Mediating effect of mutuality on caregiver burden in Parkinson’s disease partners

References

• Aarsland, D., Larsen, J. P., Karlsen, K., Lim, N. G., & Tandberg, E. (1999). Mental symptoms in Parkinson's disease are important contributors to caregiver distress. International Journal of Geriatric Psychiatry, 14(10), 866–874.
   PubMed Web of Science ®Google Scholar
• Archbold, P., Stewart, B., Greenlick, M. R., & Harvath, T. A. (1992). The clinical assessment of mutuality and prepardness in family caregivers to frail older people. In S. G. Funk, E. M. Tornquist, M. T. Champagne, R. A. Wise (Eds.), Key aspects of elder care: Managing falls, incontinence, and cognitive impairment. New York, NY: Springer Publishing Company.
   Google Scholar
• Archbold, P. G., Stewart, B. J., Greenlick, M. R., & Harvath, T. (1990). Mutuality and preparedness as predictors of caregiver role strain. Research in Nursing & Health, 13(6), 375–384. Retrieved from http://onlinelibrary.wiley.com/store/10.1002/nur.4770130605/asset/4770130605_ftp.pdf?v=1&t=jcuo010l&s=00e529b98806646176734800b57e36a971549d5d
   PubMed Web of Science ®Google Scholar
• Asberg, K. H., & Sonn, U. (1989). The cumulative structure of personal and instrumental ADL. A study of elderly people in a health service district. Scandinavian Journal of Rehabilitation Medicine 21(4), 171–177.
   PubMedGoogle Scholar
• Ball, V., Snow, A. L., Steele, A. B., Morgan, R. O., Davila, J. A., Wilson, N., & Kunik, M. E. (2010). Quality of relationships as a predictor of psychosocial functioning in patients with dementia. Journal of Geriatric Psychiatry and Neurology, 23(2), 109–114. Retrieved from http://journals.sagepub.com/doi/pdf/10.1177/0891988710363709
   PubMed Web of Science ®Google Scholar
• Birgersson, A. M., & Edberg, A. K. (2004). Being in the light or in the shade: persons with Parkinson's disease and their partners' experience of support. International Journal of Nursing Studies, 41(6), 621–630.
   PubMed Web of Science ®Google Scholar
• Caap-Ahlgren, M., & Dehlin, O. (2002). Factors of importance to the caregiver burden experienced by family caregivers of Parkinson's disease patients. Aging Clinical and Experimental Research, 14(5), 371–377.
   PubMed Web of Science ®Google Scholar
• Campbell, P., Wright, J., Oyebode, J., Job, D., Crome, P., Bentham, P., … Lendon, C. (2008). Determinants of burden in those who care for someone with dementia. International Journal of Geriatric Psychiatry, 23(10), 1078–1085. Retrieved from https://onlinelibrary.wiley.com/doi/pdf/10.1002/gps.2071
   PubMed Web of Science ®Google Scholar
• Carter, J. H., Stewart, B. J., Archbold, P. G., Inoue, I., Jaglin, J., Lannon, M., … Zoog, K. …. (1998). Living with a person who has Parkinson's disease: the spouse's perspective by stage of disease. Parkinson's Study Group. Movement Disorders, 13(1), 20–28. Retrieved from http://onlinelibrary.wiley.com/store/10.1002/mds.870130108/asset/870130108_ftp.pdf?v=1&t=jcuo0wva&s=052bcc3c78e2e6370387c7fab7ab17f44dc0f08f
   PubMed Web of Science ®Google Scholar
• Chaudhuri, K. R. (2011). Handbook of non-motor symptoms in Parkinson's disease. New York: NY: Springer.
   Google Scholar
• Chaudhuri, K. R., Martinez-Martin, P., Schapira, A. H. V., Stocchi, F., Sethi, K., Odin, P., … Olanow, C. W. (2006). International multicenter pilot study of the first comprehensive self-completed nonmotor symptoms questionnaire for Parkinson's disease: the NMSQuest study. Movement Disorders, 21(7), 916–923. Retrieved from http://onlinelibrary.wiley.com/store/10.1002/mds.20844/asset/20844_ftp.pdf?v=1&t=jct7otol&s=58c0e77c2e7f125c2f7eaef6abc4071060ba5451 http://onlinelibrary.wiley.com/store/10.1002/mds.20844/asset/20844_ftp.pdf?v=1&t=jct7p15e&s=a398fb3c81f4feb4cfe85c319422cd58bb4eb5fb
   PubMed Web of Science ®Google Scholar
• Chiong-Rivero, H., Ryan, G. W., Flippen, C., Bordelon, Y., Szumski, N. R., Zesiewicz, T. A., … Vickrey, B. G. (2011). Patients' and caregivers' experiences of the impact of Parkinson's disease on health status. Patient Related Outcome Measures, 2011(2), 57–70.
   PubMedGoogle Scholar
• D'Amelio, M., Terruso, V., Palmeri, B., Di Benedetto, N., Famoso, G., Cottone, P., … Savettieri, G. (2009). Predictors of caregiver burden in partners of patients with Parkinson's disease. Neurological Sciences, 30(2), 171–174. Retrieved from https://link.springer.com/article/10.1007%2Fs10072-009-0024-z
   PubMed Web of Science ®Google Scholar
• Davis, L. L., Gilliss, C. L., Deshefy-Longhi, T., Chestnutt, D. H., & Molloy, M. (2011). The nature and scope of stressful spousal caregiving relationships. Journal of Family Nursing, 17(2), 224–240. Retrieved from < Go to ISI>://WOS:000290027300006 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3839348/pdf/nihms525822.pdf
   PubMed Web of Science ®Google Scholar
• Elmstahl, S., Malmberg, B., & Annerstedt, L. (1996). Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Archives of Physical Medicine and Rehabiliation, 77(2), 177–182.
   PubMed Web of Science ®Google Scholar
• Fahn, S., & Elton, R, & Committee., a. M. o. t. U. D. (1987). The Unified Parkinson’s Disease Rating Scale. In S. Fahn, C. D. Marsden, D. B. Calne, M. Goldstein (Eds.), Recent Developments in Parkinson’s Disease (Vol. 2, pp. 153–163, 293-304). Florham Park, NJ: Macmillan Health Care Information
   Google Scholar
• Fereshtehnejad, S. M. (2016). Strategies to maintain quality of life among people with Parkinson's disease: what works? Neurodegenerative Disease Management, 6(5), 399–415.
   PubMed Web of Science ®Google Scholar
• Francis, L. E., Worthington, J., Kypriotakis, G., & Rose, J. H. (2010). Relationship quality and burden among caregivers for late-stage cancer patients. Supportive Care in Cancer, 18(11), 1429–1436. Retrieved from https://link.springer.com/content/pdf/10.1007%2Fs00520-009-0765-5.pdf
   PubMed Web of Science ®Google Scholar
• Ghielen, I., van Wegen, E. E. H., Rutten, S., de Goede, C. J. T., Houniet-de Gier, M., Collette, E. H., … van den Heuvel, O. A. (2017). Body awareness training in the treatment of wearing-off related anxiety in patients with Parkinson's disease: Results from a pilot randomized controlled trial. Journal of Psychosomatic Research, 103, 1–8.
   PubMed Web of Science ®Google Scholar
• Goldsworthy, B., & Knowles, S. (2008). Caregiving for Parkinson's disease patients: an exploration of a stress-appraisal model for quality of life and burden. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 63(6), P372–376.
   PubMed Web of Science ®Google Scholar
• Greenwell, K., Gray, W. K., van Wersch, A., van Schaik, P., & Walker, R. (2015). Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: a systematic review. Parkinsonism & Related Disorders, 21(1), 1–11.
   PubMed Web of Science ®Google Scholar
• Haahr, A., Kirkevold, M., Hall, E. O. C., & Ostergaard, K. (2013). Being in it together': living with a partner receiving deep brain stimulation for advanced Parkinson's disease - a hermeneutic phenomenological study. Journal of Advanced Nursing, 69(2), 338–347. Retrieved from < Go to ISI>://WOS:000313722600010
   PubMed Web of Science ®Google Scholar
• Halm, M. A., & Bakas, T. (2007). Factors associated with caregiver depressive symptoms, outcomes, and perceived physical health after coronary artery bypass surgery. Journal of Cardiovascular Nurses, 22(6), 508–515. Retrieved from http://ovidsp.tx.ovid.com/ovftpdfs/FPDDNCOBJEIKNG00/fs046/ovft/live/gv023/00005082/00005082-200711000-00015.pdf
   PubMed Web of Science ®Google Scholar
• Hirschfeld, M. (1983). Homecare versus institutionalization: family caregiving and senile brain disease. International Journal of Nursing Studies, 20(1), 23–32.
   PubMed Web of Science ®Google Scholar
• Hoehn, M. M., & Yahr, M. D. (2001). Parkinsonism: onset, progression, and mortality. 1967. Neurology, 57(10 Suppl 3), S11–S26.
   PubMed Web of Science ®Google Scholar
• Hooker, S. A., Grigsby, M. E., Riegel, B., & Bekelman, D. B. (2015). The impact of relationship quality on health-related outcomes in heart failure patients and informal family caregivers: An integrative review. Journal of Cardiovascular Nursing, 30(4 Suppl 1), S52–S63. Retrieved from https://insights.ovid.com/pubmed?pmid=25955196
   PubMedGoogle Scholar
• Hooper, D., Coughlan, J., & Mullen, M. (2008). Structural equation modelling: Guidelines for determining model fit. Electronic Journal of Business Research Methods, 6(1), 53–60.
   Google Scholar
• Hsiao, C. Y., & Tsai, Y. F. (2014). Caregiver burden and satisfaction in families of individuals with schizophrenia. Nursing Research, 63(4), 260–269. Retrieved from http://ovidsp.tx.ovid.com/ovftpdfs/FPDDNCDCMCAIAE00/fs046/ovft/live/gv025/00006199/00006199-201407000-00006.pdf
   PubMed Web of Science ®Google Scholar
• Jones, A. J., Kuijer, R. G., Livingston, L., Myall, D., Horne, K., MacAskill, M., … Dalrymple-Alford, J. C. (2017). Caregiver burden is increased in Parkinson's disease with mild cognitive impairment (PD-MCI). Translational Neurodegeneration, 6, 17. Retrieved from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5474856/pdf/40035_2017_Article_85.pdf
   PubMed Web of Science ®Google Scholar
• Jorm, A. F. (2004). The Informant Questionnaire on cognitive decline in the elderly (IQCODE): a review. International Psychogeriatrics, 16(3), 275–293.
   PubMed Web of Science ®Google Scholar
• Karlstedt, M., Fereshtehnejad, S.-M., Aarsland, D., & Lökk, J. (2018). Mediating effect of mutuality on health-related quality of life in patients with Parkinson's Disease. Parkinson’s Disease, 2018, 8. Retrieved from https://doi.org/10.1155/2018/9548681
   Web of Science ®Google Scholar
• Karlstedt, M., Fereshtehnejad, S. M., Aarsland, D., & Lokk, J. (2017). Determinants of dyadic relationship and its psychosocial impact in patients with Parkinson's Disease and their spouses. Parkinsons Disease, 2017, 9. Retrieved from < Go to ISI>://WOS:000395197100001 http://downloads.hindawi.com/journals/pd/2017/4697052.pdf
   Web of Science ®Google Scholar
• Karlstedt, M., Fereshtehnejad, S. M., Winnberg, E., Aarsland, D., & Lokk, J. (2017). Psychometric properties of the mutuality scale in Swedish dyads with Parkinson's disease. Acta Neurologica Scandinavica, 136(2), 122–128. Retrieved from < Go to ISI>://WOS:000404782500006 http://onlinelibrary.wiley.com/doi/10.1111/ane.12706/abstract
   PubMed Web of Science ®Google Scholar
• Lawrence, R. H., Tennstedt, S. L., & Assmann, S. F. (1998). Quality of the caregiver care recipient relationship: Does it offset negative consequences of caregiving for family caregivers? Psychology and Aging, 13(1), 150–158. Retrieved from < Go to ISI>://WOS:000072552200013
   PubMed Web of Science ®Google Scholar
• Lokk, J. (2008). Caregiver strain in Parkinson's disease and the impact of disease duration. European Journal of Physical and Rehabilitation Medicine, 44(1), 39–45.
   PubMed Web of Science ®Google Scholar
• Lokk, J. (2009). Reduced life-space of non-professional caregivers to Parkinson's disease patients with increased disease duration. Clinical Neurology and Neurosurgery, 111(7), 583–587. Retrieved from < Go to ISI>://WOS:000269109700005 https://www.sciencedirect.com/science/article/pii/S030384670900136X?via%3Dihub
   PubMed Web of Science ®Google Scholar
• Lyons, K. S., Stewart, B. J., Archbold, P. G., & Carter, J. H. (2009). Optimism, pessimism, mutuality, and gender: predicting 10-year role strain in Parkinson's disease spouses. Gerontologist, 49(3), 378–387. Retrieved from https://watermark.silverchair.com/gnp046.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAd4wggHaBgkqhkiG9w0BBwagggHLMIIBxwIBADCCAcAGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMCi7olb931GHOkwh8AgEQgIIBkXcqPzQkk2-5joPUbiS-MpSvXjTK2jaOWw2soT0PqBHWXTNOvEF0wIzDuNbrOuJQea_AgpK1z-vL1DdeaTsc6BfgQUPl4D68Vi4vzWQbwkGbS_WatTlydllxIoE9ebTIr6FkQEqbRpzT12U4U24eTUcFknuwkE3_OLFz4NZ9yaUMwuJ4S-vufNpo-HMMOG648BS8JS1SKvMxK3C_UjdPwf6NufWWd9JFnuGB3rb2HNIBRfwc2WYYFtxPzBmN09_UU_wQOq_2Nh_grFyt2KlBN-xJZ6oP7nCbFkv36pdVZoZNWjIXN1MdoTg6A3fqpX76fEfUkmBCjBCZs7F2fuWc03oO6OY-Cm_3LYjORS4NDw7UCE6hlP7OixDLkUimwOm7HVBmxMzzOZ7HU-jNdCx0I_AcvsH0ckQuJtvfiMpCH2OmLOjhMMKqofnzuyg8SefTIzypG_cql2NCWK1CZiy2tEFWq-TWoh6fntwLA5CkhbRL4KQJiyUI2rZ4HFv1lP3ITrnRNQbsjFJqwgwBrj8UaJu4
   PubMed Web of Science ®Google Scholar
• Maffoni, M., Giardini, A., Pierobon, A., Ferrazzoli, D., & Frazzitta, G. (2017). Stigma experienced by Parkinson’s disease patients: A descriptive review of qualitative studies. Parkinson’s Disease, 2017, 1–7.
   Web of Science ®Google Scholar
• Martin, S. C. (2015). Psychosocial challenges experienced by partners of people with Parkinson Disease. Journal of Neuroscience Nursing, 47(4), 211–222. Retrieved from http://ovidsp.tx.ovid.com/ovftpdfs/FPDDNCJCFCPLJE00/fs046/ovft/live/gv023/01376517/01376517-201508000-00005.pdf
   PubMed Web of Science ®Google Scholar
• Martin, S. C. (2016). Relational issues within couples coping with Parkinson's disease: Implications and ideas for family-focused care. Journal of Family Nursing, 22(2), 224–251. Retrieved from http://journals.sagepub.com/doi/abs/10.1177/1074840716640605?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%3dpubmed
   PubMed Web of Science ®Google Scholar
• Martinez-Martin, P., Arroyo, S., Rojo-Abuin, J. M., Rodriguez-Blazquez, C., Frades, B., & de Pedro Cuesta, J. (2008). Burden, perceived health status, and mood among caregivers of Parkinson's disease patients. Movement Disorders, 23(12), 1673–1680. Retrieved from http://onlinelibrary.wiley.com/doi/10.1002/mds.22106/abstract
   PubMed Web of Science ®Google Scholar
• Martinez-Martin, P., Forjaz, M. J., Frades-Payo, B., Rusinol, A. B., Fernandez-Garcia, J. M., Benito-Leon, J., … Catalan, M. J. (2007). Caregiver burden in Parkinson's disease. Movement Disorders, 22(7), 924–931. quiz 1060.
   PubMed Web of Science ®Google Scholar
• Martinez-Martin, P., Rodriguez-Blazquez, C., & Forjaz, M. J. (2012). Quality of life and burden in caregivers for patients with Parkinson's disease: concepts, assessment and related factors. Expert Review of Pharmacoeconomics & Outcomes Research, 12(2), 221–230. Retrieved from http://www.tandfonline.com/doi/pdf/10.1586/erp.11.106?needAccess=true
   PubMed Web of Science ®Google Scholar
• Martinez-Martin, P., Schapira, A. H. V., Stocchi, F., Sethi, K., Odin, P., MacPhee, G., … Chaudhuri, K. R. (2007). Prevalence of nonmotor symptoms in Parkinson's disease in an international setting; study using nonmotor symptoms questionnaire in 545 patients. Movement Disorders, 22(11), 1623–1629. Retrieved from http://onlinelibrary.wiley.com/store/10.1002/mds.21586/asset/21586_ftp.pdf?v=1&t=jdn5634x&s=f12220f94e10e1b8504ba753781f663514df8787
   PubMed Web of Science ®Google Scholar
• Mosley, P. E., Moodie, R., & Dissanayaka, N. (2017). Caregiver burden in Parkinson Disease: A critical review of recent literature. Journal of Geriatric Psychiatry and Neurology, 30(5), 235–252.
   PubMed Web of Science ®Google Scholar
• Preacher, K. J., & Hayes, A. F. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behavior Research Methods, 40(3), 879–891.
   PubMed Web of Science ®Google Scholar
• Rucker, D. D., Preacher, K. J., Tormala, Z. L., & Petty, R. E. (2011). Mediation analysis in social psychology: Current practices and new recommendations: Mediation analysis in social psychology. Social and Personality Psychology Compass, 5(6), 359–371.
   Google Scholar
• Santos-Garcia, D., & de la Fuente-Fernandez, R. (2015). Factors contributing to caregivers' stress and burden in Parkinson's disease. Acta Neurologica Scandinavica, 131(4), 203–210. Retrieved from https://onlinelibrary.wiley.com/doi/pdf/10.1111/ane.12305
   PubMed Web of Science ®Google Scholar
• Schrag, A., Hovris, A., Morley, D., Quinn, N., & Jahanshahi, M. (2006). Caregiver-burden in Parkinson's disease is closely associated with psychiatric symptoms, falls, and disability. Parkinsonism and Related Disorders, 12(1), 35–41.
   PubMed Web of Science ®Google Scholar
• Schrag, A., & Quinn, N. (2000). Dyskinesias and motor fluctuations in Parkinson's disease. A Community-Based Study. Brain, 123(Pt 11), 2297.
   PubMed Web of Science ®Google Scholar
• Soleimani, M. A., Negarandeh, R., Bastani, F., & Greysen, R. (2014). Disrupted social connectedness in people with Parkinson's disease. British Journal of Community Nursing, 19(3), 136–141.
   PubMedGoogle Scholar
• Spruytte, N., Van Audenhove, C., & Lammertyn, F. (2001). Predictors of institutionalization of cognitively‐impaired elderly cared for by their relatives. International Journal of Geriatric Psychiatry, 16(12), 1119–1128.
   PubMed Web of Science ®Google Scholar
• Tabachnick, B. G. (2012). Using multivariate statistics (6th ed.) Boston, Mass. London: Boston, Mass.London: Pearson Education.
   Google Scholar
• Tanji, H., Anderson, K. E., Gruber-Baldini, A. L., Fishman, P. S., Reich, S. G., Weiner, W. J., & Shulman, L. M. (2008). Mutuality of the marital relationship in Parkinson's disease. Movement Disorders, 23(13), 1843–1849. Retrieved from http://onlinelibrary.wiley.com/store/10.1002/mds.22089/asset/22089_ftp.pdf?v=1&t=jcuo4b00&s=b17538eb010e7a7b474bbaf4ec967c660947f706
   PubMed Web of Science ®Google Scholar
• Yates, M. E., Tennstedt, S., & Chang, B. H. (1999). Contributors to and mediators of psychological well-being for informal caregivers. Journals of Gerontology Series B: Psychological Sciences and Social Science, 54(1), P12–22.
   PubMed Web of Science ®Google Scholar
• Zhao, X. S., Lynch, J. G., & Chen, Q. M. (2010). Reconsidering Baron and Kenny: Myths and truths about mediation analysis. Journal of Consumer Research, 37(2), 197–206. Retrieved from < Go to ISI>://WOS:000279443600001
   Web of Science ®Google Scholar