1,329
Views
12
CrossRef citations to date
0
Altmetric
Understanding the Needs of Caregivers

Caregiver identity theory and predictors of burden and depression: Findings from the REACH II study

ORCID Icon, &
Pages 212-220 | Received 23 May 2018, Accepted 24 Sep 2018, Published online: 27 Dec 2018

References

  • Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052–1060.
  • Alzheimer’s Association. (2018). Alzheimer’s Disease Facts & Figures. Retrieved from https://www.alz.org/facts/overview.asp.
  • Anderson, N., Bulatao, R., & Cohen, B. (Eds.). (2004). Critical perspectives on racial and ethnic differences in health in late life. Washington, DC: The National Academies Press.
  • Baron, R. M., & Kenny, D. A. (1986). The moderator–mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51(6), 1173–1182.
  • Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. Gerontologist, 41(5), 652–657.
  • Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. J., & Gallagher-Thompson, D. (2006). Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine, 145(10), 727–738.
  • Clyburn, L. D., Stones, M. J., Hadjistavropoulos, T., & Tuokko, H. (2000). Predicting caregiver burden and depression in Alzheimer's disease. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 55(1), S2–S13.
  • Covinsky, K. E., Newcomer, R., Fox, P., Wood, J., Sands, L., Dane, K., & Yaffe, K. (2003). Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. Journal of General Internal Medicine, 18(12), 1006–1014.
  • Cox, C. B. (2007). Dementia and social work practice: Research and interventions. New York, NY: Springer.
  • Elliott, A. E., Burgio, L. D., & DeCoster, J. (2010). Enhancing caregiver health: Findings from the Resources for Enhancing Alzheimer’s Caregiver Health II Intervention. Journal of the American Geriatrics Society, 58(1), 30–37.
  • Epstein-Lubow, G., Davis, J. D., Miller, I. W., & Tremont, G. (2008). Persisting burden predicts depressive symptoms in dementia caregivers. Journal of Geriatric Psychiatry and Neurology, 21(3), 198–203.
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). Mini-mental state: A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189–198.
  • Friedemann, M.-L., & Buckwalter, K. C. (2014). Family caregiver role and burden related to gender and family relationships. Journal of Family Nursing, 20(3), 313–336.
  • Germain, S., Adam, S., Olivier, C., Cash, H., Ousset, P. J., Andrieu, S., … Salmon, E. (2009). Does cognitive impairment influence burden in caregivers of patients with Alzheimer's disease? Journal of Alzheimer's Disease: JAD, 17(1), 105–114.
  • Graf, C. (2007). The Lawton Instrumental Activities of Daily Living (IADL) Scale. Hartford Institute for Geriatric Nursing, New York University, College of Nursing. Retrieved from https://consultgeri.org/try-this/general-assessment/issue-23.pdf
  • Hall, J. R., Vo, H. T., Johnson, L. A., Barber, R. C., & O'Bryant, S. E. (2011). The link between cognitive measures and ADLs and IADL functioning in mild Alzheimer’s: what has gender got to do with it? International Journal of Alzheimer’s Disease, Retrieved from, 2011, 1. http://dx.doi.org/10.4061/2011/276734
  • IBM Corp. Released. (2017). IBM SPSS Statistics for Windows, Version 25.0. Armonk, NY: IBM Corp.
  • Irwin, M., Artin, K. H., & Oxman, M. N. (1999). Screening for depression in the older adult Criterion validity of the 10-item Center for Epidemiological Studies Depression Scale (CES-D). Archives of Internal Medicine, 159(15), 1701–1704.
  • Haro, J. M., Kahle-Wrobleski, K., Bruno, G., Belger, M., Dell'Agnello, G., Dodel, R., … Argimon, J. M. (2014). Analysis of burden in caregivers of people with Alzheimer's disease using self-report and supervision hours . The Journal of Nutrition, Health & Aging, 18(7), 677–684. doi: 10.1007/s12603-014-0036-0
  • Heo, G. J. (2014). Religious coping, positive aspects of caregiving, and social support among Alzheimer’s disease caregivers. Clinical Gerontologist, 37(4), 368–385.
  • Hong, M., & Harrington, D. (2016). The effects of caregiving resources on perceived health among caregivers. Health &Amp; Social Work, 41(3), 155–163.
  • Kahn, J. R., & Pearlin, L. I. (2006). Financial strain over the life course and health among older adults. Journal of Health and Social Behavior, 47(1), 17–31.
  • Kamiya, M., Sakurai, T., Ogama, N., Maki, Y., & Toba, K. (2014). Factors associated with increased caregivers’ burden in several cognitive stages of Alzheimer’s disease. Geriatrics and Gerontology International, 14(2), 45–55.
  • Katz, S., Down, T. D., Cash, H. R., & Grotz, R. C. (1970). Progress in development of the index of ADL. The Gerontologist, 10(1), 20–30.
  • Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68(4), 846–855.
  • Kraemer, H. C., Stice, E., Kazdin, A., Offord, D., & Kupfer, D. (2001). How do risk factors work together? Mediators, moderators, and independent, overlapping, and proxy risk factors. American Journal of Psychiatry, 158(6), 848–856.
  • Lawton, M. P., & Brody, E. M. (1969). Assessment of older people: self-maintaining and instrumental activities of daily living. The Gerontologist, 9(3), 179–186.
  • Lincoln, K. D. (2007). Financial strain, negativeinteractions, and mastery: Pathways to mental health among older African Americans. Journal of Black Psychiatry, 33, 439–462.
  • Liu, S., Li, C., Shi, Z., Wang, X., Zhou, Y., Liu, S., … Ji, Y. (2017). Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer’s disease caregivers in China. Journal of Clinical Nursing, 26(9-10), 1291–1300.
  • Lykens, K., Moayad, N., Biswas, S., Reyes-Ortiz, C., & Singh, K. P. (2014). Impact of a community based implementation of REACH II program for caregivers of Alzheimer's patients. PLoS One, 9(2), e89290.
  • Mlinac, M. E., & Feng, M. C. (2016). Assessment of activities of daily living, self-care, and independence. Archives of Clinical Neuropsychology: The Official Journal of the National Academy of Neuropsychologists, 31(6), 506–516.
  • Montgomery, R. J. V., & Kosloski, K. (2009). Caregiving as a process of changing identity: Implications for caregiver support. Generations, 33(1), 47–52.
  • Montgomery, R. J. V., Rowe, J., & Kosloski, K. (2007). “Family Caregiving.” In J. Blackburn and C. Dumas (Eds.), Handbook of Gerontology: Evidence-based approaches to theory, practice, and policy. New York: John Wiley & Sons.
  • Muthén, L. K., & Muthén, B. O. (1998–2004). Mplus users guide (3rd ed.). Los Angeles: Author.
  • Nam, I. (2016). Financial difficulty effects on depressive symptoms among dementia patient caregivers. Community Mental Health Journal, 52(8), 1093–1097.
  • National Alliance for Caregiving & AARP. (2015). Caregiver statistics: Work and caregiving. Retrieved from https://www.caregiver.org/caregiver-statistics-work-and-caregiving.
  • National Institute on Aging (NIA). (2016). Alzheimer’s disease fact sheet. U.S. Department of Health and Human Services. Retrieved from https://www.nia.nih.gov/alzheimers/publication/alzheimers-disease-fact-sheet.
  • National Institute on Aging (NIA). (2012). 2011 – 2012 Alzheimer’s disease progress report. Alzheimer’s Disease Progress Report. Retrieved from https://www.nia.nih.gov/alzheimers/publication/2011-2012-alzheimers-disease-progress-report/health-disparities-and.
  • Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychological Aging, 18(2), 250–267.
  • Radloff, L. S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1(3), 385–401.
  • Reed, C., Belger, M., Dell'Agnello, G., Wimo, A., Argimon, J. M., Bruno, G., … Vellas, B. (2014). Caregiver burden in Alzheimer’s disease: differential associations in adult-child and spousal caregivers in the GERAS observational study. Dementia and Geriatric Cognitive Disorders Extra, 4(1), 51–64.
  • Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). In patient safety and quality: An evidence-based handbook for nurses (Hughes, R. G.). Rockville, MD: Agency for Healthcare Research and Quality.
  • Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A broader view of family caregiving: Effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. Journals of Gerontology: Series B, 64B(6), 788–798.
  • Savundranayagam, M. Y., & Montgomery, R. J. V. (2010). Impact of role discrepancies on caregiver burden among spouses. Research on Aging, 32(2), 175–199.
  • Scheltens, P., Blennow, K., Breteler, M. M. B., de Strooper, B., Frisoni, G. B., Salloway, S., & Van der Flier, W. M. (2016). Alzheimer's disease. Lancet (London, England), 388(10043), 505–517.
  • Schulz, R., Mendelsohn, A. B., Haley, W. E., Mahoney, D., Allen, R. S., Zhang, S., … Belle, S. H. (2003). End-of-life care and the effects of bereavement on family caregivers of persons with dementia. The New England Journal of Medicine, 349(20), 1936–1942.
  • Schulz, R., & Eden, J. (2016). Families caring for an aging America. Washington, DC: National Academies Press.
  • Sherwood, P. R., Given, C. W., Given, B. A., & von Eye, A. (2005). Caregiver burden and depressive symptoms: analysis of common outcomes in caregivers of elderly patients. Journal of Aging and Health, 17(2), 125–147.
  • Skorga, P., & Young, C. F. (2015). Mini-mental state examination for the detection of Alzheimer disease and other dementias in people with mild cognitive impairment. Clinical Nurse Specialist, 29(5), 265–267.
  • Sun, F., Hilgeman, M. M., Durkin, D. W., Allen, R. S., & Burgio, L. D. (2009). Perceived income inadequacy as a predictor of psychological distress in Alzheimer’s caregivers. Psychology and Aging, 24(1), 177–183.
  • Tilden, V., Tolle, S., Drach, L., & Perrin, N. (2004). Out¬of¬ hospital death: Advance care planning, decedent symptoms, and caregiver burden. Journal of the American Geriatrics Society, 52(4), 532–539. doi: 10.111/j.1532¬5415.2004.52158.x
  • Toepper, M. (2017). Dissociating normal aging from Alzheimer's disease: A view from cognitive neuroscience. Journal of Alzheimer's Disease, 57(2), 331–352.
  • Tokuchi, R., Hishikawa, N., Sato, K., Hatanaka, N., Fukui, Y., Takemoto, M., … Abe, K. (2016). Differences between the behavioral and psychological symptoms of Alzheimer’s disease and Parkinson’s disease. Journal of the Neurological Sciences, 369(15), 278–282.
  • Vandepitte, S., Van Den Noortgate, N., Putman, K., Verhaeghe, S., Verdonck, C., & Annemans, L. (2016). Effectiveness of respite care in supporting informal caregivers of persons with dementia: a systematic review. International Journal of Geriatric Psychiatry, 31(12), 1277–1288.
  • Wallace, M., & Shelkey, M. (2007). Katz independence in activities of daily living (ADL). try this: Best Practices in Nursing Care to Older Adults, The Hartford Institute for Geriatric Nursing. Retrieved from https://clas.uiowa.edu/socialwork/sites/clas.uiowa.edu.socialwork/files/NursingHomeResource/documents/Katz%20ADL_LawtonIADL.pdf.
  • Wolff, J. L., Feder, J., & Schulz, R. (2016). Supporting family caregivers of older americans. The New England Journal of Medicine, 375(26), 2513–2515.
  • Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist, 20(6), 649–655.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.