Factors influencing the person–carer relationship in people with anxiety and dementia

References

• Ablitt, A., Jones, G., & Muers, J. (2009). Living with dementia: A systematic review of relationship factors. Aging & Mental Health, 13(4), 497–511.
   PubMed Web of Science ®Google Scholar
• Alexopoulos, G.S., Abrams, R.C., Young, R.C., & Shamoian, C.A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23(3), 271–284.
   PubMed Web of Science ®Google Scholar
• Ball, V., Snow, A.L., Steele, A.B., Morgan, R.O., Davila, J.A., Wilson, N., & Kunik, M.E. (2010). Quality of relationships as a predictor of psychosocial functioning in patients with dementia. Journal of Geriatric Psychiatry and Neurology, 23(2), 109–114. doi:10.1177/0891988710363709
   PubMed Web of Science ®Google Scholar
• Bjelland, I., Dahl, A.A., Tangen Haug, T., & Neckelmann, D. (2002). The validity of the hospital anxiety and depression scale: An updated literature review. Journal of Psychosomatic Research, 52, 69–77.
   PubMed Web of Science ®Google Scholar
• Braun, M., Scholz, U., Bailey, B., Perren, S., Hornung, R., & Martin, M. (2009). Dementia caregiving in spousal relationships: A dyadic perspective. Aging & Mental Health, 13(3), 426–436.
   PubMed Web of Science ®Google Scholar
• Clare, L., Nelis, S.M., Whitaker, C.J., Martyr, A., Markova, I.S., Roth, I., … Morris, R.G. (2012). Marital relationship quality in early-stage dementia: Perspectives from people with dementia and their spouses. Alzheimer Disease & Associated Disorders, 26(2), 148–158.
   PubMed Web of Science ®Google Scholar
• Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S.R., Carusi, D.A.B., & Gornbein, J.D. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314.
   PubMed Web of Science ®Google Scholar
• De Vugt, M.E., Stevens, F., Aalten, P., Lousberg, R., Jaspers, N., Winkens, I., … Verhey, F.R.J. (2003). Behavioural disturbances in dementia patients and quality of the marital relationship. International Journal of Geriatric Psychiatry, 18(2), 149–154. doi:10.1002/gps.807
   PubMed Web of Science ®Google Scholar
• Dunkin, J.J., & Anderson-Hanley, C. (1998). Dementia caregiver burden: A review of the literature and guidelines for assessment and intervention. Neurology, 51(1 Suppl 1), S53–S60. doi:10.1212/WNL.51.1_Suppl_1.S53
   PubMed Web of Science ®Google Scholar
• Enache, D., Winblad, B., & Aarsland, D. (2011). Depression in dementia: Epidemiology, mechanisms, and treatment. Current Opinion in Psychiatry, 24(6): 461–472.
   Google Scholar
• Fauth, E., Hess, K., Piercy, K., Norton, M., Corcoran, C., Rabins, P., … Tschanz, J. (2012). Caregivers' relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers' physical health and psychological well-being. Aging & Mental Health, 16(6), 699–711.
   PubMed Web of Science ®Google Scholar
• Folstein, M.F., Folstein, S.E., & McHugh, P.R. (1975). “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12(3), 189–198. doi:10.1016/0022-3956(75)90026-6
   PubMed Web of Science ®Google Scholar
• Hynninen, M.J., Breitve, M.H., Rongve, A., Aarsland, D., & Nordhus, I.H. (2012). The frequency and correlates of anxiety in patients with first-time diagnosed mild dementia. International Psychogeriatrics, 24(11), 1771–1778. doi:10.1017/S1041610212001020
   PubMed Web of Science ®Google Scholar
• Knapp, M., & Prince, M. (2007). Dementia UK: A report into the prevalence and cost of dementia. London: Alzheimer's Society.
   Google Scholar
• Lawrence, V., Murray, J., Samsi, K., & Banerjee, S. (2008). Attitudes and support needs of Black Caribbean, South Asian and White British carers of people with dementia in the UK. The British Journal of Psychiatry, 193(3), 240–246. doi:10.1192/bjp.bp.107.045187
   PubMed Web of Science ®Google Scholar
• Logston, R. & Teri, L. (1995). Depression in Alzheimer's disease patients: Caregivers as surrogate reporters. Journal of the American Geriatrics Society, 43(2): 150–155.
   Google Scholar
• Logsdon, R.G., Gibbons, L.E., McCurry, S.M., & Teri, L. (1999). Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5(1), 21–32.
   Google Scholar
• Lyketsos, CG, Lopez, O, Jones, B, Fitzpatrick, AL, Breitner, J, & DeKosky, S. (2002). Prevalence of neuropsychiatric symptoms in dementia and mild cognitive impairment: Results from the cardiovascular health study. JAMA, 288(12), 1475–1483. doi:10.1001/jama.288.12.1475
   PubMed Web of Science ®Google Scholar
• Martin, M., Peter-Wight, M., Braun, M., Hornung, R., & Scholz, U. (2009). The 3-phase model of dyadic adaptation to dementia: Why it might sometimes be better to be worse. European Journal of Aging, 6, 291–301.
   PubMed Web of Science ®Google Scholar
• Morris, J.C. (1993). The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology, 43(11), 2412–2414.
   PubMed Web of Science ®Google Scholar
• Orrell, M., & Bebbington, P. (1996). Psychosocial stress and anxiety in senile dementia. Journal of Affective Disorders, 39(3), 165–173. doi:10.1016/0165-0327(95)00094-1
   PubMed Web of Science ®Google Scholar
• Perrault, A., Oremus, M., Demers, L., Vida, S., & Wolfson, C. (2000). Review of outcome measurement instruments in Alzheimer's disease drug trials: Psychometric properties of behaviour and mood scales. Journal of Geriatric Psychiatry and Neurology, 13(4): 181–196.
   Google Scholar
• Quinn, C., Clare, L., & Woods, B. (2009). The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: A systematic review. Aging & Mental Health, 13(2), 143–154.
   PubMed Web of Science ®Google Scholar
• Richardson, T.J., Lee, S.J., Berg-Weger, M., & Grossberg, G.T. (2013). Caregiver health: Health of caregivers of Alzheimer's and other dementia patients. Current Psychiatry Reports, 15(7), 1–7. doi:10.1007/s11920-013-0367-2
   Web of Science ®Google Scholar
• Shankar, K.K., Walker, M., Frost, D., & Orrell, M.W. (1999). The development of a valid and reliable scale for rating anxiety in dementia (RAID). Aging & Mental Health, 3(1), 39–49. doi:10.1080/13607869956424
   Web of Science ®Google Scholar
• Spector, A., Charlesworth, G., King, M., Hoe, J., Lattimer, M., Sadek, S., … Orrell, M. (2015) Cognitive behavioural therapy (CBT) for anxiety in dementia: A pilot randomised controlled trial. The British Journal of Psychiatry, 206, 1–8. doi:10.1192/bjp.bp.113.140087
   PubMed Web of Science ®Google Scholar
• Spector, A., Orrell, M., Lattimer, M., Hoe, J., King, M., Harwood, K., & Charlesworth, G. (2012). Cognitive behavioural therapy (CBT) for anxiety in people with dementia: Study protocol for a randomised controlled trial. Trials, 13(1), 197. doi:10.1186/1745-6215-13-197
   PubMed Web of Science ®Google Scholar
• Spruytte, N., Van Audenhove, C., Lammertyn, F., & Storms, G. (2002). The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients. Psychology and Psychotherapy: Theory, Research and Practice, 75(3), 295–311. doi:10.1348/147608302320365208
   PubMed Web of Science ®Google Scholar
• StataCorp LP. (2013). Stata statistical software: Release 13. College Station, TX: Author.
   Google Scholar
• Thorgrimsen, L., Selwood, A., Spector, A., Royan, L., de Madariaga Lopez, M., Woods, R.T., & Orrell, M. (2003). Whose quality of life is it anyway? The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) Scale. Alzheimer's Disease and Associated Disorders, 17, 201–208.
   PubMed Web of Science ®Google Scholar
• Vida, S., Des Rosiers, P., Carrier, L., & Gauthier, S. (1994). Depression in Alzheimer's disease: Operating characteristic analysis of the Cornell Scale for Depression in Dementia and the Hamilton Depression Scale. Journal of Geriatric Psychiatry and Neurology, 7, 159–162.
   PubMed Web of Science ®Google Scholar
• Waite, A., Bebbington, P., Skelton-Robinson, M., & Orrell, M. (2004). Social factors and depression in carers of people with dementia. International Journal of Geriatric Psychiatry, 19(6), 582–587.
   PubMed Web of Science ®Google Scholar
• Woods, R.T., Bruce, E., Edwards, R.T., Elvish, R., Hoare, Z., Hounsome, B., Keady, J., Moniz-Cook, E., Orgeta, V., Orrell, M., Rees, J., & Russell, I.T. (2012). REMCARE: Reminiscence groups for people with dementia and their family caregivers – effectiveness and cost-effectiveness pragmatic multicentre randomised trial. Health Technology Assessment, 16(48). doi: 10.3310/hta16480
   PubMed Web of Science ®Google Scholar
• Wright, L.K. (1991). The impact of Alzheimer's disease on the marital relationship. The Gerontologist, 31(2), 224–237. doi:10.1093/geront/31.2.224
   PubMed Web of Science ®Google Scholar
• Zigmond, A.S., & Snaith, R.P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67(6), 361–370. doi:10.1111/j.1600-0447.1983.tb09716.x
   PubMed Web of Science ®Google Scholar