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Original Articles

Measuring quality of life of cognitively impaired elderly inpatients in palliative care: psychometric properties of the QUALID and CILQ scales

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Pages 1287-1293 | Received 12 Jan 2016, Accepted 01 Aug 2016, Published online: 26 Aug 2016

References

  • Albers, G., Echteld, M.A., De Vet, H.C., Onwuteaka-Philipsen, B., Van der Linden, M., & Deliens, L. (2010). Evaluation of quality-of-life measures for use in palliative care: A systematic review. Palliative Medicine, 24(1), 17–37.
  • Barca, M.L., Engerdal, K., Laks, J., & Salbak, G. (2011). Quality of life among elderly patients with dementia in institutions. Dementia and Geriatric Cognitive Disorders, 31(6), 435–442.
  • Beerens, H.C., Sutcliffe, C., Renom-Guiteras, A., Soto, M.E., Suhonen, R., Zabalegui, A., … Hamers, J.P.H. (2014). Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: The European Right Place Care Study. Journal of American Medical Directors Association, 15(1), 54–61.
  • Black, B.S., & Rabins, P.V. (2005). Quality of life in dementia: Conceptual and practical issues. In A. Burns, J. O'Brien, & D. Ames (Eds.), Dementia (pp. 216–226). London: Edward Arnold Publishers.
  • Breitbart, W., Bruera, E., & Chochinov, H. (1995). Neuropsychiatric syndrome and psychological symptoms in patients with advanced cancer. Journal of Pain Symptom and Management, 10, 131–141.
  • Burton, C.Z., Twamley, E.W., Lee, L.C., Palmer, B.W., Jeste, D.V., Dunn, L.B., … Irwin, S. (2012). Undetected cognitive impairment and decision-making capacity in patients receiving hospice care. American Journal of Geriatric Psychiatry, 20(4), 203–316.
  • Byock, I.R., & Merriman, M.P. (1998). Measuring quality of life for patients with terminal illness: The Missoula-VITAS® quality of life index. Palliative Medicine, 12(4), 231–244.
  • Castro-Monteiro, E., Forjaz, M.J., Ayaia, R., Rodriguez-Blazquez, C., Fernandez-Mayoralas, G., … Martinez-Martin, P. (2014). Changes and predictors of quality of life in institutionalized older adults with dementia. Quality of Life Research, 23(9), 2595–2601.
  • Clare, L., Quinn, C., Hoare, Z., Whitaker, R., & Woods, R.T. (2014). Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: A cross-sectional study. Health and Quality of Life Outcomes, 12, 6–29.
  • De Letter MC, Tully CL, Wilson J.F., & Rich, E.C. (1995). Nursing staff perceptions of quality of life of cognitively impaired elders: Instrumental development. Journal of Applied Gerontology, 14(4), 426–443.
  • De Vreese, L.P., Uberti, M., Mantesso, U., De Bastiani, E., Weger, E., Marangoni, A.C., … Gomiero, T. (2012). Measuring quality of life in intellectually disabled persons with dementia with the Italian version of the Quality of Life in Late-Stage Dementia (QUALID) scale. Journal of Alzheimer´s Disease and Parkinsonism, 2, 1–5.
  • Folstein, M.F., Folsten, S.E., & McHugh, P.R (1975). Mini-mental state: A practical method for grading the cognitive state of patients for the clininician. Journal of Psychiatric Research, 12, 189–198.
  • Garre-Olmo, J., Planas-Pujol, X., López-Pousa, S., López-Pousa, S., Weiner, M.F., Turon-Estrada, A., … Vilalta-Franch, J. (2010). Cross-cultural adaptation and psychometric validation of a Spanish version of the Quality of Life in Late-Stage Dementia Scale. Quality of Life Research, 19(3), 445–453.
  • Hendriks, S.A., Smalbrugge, M., Hertogh, C.M., & van der Steen, J.T. (2014). Dying with dementia: Symptoms, treatment, and quality of life in the last week of life. Journal of Pain and Symptom Management, 47(4), 710–720.
  • Hjermstad, M.J., Loge, J.H., & Kaasa, S. (2004). Methods for assessment of cognitive failure and delirium in palliative care patients: Implications for practice and research. Palliative Medicine, 18, 494–506.
  • Kaasa, S., & Loge, H. (2010). Quality of life in palliative care – principles and practice. In G. Hanks (Ed.), Oxford textbook of palliative medicine (pp. 443–461). London: Oxford University Press.
  • Karnofsky, D.A., Abelmann, W.H., Craver, L.F., & Burchenal, J.H. (1948). The use of the nitrogen mustards in the palliative treatment of carcinoma. Cancer, 1(4), 634–656.
  • Kiely, D.K., Shaffer, M.L., & Mitchell, S.L. (2012). Scales for the evaluation of end-of-life care in advance dementia: Sensitivity to change. Alzheimer Disease and Associating Disorders, 26(4), 358–363.
  • Lawton, M.P. (1994). Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 8, 138–150.
  • Leon-Salas, B., Olazaran, J., Cruz-Orduna, I., Aguera-Ortiz, L., Dobato, J.L., Valentí-Soler, M., … Martinéz-Martín, P. (2013). Quality of life (QoL) in community-dwelling and institutionalized Alzheimer's disease (AD) patients. Archives of Gerontology and Geriatrics, 57(3), 257–262.
  • Mjørud, M., Kirkevold, M., Røsvik, J., Salbak, G., & Engedal, K. (2014). Variables associated to quality of life among nursing home patients with dementia. Aging & Mental Health, 18(8), 1013–1021.
  • Mjørud, M., Røsvik, J., Rokstad, A.M.M., Kirkevold, M., & Engedal, K. (2014). Variables associated with change in quality of life among persons with dementia in nursing homes: A 10 months follow-up study. PloS ONE, 9, 1–17.
  • Nunnally, J.C. (1978). Psychometric theory. New York, NY: McGraw-Hill.
  • Ostgathe, C., Gaertner, J., & Voltz, R. (2008). Cognitive failure in end of life. Current Opinion in Supportive & Palliative Care, 2(3), 187–191.
  • Pereira, J., Hanson, J., Bruera, E. (1997). The frequency and clinical course of cognitive impairment in patients with terminal cancer. Cancer, 79(4), 835–842.
  • Radbruch, L., Sabatowski, R., Loick, G., Jonen-Thielemann, I., Kaper, M., Gondek, B., & Thielemann, I. (2000). Cognitive impairment and its influence on pain and symptom assessment in a palliative care unit: Development of a minimal documentation system. Palliative Medicine, 14(4), 266–276.
  • Smith, S.C., Lamping, D.L., Banerjee, S., Harwood, R., Foley, B., Smith, P., … Knapp, M. (2005). Measurement of health-related quality of life for people with dementia: Development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment, 9(10), 1–93.
  • Terwee, C.B., Bot, S.D., de Boer, R., van der Windt, D.A.W.M., Knol, D.L., Kedder, J., … de Vet, H.C.W. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34–42.
  • Van Lersel, T., Timmerman, D., & Mullie, A. (2006). Introduction of a pain scale for palliative care patients with cognitive impairment. International Journal of Palliative Nursing, 12(2), 54–59.
  • Volicer, L., Hurley, A.C., & Blasi, Z.V. (2001). Scales for evaluation of end-of-life care in dementia. Alzheimer Disease and Associated Disorders, 15(4), 194–200.
  • Ware, J.E., & Gandek, B. (1998). Methods for testing data quality, scaling assumptions, and reliability. Journal of Clinical Epidemiology, 51(11), 945–952.
  • Weiner, M.F., Martin-Cook, K., Svetlik, D.A., Saine, K., Foster, B., & Fontaine C.S. (2000). The quality of life in late stage dementia (QUALID) scale. Journal of the American Medical Directors Association, 1(3), 114–116.
  • Wetzels, R.B., Zuldema, S.U., de Jonghe, J.F., Verhey, F.R.J., & Koopmans, T.T.C.M. (2010). Determinants of quality of life in nursing home residents with dementia. Dementia and Geriatric Cognitive Disorders, 29(3), 189–197.
  • Whitehouse, P.J., Orgogozo, J.M., Becker, R.E., Gauthier, S., Pontecorvo, M., Erzigkeit, H., … Dal-Bianco, P. (1997). Quality-of-life assessment in dementia drug development. Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Disease and Associated Disorders, 11(3), 56–60.

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