People with dementia and caregiver preferences for digital life story work service interventions. A discrete choice experiment and digital survey

References

• Brooker, D. (2003). What is person-centred care in dementia? Reviews in Clinical Gerontology, 13(03), 215–222.
   Google Scholar
• Bruce, E., & Schweitzer, P. (2008). Working with life history. In M. Downs, & B. J. Bowers (Eds.), Excellence in dementia care: Research into practice (pp. 168–186). Maidenhead: Open University Press.
   Google Scholar
• Damianakis, T., Crete-Nishihata, M., Smith, K. L., Baecker, R. M., & Marziali, E. (2010). The psychosocial impacts of multimedia biographies on persons with cognitive impairments. The Gerontologist, 50(1), 23–35.
   PubMed Web of Science ®Google Scholar
• Department of Health. (2005). Mental capacity act. London: HMSO.
   Google Scholar
• Gridley, R. (2016). Understanding the outcomes of life story work. In P. Kaiser, & R. Eley (Eds.), Life story work with people with dementia: Ordinary lives, extraordinary people (pp. 69–82). Philadelphia: Jessica Kingsley Publishers.
   Google Scholar
• Hahn, G. J., & Shapiro, S. S. (1966). A catalog and computer program for the design and analysis of orthogonal symmetric and asymmetric fractional factorial experiments (1st ed.). Schenectady, New York: General Electric, Research and Development Center.
   Google Scholar
• Lancaster, K. (1966). A new approach to consumer theory. Journal of Political Economy, 74(2), 132–157.
   Web of Science ®Google Scholar
• Ludwin, K., & Capstick, A. (2015). Using participatory video to understand diversity among people with dementia in long‐term care. Journal of Psychological Issues in Organizational Culture, 5(4), 30–38.
   Google Scholar
• Massimi, M., Berry, E., Browne, G., Smyth, G., Watson, P., & Baecker, R. M. (2008). An exploratory case study of the impact of ambient biographical displays on identity in a patient with Alzheimer's disease. Neuropsychological Rehabilitation, 18(5/6), 742–765.
   PubMed Web of Science ®Google Scholar
• McIntosh, E., & Ryan, M. (2002). Using discrete choice experiments to derive welfare estimates for the provision of elective surgery: Implications of discontinuous preferences. Journal of Economic Psychology, 23(3), 367–382. doi: 10.1016/S0167-4870(02)00081-8.
   Web of Science ®Google Scholar
• McKeown, J., Clarke, A., Ingleton, C., Ryan, T., & Repper, J. (2010). The use of life story work with people with dementia to enhance person-centred care. International Journal of Older People Nursing, 5(2), 148–158.
   PubMedGoogle Scholar
• McKeown, J., Clarke, A., & Repper, J. (2006). Life story work in health and social care: Systematic literature review. Journal of Advanced Nursing, 55(2), 237–247.
   PubMed Web of Science ®Google Scholar
• McKinney, A. (2017). The value of life story work for staff, people with dementia and family members. Nursing Older People, 29(5), 25.
   PubMedGoogle Scholar
• Mulvenna, M., Gibson, A., McCauley, C., Ryan, A., Bond, R., Laird, L. … Ferry, F. (2017, September). Behavioural usage analysis of a reminiscing app for people living with dementia and their carers. Paper presented at the European Conference on Cognitive Ergonomics 2017, Umea, Sweeden. ACM Digital Library.
   Google Scholar
• Murphy, C. (2000). Crackin’ lives: An evaluation of a life story-book project to assist patients from a long stay psychiatric hospital in their move to community care situations. Dementia Services Development Centre, Stirling.
   Google Scholar
• Nolan, M., Ryan, T., Enderby, P., & Reid, D. (2002). Towards a more inclusive vision of dementia care practice and research. Dementia, 1(2), 193–211.
   Google Scholar
• O’Philbin, L., Woods, B., Barham, K., & Windle, G. (2017). 153Implementing Digital Life Story Work for People with Dementia: The Relevance of Context to User Experience. Age and Ageing, 46(Suppl_3), iii1–iii12.
   Web of Science ®Google Scholar
• Orme, B. K. (2010). Getting started with conjoint analysis (2nd ed.). Madison, Wis: Research Publ.
   Google Scholar
• Payne, K., Fargher, E. A., Roberts, S. A., Tricker, K., Elliott, R. A., Ratcliffe, J., & Newman, W. G. (2011). Valuing pharmacogenetic testing services: A comparison of patients' and health care professionals' preferences. Value in Health, 14(1), 121–134.
   PubMed Web of Science ®Google Scholar
• Phillips, K. A., Maddala, T., & Johnson, F. R. (2002). Measuring preferences for health care interventions using conjoint analysis: An application to HIV testing. Health Services Research, 37(6), 1681–1705.
   PubMed Web of Science ®Google Scholar
• Stenhouse, R., Tait, J., Hardy, P., & Sumner, T. (2013). Dangling conversations: Reflections on the process of creating digital stories during a workshop with people with early‐stage dementia. Journal of Psychiatric and Mental Health Nursing, 20(2), 134–141.
   PubMed Web of Science ®Google Scholar
• Subramaniam, P., & Woods, B. (2010). Towards the therapeutic use of information and communication technology in reminiscence work for people with dementia: A systematic review. International Journal of Computers in Healthcare, 1(2), 106–125.
   Google Scholar
• Subramaniam, P., & Woods, B. (2016). Digital life storybooks for people with dementia living in care homes: An evaluation. Clinical Interventions in Aging, 11, 1263–1276.
   PubMed Web of Science ®Google Scholar
• Woods, B., & Subramaniam, P. (2017). The evidence base for lifestory work so far. In P. Kaiser, & R. Eley (Eds.), Life story work with people with dementia: Ordinary lives, extraordinary people (pp. 83–96). London: Jessica Kingsley Publishers.
   Google Scholar