiver burden and burnout. A guide for primary care physicians. Postgraduate Medicine, 108(7), 119. Retrieved from: http://search.proquest.com/docview/203963826?accountid = 12528
   PubMed Web of Science ®Google Scholar
• McDaid, D. (2001). Estimating the costs of informal care for people with Alzheimer's disease: Methodological and practical challenges. International Journal of Geriatric Psychiatry, 16(4), 400–405. doi:10.1002/gps.353
   PubMed Web of Science ®Google Scholar
• Nikzad-Terhune, K.A., Anderson, K.A., Newcomer, R., & Gaugler, J.E. (2010). Do trajectories of at-home dementia caregiving account for burden after nursing home placement? A growth curve analysis. Social Work in Health Care, 49(8), 734–752. doi:10.1080/00981381003635296
   PubMed Web of Science ®Google Scholar
• Park, M., Butcher, H.K., & Maas, M.L. (2004). A thematic analysis of Korean family caregivers’ experiences in making the decision to place a family member with dementia in a long-term care facility. Research in Nursing & Health, 27(5), 345–356. doi:10.1002/nur.20031
   PubMed Web of Science ®Google Scholar
• Peacock, S.C. (2013). The experience of providing end-of-life care to a relative with advanced dementia: An integrative literature review. Palliative & Supportive Care, 11(2), 155–168. doi:10.1017/S1478951512000831
   PubMedGoogle Scholar
• Peacock, S.C., & Forbes, D.A. (2003). Interventions for caregivers of persons with dementia: A systematic review. The Canadian Journal of Nursing Research, 35(4), 88–107. Retrieved from: http://www.ncbi.nlm.nih.gov/pubmed/14746123
   PubMedGoogle Scholar
• Penrod, J., & Dellasega, C. (1998). Caregivers’ experiences in making placement decisions. Western Journal of Nursing Research, 20(6), 706–722. Retrieved from: http://dx.doi.org/10.1177/019394599802000604
   PubMed Web of Science ®Google Scholar
• Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health, 23(4), 334–340. doi:10.1002/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G
   PubMed Web of Science ®Google Scholar
• Schulz, R., & Martire, L.M. (2004). Family caregiving of persons with dementia—Prevalence, health effects, and support strategies. American Journal of Geriatric Psychiatry, 12(3), 240–249. doi:10.1176/appi.ajgp.12.3.240
   PubMed Web of Science ®Google Scholar
• Sury, L., Burns, K., & Brodaty, H. (2013). Moving in: Adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics, 25(6), 867–876. doi:10.1017/S1041610213000057
   PubMed Web of Science ®Google Scholar
• Wu, H.Z.Y., Low, L.F., Xiao, S.F., & Brodaty, H. (2009). Differences in psychological morbidity among Australian and Chinese caregivers of persons with dementia in residential care. International Journal of Geriatric Psychiatry, 24(12), 1343–1351. doi:10.1002/gps.2264
   PubMed Web of Science ®Google Scholar
• Zarit, S.H., & Whitlatch, C.J. (1992). Institutional placement—phases of the transition. Gerontologist, 32(5), 665–672. Retrieved from: http://dx.doi.org/10.1093/geront/32.5.665
   PubMed Web of Science ®Google Scholar
• Zimmerman, S., Anderson, W.L., Brode, S., Jonas, D., Lux, L., Beeber, A.S., … Sloane, P.D. (2013). Systematic review: Effective characteristics of nursing homes and other residential long-term care settings for people with dementia. Journal of the American Geriatrics Society, 61(8), 1399–1409. doi:10.1111/jgs.12372
   PubMed Web of Science ®Google Scholar