Involuntary care – capturing the experience of people with dementia in nursing homes. A concept mapping study

References

• Algase, D. L., Beck, C., Kolanowski, A., Whall, A., Berent, S., Richards, K., & Beattie, E. (1996). Need-driven dementia-compromised behavior: An alternative view of disruptive behavior. American Journal of Alzheimers Disease and Other Dementias, 11, 10–19.
   Google Scholar
• Alzheimer's Society (2016). Communicating. London: Author.
   Google Scholar
• Andrews, G. J. (2006). Managing challenging behaviour in dementia: A person centred approach may reduce the use of physical and chemical restraints. British Medical Journal, 332, 741.
   PubMedGoogle Scholar
• Ayalon, L., Gum, A. M., Feliciano, L., & Arean, P. A. (2006). Effectiveness of nonpharmacological interventions for the management of neuropsychiatric symptoms in patients with dementia: A systematic review. Archives of Internal Medicine, 166, 2182–2188.
   PubMed Web of Science ®Google Scholar
• Burns, K., Jayasinha, R., Tsang, R., & Brodaty, H. (2012). Behaviour management a guide to good practice: Managing behavioural and psychological symptoms of dementia. Canberra: DCRC and DBMAS Commonwealth. Retrieved from http://dementiaresearch.com.au/images/dcrc/output-files/328-2012_dbmas_bpsd_guidelines_guide.pdf
   Google Scholar
• Brown, J. (2004). Fostering children with disabilities: A concept map of parent needs. Children and Youth Services Review, 29, 1235–1248.
   Google Scholar
• Clare, L., Whitaker, R., Woods, R. T., Quin, C., Jelley, H., Hoare, Z., … Wilson, B. A. (2013). AwareCare: A pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings. International Psychogeriatrics, 25(1), 128–139.
   PubMed Web of Science ®Google Scholar
• Cohen-Mansfield, J., Dakheel-Ali, M., & Marx, M. S. (2009). Engagement in persons with dementia: The concept and its measurement. American Journal of Geriatric Psychiatry, 17, 299–307.
   PubMed Web of Science ®Google Scholar
• De Ridder, D., Depla, M., Severens, P., & Malsch, M. (1997). Beliefs on coping with illness: A consumer's perspective. Social Science and Medicine, 44, 553–559.
   PubMed Web of Science ®Google Scholar
• Dupuis, S. L., Wiersma, E., & Loiselle, L. (2012). Pathologizing behavior: Meanings of behaviors in dementia care. Journal of Aging Studies, 26, 162–173.
   Web of Science ®Google Scholar
• Engberg, J., Castle, N. G., & McCaffrey, D. (2008). Physical restraint initiation in nursing homes and subsequent resident health. The Gerontologist, 48, 442–452.
   PubMed Web of Science ®Google Scholar
• Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: Systematic review. The British Journal of Psychiatry, 208(5), 429–434.
   PubMed Web of Science ®Google Scholar
• Frederiks, B., Schippers, B., Huijs, M., & Steen, S. (2017). Reporting of use of coercive measures from a Dutch perspective. Advances in Mental Health and Intellectual Disabilities, 11(2), 65–73. doi:10.1108/AMHID-11-2016-0039
   Web of Science ®Google Scholar
• Gallagher, A. (2011). Ethical issues in patient restraint. Nursing Times, 107(9), 18–20.
   PubMedGoogle Scholar
• Gerlach, L. B., & Kales, H. C. (2016). Learning their language: The importance of detecting and managing pain in dementia. American Journal of Geriatric Psychiatry, 25(2),155–157. doi:10.1016/j.jagp.2016.11.012
   PubMed Web of Science ®Google Scholar
• Hamers, J. P., & Huizing, A. R. (2005). Why do we use physical restraints in the elderly ? Zeitschrift für Gerontologie und Geriatrie, 38, 19–25.
   PubMed Web of Science ®Google Scholar
• Ishii, S., Streim, J. E., & Saliba, D. (2012). A conceptual framework for rejection of care behaviors: Review of literature and analysis of role of dementia severity. Journal of the American Medical Directors Association, 13, 11–23.
   PubMed Web of Science ®Google Scholar
• Johnsen, J. A., Biegel, D. E., & Shafran, R. (2000). Concept mapping in mental health: Uses and adaptations. Evaluation and Program Planning, 23, 67–75.
   Web of Science ®Google Scholar
• Kane, M., & Trochim, W. M. K. (2007). Concept mapping for planning and evaluation. Thousand Oaks, CA: Sage Publications.
   Google Scholar
• Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham: Open University Press.
   Google Scholar
• Konno, R., Kang, H. S., & Makimoto, K. (2014). A best-evidence review of intervention studies for minimizing resistance-to-care behaviours for older adults with dementia in nursing homes. Journal of Advanced Nursing, 70(10), 2167–2180. doi:10.1111/jan.12432
   PubMed Web of Science ®Google Scholar
• Macfarlane, S., & O'Connor, D. (2016). Managing behavioural and psychological symptoms in dementia. Australian Prescriber, 39, 123–125.
   PubMed Web of Science ®Google Scholar
• Moniz-Cook, E., Swift, K., James, I., Malouf, R., de Vugt, M., & Verhey, F. (2012). Functional analysis-based interventions for challenging behaviour in dementia. Cochrane Database of Systematic Reviews (Online), 2, CD006929.
   Google Scholar
• Nabitz, U., van Randeraad-van der Zee, C., Kok, I., van Bon-Martens, M., & Serverens, P. (2017). An overview of concept mapping in Dutch mental health care. Evaluation and Program Planning, 60, 202–212.
   PubMed Web of Science ®Google Scholar
• Niemeijer, A. R., Frederiks, B. J. M., Ingrid, I., Riphagen, I. I., Legemaate, J., Eefsting, J. A., & Hertogh, C. M. P.M. (2010). Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: An overview of the literature. International Psychogeriatrics, 22(7), 1129–1142.
   PubMed Web of Science ®Google Scholar
• Romijn, A., & Frederiks, B. J. M. (2012). Restriction on restraints in the care for people with intellectual disabilities in the Netherlands: Lessons learned from Australia, UK, and United States. Journal of Policy and Practice in Intellectual Disabilities, 9(2), 127–133.
   Web of Science ®Google Scholar
• Rosas, S. C., & Kane, M. (2012). Quality and rigor of the concept mapping methodology: A pooled study analysis. Evaluation and Program Planning, 35, 236–245.
   PubMed Web of Science ®Google Scholar
• Shern, D. L., Trochim, W. M. K., & LaComb, C. A. (1995). The use of concept mapping for assessing fidelity of model transfer: An example from psychiatric rehabilitation. Evaluation and Program Planning, 18, 143–153.
   Web of Science ®Google Scholar
• Smith, M., & Buckwalter, K. (2005). Behaviors associated with dementia. American Journal of Nursing, 105(7), 40–52.
   PubMed Web of Science ®Google Scholar
• Smith, M., Gerdner, L. A., Hall, G. R., & Buckwalter, K. C. (2004). History, development, and future of the progressively lowered stress threshold: A conceptual model for dementia care. Journal of the American Geriatrics Society, 52, 1755–1760.
   PubMed Web of Science ®Google Scholar
• Teri, L. (1997). Assessment and treatment of neuropsychiatric signs and symptoms in cognitively impaired older adults: Guidelines for practitioners. Seminars in Clinical Neuropsychiatry, 2, 152–158.
   PubMedGoogle Scholar
• Tolson, D., & Morley, J. E. (2012). Physical restraints: Abusive and harmful. Journal of the American Medical Directors Association, 13(4), 311–313.
   PubMed Web of Science ®Google Scholar
• Trochim, W. K. M. (1989). An introduction to concept mapping for planning and evaluation. Evaluation and Program Planning, 12, 1–16.
   Web of Science ®Google Scholar
• UN General Assembly: Convention on the rights of persons with disabilities A/RES/61/106: Resolution. 24 January 2007. Available from URL: http://www.refworld.org/docid/45f973632.html (accessed January 18th 2018).
   Google Scholar
• Zwijsen, S.A., Smalbrugge, M., Eefsting, J. A., Twisk, J. W.R., Gerritsen, D. L., Pot, A. M., & Hertogh, C. M. P.M. (2014). Coming to grips with challenging behavior: A cluster randomized controlled trial on the effects of a multidisciplinary care program for challenging behavior in dementia. Journal of the American Medical Directors Association, 15(7), 531.e1–531.e10.
   PubMed Web of Science ®Google Scholar
• Zwijsen, S. A., van der Ploeg, E., & Hertogh, C. M. (2016). Understanding the world of dementia. How do people with dementia experience the world ? International Psychogeriatrics, 28(7), 1067–1077. doi:10.1017/S1041610216000351
   PubMed Web of Science ®Google Scholar