855
Views
11
CrossRef citations to date
0
Altmetric
Reviews

Progressive compensatory symbiosis: spouse caregiver experiences of caring for persons with dementia in Taiwan

, , &
Pages 241-252 | Received 29 Mar 2015, Accepted 03 Aug 2015, Published online: 11 Sep 2015

References

  • Agnew, C.R., Van Lange, P.A.M., Rusbult, C.E., & Langston, C.A. (1998). Cognitive interdependence: Commitment and the mental representation of close relationships. Journal of Personality and Social Psychology, 74(4), 939–954.
  • Baker, K.L., Robertson, N., & Connelly, D. (2010). Men caring for wives or partners with dementia: Masculinity, strain, and gain. Aging & Mental Health, 14(3), 319–227.
  • Balkie, E. (2002). The impact of dementia on marital relationships. Sexual and Relationship Therapy, 17(3), 289–299.
  • Ballard, C., Gauthier, S., Corbett, A., Brayne, C., Aarsland, D., & Jones, E. (2011). Alzheimer's disease. Lancet, 337, 1019–1031.
  • Braun, M., Scholz, U., Bailey, B., Perren, S., Hornung, R., & Martin, M. (2009). Dementia caregiving in spousal relationships: A dyadic perspective. Aging & Mental Health, 13(3), 426–436.
  • Carpenter, D.R. (2007). Grounded theory in practice, education, and administration. In H.J. Streubert, & D.R. Carpenter (Eds.), Qualitative research in nursing: Advancing the humanistic imperative (4th ed.) (pp. 153–194). Philadelphia, PA: Lippincott Williams & Wilkins.
  • Dai, Y.T., & Dimond, M.F. (1998). Filial piety. A cross-cultural comparison and its implications for the well-being of older parents. Journal of Gerontological Nursing, 3(24), 13–18.
  • Daniels, K.J., Lamson, A.L., & Hodgson, J. (2007). An exploration of the marital relationship and Alzheimer's Disease: One couple's story. Families, Systems, & Health, 25(2), 162–177
  • Davies, H.D., Newkirk, L.A., Pitts, C.B., & Coughlin, C.A. (2010). The impact of dementia and mild memory impairment (MMI) on intimacy and sexuality in spousal relationships. International Psychogeriatrics, 22(4), 618–628.
  • Etters, L., Goodall, D., & Harrison, B.E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20(8), 423–428.
  • Evans, D., & Lee, E. (2014). Impact of dementia on marriage: A qualitative systematic review. Dementia, 13(3), 330–349.
  • Furlong, K.E., & Wuest, J. (2008). Self-care behaviors of spouses caring for significant others with Alzheimer's Disease: The emergence of self-care worthiness as a salient condition. Qualitative Health Research, 18(12), 1662–1672.
  • Gallagher-Thompson, D., Tzuang, Y.M., Au, A., Brodaty, H., Charlesworth, G., Gupta, R., … Shyu, Y.I. (2012). International perspectives on nonpharmacological best practices for dementia family caregivers: A review. Clinical Gerontologist, 35(4), 316–355.
  • Glaser, B.G. (1978). Theoretical sensitivity: Advances in the methodology of grounded theory. Mill Valley, CA: Sociology Press.
  • Glaser, B.G. (1992). Basics of grounded theory analysis. Mill Valley, CA: Sociology Press.
  • Glaser, B.G., & Strauss, A.L. (1967). The discovery of grounded theory: Strategies for qualitative research. New York, NY: Aldine de Gruyter.
  • Haight, B., Bachman, D., Hendrix, S., Wagner, M., Meeks, A., & Johnson, J. (2003). Life review: Treating the dyadic family unit with dementia. Clinical Psychology and Psychotherapy, 10(3), 165–174.
  • Hughes, J.C., Jolley, D., Jordan, A., & Sampson, E.L. (2007). Palliative care in dementia: Issues and evidence. Advances in Psychiatric Treatment, 13(4), 251–260.
  • Ikels, C. (2004). Introduction. In C. Ikels (Ed.), Filial piety: Practice and discourse in contemporary East Asia (pp. 1–15). Stanford, CA: Stanford University Press.
  • Jansson, W., Nordberg, G., & Grafstrom, M. (2001). Patterns of elderly spousal caregiving in dementia care: An observational study. Journal of Advanced Nursing, 34(6), 804–812.
  • Kumar, C.T.S., & Kuriakose, J.R. (2013). End-of-life care issues in advanced dementia. Mental Health in Family Medicine, 10(3), 129–132.
  • Laidlaw, K., Wang, D., Coelho, C., & Power, M. (2010). Attitudes to ageing and expectations for filial piety across Chinese and British cultures: A pilot exploratory evaluation. Aging & Mental Health, 14(3), 283–292.
  • Lewis, R.D.H. (1998). The impact of the marital relationship on the experience of caring for an elderly spouse with dementia. Ageing and Society, 18(2), 209–231.
  • Li, T.S. (2006). Chinese Marital Resilience: Conceptual clarification and theory construction. Indigenous Psychological Research in Chinese Societies, 25, 101–137.
  • Lincoln, Y.S., & Guba, E.G. (1985). Naturalistic Inquiry (pp. 289–331). Newbury Park, CA: Sage Publications.
  • Martin, M., Peter-Wight, M., Braun, M., Hornung, R., & Scholz, U. (2009). The 3-phase-model of dyadic adaptation to dementia: Why it might sometimes be better to be worse. European Journal of Ageing, 6(4), 291–301.
  • Ministry of Health and Welfare, Taiwan. (2014). 中華民國102年老人狀況調查報告 [Report of the senior citizen condition survey. 2013]. Retrieved from http://www.mohw.gov.tw/cht/DOS/DisplayStatisticFile.aspx?d=47398&s=1
  • Molyneaux, V.J., Butchard, S., Simpson, J., & Murray, C. (2012). The co-construction of couplehood in dementia. Dementia, 11(4), 483–502.
  • Monahan, D.J. & Hooker, K. (1995). Health of spouse caregivers of dementia patients: The role of personality and social support. Social Work, 40(3), 305–314.
  • Monin, J.K., Schulz, R. & Kershaw, T.S. (2013). Caregiving spouses’ attachment orientations and the physical and psychological health of individuals with Alzheimer's disease. Aging & Mental Health, 17(4), 508–516
  • Moon, H., & Adams, K.B. (2013). The effectiveness of dyadic interventions for people with dementia and their caregivers. Dementia, 12(6), 821–839.
  • O'Shaughnessy, M., Lee, K., & Lintern, T. (2010). Changes in the couple relationship in dementia care: Spouse carers' experiences. Dementia, 9(2), 237–258.
  • Perren, S., Schmid, R., Herrmann, S., & Wettstein, A. (2007). The impact of attachment on dementia-related problem behavior and spousal caregivers' well-being. Attachment & Human Development, 9(2), 163–178.
  • Phillips, L.R., & Rempusheski, V.F. (1986). Caring for the frail elderly at home: Toward a theoretical explanation of the dynamics of poor quality family caregiving. Advances in Nursing Sciences, 8(4), 62–84.
  • Pierce, T., Lydon, J.E., & Yang, S. (2001). Enthusiasm and moral commitment: What sustains family caregivers of those with dementia. Basic and Applied Social Psychology, 23(1), 29–41.
  • Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26(1), 1–14.
  • Potgieter, J.C., & Heyns, P.E. (2006). Caring for a spouse with Alzheimer's Disease: Stressors and strengths. South African Journal of Psychology, 36(3), 547–563.
  • Ptacek, J.T., Smith, R.E., & Dodge, K.L. (1994). Gender differences in coping with stress: When stressor and appraisals do not differ. Pers Soc Psychol Bull, 20(4), 421–430.
  • Robinson, L., Clare, L., & Evans, K. (2005). Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples. Aging & Mental Health, 9(4), 337–347.
  • Schoenmakers, B., Buntinx, F., & Delepeleire, J. (2010). Factors determining the impact of care-giving on caregivers of elderly patients with dementia: A systematic literature review. Maturitas, 66(2), 191–200.
  • Shim, B., Barroso, J., & Davis, L.L. (2012). A comparative qualitative analysis of stories of spousal caregivers of people with dementia: Negative, ambivalent, and positive experiences. International Journal of Nursing Studies, 49(2), 220–229.
  • Shyu, Y.I. (2000). Role tuning between caregiver and care receiver during discharge transition: An illustration of role function mode in Roy adaptation theory. Nursing Science Quarterly, 13(4), 323–331.
  • Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage Publications.
  • Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Newbury Park, CA: Sage Publications.
  • Sun, Y., Lee, H.J., Yang, S.C., Chen, T.F., Lin, K.N., Lin, C.C., … Chiu, M.J. (2014). A nationwide survey of mild cognitive impairment and dementia, including very mild dementia, in Taiwan. PLoS One, 9(6), 1–10.
  • Sussman, T., & Regehr, C. (2009). The influence of community-based services on the burden of spouses caring for their partners with dementia. Health & Social Work, 34(1), 29–39.
  • Svanstrom, R., & Dahlberg, K. (2004). Living with dementia yields a heteronomous and lost existence. Western Journal of Nursing Research, 26(6), 671–687.
  • Sweeting, H.N. & Gilhooly, M.L. (1990). Anticipatory grief: A review. Social Science and Medicine, 30(10), 1073–1080.
  • Taiwan Alzheimer's Disease Association. (2014). 103-150年臺灣地區失智症人口推計報告 [Report of the dementia population projections for Taiwan: 2014-2061]. Retrieved from http://www.tada2002.org.tw/tada_know_02.html
  • Walster, E., Walster, G.W., & Berscheid, E. (1978). Equity: Theory and research. Boston: Allyn & Bacon.
  • World Health Organization. (2012). Dementia: A public health priority. Geneva: World Health Organization.
  • Young, R.F., & Kahana, E. (1989). Specifying caregiver outcomes: Gender and relationship aspects of caregiving strain. The Gerontologist, 29(5), 660–666.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.