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Dementia Diagnosis and Caregiver Interventions

Rural stakeholder perceptions about cognitive screening

, &
Pages 1616-1628 | Received 21 May 2018, Accepted 31 Jul 2018, Published online: 27 Dec 2018

References

  • Abner, E. L., Jicha, G. A., Christian, W. J., & Schreurs, B. G. (2016). Rural‐urban differences in Alzheimer's Disease and Related Disorders diagnostic prevalence in Kentucky and West Virginia. The Journal of Rural Health, 32(3), 314–320. doi: 10.1111/jrh.12155.
  • Adler, G., Lawrence, B. M., Ounpraseuth, S. T., & Asghar-Ali, A. A. (2015). A survey on dementia training needs among staff at community-based outpatient clinics. Educational Gerontology, 41(12), 903–915. doi:10.1080/03601277.2015.1071549
  • Adu, P. (2015). Qualitative Data Analysis: When to Utilize Manual Coding or Software-aided Coding such as Nvivo, National Center for Academic & Dissertation Excellence (NCADE). The Chicago School of Professional Psychology.
  • Alzheimer’s Association. (2016). Alzheimer's disease facts and figures. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 12(4), 459–509.
  • Alzheimer’s Association. (2018). Alzheimer's disease facts and figures. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 14(3), 367–429.
  • Alz.Org Research Center (2015). New Diagnostic Criteria and Guidelines for Alzheimer's Disease Retrieved from: http://www.alz.org/research/diagnostic_criteria/
  • Amjad, H., Roth, D. L., Samus, Q. M., Yasar, S., & Wolff, J. L. (2016). Potentially unsafe activities and living conditions of older adults with dementia. Journal of the American Geriatrics Society, 64, 1223–1232. doi: 10.1111/jgs.14164
  • Aponte, J., Jackson, T. D., Wyka, K., & Ikechi, C. (2017). Health effectiveness of community health workers as a diabetes self-management intervention. Diabetes & Vascular Disease Research, 14(4), 316–326. doi: 10.1177/1479164117696229
  • Arozullah, A. M., Yarnold, P. R., Bennett, C. L., Soltysik, R. C., Wolf, M. S., Ferreira, R. M., … Davis, T. (2007). Development and validation of a short-form, rapid estimate of adult literacy in medicine. Medical Care, 45(11), 1026–1033. doi: doi:10.1097/MLR.0b013e3180616c1b
  • Ashton, S. E., Roe, B., Jack, B., & McClelland, B. (2016). End of life care: the experiences of advance care planning amongst family caregivers of people with advanced dementia – A qualitative study. Dementia, 15(5), 958–974. DOI: 10.1177/1471301214548521
  • Barnes, L. L., & Bennett, D. A. (2014). Alzheimer’s disease in African Americans: Risk factors and challenges for the future. Health Affairs, 33(4), 580–586. doi: 10.1111/j.1365-2648.2007.04444.x
  • Barnett, J. H., Lewis, L., Blackwell, A. D., & Taylor, M. (2014). Early intervention in Alzheimer's disease: A health economic study of the effects of diagnostic timing. BMC Neurology, 14(1), 101–101. doi: 10.1186/1471-2377-14-101.
  • Beydoun, M. A., Beydoun, H. A., Gamaldo, A. A., Teel, A., Zonderman, A. B., & Wang, Y. (2014). Epidemiologic studies of modifiable factors associated with cognition and dementia: Systematic review and meta-analysis. BMC Public Health, 14, 643. doi: http://dx.doi.org.ezproxy.fau.edu/10.1186/1471-2458-14-643
  • Borson, S., Boustani, M. A., Buckwalter, K. C., Burgio, L. D., Chodosh, J., Fortinsky, R. H., … Phillips, C. (2016). Report on milestones for care and support under the US National Plan to Address Alzheimer's Disease. Alzheimer's & Dementia, 12(3), 334–369. doi: 10.1016/j.jalz.2016.01.005
  • Boustani, M., Perkins, A. J., Monahan, P., Fox, C., Watson, L., Hopkins, J., … Hendrie, H. C. (2008). Measuring primary care patients’ attitudes about Alzheimer’s disease. International Journal of Geriatric Psychiatry, 23(8), 812–820. doi:10.1002/gps.1983.
  • Cassarino, M., O'Sullivan, V., Kenny, R. A., & Setti, A. (2016). Environment and cognitive aging: A cross-sectional study of place of residence and cognitive performance in the Irish longitudinal study on aging. Neuropsychology, 30(5), 543–557. doi: http://dx.doi.org/10.1037/neu0000253
  • Connelly, L. M., & Peltzer, J. N. (2016). Underdeveloped themes in qualitative research: Relationship with interviews and analysis. Clinical Nurse Specialist, 30(1), 52–57. doi: 10.1097/NUR.0000000000000173
  • Contador, I., Bermejo-Pareja, F., Puertas-Martin, V., & Benito-Leon, J. (2015). Childhood and adulthood rural residence increases the risk of dementia: NEDICES Study. Current Alzheimer Research, 12(4), 350.
  • Collins, H. (2004). Collins English Dictionary. Glassgow: HarperCollins.
  • Cope, D. G. (2014). Methods and meanings: Credibility and trustworthiness of qualitative research. Oncology Nursing Forum, 41(1):89–91. Doi: 10.1188/14.ONF.89-91
  • Creswell, J. W. (2017). Research design: Qualitative, quantitative, and mixed methods approaches. Thousand Oaks, CA: Sage publications.
  • Dale, W., Hemmerich, J., Hill, E. K., Hougham, G. W., & Sachs, G. A. (2008). What correlates with the intention to be tested for mild cognitive impairment (MCI) in healthy older adults? Alzheimer Disease and Associated Disorders, 22(2), 144–152. doi: 10.1097/WAD.0b013e318161103c
  • Dale, W., Hougham, G. W., Hill, E. K., & Sachs, G. A. (2006). High interest in screening and treatment for mild cognitive impairment in older adults: A pilot study. Journal of the American Geriatrics Society, 54(9), 1388–1394. doi: 10.1111/j.1532-5415.2006.00852.x
  • de Bruijn, R. F., & Ikram, M. A. (2014). Cardiovascular risk factors and future risk of Alzheimer's disease. BMC Medicine, 12(1), 130–130. doi: 10.1186/s12916-014-0130-5
  • Demirovic, J., Prineas, R., Loewenstein, D., Bean, J., Duara, R., Sevush, S., & Szapocznik, J. (2003). Prevalence of dementia in three ethnic groups: The South Florida program on aging and health. Annals of epidemiology, 13(6), 472–478.
  • DiNapoli, E. A., Wu, B., & Scogin, F. (2014). Social isolation and cognitive function in Appalachian older adults. Research on Aging, 36(2), 161–179. doi: 10.1177/0164027512470704
  • Dubois, B., Padovani, A., Scheltens, P., Rossi, A., & Dell’Agnello, G. (2016). Timely diagnosis for Alzheimer’s disease: A literature review on benefits and challenges. Journal of Alzheimer's Disease, 49(3), 617–631. doi:10.3233/JAD-150692
  • Ervin, K., Pallant, J., Terry, D. R., Bourke, L., Pierce, D., & Glenister, K. (2015). A descriptive study of health, lifestyle and sociodemographic characteristics and their relationship to known dementia risk factors in rural Victorian communities. AIMS Medical Science, 2(3), 246–260. Article · August 2015. doi: 10.3934/medsci.2015.3.246
  • Fahs, P. S., Pribulick, M., Williams, I. C., James, G. D., Rovynak, V., & Seibold‐Simpson, S. M. (2013). Promoting heart health in rural women. The Journal of Rural Health, 29(3), 248–257.
  • Fowler, N. R., Boustani, M. A., Frame, A., Perkins, A. J., Monahan, P., Gao, S., … Hendrie, H. C. (2012). Effect of patient perceptions on dementia screening in primary care. Journal of the American Geriatrics Society, 60(6), 1037–1043. doi: 10.1111/j.1532-541503991.x
  • Fowler, N. R., Perkins, A. J., & Turchan, H. A. (2015). Older primary care patients’ attitudes and willingness to screen for dementia. Journal of Aging Research, 1, 7. doi:http://dx.doi.org/10.1155/2015/423265
  • Green, R. C., Christensen, K. D., Cupples, L. A., Relkin, N. R., Whitehouse, P. J., Royal, C. D., …, Fasaye, G. A. (2015). A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease. Alzheimer's & Dementia, 11(10), 1222–1230.
  • Herrmann, L., Welter, E., Leverenz, J., Lerner, A., Udelson, N., Kanetsky, C., & Sajatovic, M. (2017). A systematic review of Alzheimer's Disease and dementia stigma research: How might we move the stigma dial?. The American Journal of Geriatric Psychiatry, 25(3), S128. Doi: http://dx.doi.org/10.1016/j.jagp.2017.01.146
  • Howell, J., Soyinka, C. O., Parker, M., Jarrett, R., Roberts, D., Dorbin, C., & Hu, W. (2016). Knowledge and attitudes in Alzheimer’s disease in a cohort of older African Americans and Caucasians. American. American Journal of Alzheimer's Disease & Other Dementiasr, 31(4), 361–367. doi: 10.1177/1533317515619037
  • Huang, C.-C., Chung, C.-M., Leu, H.-B., Lin, L.-Y., Chiu, C.-C., Hsu, C.-Y., … Chan, W.-L. (2014). Diabetes mellitus and the risk of Alzheimer’s disease: A nationwide population-based study. PloS One, 9(1), e87095.
  • Imoisili, O. E., Levinsohn, E., Pan, C., Howell, B. A., Streiter, S., & Rosenbaum, J. R. (2017). Discrepancy between patient health literacy levels and readability of patient education materials from an electronic health record. HLRP: Health Literacy Research and Practice, 1(4), e203–e207. https://doi.org/10.3928/24748307-20170918-01
  • Khachaturian, K. S., Khachaturian, A. S., & Thies, W. (2012). The draft “National Plan” to address Alzheimer's disease-National Alzheimer's Project Act (NAPA). Alzheimer's & Dementia, 8(3), 234–236. doi: 10.1016/j.jalz(2012).04.004
  • Knudson, A., & Meit, M. (2017). Rural America: aging faster, with fewer resources. Aging Today, 38(5), 7.
  • Koronyo, Y., Biggs, D., Barron, E., Boyer, D. S., Pearlman, J. A., Au, W. J., … Koronyo-Hamaoui, M. (2017). Retinal amyloid pathology and proof-of-concept imaging trial in Alzheimer’s disease. JCI Insight, 2(16). doi: 10.1172/jci.insight.93621.
  • Lucas, K., & D’Enbeau, S. (2013). Moving Beyond Themes. Departures in Critical Qualitative Research, 2(2), 213–227. doi: 10.1525/qcr.2013.2.2.213
  • Lines, L. M., Sherif, N. A., & Wiener, J. M. (2014). Racial and ethnic disparities among individuals with Alzheimer’s disease in the United States: A literature review. US Department of Health and Human Services, Assistant Secretary for Planning and Evaluation, Office of Disability, Aging and Long-Term Care Policy. RTI Press Publication, Vol RR-0024-1412; 2014.
  • Livingston, S., Sommerlad, A., Orgeta, V., Costafreda, S. G., Huntley, J., Ames, D., Ballard, C. … Mudadem, N. (2017). Dementia prevention, intervention, and care. Lancet, 390(10113), 2673–2734. doi: 10.1016/S0140-6736(17)31363-6.
  • Martin, S., Kelly, S., Khan, A., Cullum, S., Dening, T., Rait, G., … Lafortune, L. (2015). Attitudes and preferences towards screening for dementia: A systematic review of the literature. BMC Geriatrics, 15(1), 66.
  • Mattos, M. K., Snitz, B. E., Lingler, J. H., Burke, L. E., Novosel, L. M., & Sereika, S. M. (2017). Older Rural-and Urban-Dwelling Appalachian adults with mild cognitive impairment. The Journal of Rural Health, 33(2), 208–216. doi: 10.1111/jrh.12189.
  • Mayeda, E. R., Glymour, M. M., Quesenberry, C. P., & Whitmer, R. A. (2016). Inequalities in dementia incidence between six racial and ethnic groups over 14 years. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 12(3), 216–224. doi: http://dx.doi.org/10.1016/j.jalz.2015.12.007.
  • Mehta, K. M., & Yeo, G. W. (2017). Systematic review of dementia prevalence and incidence in United States race/ethnic populations. Alzheimer's & Dementia, 13(1), 72–83. doi: 10.1016/j.jalz.2016.06.2360
  • Meit, M., Knudson, A., Gilbert, T., Yu, A. T. C., Tanenbaum, E., Ormson, E., & Popat, M. S. (2014). The 2014 update of the rural-urban chartbook. Rural Health Reform Policy Research Center.
  • Morley, J. E., Morris, J. C., Berg-Weger, M., Borson, S., Carpenter, B. D., del Campo, N., … Ganguli, M. (2015). Brain health: The importance of recognizing cognitive impairment: An IAGG consensus conference. Journal of the American Medical Directors Association. 16(9), 731–739.
  • National Institute of Aging. (2017). Instruments to detect cognitive impairment in older adults. Retrieved from: https://www.nia.nih.gov/health/assessing-cognitive-impairment-older-patients#how%20is
  • Neumann, P. J., Hammitt, J. K., Mueller, C., Fillit, H. M., Hill, J., Tetteh, N. A., & Kosik, K. S. (2001). Public attitudes about genetic testing for Alzheimer’s disease. Health Affairs, 20(5), 252–226. doi: 10.1377/hlthaff.20.5.252
  • Polit & Beck (2018). Essentials of nursing research: Appraising evidence for nursing practice. Philadelphia: Wolters Klewer.
  • Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 9(1), 63–75.e2. doi: 10.1016/j.jalz.2012.11.007
  • Rikard, R. V., Thompson, M. S., McKinney, J., & Beauchamp, A. (2016). Examining health literacy disparities in the United States: a third look at the National Assessment of Adult Literacy (NAAL). BMC Public Health, 16(1), 975. doi: 10.1186/s12889-016-3621-9
  • Rosenstock, I. M., Strecher, V. J., & Becker, M. S. (1988). Social learning theory and the health belief model., Health Education & Behavior, 15(2), 175–183.
  • Rural Economic Development Initiative. (2017). Rural Areas of Opportunity. State of Florida Department of Economic Opportunity. Retrieved from: http://www.floridajobs.org/business-growth-and-partnerships/rural-and-economic-development-initiative/rural-areas-of-opportunity
  • Saldaña, J. (2015). The coding manual for qualitative researchers. CA: Sage Publications.
  • Saldaña, J. (2014). Coding and analysis strategies. In The Oxford Handbook of Qualitative Research. CA: Sage Publications.
  • Sayegh, P., & Knight, B. G. (2013). Cross-cultural differences in dementia: The Sociocultural Health Belief Model. International Psychogeriatrics, 25(04), 517. doi:10.1017/S104161021200213X
  • Schoenberg, N. E., Howell, B. M., & Fields, N. (2012). Community strategies to address cancer disparities in Appalachian Kentucky. Family & Community Health, 35(1), 31–43. doi: 10.1097/FCH.0b013e3182385d2c
  • Schoenberg, N. E., Studts, C. R., Hatcher-Keller, J., Buelt, E., & Adams, E. (2013). Patterns and determinants of breast and cervical cancer non-screening among Appalachian women. Women & Health, 53(6), 552–571. doi: http://dx.doi.org.ezproxy.fau.edu/10.1080/03630242.2013.809400
  • Shaw, F. E., Asomugha, C. N., Conway, P. H., & Rein, A. S. (2014). The Patient Protection and Affordable Care Act: Opportunities for prevention and public health. The Lancet, 384(9937), 75–82. doi: 10.1016/S0140-6736(14)60259-2
  • Sherzai, S., D., Sherzai, A., Lui, K., Pan, D., Chiou, D., Bazargan, M., & Shaheen, M. (2016). The association between diabetes and dementia among elderly individuals: A nationwide inpatient sample analysis. Journal of Geriatric Psychiatry and Neurology, 29(3), 120–125.
  • Sorsa, M. A., Kiikkala, I., & Åstedt-Kurki, P. (2015). Bracketing as a skill in conducting unstructured qualitative interviews. Nurse Researcher, 22(4), 8–12. doi: 10.7748/nr.22.4.8.e1317.
  • Tan, Z. S., Spartano, N. L., Beiser, A. S., DeCarli, C., Auerbach, S. H., Vasan, R. S., & Seshadri, S. (2016). Physical activity, brain volume, and dementia risk: The Framingham Study. Journals of Gerontology Series A: Biomedical Sciences and Medical Sciences, 72(6), 789–795. doi: 10.1093/gerona/glw130
  • Tappen, R. M. (2015). Advanced nursing research. Jones & Bartlett Publishers.
  • U.S. Census Bureau. Quick Facts. (2017). Retrieved from: https://www.census.gov/quickfacts/fact/table/bellegladecityflorida/PST045216
  • Yaffe, K., Falvey, C., Harris, T. B., Newman, A., Satterfield, S., Koster, A., … Simonsick, E. (2013). Effect of socioeconomic disparities on incidence of dementia among biracial older adults: Prospective study. British Medical Journal, 347(dec19 5), f7051.
  • Watson, J. (2016). Is it possible to live well with dementia?. Dementia (London, England), 15(1), 4–5.
  • Weden, M. M., Shih, R. A., Kabeto, M. U. L., & Langa K. M. (2017). Secular trends in dementia and cognitive impairment of U.S. rural and urban older adults. American Journal of Preventive Medicine, 54(2):164–172. epub ahead of print, doi: j.amepre.2017.10.021.
  • Winblad, B., Amouyel, P., Andrieu, S., Ballard, C., Brayne, C., Brodaty, H., … Zetterberg, H. (2016). Defeating Alzheimer's disease and other dementias: A priority for European science and society. The Lancet Neurology, 15(5), 455–532. doi: 10.1016/S1474-4422(16)00062-4.
  • Whittington, J. W., Nolan, K., Lewis, N., & Torres, T. (2015). Pursuing the triple aim: The first 7 years. The Milbank Quarterly, 93(2), 263–300. doi: 10.1111/1468-0009.12122
  • Wiese, L., & Williams, C. (2015). Annual cognitive assessment for older adults: Update for nurses. Journal of Community Health Nursing, 32, 1–13. doi:10.1080/07370016.2015.1087244.
  • Wiese, L. K., Williams, C. L., & Tappen, R. M. (2014). Analysis of barriers to cognitive screening in rural populations in the United States. Advances in Nursing Science, 37(4), 327–339. doi: 10.1097/ANS.0000000000000049

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