1,985
Views
43
CrossRef citations to date
0
Altmetric
Original Articles

Dementia attitudes and help-seeking intentions: an investigation of responses to two scenarios of an experience of the early signs of dementia

, , , &
Pages 968-977 | Received 03 Jun 2014, Accepted 29 Nov 2014, Published online: 02 Jan 2015

References

  • Alzheimer's Australia. (2010). Consumer involvement in dementia research: Alzheimer's Australia's Consumer Dementia Research Network. A report for Alzheimer's Australia (Vol. Paper 22). Canberra: Author.
  • Alzheimer's Australia. (2011). Budget submission. Canberra. Retrieved from https://fightdementia.org.au/sites/default/files/20101112_Nat_SUB_Budget11-12.pdf
  • Aquilina, C., & Hughes, J. (2006). The return of the living dead: Agency lost and found? In J. Hughes, Louw, S.J., & Sabat, SR (Eds.), Dementia: Mind, meaning, and the person (pp. 143–161.). Oxford: Oxford University Press.
  • Barney, L., Griffiths, K., Jorm, A., & Christensen, H. (2006). Stigma about depression and its impact on help-seeking intentions. Australian and New Zealand Journal of Psychiatry, 40(1), 51–54.
  • Behuniak, S. (2011). The living dead? The construction of people with Alzheimer's disease as zombies. Ageing and Society, 31, 70–92.
  • Benbow, S.M., & Jolley, D. (2012). Dementia: Stigma and its effects. Neurodegenerative Disease Management, 2, 165–172.
  • Boustani, M., Perkins, A.J., Monahan, P., Fox, C., Watson, L., Hopkins, J., … Hendrie, H.C. (2008). Measuring primary care patients’ attitudes about dementia screening. International Journal of Geriatric Psychiatry, 23(8), 812–820.
  • Boustani, M., Peterson, A.J., Hanson, L., Harris, R., & Lohr, K.N. (2003). Screening for dementia in primary care: A summary of the evidence for the U.S. Preventive Services Task Force. Annals of Internal Medicine, 138(11), 927–37.
  • Bradford, A., Kunik, M.E., Schulz, P., Williams, S.P., & Singh, H. (2009). Missed and delayed diagnosis of dementia in primary care: Prevalence and contributing factors. Alzheimer Disease and Associated Disorders, 23(4), 306–314.
  • Burgener, S.C., & Berger, B. (2008). Measuring perceived stigma in persons with progressive neurological disease: Alzheimer's dementia and Parkinson's disease. Dementia, 7(1), 31–53.
  • Burgener, S., Buckwalter, K., Perkhounkova, Y., Liu, M., Riley, R., Einhorn, C., … Hahn-Swanson, C. (2013). Perceived stigma in persons with early-stage dementia: Longitudinal findings: Part 1. Dementia. Advance online publication. Retrieved from http://dem.sagepub.com/content/early/2013/11/11/1471301213508399.full.pdf+html
  • Byrne, P. (2001). Psychiatric stigma. The British Journal of Psychiatry, 178(3), 281–284.
  • Chrisp, T.A., Tabberer, S., Thomas, B.D., & Goddard, W.A. (2012). Dementia early diagnosis: Triggers, supports and constraints affecting the decision to engage with the health care system. Aging Mental Health, 16(5), 559–565.
  • Crisp, A.H., Gelder, M.G., Rix, S., Meltzer, H.I., & Rowlands, O.J. (2000). Stigmatisation of people with mental illnesses. British Journal of Psychiatry, 177, 4–7.
  • Deacon, H. (2006). Towards a sustainable theory of health-related stigma: Lessons from the HIV/AIDS literature. Journal of Community & Applied Social Psychology, 16(6), 418–425.
  • Derksen, E., Vernooij-Dassen, M., Gillissen, F., Olde Rikkert, M., & Scheltens, P. (2006). Impact of diagnostic disclosure in dementia on patients and carers: Qualitative case series analysis. Aging and Mental Health, 10(5), 525–531.
  • Draper, B., Peisah, C., Snowdon, J., & Brodaty, H. (2010). Early dementia diagnosis and the risk of suicide and euthanasia. Alzheimer's & Dementia, 6(1), 75–82.
  • Eagar, K., Owen, A., Williams, K., Westera, A., Marosszeky, N., England, R., & Morris, D. (2007). Effective caring: A synthesis of the international evidence on carer needs and interventions. Wollongong: Centre for Health Service Development, University of Wollongong.
  • Farlow, M.R., & Cummings, J.L. (2007). Effective pharmacologic management of Alzheimer's disease. American Journal of Medicine, 120(5), 388–397.
  • Ferri, C.P., Prince, M., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., … Scazufca, M. (2005). Global prevalence of dementia: A Delphi consensus study. The Lancet, 366(9503), 2112–2117.
  • Fife, B.L., & Wright, E.R. (2000). The dimensionality of stigma: A comparison of its impact on the self of persons with HIV/AIDS and cancer. Journal of Health and Social Behavior, 41(1), 50–67.
  • Fraboni, M., Saltstone, R., & Hughes, S. (1990). The Fraboni Scale of Ageism (FSA): An attempt at a more precise measure of ageism. Canadian Journal on Aging, 9, 56–66.
  • Gulliver, A.G., and Christensen, H. (2010). Perceived barriers and facilitators to mental health help-seeking in young people: A systematic review. BMC Psychiatry, 10(113). Retrieved from http://www.biomedcentral.com/1471-244X/10/113
  • Hansen, E.C., Hughes, C., Routley, G., & Robinson, A.L. (2008). General practitioners’ experiences and understandings of diagnosing dementia: Factors impacting on early diagnosis. Social Science & Medicine, 67(11), 1776–1783.
  • Hu, L.-t., & Bentler, P.M. (1998). Fit indices in covariance structure modeling: Sensitivity to underparameterized model misspecification. Psychological Methods, 3, 424–453.
  • Iliffe, S., De Lepeleire, J., Van Hout, H., Kenny, G., Lewis, A., & Vernooij-Dassen, M. (2005). Understanding obstacles to the recognition of and response to dementia in different European countries: A modified focus group approach using multinational, multi-disciplinary expert groups. Aging & Mental Health, 9(1), 1–6.
  • Katsuno, T. (2005). Dementia from the inside: How people with early stage dementia evaluate their quality of life. Ageing and Society, 25, 197–214.
  • Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham: Open University Press.
  • Lanctôt, K.L., Rajaram, R.D., & Herrmann, N. (2009). Review: Therapy for Alzheimer's disease: How effective are current treatments? Therapeutic Advances in Neurological Disorders, 2(3), 163–180.
  • Leifer, B.P. (2003). Early diagnosis of Alzheimer's disease: Clinical and economic benefits. Journal of the American Geriatriac Society, 51(5 Suppl Dementia), S281–S288.
  • Link, B., & Phelan, J. (2001). Conceptualising stigma. Annual Review of Sociology, 27, 363–385.
  • Link, B., & Phelan, J. (2006). Stigma and its public health implications. The Lancet, 367(9509), 528–529.
  • Milne, A. (2010). The ‘D’ word: Reflections on the relationship between stigma, discrimination and dementia. Journal of Mental Health, 19(3), 227–233.
  • Muthén, L.K., & Muthén, B.O. (1998–2010). Mplus users guide. (6th ed.). Los Angeles, CA: Muthén & Muthén.
  • Parker, R., & Aggleton, P. (2003). HIV- and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science and Medicine, 57(1), 13–24.
  • Phillips, J., Pond, P., & Goode, S. (2011). Timely diagnosis of dementia: Can we do better?. A report for Alzheimer's Australia (Vol. paper 24). Canberra: Alzheimer's Australia.
  • Phillipson, L., Magee, C., Jones, S.C., & Skladzien, E. (2014). Correlates of dementia attitudes in a sample of middle-aged Australian adults. Australasian Journal on Ageing, 33(3), 158–163.
  • Scarpini, E., Scheltens, P., & Feldman, H. (2003). Treatment of Alzheimer's disease: Current status and new perspectives. The Lancet, Neurology, 2, 539–547
  • Speechly, C., Bridges-Webb, C., & Passmore, E. (2008). The pathway to dementia diagnosis. Medical Journal of Australia, 189, 487–489.
  • Terpening, Z., Hodges, J.R., & Cordato, N.J. (2011). Towards evidence-based dementia screening in Australia [editorial]. Medical Journal of Australia, 194, 60–61.
  • Vernooij-Dassen, M.J., Moniz-Cook, E.D., Woods, R.T., De Lepeleire, J., Leuschner, A., Zanetti, O., … Iliffe, S. (2005). Factors affecting timely recognition and diagnosis of dementia across Europe: From awareness to stigma. International Journal of Geriatric Psychiatry, 20(4), 377–386.
  • Wilson, C., Deane, F., Ciarrochi, J., & Rickwood, D. (2005). Measuring help-seeking intentions: Properties of the general help-seeking questionnaire. Canadian Journal of Counselling, 39, 15–28.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.