References
- Aalten, P., Verhey, F. R. J., Boziki, M., Brugnolo, A., Bullock, R., Byrne, E. J., … Robert, P. H. (2008). Consistency of neuropsychiatric syndromes across dementias: Results from the European Alzheimer Disease Consortium. Dementia and Geriatric Cognitive Disorders, 25(1), 1–8. Retrieved from https://www.karger.com/DOI/10.1159/000111082
- Alzheimer’s Disease International (ADI). (2015). World Alzheimer Report 2015: The global impact of dementia. London: Alzheimer’s Disease International.
- Blough, D. K., Madden, C. W., & Hornbrook, M. C. (1999). Modeling risk using generalized linear models. Journal of Health Economics, 18(2), 153–171. Retrieved from http://www.sciencedirect.com/science/article/pii/S0167629698000320
- Brefka, S., Dallmeier, D., Mühlbauer, V., von Arnim, C. A. F., Bollig, C., Onder, G., … Voigt-Radloff, S. (2019). A proposal for the retrospective identification and categorization of older people with functional impairments in scientific studies—Recommendations of the Medication and Quality of Life in Frail Older Persons (MedQoL) Research Group. Journal of the American Medical Directors Association, 20(2), 138–146. Retrieved from http://www.sciencedirect.com/science/article/pii/S1525861018306406 doi:10.1016/j.jamda.2018.11.008
- Brennan, S., Lawlor, B., Pertl, M. M., O’Sullivan, M., Begley, E., & O’Connell, C. (2017). De-stress: A study to assess the health and wellbeing of spousal carers of people with dementia in Ireland. Dublin: The Alzheimer Society of Ireland.
- Brick, A., Smith, S., Normand, C., O’Hara, S., Droog, E., Tyrrell, E., … Johnston, B. (2017). Costs of formal and informal care in the last year of life for patients in receipt of specialist palliative care. Palliative Medicine, 31(4), 356–368. doi:10.1177/0269216316686277
- Bucks, R. S., Ashworth, D. L., Wilcock, G. K., & Siegfried, K. (1996). Assessment of activities of daily living in dementia: Development of the Bristol activities of daily living scale. Age and Ageing, 25(2), 113–120. doi:10.1093/ageing/25.2.113
- Buhr, G. T., Kuchibhatla, M., & Clipp, E. C. (2006). Caregivers' reasons for nursing home placement: Clues for improving discussions with families prior to the transition. The Gerontologist, 46(1), 52–61. doi:10.1093/geront/46.1.52
- Buntin, M. B., & Zaslavsky, A. M. (2004). Too much ado about two-part models and transformation?: Comparing methods of modeling Medicare expenditures. Journal of Health Economics, 23(3), 525–542. Retrieved from http://www.sciencedirect.com/science/article/pii/S0167629604000220 doi:10.1016/j.jhealeco.2003.10.005
- Canevelli, M., Adali, N., Voisin, T., Soto, M. E., Bruno, G., Cesari, M., & Vellas, B. (2013). Behavioral and psychological subsyndromes in Alzheimer's disease using the Neuropsychiatric Inventory. International Journal of Geriatric Psychiatry, 28(8), 795–803. doi:10.1002/gps.3904
- Cepoiu-Martin, M., Tam-Tham, H., Patten, S., Maxwell, C. J., & Hogan, D. B. (2016). Predictors of long-term care placement in persons with dementia: A systematic review and meta-analysis. International Journal of Geriatric Psychiatry, 31(11), 1151–1171. doi:10.1002/gps.4449
- Connolly, S., Gillespie, P., O’Shea, E., Cahill, S., & Pierce, M. (2014). Estimating the economic and social costs of dementia in Ireland. Dementia, 13(1), 5–22. doi:10.1177/1471301212442453
- CSO. (2019a). The average industrial wage and the Irish economy. Retrieved from https://www.cso.ie/en/releasesandpublications/ep/p-hes/hes2015/aiw/
- CSO. (2019b). Consumer Price Index by Commodity Group, month and statistic. Retrieved from https://www.cso.ie/px/pxeirestat/Statire/SelectVarVal/Define.asp?maintable=CPM01&PLanguage=0
- Deb, P., Norton, E. C., & Manning, W. G. (2017). Health econometrics using Stata. Texas: Stata Press.
- Fortinsky, R. H., Kercher, K., & Burant, C. J. (2002). Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging & Mental Health, 6(2), 153–160. doi:10.1080/13607860220126763
- Gillespie, P., O’Shea, E., Cullinan, J., Buchanan, J., Bobula, J., Lacey, L., … Lawlor, B. (2015). Longitudinal costs of caring for people with Alzheimer's disease. International Psychogeriatrics, 27(5), 847–856. Retrieved from https://www.cambridge.org/core/article/longitudinal-costs-of-caring-for-people-with-alzheimers-disease/9C9148056613C04B9922EB17CF39BF86 doi:10.1017/S1041610214002063
- Gillespie, P., O'Shea, E., Cullinan, J., Lacey, L., Gallagher, D., Ni Mhaolain, A., & Lawlor, B. (2013). The effects of dependence and function on costs of care for Alzheimer's disease and mild cognitive impairment in Ireland. International Journal of Geriatric Psychiatry, 28(3), 256–264. doi:10.1002/gps.3819
- Gustavsson, A., Jonsson, L., Rapp, T., Reynish, E., Ousset, P. J., Andrieu, S., … Wimo, A. (2010). Differences in resource use and costs of dementia care between European countries: Baseline data from the ictus study. The Journal of Nutrition, Health & Aging, 14(8), 648–654. doi:10.1007/s12603-010-0311-7
- Herron, R. V., Rosenberg, M. W., & Skinner, M. W. (2016). The dynamics of voluntarism in rural dementia care. Health & Place, 41, 34–41. Retrieved from http://www.sciencedirect.com/science/article/pii/S1353829216300752 doi:10.1016/j.healthplace.2016.06.008
- HSE. (2019a). Consolidated Salary Scales in Accordance with FEMPI 2015 and the Public Service Stability Agreements 2013 - 2020. Dublin: Health Service Executive. Retrieved from https://www.hse.ie/eng/staff/benefitsservices/pay/consolidated-salary-scales-1st-april-2019.xls
- HSE. (2019b). Nursing homes support scheme maximum agreed prices with private and voluntary nursing homes. Dublin: Health Service Executive.
- Innes, A., Blackstock, K., Mason, A., Smith, A., & Cox, S. (2005). Dementia care provision in rural Scotland: Service users’ and carers’ experiences. Health and Social Care in the Community, 13(4), 354–365. doi:10.1111/j.1365-2524.2005.00569.x
- Innes, A., Cox, S., Smith, A., & Mason, A. (2006). Service provision for people with dementia in rural Scotland: Difficulties and innovations. Dementia, 5(2), 249–270. doi:10.1177/1471301206062253
- Innes, A., Morgan, D., & Kostineuk, J. (2011). Dementia care in rural and remote settings: A systematic review of informal/family caregiving. Maturitas, 68(1), 34–46. Retrieved from http://www.sciencedirect.com/science/article/pii/S0378512210003804 doi:10.1016/j.maturitas.2010.10.002
- Jacobs, J. C., Lilly, M. B., Ng, C., & Coyte, C. (2013). The fiscal impact of informal caregiving to home care recipients in Canada: How the intensity of care influences costs and benefits to government. Social Science & Medicine, 81, 102–109. Retrieved from http://www.sciencedirect.com/science/article/pii/S0277953612008386 doi:10.1016/j.socscimed.2012.12.015
- Jones, A., Rice, N., Bago d'Uva, T., & Balia, S. (2013). Applied health economics. London: Routledge Publishing Ltd.
- Jones, R., Romeo, R., Trigg, R., Knapp, M., Sato, A., King, D., … Lacey, L. (2015). Dependence in Alzheimer's disease and service use costs, quality of life, and caregiver burden: The DADE study. Alzheimer's & Dementia, 11(3), 280–290. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526014001071 doi:10.1016/j.jalz.2014.03.001
- Jönsson, L., Jönhagen, M. E., Kilander, L., Soininen, H., Hallikainen, M., Waldemar, G., … Wimo, A. (2006). Determinants of costs of care for patients with Alzheimer's disease. International Journal of Geriatric Psychiatry, 21(5), 449–459. doi:10.1002/gps.1489
- Kaufer, D. I., Cummings, J. L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., … DeKosky, S. T. (2000). Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory. The Journal of Neuropsychiatry and Clinical Neurosciences, 12(2), 233–239. Retrieved from https://neuro.psychiatryonline.org/doi/abs/10.1176/jnp.12.2.233
- Knapp, M., Iemmi, V., & Romeo, R. (2013). Dementia care costs and outcomes: A systematic review. International Journal of Geriatric Psychiatry, 28(6), 551–561. doi:10.1002/gps.3864
- Leicht, H., König, H.-H., Stuhldreher, N., Bachmann, C., Bickel, H., Fuchs, A., … Maier, W. … for the AgeCoDe study, g. (2013). Predictors of costs in dementia in a longitudinal perspective. PLoS One, 8(7), e70018. doi:10.1371/journal.pone.0070018
- Lopez, O. L., Becker, J. T., Chang, Y.-F., Sweet, R. A., Aizenstein, H., Snitz, B., … Klunk, W. E. (2013). The long-term effects of conventional and atypical antipsychotics in patients with probable Alzheimer’s disease. American Journal of Psychiatry, 170(9), 1051–1058. doi:10.1176/appi.ajp.2013.12081046
- Manning, W. G. (2012). Dealing with skewed data on costs and expenditures. In A. Jones (Ed.), The Elgar companion of health economics (2nd ed.). Cheltenham, UK and Northampton, MA: Edward Elgar Publishing Limited.
- Manning, W. G. (2014). Modeling cost and expenditure for healthcare. In A. J. Culyer (Ed.), Encyclopedia of health economics (pp. 299–305). San Diego: Elsevier.
- Manning, W. G., & Mullahy, J. (2001). Estimating log models: To transform or not to transform?. Journal of Health Economics, 20(4), 461–494. Retrieved from http://www.sciencedirect.com/science/article/pii/S0167629601000868
- Mauskopf, J., Racketa, J., & Sherrill, E. (2010). Alzheimer's disease: The strength of association of costs with different measures of disease severity. The Journal of Nutrition, Health & Aging, 14(8), 655–663. doi:10.1007/s12603-010-0312-6
- OECD. (2013). Health at a glance: 2013. Paris: OECD Indicators.
- O'Shea, E., Cahill, S., & Pierce, M. (2017). Developing and implementing dementia policy in Ireland. Galway: National University of Ireland Galway.
- O'Shea, E., & Monaghan, C. (2017). An economic analysis of a community-based model for dementia care in Ireland: A balance of care approach. International Psychogeriatrics, 29(7), 1175–1184. doi:10.1017/S1041610217000400
- O'Shea, E., & Walsh, K. (2019). Key issues for people with dementia living in rural Ireland: Social exclusion, models of care and policy change. In D. Morgan, A. Innes & J. Framer (Eds.), Rural dementia. London: Policy Press.
- O'Sullivan, M., Brennan, S., Lawlor, B. A., Hannigan, C., Robertson, I. H., & Pertl, M. M. (2019). Cognitive functioning among cognitively intact dementia caregivers compared to matched self-selected and population controls. Aging & Mental Health, 23(5), 566-573. doi:10.1080/13607863.2018.1428937
- Park, R. E. (1966). Estimation with heteroscedastic error terms. Econometrica, 34(4), 888–888. Retrieved from http://www.jstor.org/stable/1910108
- Parsons, G. R. (2006). The travel cost method. In P. A. Champ, K. J. Boyle & T. C. Brown (Eds.), A primer on non-market valuation (pp. 269-329). London: Kluwer Academic Publishing.
- Pertl, M. M., Hannigan, C., Brennan, S., Robertson, I. H., & Lawlor, B. A. (2017). Cognitive reserve and self-efficacy as moderators of the relationship between stress exposure and executive functioning among spousal dementia caregivers. International Psychogeriatrics, 29(4), 615–625. Retrieved from https://www.cambridge.org/core/article/cognitive-reserve-and-selfefficacy-as-moderators-of-the-relationship-between-stress-exposure-and-executive-functioning-among-spousal-dementia-caregivers/DBF837F3D827730411FBAE0554AABCE5 doi:10.1017/S1041610216002337
- Pimouguet, C., Lavaud, T., Dartigues, J. F., & Helmer, C. (2010). Dementia case management effectiveness on health care costs and resource utilization: A systematic review of randomized controlled trials. The Journal of Nutrition, Health & Aging, 14(8), 669–676. doi:10.1007/s12603-010-0314-4
- Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer's & Dementia, 9(1), 63–75. e62. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526012025319 doi:10.1016/j.jalz.2012.11.007
- Rapp, T., Andrieu, S., Chartier, F., Deberdt, W., Reed, C., Belger, M., & Vellas, B. (2018). Resource use and cost of Alzheimer’s disease in France: 18-month results from the GERAS observational study. Value in Health, 21(3), 295–303. Retrieved from http://www.sciencedirect.com/science/article/pii/S1098301517335635 doi:10.1016/j.jval.2017.09.019
- Rattinger, G. B., Schwartz, S., Mullins, C. D., Corcoran, C., Zuckerman, I. H., Sanders, C., … Tschanz, J. T. (2015). Dementia severity and the longitudinal costs of informal care in the Cache County population. Alzheimer's & Dementia, 11(8), 946–954. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526014028921 doi:10.1016/j.jalz.2014.11.004
- Schaller, S., Mauskopf, J., Kriza, C., Wahlster, P., & Kolominsky-Rabas, P. L. (2015). The main cost drivers in dementia: A systematic review. International Journal of Geriatric Psychiatry, 30(2), 111–129. doi:10.1002/gps.4198
- WHO. (2012). Dementia: A public health priority. Geneva: World Health Organization and Alzheimer's Disease international.
- Wimo, A., Guerchet, M., Ali, G.-C., Wu, Y.-T., Prina, M., Winblad, B., … Prince, M. (2017). The worldwide costs of dementia 2015 and comparisons with 2010. Alzheimer's & Dementia, 13(1), 1–7. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526016300437 doi:10.1016/j.jalz.2016.07.150
- Wimo, A., Gustavsson, A., Jönsson, L., Winblad, B., Hsu, M.-A., & Gannon, B. (2013). Application of resource utilization in dementia (RUD) instrument in a global setting. Alzheimer's & Dementia, 9(4), 429–435. e417. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526012023874 doi:10.1016/j.jalz.2012.06.008
- Wimo, A., Wetterholm, A., Mastey, V., & Winblad, B. (1998). Evaluation of the resource utilization and caregiver time in Anti-dementia drug trials - a quantitative battery. In A. Wimo, L. Jönsson, G. Karlsson & B. Winblad (Eds.), Health economics of dementia (pp. 465–499). London: John Wiley & Sons.
- Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. doi:10.1093/geront/20.6.649
- Zhu, C. W., Leibman, C., McLaughlin, T., Scarmeas, N., Albert, M., Brandt, J., … Stern, Y. (2008). The effects of patient function and dependence on costs of care in Alzheimer's disease. Journal of the American Geriatrics Society, 56(8), 1497–1503. doi:10.1111/j.1532-5415.2008.01798.x
- Zhu, C. W., Scarmeas, N., Ornstein, K., Albert, M., Brandt, J., Blacker, D., … Stern, Y. (2015). Health-care use and cost in dementia caregivers: Longitudinal results from the Predictors Caregiver Study. Alzheimer's & Dementia, 11(4), 444–454. Retrieved from http://www.sciencedirect.com/science/article/pii/S1552526014000077 doi:10.1016/j.jalz.2013.12.018