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Original Articles

Severe dementia: relational social engagement (RSE) during family visits

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Pages 1262-1271 | Received 01 May 2015, Accepted 27 Jul 2016, Published online: 05 Sep 2016

References

  • Ashworth, P.D. (2000). Psychology and ‘human nature’. Hove: Psychology Press.
  • Asplund, K., Norberg, A., Adolfsson, R., & Waxman, H.M. (1991). Facial expressions in severely demented patients – a stimulus-response study of four patients with dementia of the Alzheimer type. International Journal of Geriatric Psychiatry, 6, 599–606.
  • Bailey, S., Scales, K., Lloyd, J., Schneider, J., & Jones, R. (2015). The emotional labour of health-care assistants in inpatient dementia care. Ageing and Society, 35(2), 246–269.
  • Beck, I., Törnquist, A., Broström, L., & Edberg, A. (2012). Having to focus on doing rather than being: Nurse assistants’ experience of palliative care in municipal residential care settings. International Journal of Nursing Studies, 49, 455–464.
  • Bird, M., Llewellyn-Jones, R., Korten, A., & Smithers, H. (2007). A controlled trial of a predominantly psychosocial approach to BPSD: Treating causality. International Psychogeriatrics, 19(5), 874–891.
  • Boss, P. (2010). The trauma and complicated grief of ambiguous loss. Pastoral Psychology, 59, 137–145.
  • Bradshaw, L.E., Goldberg, S.E., Schneider, J.M., & Harwood, R.H. (2013). Carers for older people with co-morbid cognitive impairment in general hospital: Characteristics and psychological wellbeing. International Journal of Geriatric Psychiatry, 28, 681–690.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative research in psychology, 3, 77–101.
  • Chang, S.J. (2013). Lived experiences of nursing home residents in Korea. Asian Nursing Research, 7, 83–90.
  • Clare, L. (2010). Awareness in people with severe dementia: Review and integration. Aging & Mental Health, 14(1), 20–32.
  • Clare, L., Markova, I.S., Roth, I., & Morris, R.G. (2011). Awareness in Alzheimer's disease and associated dementias: Theoretical framework and clinical implications. Aging & Mental Health, 15(8), 936–944.
  • Cohen-Mansfield, J., Dakheel-Ali, M., Marx, M.S., Thein, K., & Regier, N.G. (2015). Which unmet needs contribute to behaviour problems in persons with advanced dementia? Psychiatry Research, 228, 59–64.
  • Downs, M., Clare, L., & Mackenzie, J. (2006). Understandings of dementia: explanatory models and their implications for the person with dementia and therapeutic effort. In J.C. Hughes, S.L. Louw, & S.R. Sabat (Eds.), Dementia: Mind, meaning and the person (pp. 235–258). Oxford: Oxford University Press.
  • Erickson-Lidman, E., Norberg, A., Persson, B., & Strandberg, G. (2013). Healthcare personnel's experiences of situations in municipal elderly care that generate troubled conscience. Scandinavian Journal of Caring Sciences, 27(2), 215–223.
  • Finkel, S.I., Costa e Silva, J., Cohen, G., Miller, S., & Sartorius, N. (1996). Behavioral and psychological signs and symptoms of dementia: A consensus statement on current knowledge and implications for research and treatment. International Psychogeriatrics, 8(3), 497–500.
  • Götell, E., Brown, S., & Ekman, S. (2007). The influence of caregiver singing and background music on vocally expressed emotions and moods in dementia care: A qualitative analysis. International Journal of Nursing Studies, 46, 411–430.
  • Joffe, H. (2012). Thematic analysis. In D. Harper, & A.R. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: A guide for students and practitioners (pp. 209–223). Chichester: Wiley–Blackwell.
  • Latvala, E., Voukila-Oikkonen, P., & Janhonen, S. (2000). Videotaped recording as a method of participant observation in psychiatric nursing research. Journal of Advanced Nursing, 31, 1252–1257.
  • Magai, C., Cohen, C., Gomberg, D., Malatesta, C., & Culver, C. (1996). Emotional expression during mid-to late-stage dementia. International Psychogeriatrics, 8(3), 383–395.
  • McCormack, L., Tillock, K., & Walmsley, B.D. (2016). Holding on while letting go: Trauma and growth on the pathway of dementia care in families. Aging & Mental Health. doi:10.1080/13607863.2016.1146872
  • Mead, G.H. (1934). Mind, self and society. Chicago: University of Chicago Press.
  • Morris, J.C. (1993). The Clinical Dementia Rating (CDR): Current version and scoring rules. Neurology, 43(11), 2412–2414.
  • Norberg, A., Melin, E., & Asplund, K. (1986). Reactions to music, touch and object presentation in the final stage of dementia. An exploratory study. International Journal of Nursing Studies, 23(4), 315–323.
  • Norberg, K., Helin, Y., Dahl, A., Hellzen, O., & Asplund, K. (2006). Nurses’ attitudes towards people with dementia: The semantic differential technique. Nursing Ethics, 3, 264–274.
  • Normann, H.K., Asplund, K., & Norberg, A. (2002). Episodes of lucidity in people with severe dementia as narrated by formal carers. Journal of Advanced Nursing, 28, 1295–1300.
  • Nuffield Council on Bioethics. (2009). Dementia: Ethical issues. Cambridge: Cambridge Publishers.
  • O'Bryant, S.E., Waring, S.C., Cullum, C.M., Hall, J., Lacritz, L., Massman, P.J., … Texas Alzheimer's Research Consortium. (2008). Staging dementia using clinical dementia rating scale sum of boxes scores. Archives of Neurology, 65(8), 1091–1096.
  • O'Neil, M.E., Freeman, M., & Portland, V.A. (2011). A systematic evidence review of nonpharmacological interventions for behavioral symptoms of dementia. Washington, DC: Department of Veterans Affairs.
  • Planalp, S. (1999). Communicating emotion: Social, moral and cultural processes. Cambridge: Cambridge University Press
  • Power, G.A. (2014). Dementia beyond disease. Enhancing well-being. Baltimore, MD: Health Professions Press.
  • Rikkert, M.G., Tona, K.T., Janssen, L., Burns, A., Lobo, A., Robert, P., … Waldemar, G. (2011). Validity, reliability and feasibility of clinical staging scales in dementia: A systematic review. American Journal of Alzheimer's Disease & Other Dementias, 26(5), 357–365.
  • Sabat, S.R. (2001). The experience of Alzheimer's disease: Life through a tangled veil. Oxford: Blackwell.
  • Sabat, S.R., Napolitano, L., & Fath, H. (2004). Barriers to the construction of a valued social identity: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease and Other Dementias, 19(3), 177–185.
  • Sargent, L., Harley, B., & Allen, B. (2008). Working in aged care: Medication practices, workplace aggression, and employee and resident outcomes. Commissioned by the Australian Nursing Federation (Victorian Branch). Melbourne: University of Melbourne.
  • Sargent, L., Harley, B., & Allen, B. (2009). Working in aged care: The second report. Commissioned by the Australian Nursing Federation (Victorian Branch). Melbourne: University of Melbourne.
  • Sargent, L., Harley, B., & Allen, B. (2010) Working in aged care: The third report. Commissioned by the Australian Nursing Federation (Victorian Branch). Melbourne: University of Melbourne.
  • Shin, K.A. (2011). Defamilisation of elderly care and the experiences of the aged. Korean Journal of Sociology, 45(4), 64–96.
  • Smith, J.A., Michie, S., Stephenson, M., & Quarrell, O. (2002). Risk perception and decision making in candidates for genetic testing in Huntingdon's disease: An interpretative phenomenological analysis. Journal of Health Psychology, 7, 131–144.
  • Spencer, L., & Ritchie, J. (2012). In pursuit of quality. In D. Harper & A.R. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: A guide for students and practitioners (pp. 209–223). Chichester: Wiley-Blackwell.
  • Stuss, D.T., Picton, T.W., & Alexander, M.P. (2001). Consciousness, self-awareness and the frontal lobes. In S. Salloway, P. Malloy, & J. Duffy (Eds.), The frontal lobes and neuropsychiatric illness (pp. 101–109). Washington, DC: American Psychiatric Press.
  • van Lagenhove, L., & Harre, R. (1999). Positioning and personhood. In R. Harre & L. van Lagenhove (Eds.), Positioning theory: Moral contexts of intentional action (pp. 32–52). Oxford: Wiley-Blackwell.
  • Walmsley, B.D., & McCormack, L. (2014). The dance of communication: Retaining family membership despite severe non-speech dementia. Dementia, 13(5), 626–641.
  • Walmsley, B., & McCormack, L. (2015a). Stigma, the medical model, and dementia care: Psychological growth in senior carers through moral and professional integrity. Dementia. doi:10.1177/1471301215574112
  • Walmsley, B.D., & McCormack, L. (2015b). Shame, hope, intimacy and growth: Dementia distress and growth in families from the perspective of senior aged care professionals. Dementia. doi:10.1177/1471301215573676
  • Walmsley, B.D., & McCormack, L. (2016). Synthesis of meaning: Negative and positive change in family members following the adversity of dementia. Journal of Humanistic Psychology. doi:10.1177/0022167814557547
  • Willig, C. (2013). Introducing qualitative research in psychology: Adventures in theory and method (3rd ed.). Berkshire: McGraw-Hill.
  • Wimo, A., & Prince, M. (2010). World Alzheimer report 2010: The global economic impact of dementia. London: Alzheimer's Disease International.
  • Woods, R.T. (2001). Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects. Aging & Mental Health, 5(1), S7–S16.
  • World Health Organisation [WHO]. (2002). Towards a common language for functioning, disability and health. The international classification of functioning, disability and health. Geneva: World Health Organisation.
  • Yardley, L. (2008). Demonstrating validity in qualitative psychology. In J.A. Smith (Ed.), Qualitative Psychology: A practical guide to research methods (2nd ed., pp. 53–80). London: Sage.

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