935
Views
8
CrossRef citations to date
0
Altmetric
Caregiving, Memory Change, and Self-Rated Memory Function

Perceptions of a psychoeducation program for caregivers of persons with dementia at end of life: a qualitative study

ORCID Icon, , &
Pages 263-271 | Received 18 Jun 2017, Accepted 27 Oct 2017, Published online: 08 Nov 2017

References

  • Addington-Hall, J. (2007). Research methods in palliative care. London: Oxford University Press.
  • AlzLive Team. (2016). A case for bereavement support groups. Retrieved fromhttp://alzlive.com/your-health/good-grieving/case-bereavement-support-groups/
  • Bergman, E. J., Haley, W. E., & Small, B. J. (2011). Who uses bereavement services? An examination of service use by bereaved dementia caregivers. Aging & Mental Health, 15, 531–540.
  • Burton, A. M., Haley, W. E., & Small, B. J. (2006). Bereavement after caregiving or unexpected death: Effects on elderly spouses. Aging & Mental Health, 10, 319–326.
  • Bédard, M., Molloy, D., Squire, L., Dubois, S., Lever, J., & O'Donnell, M. (2001). The Zarit Burden interview a new short version and screening version. Gerontologist, 41, 652–657.
  • Canadian Institute for Health Information. (2007). Health care use at the end of life in western Canada. Ottawa: CIHI.
  • Chang, E., Hancock, K., Harrison, K., Daly, J., Johnson, A., Easterbrook, S., … Davidson, P. M. (2005). Palliative care for end-stage dementia: A discussion of the implications for education of health care professionals. Nurse Education Today, 25, 326–332. doi:https://doi.org/10.1016/j.nedt.2005.02.003
  • Cherlin, E. J., Barry, C. L., Prigerson, H., Schulman Green, D., Johnson-Hurzeler, R., Kasl, S., & Bradley, E. (2007). Bereavement services for family caregivers: How often used, why, and why not. Journal of Palliative Medicine, 10, 148–158. doi:10.1089/jpm.2006.0108
  • Chien, L. Y., Chu, H., Guo, J. L., Liao Y. M., Chang, L.I., Chen, C. H., & Chou, K. R. (2011). Caregiver support groups in patients with dementia: A meta-analysis. International Journal of Geriatric Psychiatry, 26, 1089–1098. doi:10.1002/gps.2660
  • Ducharme, F. (2014). Psychoeducational interventions for family caregivers of seniors across their life trajectory: An evidence-based research program to inform clinical practice. Advances in Geriatrics. doi:https://doi.org/10.1155/2014/316203
  • Durepos, P., Wickson-Griffiths, A., Hazzan, A., Kaasalainen, S., Vastis, V., Battistella, L., & Papaioannou, A. (2017). Assessing palliative care content in dementia care guidelines: A systematic review. Journal of Pain and Symptom Management, 53(4), 804–813.
  • Elvish, R., Lever, S. J., Johnstone, J., Cawley, R., & Keady, J. (2013). Psychological interventions for carers of people with dementia: A systematic review of quantitative and qualitative evidence. Counselling and Psychotherapy Research, 13, 106–125. doi:10.1080/14733145.2012.739632
  • Garrido, M.M., Prigerson, H.G. (2014). The end-of-life experience: Modifiable predictors of caregivers' bereavement adjustment, Cancer, 120, 918–925, doi:10.1002/cncr.28495.
  • Goldman, K. D., & Schmalz, K. J. (2006). Logic models: The picture worth ten thousand words. Health Promotion Practice, 7, 8–12.
  • Graneheim, U.H., Lundman, B., (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24, 105–112, doi:10.1016/j.nedt.2003.10.001,.
  • Haley, W., Bergman, E., Roth, D., McVie, T., Gaugler, J., & Mittelman, M. ( 2008). Long-term effects of bereavement and caregiver intervention on dementia caregiver depressive symptoms. The Gerontologist, 48, 732–740.
  • Hebert, R., Prigerson, H., Schulz, R., & Arnold, R. (2006). Preparing caregivers for the death of a loved one: A theoretical framework and suggestions for future research. Journal of Palliative Medicine, 9, 1164–1171. doi:10.1089/jpm.2006.9.1164
  • Hebert, R. S., Dang, Q., & Schulz, R. (2006). Preparedness for the death of a loved one and mental health in bereaved caregivers of patients with dementia: Findings from the REACH study. Journal of Palliative Medicine, 9, 683–693. doi:doi:10.1089/jpm.2006.9.683
  • Hennings, J., Froggatt, K., & Keady, J. (2010). Approaching the end of life and dying with dementia in care homes: The accounts of family carers. Reviews in Clinical Gerontology, 20, 114–127. doi:10.1017/S0959259810000092
  • Holland, J. M., Currier, J. M., & Gallagher-Thompson, D. (2009). Outcomes from the resources for enhancing Alzheimer's caregiver health (REACH) program for bereaved caregivers. Psychology and Aging, 24, 190–202.
  • Hudson, P., Remedios, C., Zordan, R., Thomas, K., Clifton, D., Crewdson, M., … Bauld, C. (2012). Guidelines for the psychosocial and bereavement support of family CGs of palliative care patients. Journal of Palliative Medicine, 15, 696–702.
  • Hynson, J. L., Aroni, R., Bauld, C., & Sawyer, S. M. (2006). Research with bereaved parents: A question of how not why. Palliative Medicine, 20, 805–811. doi:10.1177/0269216306072349
  • Kim, Y., & Schulz, R. (2008). Family caregivers' strains: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health, 20, 483–503. doi:10.1177/0898264308317533
  • Knight, C., & Gitterman, A. (2014). Group work with bereaved individuals: The power of mutual aid. Social Work, 59, 5–12. doi:10.1093/sw/swt050
  • Kurland, R., Salmon, R. (2005). Teaching a methods course in social work with groups.. Alexandria, VA: Council on Social Work Education.
  • Lai, C., Yeung, J., Mok, V., & Chi, I. (2009). Special care units for dementia individuals with behavioural problems. Cochrane Database of Systematic Reviews, 4 ( CD006470). doi:10.1002/14651858.CD006470.pub2
  • Mitchell, S., Teno, J., Kiely, D., Shaffer, M., Jones, R., Prigerson, H., … Hamel, M. (2009). The clinical course of advanced dementia. New England Journal of Medicine, 361, 1529–1538.
  • O'Rourke, N., & Tuokko, H. A. (2003). Psychometric properties of an abridged version of the Zarit Burden interview within a representative Canadian caregiver sample. The Gerontologist, 43, 121–127.
  • Patton, M. (2015). Qualitative research and evaluation methods (4th ed.). Washington, DC: Sage.
  • Repper, J., & Carter, T. (2011). A review of the literature on peer support in mental health services. Journal of Mental Health, 20, 392–411. doi:10.3109/09638237.2011.583947
  • Romero, M. M., Ott, C. H., & Kelber, S. T. (2014). Predictors of grief in bereaved family caregivers of person's with Alzheimer's disease: A prospective study. Death Studies, 38, 395–403. doi:10.1080/07481187.2013.809031
  • Ryan, T., Nolan, M., Reid, D., & Enderby, P. (2008). Using the senses framework to achieve relationship-centred dementia care services a case example. Dementia, 7, 71–93. doi:10.1177/1471301207085368
  • Sandelowski, M. (1995). Qualitative analysis: What it is and how to begin. Research in Nursing & Health, 18, 371–375.
  • Sandelowski, M. (2000). Focus on research methods-whatever happened to qualitative description ? Research in Nursing and Health, 23, 334–340. doi:10.1002/1098-240X(200008)23:4<334:AID-NUR9>3.0.CO;2-G
  • Sandelowski, M. (2010). What's in a name? Qualitative description revisited. Research in Nursing and Health, 33, 77–84.
  • Schulz, R. (2013). Research priorities in geriatric palliative care: Informal caregiving. Journal of Palliative Medicine, 16(9), 1008–1012.
  • Schulz, R., Boerner, K., Klinger, J., & Rosen, J. (2015). Preparedness for death and adjustment to bereavement among caregivers of recently placed nursing home residents. Journal of Palliative Medicine, 18, 127–133. doi:10.1089/jpm.2014.0309
  • Schulz, R., Boerner, K., Shear, K., Zhang, S., Gitlin, L.N., 2006, Predictors of complicated grief among dementia caregivers: a prospective study of bereavement., Journal of Geriatric Pscyhiatry, 14, 650–658,
  • Shanley, C., Russell, C., Middleton, H., & Simpson-Young, V. (2011). Living through end-stage dementia: The experiences and expressed needs of family carers. Dementia, 10, 325–340. doi:10.1177/1471301211407794
  • SocioCultural Research Consultants, LLC. (2014). Dedoose (Version 5.0.11) ( web application management, analysis, presentation of qualitative and mixed method research data). Los Angeles, CA.
  • Toseland, R., & Rivas, R. (1998). Group work practice. Boston, MA: Allyn & Bacon.
  • Van der Steen, J., Radbruch, L., Hertogh, C. M., de Boer, M., Hughes, J., Larkin, P., … Koopmans, R. (2013). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine, 28, 197–209. doi:10.1177/0269216313493685
  • Waller, A., Turon, H., Mansfield, E., Clark, K., Hobden, B., & Sanson-Fisher, R. (2016). Assisting the bereaved: A systematic review of the evidence for grief counseling. Palliative Medicine, 30, 132–148. doi:10.1177/0269216315588728x).
  • World Health Organization. (2015). Dementia. Retrieved from http://www.who.int/mediacentre/factsheets/fs362/en/
  • World Health Organization [WHO]).2012 Dementia: a public health priorityy. http://apps.who.int/iris/bitstream/10665/75263/1/9789241564458_eng.pdf.
  • Zarit, S., Reever, K., & Back-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655..

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.