937
Views
19
CrossRef citations to date
0
Altmetric
Formal and Informal Caregiving

Impact of informal caregiving on loneliness and satisfaction with leisure-time activities. Findings of a population-based longitudinal study in germany

&
Pages 1539-1545 | Received 30 Jan 2018, Accepted 22 Jul 2018, Published online: 17 Oct 2018

References

  • Beard, J., & Mounir, R. (1980). Measuring Leisure Satisfaction. Journal of Leisure Research, 12, 20–33.
  • Brodaty, H., & Hadzi-Pavlovic, D. (1990). Psychosocial effects on carers of living with persons with dementia. Australian & New Zealand Journal of Psychiatry, 24, 351–361.
  • Brown, P., & Brown, W. (1999). Women and leisure: Does all work and no play make Jill unwell? World Leisure & Recreation, 41, 11–14.
  • Brüderl, J., & Ludwig, V. (2015). Fixed-effects panel regression. In C. Wolf (Ed.), The Sage handbook of regression analysis and causal inference (pp. 327–357). Los Angeles: SAGE.
  • Cameron, A. C., & Trivedi, P. K. (2005). Microeconometrics: Methods and applications New York: Cambridge University Press.
  • Chattillion, E. A., Mausbach, B. T., Roepke, S. K., von Känel, R., Mills, P. J., Dimsdale, J. E., … Grant, I. (2012). Leisure activities, caregiving demands and catecholamine levels in dementia caregivers. Psychology & Health, 27, 1134–1149.
  • Curvers, N., Pavlova, M., Hajema, K., Groot, W., & Angeli, F. (2018). Social participation among older adults (55+): Results of a survey in the region of South Limburg in the Netherlands. Health & Social Care in the Community, 26, e85.
  • de Jong-Gierveld, J., & Kamphuls, F. (1985). The development of a Rasch-type loneliness scale. Applied Psychological Measurement, 9, 289–299.
  • de Jong Gierveld, J., van Tilburg, T., Dykstra, P., Vangelisti, A., & Perlman, D. (2006). Loneliness and social isolation. In D. Perlman, & A. Vangelisti (Eds.), The Cambridge handbook of personal relationships (pp. 485–500). Cambridge, UK: Cambridge University Press.
  • Gierveld, J. D. J., & Van Tilburg, T. (2010). The De Jong Gierveld short scales for emotional and social loneliness: tested on data from 7 countries in the UN generations and gender surveys. European Journal of Ageing, 7, 121–130.
  • Greene, W. H. (2012). Econometric analysis (7th ed.) Boston, MA: Pearson.
  • Hajek, A., Brettschneider, C., Lange, C., Posselt, T., Wiese, B., Steinmann, S., … König, H.-H. (2016). Gender differences in the effect of social support on health-related quality of life: Results of a population-based prospective cohort study in old age in Germany. Quality of Life Research, 25, 1159–1168.
  • Hajek, A., & König, H.-H. (2016). Informal caregiving and subjective well-being: Evidence of a population-based longitudinal study of older adults in Germany. Journal of the American Medical Directors Association, 17, 300–305.
  • Hajek, A., Lehnert, T., Wegener, A., Riedel-Heller, S. G., & König, H.-H. (2017a). Factors associated with preferences for long-term care settings in old age: Evidence from a population-based survey in Germany. BMC Health Services Research, 17, 156.
  • Hajek, A., Lehnert, T., Wegener, A., Riedel-Heller, S. G., & König, H.-H. (2017b). Langzeitpflegepräferenzen der Älteren in Deutschland–Ergebnisse einer bevölkerungsrepräsentativen Umfrage. Gesundheitswesen, 1–8. doi: 10.1055/s-0042-124663.
  • Hansen, T., & Slagsvold, B. (2013). The psychological effects of providing personal care to a partner: A multidimensional perspective. Health Psychology Research, 1, 25.
  • Hautzinger, M., & Bailer, M. (1993). Allgemeine Depressionsskala. Manual. Weinheim: Beltz.
  • Kempen, G. I., & van Sonderen, E. (2002). Psychological attributes and changes in disability among low-functioning older persons: Does attrition affect the outcomes? Journal of Clinical Epidemiology, 55, 224–229.
  • Klaus, D., & Engstler, H. (2016). Daten und Methoden des Deutschen Alterssurveys. In K. Mahne, J. K. Wolff, J. Simonson & C. Tesch-Römer (Eds.), Altern im Wandel: Zwei Jahrzehnte Deutscher Alterssurvey (DEAS) (pp. 25–42). Berlin: Springer VS.
  • Klaus, D., Engstler, H., Mahne, K., Wolff, J. K., Simonson, J., Wurm, S., & Tesch-Römer, C. (2017). Cohort profile: The German Ageing Survey (DEAS). International journal of epidemiology, 46, 1105–1105g.
  • Loomis, L. S., & Booth, A. (1995). Multigenerational caregiving and well-being: The myth of the beleaguered sandwich generation. Journal of Family Issues, 16, 131–148.
  • Neller, K. (2005). Kooperation und Verweigerung. Eine Non-Response-Studie. ZUMA Nachrichten, 29, 9–36.
  • Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39, 177–186.
  • Perlman, D., Peplau, L. A., & Peplau, L. (1984). Loneliness research: A survey of empirical findings. Preventing the Harmful Consequences of Severe and Persistent Loneliness, 13, 203–246.
  • Prieto-Flores, M.-E., Forjaz, M. J., Fernandez-Mayoralas, G., Rojo-Perez, F., & Martinez-Martin, P. (2011). Factors associated with loneliness of noninstitutionalized and institutionalized older adults. Journal of Aging and Health, 23, 177–194.
  • Radloff, L. S. (1977). The CES-D scale a self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.
  • Rafnsson, S. B., Shankar, A., & Steptoe, A. (2015). Informal caregiving transitions, subjective well-being and depressed mood: Findings from the English Longitudinal Study of Ageing. Aging & Mental Health, 21, 104–112.
  • Rokach, A., Miller, Y., Schick, S., & Bercovitch, M. (2014). Coping with loneliness: Caregivers of cancer patients. Clinical Nursing Studies, 2, 42.
  • Rokach, A., Rosenstreich, E., Brill, S., & Aryeh, I. G. (2016). Caregivers of chronic pain patients: Their loneliness and burden. Nursing and Palliative Care, 1, 111–117.
  • Rokach, A., Rosenstreich, E., Brill, S., & Aryeh, I. G. (2017). People with chronic pain and caregivers: Experiencing loneliness and coping with it. Current Psychology, 1–8.
  • Romero-Moreno, R., Losada, A., Marquez, M., Laidlaw, K., Fernandez-Fernandez, V., Nogales-Gonzalez, C., & Lopez, J. (2014). Leisure, gender, and kinship in dementia caregiving: Psychological vulnerability of caregiving daughters with feelings of guilt. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 69, 502–513.
  • Roth, D. L., Fredman, L., & Haley, W. E. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55, 309–319.
  • Schüz, B., Czerniawski, A., Davie, N., Miller, L., Quinn, M. G., King, C., … Scott, J. L. (2015). Leisure time activities and mental health in informal dementia caregivers. Applied Psychology: Health and Well-Being, 7, 230–248.
  • Stevens, A. B., Coon, D., Wisniewski, S., Vance, D., Arguelles, S., Belle, S., … Haley, W. (2004). Measurement of leisure time satisfaction in family caregivers. Aging & Mental Health, 8, 450–459.
  • Stock, J. H., & Watson, M. W. (2008). Heteroskedasticity‐robust standard errors for fixed effects panel data regression. Econometrica, 76, 155–174.
  • Stoltz, P., Uden, G., & Willman, A. (2004). Support for family carers who care for an elderly person at home–A systematic literature review. Scandinavian Journal of Caring Sciences, 18, 111–119.
  • UNESCO (2006). International Standard Classification of Education. ISCED 1997 (Re-edition ed.) Paris: UNESCO.
  • Van Praag, B. M., Frijters, P., & Ferrer-I-Carbonell, A. (2003). The anatomy of subjective well-being. Journal of Economic Behavior & Organization, 51, 29–49.
  • Victor, C. R. (2012). Loneliness in care homes: a neglected area of research? Aging Health, 8, 637–646.
  • von Känel, R., Mausbach, B. T., Mills, P. J., Dimsdale, J. E., Patterson, T. L., Ancoli-Israel, S., … Grant, I. (2014). Longitudinal relationship of low leisure satisfaction but not depressive symptoms with systemic low-grade inflammation in dementia caregivers. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 69, 397–407.
  • Wanous, J. P., Reichers, A. E., & Hudy, M. J. (1997). Overall job satisfaction: How good are single-item measures? The Journal of Applied Psychology, 82, 247.
  • Wooldridge, J. M. (2010). Econometric analysis of cross section and panel data. Cambridge, MA: MIT press.
  • Wurm, S., Tesch-Römer, C., & Tomasik, M. J. (2007). Longitudinal findings on aging-related cognitions, control beliefs, and health in later life. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62, 156–164.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.