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Quality of Life in Carers

Effects of functional communication interventions for people with primary progressive aphasia and their caregivers: a systematic review

ORCID Icon, , , &
Pages 1381-1393 | Received 01 Mar 2019, Accepted 06 May 2019, Published online: 28 May 2019

References

  • American Speech Language and Hearing Association. (2009). National outcomes measurement system: Adults in healthcare-inpatient National Data Report 2009. Rockville, MD: National Center for Evidence-Based Practice in Communication Disorders.
  • Babbitt, E. M., Heinemann, A. W., Semik, P., & Cherney, L. R. (2011). Psychometric properties of the communication confidence rating scale for aphasia (CCRSA): Phase 2. Aphasiology, 25(6–7), 727–735.
  • Benton, A. L. (1967). Problems of test construction in the field of aphasia. Cortex: A Journal Devoted to the Study of the Nervous System and Behavior, 3, 32–58.
  • Bier, N., Brambati, S., Macoir, J., Paquette, G., Schmitz, X., Belleville, S., … Joubert, S. (2015). Relying on procedural memory to enhance independence in daily living activities: Smartphone use in a case of semantic dementia. Neuropsychological Rehabilitation, 25(6), 913–935.
  • Bier, N., Macoir, J., Joubert, S., Bottari, C., Chayer, C., Pigot, H., … Team, S. (2011). Cooking “Shrimp à la Créole”: A pilot study of an ecological rehabilitation in semantic dementia. Neuropsychological Rehabilitation, 21(4), 455–483.
  • Bier, N., Paquette, G., & Macoir, J. (2015). Smartphone for smart living: Using new technologies to cope with everyday limitations in semantic dementia. Neuropsychological Rehabilitation, 28(5), 734–754.
  • Bonner, M. F., Ash, S., & Grossman, M. (2010). The new classification of primary progressive aphasia into semantic, logopenic, or nonfluent/agrammatic variants. Current Neurology and Neuroscience Reports, 10(6), 484–490.
  • Bottari, C., Dassa, C., Rainville, C., & Dutil, É. (2010). A generalizability study of the instrumental activities of daily living profile. Archives of Physical Medicine and Rehabilitation, 91(5), 734–742.
  • Cadório, I., Lousada, M., Martins, P., & Figueiredo, D. (2017). Generalization and maintenance of treatment gains in primary progressive aphasia (PPA): A systematic review. International Journal of Language & Communication Disorders, 52(5), 543–560.
  • Carthery-Goulart, M. T., Silveira, A. D. C. D., Machado, T. H., Mansur, L. L., Parente, M. A. D. M. P., Senaha, M. L. H., … Nitrini, R. (2013). Nonpharmacological interventions for cognitive impairments following primary progressive aphasia: A systematic review of the literature. Dementia & Neuropsychologia, 7(1), 122–131.
  • Cartwright, J., & Elliott, K. A. (2009). Promoting strategic television viewing in the context of progressive language impairment. Aphasiology, 23(2), 266–285.
  • Chan, A.-W., Tetzlaff, J. M., Gøtzsche, P. C., Altman, D. G., Mann, H., Berlin, J. A., … Moher, D. (2013). SPIRIT 2013 explanation and elaboration: Guidance for protocols of clinical trials. Bmj (Clinical Research ed.), 346, e7586.
  • Chiou, H. S., & Kennedy, M. R. (2009). Switching in adults with aphasia. Aphasiology, 23(7–8), 1065–1075.
  • Cicerone, K. D., Dahlberg, C., Kalmar, K., Langenbahn, D. M., Malec, J. F., Bergquist, T. F., … Morse, P. A. (2000). Evidence-based cognitive rehabilitation: Recommendations for clinical practice. Archives of Physical Medicine and Rehabilitation, 81(12), 1596–1615.
  • Coyle-Gilchrist, I. T. S., Dick, K. M., Patterson, K., Vázquez Rodríquez, P., Wehmann, E., Wilcox, A., … Rowe, J. B. (2016). Prevalence, characteristics, and survival of frontotemporal lobar degeneration syndromes. Neurology, 86(18), 1736–1743.
  • Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008). Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ, 337, a1655.
  • Cress, C., & King, J. (1999). AAC strategies for people with primary progressive aphasia without dementia: Two case studies. Augmentative and Alternative Communication, 15(4), 248–259.
  • Croot, K. (2009). Progressive language impairments: Definitions, diagnoses, and prognoses. Aphasiology, 23(2), 302–326.
  • Cruice, M., Blom Johansson, M., Isaksen, J., & Horton, S. (2018). Reporting interventions in communication partner training: A critical review and narrative synthesis of the literature. Aphasiology, 32(10), 1135–1166.
  • Davis, G. A., & Wilcox, J. (1981). Incorporating parameters of natural conversation in aphasia treatment., In Chapey, R. (Ed.), Language intervention strategies in adult aphasia. (pp. 169–194). Baltimore, MD: Williams and Wilkins.
  • Dickerson, B. C. (2011). Quantitating severity and progression in primary progressive aphasia. Journal of Molecular Neuroscience, 45(3), 618–628.
  • Dua, T., Nichols, P. and Setoya, Y. (Eds). (2012). Dementia: A public health priority. Geneva: World Health Organisation and Alzheimer's Disease International.
  • Dugmore, O., Orrell, M., & Spector, A. (2015). Qualitative studies of psychosocial interventions for dementia: a systematic review. Aging & Mental Health, 19(11), 955–967.
  • Frattali, C. M., Thompson, C. M., Holland, A. L., Wohl, C. B., & Ferketic, M. M. (1995). ASHA Functional Assessment of Communication Skills (FACS). Rockville, MD.
  • Fried-Oken, M., Rowland, C., & Gibbons, C. (2010). Providing augmentative and alternative communication treatment to persons with progressive nonfluent aphasia. Perspectives on Neurophysiology and Neurogenic Speech and Language Disorders, 20(1), 21–25.
  • Gibbons, C., Oken, B., & Fried-Oken, M. (2012). Augmented input reveals word deafness in a man with frontotemporal dementia. Behavioural Neurology, 25(2), 151–154.
  • Goodglass, H., Kaplan, E., & Barresi, B. (2000). Boston diagnostic aphasia examination record booklet. Philadelphia: Lippincott Williams & Wilkins.
  • Goral-Polrola, J., Polrola, P., Mirska, N., Mirski, A., Herman-Sucharska, I., & Pachalska, M. (2016). Augmentative and Alternative Communication (AAC) for a patient with a nonfluent/agrammatic variant of PPA in the mutism stage. Annals of Agricultural and Environmental Medicine, 23(1), 182–192.
  • Gorno-Tempini, M. L., Hillis, A. E., Weintraub, S., Kertesz, A., Mendez, M., Cappa, S. F., … Grossman, M. (2011). Classification of primary progressive aphasia and its variants. Neurology, 76(11), 1006–1014.
  • Helm-Estabrooks, N., & Albert, M. L. (1991). Manual of aphasia therapy. Austin, TX: Pro-ed.
  • Hoffmann, T. C., Glasziou, P. P., Boutron, I., Milne, R., Perera, R., Moher, D., … Michie, S. (2014). Better reporting of interventions: template for intervention description and replication (TIDieR) checklist and guide. BMJ, 348(mar07 3), g1687.
  • Holland, A. L. (1980). Communicative abilities in daily living: A test of functional communication for aphasic adults. Baltimore, MD: University Park Press.
  • Jokel, R., Meltzer, J., D.R, J., D.M, L., J.C, J., A.N, E., & D.T, C. (2017). Group intervention for individuals with primary progressive aphasia and their spouses: Who comes first? Journal of Communication Disorders, 66, 51–64.
  • Kagan, A., Simmons‐Mackie, N., Rowland, A., Huijbregts, M., Shumway, E., McEwen, S., … Sharp, S. (2008). Counting what counts: A framework for capturing real‐life outcomes of aphasia intervention. Aphasiology, 22(3), 258–280.
  • Kaplan, E., Goodglass, H., & Weintraub, S. (1983). Boston naming test. Philadelphia: Lea & Febiger.
  • Kertesz, A. (2006). Western aphasia battery-revised. New York: Pearson.
  • Kertesz, A., Jesso, S., Harciarek, M., Blair, M., & McMonagle, P. (2010). What is semantic dementia? A cohort study of diagnostic features and clinical boundaries. Archives of Neurology, 67(4), 483–489.
  • Kim, E. S., Figeys, M., Hubbard, H. I., & Wilson, C. (2018). The impact of aphasia camp participation on quality of life: A primary progressive aphasia perspective. Seminars in Speech and Language, 39(3), 270–283.
  • Kindell, J., Wilkinson, R., Sage, K., & Keady, J. (2018). Combining music and life story to enhance participation in family interaction in semantic dementia: A longitudinal study of one family’s experience. Arts & Health, 10(2), 165–180.
  • Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P. A., … Moher, D. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: Explanation and elaboration. PLoS Medicine, 6(7), e1000100.
  • Lomas, J., Pickard, L., Bester, S., Elbard, H., Finlayson, A., & Zoghaib, C. (1989). The communicative effectiveness index: Development and psychometric evaluation of a functional communication measure for adult aphasia. Journal of Speech and Hearing Disorders, 54(1), 113–124.
  • Marshall, C. R., Hardy, C. J. D., Volkmer, A., Russell, L. L., Bond, R. L., Fletcher, P. D., … Warren, J. D. (2018). Primary progressive aphasia: A clinical approach. Journal of Neurology, 265(6), 1474–1490.
  • Mays, N., & Pope, C. (2000). Qualitative research in health care. Assessing quality in qualitative research. BMJ (Clinical Research ed.), 320(7226), 50–52.
  • Mesulam, M. (1982). Slowly Progressive aphasia without generalised dementia. Annals of Neurology, 11, 592–598.
  • Mooney, A., Beale, N., & Fried-Oken, M. (2018). Group communication treatment for individuals with PPA and their partners. Seminars in Speech and Language, 39(3), 257–269.
  • Mooney, A., Bedrick, S., Noethe, G., Spaulding, S., & Fried-Oken, M. (2018). Mobile technology to support lexical retrieval during activity retell in primary progressive aphasia. Aphasiology, 32(6), 666–692.
  • Moore, G. F., Audrey, S., Barker, M., Bond, L., Bonell, C., Hardeman, W., … Baird, J. (2015). Process evaluation of complex interventions: Medical research council guidance. BMJ, 350(Mar 19 6), h1258.
  • Morhardt, D. J., O'Hara, M. C., Zachrich, K., Wieneke, C., & Rogalski, E. J. (2017). Development of a psycho-educational support program for individuals with primary progressive aphasia and their care-partners. Dementia, 1471301217699675.
  • Murray, L. L. (1998). Longitudinal treatment of primary progressive aphasia: A case study. Aphasiology, 12(7–8), 651–672.
  • O’Rourke, A., Power, E., O'Halloran, R., & Rietdijk, R. (2018). Common and distinct components of communication partner training programmes in stroke, traumatic brain injury and dementia. International Journal of Language & Communication Disorders, 53(6), 1150–1168.
  • World Health Organization (WHO). (2001). International classification of functioning, disability and health: ICF. Geneva: World Health Organization.
  • Pattee, C., Von Berg, S., & Ghezzi, P. (2006). Effects of alternative communication on the communicative effectiveness of an individual with a progressive language disorder. International Journal of Rehabilitation Research, 29(2), 151–153.
  • Paul, D. R., Frattali, C., Holland, A. L., Thompson, C. K., Caperton, C. J., & Slater, S. C. (2004). Quality of Communication Life Scale: Manual. Rockville, MD: American Speech-Language Hearing Association.
  • Rogalski, E. J., & Khayum, B. (2018). A life participation approach to primary progressive aphasia intervention. Seminars in Speech and Language, 39(3), 284–296.
  • Rogalski, E. J., Saxon, M., McKenna, H., Wieneke, C., Rademaker, A., Corden, M. E., … Khayum, B. (2016). Communication Bridge: A pilot feasibility study of Internet-based speech–language therapy for individuals with progressive aphasia. Alzheimer's & Dementia: Translational Research & Clinical Interventions, 2(4), 213–221.
  • Rogers, M. A., & Alarcon, N. B. (1998). Dissolution of spoken language in primary progressive aphasia. Aphasiology, 12(7–8), 635–650.
  • Schuell, H., & Sefer, J. W. (1977). Minnesota test for differential diagnosis of aphasia. Differential diagnosis of aphasia with the Minnesota test. Minneapolis, MN: University of Minnesota Press.
  • Schulz, R., Czaja, S. J., McKay, J. R., Ory, M. G., & Belle, S. H. (2010). Intervention taxonomy (ITAX): Describing essential features of interventions. American Journal of Health Behavior, 34(6), 811–821.
  • Simmons-Mackie, N., Raymer, A., & Cherney, L. R. (2016). Communication partner training in aphasia: An updated systematic review. Archives of Physical Medicine and Rehabilitation, 97(12), 2202–2221.
  • Simmons‐Mackie, N., Savage, M. C., & Worrall, L. (2014). Conversation therapy for aphasia: A qualitative review of the literature. International Journal of Language & Communication Disorders, 49(5), 511–526.
  • Simmons-Mackie, N. N., & Damico, J. S. (1997). Reformulating the definition of compensatory strategies in aphasia. Aphasiology, 11(8), 761–781.
  • Volkmer, A., Spector, A., Warren, J. D., & Beeke, S. (2018). Speech and language therapy for primary progressive aphasia: Referral patterns and barriers to service provision across the UK. Dementia,1471301218797240.
  • Wong, S. B., Anand, R., Chapman, S. B., Rackley, A., & Zientz, J. (2009). When nouns and verbs degrade: Facilitating communication in semantic dementia. Aphasiology, 23(2), 286–301.

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