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Formal and Informal Caregiving

How does carer resilience change over time and care status? A qualitative longitudinal study

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Pages 1510-1516 | Received 22 Nov 2016, Accepted 18 Jul 2018, Published online: 18 Nov 2018

References

  • Bennett, K. M. (2010). How to achieve resilience as an older widower: Turning points or gradual change? Ageing and Society, 30(3), 369–382.
  • Bennett, K. M. (2015). Social engagement overview. In Age UK (Ed.), Improving later life: Vulnerability and resilience in later life. London: Age UK.
  • Bennett, K. M., Reyes-Rodriguez, M.F., Altamar, P., & Soulsby, L. K. (2016). Resilience amongst older Colombians living in poverty: An ecological approach. Journal of Cross Cultural Gerontology, 31(4), 385–407.
  • Bennett, K. M., & Vidal-Hall, S. (2000). Narratives of death: A qualitative study of widowhood in later life. Ageing and Society, 20, 413–428.
  • Bond, M. J., & Clark, M. S. (2002). Predictors of the decision to yield care of a person with dementia. Australasian Journal on Ageing, 21, 86–91.
  • Bond, M. J., Clark, M. S., & Davies, S. (2003). The quality of life of spouse dementia caregivers: Changes associated with yielding to formal care and widowhood. Social Science & Medicine, 57, 2385–2395.
  • Calman, L., Brunton, L., & Molassiotis, A. (2013). Developing longitudinal qualitative designs: Lessons learned and recommendations for health services research. BMC Medical Research Methodology, 13(14), 1–10.
  • Charmaz, K. (1995). Grounded theory. In Smith, J. A., Harré, R. & van Langenhove, L. (Eds), Rethinking methods in psychology (pp. 27–49). London: Sage.
  • Donnellan, W. J., Bennett, K. M., & Soulsby, L. K. (2015). What are the factors that facilitate or hinder resilience in older spousal dementia carers? A qualitative study. Aging & Mental Health, 19, 932–939.
  • Donnellan, W. J., Bennett, K. M., & Soulsby, L. K. (2016). Family close but friends closer: Exploring social support and resilience in older spousal dementia carers. Aging & Mental Health, DOI: 10.1080/13607863.2016.1209734.
  • Gaugler, J. E., Davey, A., Pearlin, L. I., & Zarit, S. H. (2000). Modelling caregiver adaptation over time: The longitudinal impact of behaviour problems. Psychology and Aging, 15(3), 437–450.
  • Gaugler, J. E., Kane, R. L., & Newcomer, R. (2007). Resilience and transitions from dementia caregiving. Journals of Gerontology, 62(1), 38–44.
  • Goldstein, L. H., Atkins, L., Landau, S., Brown, R., & Leigh, P. N. (2006). Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: A longitudinal study. Psychological Medicine, 36(6), 865–875.
  • Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? An experiment with data saturation and variability. Field Methods, 18(1), 59–82.
  • Hanratty, B., & Holmes, L. (2011). Social Inequality in Dying. In D. Oliviere, B. Monroe, & S. Payne (Eds.), Death, Dying and Social Differences (2nd ed.). Oxford University Press.
  • Jenkinson, A. (2004). Past caring: The beginning and not the end. Leominster, Polperro Heritage Press.
  • Joling, K. J., Windle, G., Dröes, R. M., Huisman, M., Hertogh, C., & Woods, R. T. (2015a). What are the essential features of resilience for informal caregivers of people living with dementia? A Delphi consensus examination. Aging & Mental Health, 21, 509–517. DOI: 10.1080/13607863.2015.1124836.
  • Kalisch, R., Müller, M. B., & Tüscher, O. (2015). A conceptual framework of the neurobiological study of resilience. Behavioral and Brain Science, 38, 1–79.
  • Kramer, B. (2000). Husbands caring for wives with dementia: A longitudinal study of continuity and change. Health Social Work, 25(2), 97–112.
  • Larkin, M. (2009). Life after caring: The post-caring experiences of former carers. British Journal of Social Work, 39, 1026–1042.
  • Lavretsky, H., Siddarth, P., & Irwin, M. R. (2010). Improving depression and enhancing resilience in family dementia caregivers: A pilot randomized placebo-controlled trial of escitalopram. American Journal of Geriatric Psychiatry, 18(2), 154–162.
  • Lowson, E., Hanratty, B., Holmes, L., Addington-Hall, J., Grande, G., Payne, S., & Seymour, J. (2013). From ‘conductor’ to ‘second fiddle’: Older adult care recipients’ perspectives on transitions in family caring at hospital admission. International Journal of Nursing Studies, 50, 1197–1205.
  • Luthar, S. S. (2006). Resilience in development: A synthesis of research across five decades. In D. Cicchetti and D.J. Cohen (Eds.), Developmental psychopathology: Vol, 3. Risk, disorder, and adaptation (2nd ed., pp. 739–795). New York: Wiley.
  • Mausbach, B. T., Aschbacher, K., Patterson, T. L., von Känel, R., Dimsdale, J. E., Mills, P. J., … Grant, I. (2007). Effects of placement and bereavement on psychological wellbeing and cardiovascular risk in Alzheimer’s caregivers: A longitudinal analysis. Journal of Psychosomatic Research, 62, 439–445.
  • O’Connor, E. J., & McCabe, M. P. (2011). Predictors of quality of life in carers of people with a progressive neurological illness: A longitudinal study. Quality of Life Research, 20(5), 703–711.
  • O’Rourke, N., Kupferschmidt, A. L., Claxton, A., Smith, J. Z., Chappell, N., & Beattie, B. L. (2010). Psychological resilience predicts depressive symptoms among spouses of persons with Alzheimer’s disease over time. Aging & Mental Health, 14(8), 984–993.
  • Office for National Statistics. (2011). 2011 Census: Aggregate data (England and Wales) [computer file]. UK Data Service Census Support. Retrieved from http://infuse.mimas.ac.uk.
  • Potgieter, J. C., Heyns, P. M., & Lens, W. (2012). The time perspective of the Alzheimer caregiver. Dementia, 11(4), 453–471.
  • Ross, L., Holliman, D., & Dixon, D. R. (2003). Resiliency in family caregivers: Implications for social work practice. Journal of Gerontological Social Work, 40, 3, 81–96.
  • Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., & Belle, S. H. (2003). End-of-life care and the effects of bereavement on family caregivers of persons with dementia. New England Journal of Medicine, 349, 1936–1942.
  • Schulz, R., Williamson, G. M., Morycz, R. K., & Biegel, D. E. (1991). Costs and benefits of providing care to Alzheimer’s patients. In S. Spacapan & S. Oskamp (Eds.), Helping and being helped: Naturalistic studies (153–181). California: Sage Publications.
  • Seddon, D., & Robinson, C. (2015). Carer assessment: Continuing tensions and dilemmas for social care practice. Health and Social Care in the Community, 23(1), 14–22.
  • Windle, G. (2011). What is resilience? A review and concept analysis. Reviews in Clinical Gerontology, 21, 252–69.
  • Windle, G., & Bennett, K. M. (2011). Resilience and caring relationships. In M. Ungar (Eds.), The Social Ecology of Resilience (pp. 219–232). New York: Springer.
  • Windle, G., Woods, R. T., & Markland, D. A. (2010). Living with ill-health in older age: The role of a resilient personality. Journal of Happiness Studies, 11(6), 763–777.

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