Social care and support needs of community-dwelling people with dementia and concurrent visual impairment

References

• Access Economics Pty Limited. (2009). Future sight loss UK (1): The economic impact of partial sight and blindness in the UK adult population. London: Royal National Institute of Blind People.
   Google Scholar
• Alzheimer's Association. (2014). 2014 Alzheimer's disease facts and figures. Alzheimer's and Dementia, 10, e47–e92.
   PubMed Web of Science ®Google Scholar
• Aminzadeh, F., Byszewski, A., Molnar, F.J., & Eisner, M. (2007). Emotional impact of dementia diagnosis: Exploring persons with dementia and caregivers' perspectives. Aging & Mental Health, 11, 281–290.
   PubMed Web of Science ®Google Scholar
• Bernabei, V., Morini, V., Moretti, F., Marchiori, A., Ferrari, B., Dalmonte, E., … Rita Atti, A. (2011). Vision and hearing impairments are associated with depressive-anxiety syndrome in Italian elderly. Aging & Mental Health, 15, 467–474.
   PubMed Web of Science ®Google Scholar
• Burmedi, D., Becker, S., Heyl, V., Wahl, H.-W., & Himmelsbach, I. (2002). Behavioral consequences of age-related low vision. Visual Impairment Research, 4, 15–45.
   Google Scholar
• Cacciatore, F., Abete, P., Maggi, S., Luchetti, G., Calabrese, C., Viati, L., … Rengo, F. (2004). Disability and 6-year mortality in elderly population. Role of visual impairment. Aging Clinical and Experimental Research, 16, 382–388.
   PubMed Web of Science ®Google Scholar
• Calderon, J., Perry, R.J., Erzinclioglu, S.W., Berrios, G.E., Dening, T.R., & Hodges, J.R. (2001). Perception, attention, and working memory are disproportionately impaired in dementia with Lewy bodies compared with Alzheimer's disease. Journal of Neurology, Neurosurgery, and Psychiatry, 70(2), 157–164.
   PubMed Web of Science ®Google Scholar
• Collerton, D., Forster, E., & Packham, D. (2014). An exploratory study of the effectiveness of memory aids for older people living in supported accommodation. Journal of Applied Gerontology, 33, 963–981.
   PubMed Web of Science ®Google Scholar
• Crutch, S.J., Lehmann, M., Schott, J.M., Rabinovici, G.D., Rossor, M.N., & Fox, N.C. (2012). Posterior cortical atrophy. Lancet Neurology, 11(2), 170–178.
   PubMed Web of Science ®Google Scholar
• Darbà, J., Kaskens, L., & Lacey, L. (2015). Relationship between global severity of patients with Alzheimer's disease and costs of care in Spain; results from the co-dependence study in Spain. European Journal of Health Economics, 16(8), 895–905.
   PubMed Web of Science ®Google Scholar
• Desrosiers, J., Wanet-Defalque, M.-C., Témisjian, K., Gresset, J., Dubois, M.-F., Renaud, J., … Overbury, O. (2009). Participation in daily activities and social roles of older adults with visual impairment. Disability and Rehabilitation, 31, 1227–1234.
   PubMed Web of Science ®Google Scholar
• Dewing, J. (2002). From ritual to relationship: A person-centred approach to consent in qualitative research with older people who have a dementia. Dementia, 1, 157–171.
   Google Scholar
• Dewing, J. (2007). Participatory research: A method for process consent with persons who have dementia. Dementia, 6, 11–25.
   Google Scholar
• Edvardsson, D., Winblad, B., & Sandman, P. (2008). Person-centred care of people with severe Alzheimer's disease: Current status and ways forward. Lancet Neurology, 7, 362–367.
   PubMed Web of Science ®Google Scholar
• Fox, C., Smith, T., Maidment, I., Hebding, J., Madzima, T., Cheater, F., … Young, J. (2014). The importance of detecting and managing comorbidities in people with dementia? Age and Ageing, 43, 741–743.
   PubMed Web of Science ®Google Scholar
• Garin, N., Olaya, B., Lara, E., Moneta, M.V., Miret, M., Ayuso-Mateos, J.L., & Haro, J.M. (2014). Visual impairment and multimorbidity in a representative sample of the Spanish population. BMC Public Health, 14, e815.
   PubMed Web of Science ®Google Scholar
• Glosser, G., Gallo, J., Duda, N., de Vries, J.J., Clark, C.M., & Grossman, M. (2002). Visual perceptual functions predict instrumental activities of daily living in patients with dementia. Neuropsychiatry, Neuropsychology, and Behavioral Neurology, 15(3), 198–206.
   PubMedGoogle Scholar
• Greasley-Adams, C., Bowes, A., Dawson, A., & McCabe, L. (2014). Good practice in the design of homes and living spaces for people with dementia and sight loss. Stirling: Dementia Services Development Centre. Retrieved November 9, 2015, from http://dementia.stir.ac.uk/system/files/filedepot/12/good_practice_in_the_design_of_homes_and_living_spaces_for_people_living_with_dementia_and_sight_loss_final.pdf
   Google Scholar
• Hancock, B., Shah, R., Edgar, D.F., & Bowen, M. (2015). A proposal for a UK dementia eye care pathway. Optometry in Practice, 16(2), 71–76.
   Google Scholar
• Hughes, L.D., McMurdo, M.E.T., & Guthrie, B. (2013). Guidelines for people not for diseases: The challenges of applying UK clinical guidelines to people with multimorbidity. Age and Ageing, 42, 62–69.
   PubMed Web of Science ®Google Scholar
• Jacobs, J.M., Maaravi, Y., Cohen, A., Bursztyn, M., Ein-Mor, E., & Stessman, J. (2012). Changing profile of health and function from age 70 to 85 years. Gerontology, 58, 313–321.
   PubMed Web of Science ®Google Scholar
• Joffe, H., & Yardley, L. (2004). Content and thematic analysis. In D.F. Marks & L. Yardley (Eds.), Research methods for clinical and health psychology (pp. 56–68). London: Sage.
   Google Scholar
• Ke, K.M., Montgomery, A.-M., Stevenson, M., O'Neill, C., & Chakravarthy, U. (2007). Formal and informal care utilisation amongst elderly persons with visual impairment. British Journal of Ophthalmology, 91, 1279–1281.
   PubMed Web of Science ®Google Scholar
• Kelly, F., & Innes, A. (2016). Facilitating independence: The benefits of a post-diagnostic support project for people with dementia. Dementia, 15(2), 162–180.
   PubMedGoogle Scholar
• Kosteniuk, J.G., Morgan, D.G., O'Connell, M.E., Crossley, M., Kirk, A., Stewart, N.J., & Karunanayake, C.P. (2014). Prevalence and covariates of elevated depressive symptoms in rural memory clinic patients with mild cognitive impairment or dementia. Dementia and Geriatric Cognitive Disorders Extra, 4, 209–220.
   PubMedGoogle Scholar
• Lawrence, V., Murray, J., Ffytche, D., & Banerjee, S. (2009). “Out of sight, out of mind”: A qualitative study of visual impairment and dementia from three perspectives. International Psychogeriatrics, 21, 511–518.
   PubMed Web of Science ®Google Scholar
• Lima-Silva, T.B., Bahia, V.S., Carvalho, V.A., Guimarães, H.C., Caramelli, P., Balthazar, M.L., … Yassuda, M.S. (2015). Direct and indirect assessments of activities of daily living in behavioral variant frontotemporal dementia and Alzheimer disease. Journal of Geriatric Psychiatry and Neurology, 28, 19–26.
   PubMed Web of Science ®Google Scholar
• Marengoni, A., Rizzuto, D., Wang, H.X., Winblad, B., & Fratiglioni, L. (2009). Patterns of chronic multimorbidity in the elderly population. Journal of the American Geriatrics Society, 57, 225–230.
   PubMed Web of Science ®Google Scholar
• Mental Capacity Act. (2005). Office of public sector information. London: The Stationary Office Limited. Retrieved June 1, 2015, from www.legislation.gov.uk/ukpga/2005/9/contents
   Google Scholar
• National Institute for Health and Clinical Excellence. (2006). Dementia: Supporting people with dementia and their carers in health and social care. NICE clinical guideline 42. Manchester: Author.
   Google Scholar
• National Institute on Aging, National Institutes of Health, & World Health Organization. (2011). Global health and aging. Bethesda, MD: Author.
   Google Scholar
• Nyman, S.R., Dibb, B., Victor, C.R., & Gosney, M.A. (2012). Emotional well-being and adjustment to vision loss in later life: A meta-synthesis of qualitative studies. Disability and Rehabilitation, 34, 971–981.
   PubMed Web of Science ®Google Scholar
• Parker, G., Corden, A., & Heaton, J. (2011). Experiences of and influences on continuity of care for service users and carers: Synthesis of evidence from a research programme. Health and Social Care in the Community, 19, 576–601.
   PubMed Web of Science ®Google Scholar
• Peace, S., Holland, C., & Kellaher, L. (2006). Environment and identity in later life. Maidenhead: Open University Press.
   Google Scholar
• Prince, M., Knapp, M., Guerchet, M., McCrone, P., Prina, M., Comas-Herrera, A., ... Salimkumar, D. (2014). Dementia UK: Update (second edition). London: Alzheimer's Society.
   Google Scholar
• Prince, M., Wimo, A., Guerchet, M., Ali, G.-C., Wu, Y.-T, & Prina, M. (2015). World Alzheimer report 2015. The global impact of dementia: An analysis of prevalence, incidence, cost and trends. London: Alzheimer's Disease International.
   Google Scholar
• Sadanand, S., Shivakumar, P., Girish, N., Loganathan, S., Bagepally, B.S., Kota, L.N., … Varghese, M. (2013). Identifying elders with neuropsychiatric problems in a clinical setting. Journal of Neurosciences in Rural Practice, 4, S24–S30.
   PubMedGoogle Scholar
• Wenger, G.C., Scott, A., & Seddon, D. (2002). The experience of caring for older people with dementia in a rural area: Using services. Aging & Mental Health, 6, 30–38.
   PubMed Web of Science ®Google Scholar