Acute care delivery to persons with cognitive impairment: a mixed method study of health professionals’ care provision and associated challenges

References

• Alzheimer's Disease International. (2015). World Alzheimer Report 2015: The global impact of dementia.
   Google Scholar
• Alzheimer's Society. (2009). Counting the cost: Caring for people with dementia in hospital wards. Retrieved from London.
   Google Scholar
• BAG & GDK. (2013). Nationale Demenzstrategie 2014-2017. Bern: Bundesamt für Gesundheit und Schweizerische Konferenz der kantonalen Gesundheitsdirektorinnen und -direktoren.
   Google Scholar
• Baumbusch, J., Leblanc, M. E., Shaw, M., & Kjorven, M. (2016). Factors influencing nurses' readiness to care for hospitalised older people. International Journal of Older People Nursing, 11(2), 149–159.
   PubMed Web of Science ®Google Scholar
• Beaton, D., Bombardier, C., Fuillemin, F., & Ferraz, M. B. (2007). Recommendations for the cross-cultural adaptation of the DASH & QuckDASH outcome measures. Toronto: Institute for Work and Health.
   Google Scholar
• Briggs, R., Coary, R., Collins, R., Coughlan, T., O'Neill, D., & Kennelly, S. P. (2016). Acute hospital care: how much activity is attributable to caring for patients with dementia? QJM: An International Journal of Medicine, 109(1), 41–44.
   PubMed Web of Science ®Google Scholar
• Brody, A. A., & Galvin, J. E. (2013). A review of interprofessional dissemination and education interventions for recognizing and managing dementia. Gerontology and Geriatrics Education, 34(3), 225–256.
   PubMedGoogle Scholar
• Brooker, D. (2003). What is person-centred care in dementia? Reviews in Clinical Gerontology, 13(3), 215–222.
   Google Scholar
• Burgstaller, M., Mayer, H., Schiess, C., & Saxer, S. (2018). Experiences and needs of relatives of people with dementia in acute hospitals - A meta-synthesis of qualitative studies. Journal of Clinical Nursing, 27(3–4), 502–515.
   PubMed Web of Science ®Google Scholar
• Chen, C. C.-H., Chiu, M.-J., Chen, S.-P., Cheng, C.-M., & Huang, G.-H. (2011). Patterns of cognitive change in elderly patients during and 6 months after hospitalisation: A prospective cohort study. International Journal of Nursing Studies, 48(3), 338–346.
   PubMed Web of Science ®Google Scholar
• Chenoweth, L., Kable, A., & Pond, D. (2015). Research in hospital discharge procedures addresses gaps in care continuity in the community, but leaves gaping holes for people with dementia: A review of the literature. Australasian Journal on Ageing, 34(1), 9–14.
   PubMed Web of Science ®Google Scholar
• Clissett, P., Porock, D., Harwood, R. H., & Gladman, J. R. F. (2013). The challenges of achieving person-centred care in acute hospitals: A qualitative study of people with dementia and their families. International Journal of Nursing Studies, 50(11), 1495–1503.
   PubMed Web of Science ®Google Scholar
• Clissett, P., Porock, D., Harwood, R. H., & Gladman, J. R. F. (2014). The responses of healthcare professionals to the admission of people with cognitive impairment to acute hospital settings: An observational and interview study. Journal of Clinical Nursing, 23(13-14), 1820–1829.
   PubMed Web of Science ®Google Scholar
• Cowdell, F. (2010). The care of older people with dementia in acute hospitals. International Journal of Older People Nursing, 5(2), 83–92.
   PubMedGoogle Scholar
• Creswell, J. W., & Plano Clark, V. L. (2011). Designing and conducting mixed method research. Thousand Oaks: Sage.
   Google Scholar
• Cummings, J. L. (1997). The Neuropsychiatric Inventory: assessing psychopathology in dementia patients. Neurology, 48(5 Suppl 6), S10–S16.
   PubMed Web of Science ®Google Scholar
• Cummings, J. L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D. A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314.
   PubMed Web of Science ®Google Scholar
• Digby, R., Lee, S., & Williams, A. (2017). The experience of people with dementia and nurses in hospital: An integrative review. Journal of Clinical Nursing, 26(9–10), 1152–1171.
   PubMed Web of Science ®Google Scholar
• Elo, S., Kääriäinen, M., Kanste, O., Pölkki, T., Utriainen, K., & Kyngäs, H. (2014a). Qualitative content analysis. A Focus on Trustworthiness, 4(1).
   Google Scholar
• Elo, S., Kääriäinen, M., Kanste, O., Pölkki, T., Utriainen, K., & Kyngäs, H. (2014b). Qualitative content analysis: A focus on trustworthiness. SAGE Open, 4(1), 1–10. doi: 10.1177/2158244014522633
   Google Scholar
• Elo, S., & Kyngas, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115.
   PubMed Web of Science ®Google Scholar
• Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. British Journal of Psychiatry, 208(5), 429–434.
   PubMed Web of Science ®Google Scholar
• Flood, K. L., Booth, J., Pierluissi, E., Danto-Nocton, E. S., Kresevic, D. M., & Palmer, R. M. (2015). Acute care for elders. In Malone M., Capezuti E., Palmer R. (Ed.), Geriatrics Models of Care (pp. 3–23). Springer, Cham .
   Google Scholar
• Fogg, C., Griffiths, P., Meredith, P., & Bridges, J. (2018). Hospital outcomes of older people with cognitive impairment: An integrative review. International Journal of Geriatric Psychiatry, 33(9), 1177–1197.
   PubMed Web of Science ®Google Scholar
• Fogg, C., Meredith, P., Bridges, J., Gould, G. P., & Griffiths, P. (2017). The relationship between cognitive impairment, mortality and discharge characteristics in a large cohort of older adults with unscheduled admissions to an acute hospital: a retrospective observational study. Age and Ageing, 46(5), 794–801.
   PubMed Web of Science ®Google Scholar
• Fukuda, R., Shimizu, Y., & Seto, N. (2015). Issues experienced while administering care to patients with dementia in acute care hospitals: A study based on focus group interviews. International Journal of Qualitative Studies on Health and Well-Being, 10(1), 25828.
   PubMed Web of Science ®Google Scholar
• Gaugler, J. E., & Wocken, K. M. (2014). Healthcare professionals may not be maintaining person-centred care for people with dementia hospitalised on acute wards. Evidence Based Nursing, 17(4), 126–126. 121p.
   PubMedGoogle Scholar
• Goldberg, S. E., Bradshaw, L. E., Kearney, F. C., Russell, C., Whittamore, K. H., Foster, P. E. R., … Harwood, R. H. (2013). Care in specialist medical and mental health unit compared with standard care for older people with cognitive impairment admitted to general hospital: Randomised controlled trial (NIHR TEAM trial. ). British Medical Journal, 347, f4123.
   Google Scholar
• Goldberg, S. E., Whittamore, K. H., Pollock, K., Harwood, R. H., & Gladman, J. R. F. (2014). Caring for cognitively impaired older patients in the general hospital: A qualitative analysis of similarities and differences between a specialist Medical and Mental Health Unit and standard care wards. International Journal of Nursing Studies, 51(10), 1332–1343. doi:10.1016/j.ijnurstu.2014.02.002
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., Lindgren, B. M., & Lundman, B. (2017). Methodological challenges in qualitative content analysis: A discussion paper. Nurse Education Today, 56, 29–34.
   PubMed Web of Science ®Google Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112.
   PubMed Web of Science ®Google Scholar
• Grealish, L., Chaboyer, W., Harbeck, E., & Edvardsson, D. (2016). The person-centred care of older people with cognitive impairment in acute care (POPAC) scale – psychometric evaluation. Journal of Nursing Management, 25(2), 139–147. doi:
   PubMed Web of Science ®Google Scholar
• Guest, G., Namey, E., & McKenna, K. (2017). How many focus groups are enough? Building an evidence base for nonprobability sample sizes. Field Methods, 29(1), 3–22.
   Web of Science ®Google Scholar
• Heath, H., Sturdy, D., & Wilcock, G. (2010). Improving quality of care for people with dementia in general hospitals. Nursing Older People, 1–16, 16.
   Google Scholar
• Hoogendijk, E. O., van der Horst, H. E., van de Ven, P. M., Twisk, J. W. R., Deeg, D. J. H., Frijters, D. H. M., … van Hout, H. P. J. (2016). Effectiveness of a Geriatric Care Model for frail older adults in primary care: Results from a stepped wedge cluster randomized trial. European Journal of Internal Medicine, 28, 43–51. doi:10.1016/j.ejim.2015.10.023
   PubMed Web of Science ®Google Scholar
• Hopfe, M., Prodinger, B., Bickenbach, J. E., & Stucki, G. (2018). Optimizing health system response to patient's needs: an argument for the importance of functioning information. Disabil Rehabil, 40(19), 2325–2330.
   PubMed Web of Science ®Google Scholar
• Hsiao, F.-Y., Peng, L.-N., Wen, Y.-W., Liang, C.-K., Wang, P.-N., & Chen, L.-K. (2015). Care needs and clinical outcomes of older people with dementia: a population-based propensity score-matched cohort study. PLoS One, 10(5), e0124973.
   PubMed Web of Science ®Google Scholar
• Huang, A. R., Larente, N., & Morais, J. A. (2011). Moving towards the age-friendly hospital: A paradigm shift for the hospital-based care of the elderly. Canadian Geriatrics Journal: CGJ, 14(4), 100–103.
   PubMedGoogle Scholar
• Hynninen, N., Saarnio, R., & Isola, A. (2015). The care of older people with dementia in surgical wards from the point of view of the nursing staff and physicians. Journal of Clinical Nursing, 24(1-2), 192–201.
   PubMed Web of Science ®Google Scholar
• Hynninen, N., Saarnio, R., & Isola, A. (2015). Treatment of older people with dementia in surgical wards from the viewpoints of the patients and close relatives. Journal of Clinical Nursing, 24(23-24), 3691–3699.
   PubMed Web of Science ®Google Scholar
• Jayasekara, R. S. (2012). Focus groups in nursing research: Methodological perspectives. Nursing Outlook, 60(6), 411–416. doi:10.1016/j.outlook.2012.02.001
   PubMed Web of Science ®Google Scholar
• Jurgens, F. J., Clissett, P., Gladman, J. R., & Harwood, R. H. (2012). Why are family carers of people with dementia dissatisfied with general hospital care? A qualitative study. BMC Geriatrics, 12(1), 57
   PubMedGoogle Scholar
• Kaufer, D. I., Cummings, J. L., Christine, D., Bray, T., Castellon, S., Masterman, D., … DeKosky, S. T. (1998). Assessing the impact of neuropsychiatric symptoms in Alzheimer's disease: the Neuropsychiatric Inventory Caregiver Distress Scale. Journal of the American Geriatrics Society, 46(2), 210–215.
   PubMed Web of Science ®Google Scholar
• Martin, J. S., Vincenzi, C., & Spirig, R. (2007). Principles and methods of good practice for the translation process for instruments of nursing research and nursing practice [German]. Pflege, 20(3), 157–163.
   PubMedGoogle Scholar
• Moonga, J., & Likupe, G. (2016). A systematic literature review on nurses' and health care support workers' experiences of caring for people with dementia on orthopaedic wards. Journal of Clinical Nursing, 25(13–14), 1789–1804.
   PubMed Web of Science ®Google Scholar
• Morgan, D. L. (1997/2013). Planning and research design for focus groups. In Focus Groups as Qualitative Research (2nd ed.). Thousand Oaks, CA: SAGE Publications, Inc.
   Google Scholar
• Moyle, W., Bramble, M., Bauer, M., Smyth, W., Beattie, E. (2016). 'They rush you and push you too much … and you can't really get any good response off them': A qualitative examination of family involvement in care of people with dementia in acute care. Australasian Journal on Ageing, 35(2), E30–E34.
   PubMed Web of Science ®Google Scholar
• Mukadam, N., & Sampson, E. L. (2011). A systematic review of the prevalence, associations and outcomes of dementia in older general hospital inpatients. International Psychogeriatrics, 23(3), 344–355.
   PubMed Web of Science ®Google Scholar
• Naef, R., Ernst, J., Bürgi, C., & Petry, H. (2018). Quality of acute care for persons with cognitive impairment and their families: A scoping review. International Journal of Nursing Studies, 85, 80–89. doi:10.1016/j.ijnurstu.2018.05.006
   PubMed Web of Science ®Google Scholar
• Nilsson, A., Lindkvist, M., Rasmussen, B. H., & Edvardsson, D. (2013). Measuring levels of person-centeredness in acute care of older people with cognitive impairment: evaluation of the POPAC scale. Bmc Health Services Research, 13, 327. doi:
   PubMed Web of Science ®Google Scholar
• Nilsson, A., Rasmussen, B. H., & Edvardsson, D. (2016). A threat to our integrity – Meanings of providing nursing care for older patients with cognitive impairment in acute care settings. Scandinavian Journal of Caring Sciences, 30(1), 48–56.
   PubMed Web of Science ®Google Scholar
• Parke, B., Boltz, M., Hunter, K. F., Chambers, T., Wolf-Ostermann, K., Adi, M. N., … Gutman, G. (2017). A scoping literature review of dementia-friendly hospital design. Gerontologist, 57(4), e62–e74. doi:
   PubMed Web of Science ®Google Scholar
• Parke, B., Hunter, K. F., Bostrom, A. M., Chambers, T., & Manraj, C. (2014). Identifying modifiable factors to improve quality for older adults in hospital: a scoping review. International Journal of Older People Nursing, 9(1), 8–24.
   PubMedGoogle Scholar
• Petry, H., Ernst, J., Steinbrüchel-Boesch, C., Altherr, J., & Naef, R. (2018). The acute care experience of older persons with cognitive impairment and their families: A qualitative study. International Journal of Nursing Studies, doi:
   Web of Science ®Google Scholar
• Phillipson, L., Goodenough, B., Reis, S., & Fleming, R. (2016). Applying knowledge translation concepts and strategies in dementia care education for health professionals: Recommendations from a narrative literature review. Journal of Continuing Education in the Health Professions, 36(1), 74–81.
   PubMed Web of Science ®Google Scholar
• Pike, G., & Beveridge, K. (2011). Dignity in dementia: Transforming general hospital care. Results from an online survey consultation of carer and patients. Final report prepared for the RCN.
   Google Scholar
• Toot, S., Devine, M., Akporobaro, A., & Orrell, M. (2013). Causes of Hospital Admission for People With Dementia: A Systematic Review and Meta-Analysis. Journal of the American Medical Directors Association, 14(7), 463–470.
   PubMed Web of Science ®Google Scholar
• Turner, A., Eccles, F. J., Elvish, R., Simpson, J., & Keady, J. (2017). The experience of caring for patients with dementia within a general hospital setting: a meta-synthesis of the qualitative literature. Aging Ment Health, 21(1), 66–76.
   PubMed Web of Science ®Google Scholar
• Whittamore, K. H., Goldberg, S. E., Bradshaw, L. E., & Harwood, R. H. (2014). Factors Associated with Family Caregiver Dissatisfaction with Acute Hospital Care of Older Cognitively Impaired Relatives. Journal of the American Geriatrics Society, 62(12), 2252–2260. 2259p.
   PubMed Web of Science ®Google Scholar
• Wilkinson, S. (2004). Focus group research. In D. Silverman (Ed.), Qualitative research: Theory, method, and practice (2nd ed., pp. 177199). London: Sage.
   Google Scholar
• Wood, S., Cummings, J. L., Hsu, M. A., Barclay, T., Wheatley, M. V., Yarema, K. T., & Schnelle, J. F. (2000). The use of the neuropsychiatric inventory in nursing home residents. Characterization and measurement. Am J Geriatr Psychiatry, 8(1), 75–83.
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2013). ROADMAP. Strengthening people-centred health systems in the WHO European Region: A Framework for Action Towards Coordinated/Integrated Health Services Delivery (CIHSD). Retrieved from Copenhagen, Denmark http://www.euro.who.int/__data/assets/pdf_file/0005/231692/e96929-replacement-CIHSD-Roadmap-171014b.pdf
   Google Scholar
• Zekry, D., Herrmann, F. R., Grandjean, R., Vitale, A.-M., De Pinho, M.-F., Michel, J.-P., … Krause, K.-H. (2009). Does dementia predict adverse hospitalization outcomes? A prospective study in aged inpatients. International Journal of Geriatric Psychiatry, 24(3), 283–291.
   PubMed Web of Science ®Google Scholar
• Zhang, W., & Creswell, J. (2013). The use of "mixing" procedure of mixed methods in health services research. Medical Care, 51(8), e51–57.
   PubMed Web of Science ®Google Scholar