The determinants of informal caregivers' burden in the care of frail older persons: a dynamic and role-related perspective

References

• Adelman, R., Lyubov, L.T., Delgado, D., Dion, S., & Lachs, M. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052–1060. doi:10.1001/jama.2014.304.
   PubMed Web of Science ®Google Scholar
• Balducci, C., Melchiorre M.G., Quattrini, S., & Lamura, G. (2008). Caring for a family member with dementia: Evidence from a cross sectional comparative study on caregiver burden and psychological well-being. European Papers on the New Welfare, 9, 182–197.
   Google Scholar
• Barbosa, A., Figueiredo, D., Sousa L., & Demain S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15(4), 490–499. doi:10.1080/13607863.2010.543660
   PubMed Web of Science ®Google Scholar
• Bastawrous, M. (2013). Caregiver burden – a critical discussion. International Journal of Nursing Studies, 50(3), 431–441. doi:10.1016/j.ijnurstu.2012.10.005
   PubMed Web of Science ®Google Scholar
• Bédart, M., Molloy, W.D., Squire, L., Dubois, S., Lever, J.A., & O'Donnell, M. (2001). The Zarit Burden interview: A new short version and screening version. The Gerontologist, 41, 652–657.
   PubMed Web of Science ®Google Scholar
• Biddle, B.J. (1986). Recent developments in Role Theory. Annual Review of Sociology, 12, 67–92. doi:10.1146/annurev.so.12.080186.000435
   Web of Science ®Google Scholar
• Black, W., & Almeida, O.P. (2004). A systematic review of the association between the Behavioral and Psychological Symptoms of Dementia and burden of care. International Psychogeriatrics, 16, 295–315. doi:10.1017/S1041610204000468
   PubMed Web of Science ®Google Scholar
• Chappell, N.L., & Reid, C. (2002). Burden and well-being among caregivers: Examining the distinction. The Gerontologist, 42, 772–780. doi:10.1093/geront/42.6.772
   PubMed Web of Science ®Google Scholar
• De Almeida Mello, J., Van Durme, T., Macq, J., & Declercq, A. (2012). Interventions to delay institutionalization of frail older persons: Design of a longitudinal study in the home care setting. BMC Public Health, 12, 615. doi:10.1186/1471-2458-12-615
   PubMed Web of Science ®Google Scholar
• Dumont, S., Jacobs, P., Turcotte, V., Anderson, D., & Harel, F. (2010). Measurement challenges of informal caregiving: A novel measurement method applied to a cohort of palliative care patients. Social Science & Medicine, 71(10), 1890–1895. doi:10.1016/j.socscimed.2010.08.003
   PubMed Web of Science ®Google Scholar
• Hartmaaier S., Sloane, P., Guess, H., Koch, G.G., Mitchell, M., & Phillips, C.D. (1995). Validation of the minimum data set cognitive performance scale: Agreement with the mini-mental state examination. Journal of Gerontology: Medical Sciences, 50A(2), M128–M133. doi:10.1093/gerona/50A.2.M128
   Google Scholar
• Higginson, I., Gao, W., Jackson, D., Murray, J., & Harding, R. (2010). Short-form Zarit Caregiver Burden interviews were valid in advanced conditions. Journal of Clinical Epidemiology, 63, 535–542. doi:10.1016/j.jclinepi.2009.06.014
   PubMed Web of Science ®Google Scholar
• Hirdes, J.P., Ljunggren, G., Morris, J.N., Frijters, D., Finne-Soveri, H., Gray, L.,…Gilgen, R. (2008). Reliability of the interRAI suite of assessment instruments: A 12-country study of an integrated health information system. BMC Health Serv Res, 8, 277. doi:10.1186/1472-6963-8-277
   PubMed Web of Science ®Google Scholar
• Iwata, N., & Horiguchi, K. (2015). Differences in caregivers' psychological distress and associated factors by care recipients' gender and kinship. Aging & Mental Health. doi:10.1080/13607863.2015.1074161
   PubMed Web of Science ®Google Scholar
• Kuzuya, M., Masuda, Y., Hirakawa, Y., Iwata, M., Enoki, H., Hasegawa, J.,… Iguch, A. (2006). Falls of the elderly are associated with burden of caregivers in the community. International Journal of Geriatric Psychiatry, 21(8), 740–745. doi:10.1002/gps.1554
   PubMed Web of Science ®Google Scholar
• Lopez-Hartmann, M., Wens, J., Verhoeven, V., & Remmen, R. (2012). The effect of caregiver support interventions for informal caregivers of community-dwelling frail. elderly: A systematic review. International Journal of Integrated Care, 12, e133.
   Google Scholar
• Luppa, M., Riedel-Heller, S.G., Stein, J., Leicht, H., König, H.H., van den Bussche, H., …, Weyerer, S. (2010). Prediction of institutionalization in the elderly. A systematic review. Age and Ageing, 39, 31–38. doi:10.1093/ageing/afp202
   PubMed Web of Science ®Google Scholar
• Miller, E.A., Rosenheck, R.A., & Schneider, L.S. (2012). Caregiver burden, health utilities, and institutional service use in Alzheimer's disease. International Journal of Geriatric Psychiatry, 27(4), 382–393. doi:10.1002/gps.2730
   PubMed Web of Science ®Google Scholar
• Montgomery, R.J.V., Gonyea, J.G., & Hooyman, N.R. (1985). Caregiving and the experience of subjective burden and objective burden. Family Relations, 34, 19–26. doi:10.2307/583753
   Web of Science ®Google Scholar
• Morris, J., Berg, K., Björkgren, M., Finne-Soveri, H., Fries, B., Frijters, D., … Szczerbińska, K. (2011). interRAI Scales Manual (Version 9.1). Washington, DC: interRAI Publications.
   Google Scholar
• Morris, J., Carpenter, I., Berg, K., & Jones, R.N. (2000). Outcome measures for use with home care clients. Canadian Journal of Aging, 19(2), 87–105. doi:10.1017/S071498080001391X.
   Web of Science ®Google Scholar
• Morris, J.N., Fries, B.E., & Morris, S.A. (1999). Scaling ADLs within the MDS. Journals of Gerontology: Series A: Biological Sciences and Medical Sciences, 54(11), M546–M553. doi:10.1093/gerona/54.11.M546.
   PubMed Web of Science ®Google Scholar
• Onder, G., Finne-Soveri, H., Soldato, M., Liperoti, R., Lattanzio, F., Bernabei, R., & Landi, F. (2009). Distress of caregivers of older adults receiving home care in European countries: Results from the AgeD in Home Care Study. The American Journal of Geriatric Psychiatry, 17(10), 899–906. doi:10.1097/JGP.0b013e3181b4beef
   PubMed Web of Science ®Google Scholar
• Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sorensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18, 577–595. doi:10.1017/S1041610206003462
   PubMed Web of Science ®Google Scholar
• Pocock, S., Assmann, S., Enos, L., & Kasten, L. (2002). Subgroup analysis, covariate adjustment and baseline comparisons in clinical trial reporting: Current practice and problems. Statistics in Medicine, 21, 2917–2930. doi:10.1002/sim.1296
   PubMed Web of Science ®Google Scholar
• Rozario, P.A., Morrow-Howell, N., & Hinterlong, J.E. (2004). Role enhancement or role strain – assessing the impact of multiple productive roles on older caregiver well-being. Research on Aging, 26(4), 413–428. doi:10.1177/0164027504264437
   Web of Science ®Google Scholar
• Spillman, B., and Long, S. (2009). Does high caregiver stress predict nursing home entry? Inquiry, 46(2), 140–161.
   PubMed Web of Science ®Google Scholar
• Spruytte, N., Van Audenhove, C., & Lammertyn, F. (2001). Predictors of institutionalization of cognitively-impaired elderly cared for by their relatives. International Journal of Geriatric Psychiatry, 16, 119–128. doi:10/1002/gps.484
   Google Scholar
• Sun, X., Ioannidis, J.P., Agoritsas, T., Alba, A.C., & Guyatt, G. (2014). How to use a subgroup analysis: Users’ guide to the medical literature. The Journal of the American Medical Association, 311(4), 405–411. doi:10.1001/jama.2013.285063.
   PubMed Web of Science ®Google Scholar
• Taylor Jr D.H., Kuchibhatla, M., Østbye, T., Plassman, B.L., & Clipp, E.C. (2008). The effect of spousal caregiving and bereavement on depressive symptoms. Aging & Mental Health, 12(1), 100–107. doi:10.1080/13607860801936631
   PubMed Web of Science ®Google Scholar
• The World Health Organization. (2008). The World Health Report. Primary health care - now more than ever. Retrieved from http://www.who.int/whr/2008/en.
   Google Scholar
• van den Berg, B., Brouwer, W.B.F., & Koopmanschap, M.A. (2004). Economic valuation of informal care: An overview of methods and applications. European Journal of Health Economics, 5(1), 36–45.
   PubMedGoogle Scholar
• Van Durme, T., Schmitz, O., Cès, S., Anthierens, S., Remmen, R., Maggi, P., … Macq, J. (2015). A comprehensive grid to evaluate case management's expected effectiveness for community-dwelling frail older people: results from a multiple, embedded case study. BMC Geriatrics, 15, 67. doi:10.1186/s12877-015-0069-1
   PubMed Web of Science ®Google Scholar
• Vanneste, D., & Declercq, A. (2014). The development of BelRAI, a web application for sharing assessment data on frail older people in home care, nursing homes and hospitals. In S. Muller & L. Kubitschke (Eds.), Beyond Silos – The why and how of integrated eCare (pp. 202–226) Hershey, PA: IGI Global.
   Google Scholar
• Yates, M.E., Tennstedt, S., & Chang, B.H. (1999). Contributors to and mediators of psychological well-being for informal caregivers. Journal of Gerontology: Psychological Sciences, 54B, 12–22. doi:10.1093/geronb/54B.1.P12
   Google Scholar
• Zarit, S., Reever, K.E., & Back-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655. doi:10.1093/geront/20.6.649
   PubMed Web of Science ®Google Scholar
• Zarit, S., Todd, P., & Zarit, J. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260–266. doi:10.1093/geront/26.3.260
   PubMed Web of Science ®Google Scholar