372
Views
4
CrossRef citations to date
0
Altmetric
Ageing, Identity and Stigma

Public stigma towards informal caregiving in Germany: a descriptive study

ORCID Icon, , , , &
Pages 1515-1524 | Received 30 Oct 2019, Accepted 13 Apr 2020, Published online: 29 Apr 2020

References

  • Abojabel, H., & Werner, P. (2019). Exploring family stigma among caregivers of persons with Alzheimer’s disease: The experiences of Israeli-Arab caregivers. Dementia, 18(1), 391–408. doi:10.1177/1471301216673920
  • Allen, A. P., Curran, E. A., Duggan, Á., Cryan, J. F., Chorcoráin, A. N., Dinan, T. G., … Clarke, G. (2017). A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neuroscience & Biobehavioral Reviews, 73, 123–164. doi:10.1016/j.neubiorev.2016.12.006
  • Angermeyer, M. C., & Matschinger, H. (1996). The effect of personal experience with mental illness on the attitude towards individuals suffering from mental disorders. Social Psychiatry and Psychiatric Epidemiology, 31(6), 321–326. doi:10.1007/BF00783420
  • Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003). Courtesy stigma. Social Psychiatry and Psychiatric Epidemiology, 38(10), 593–602. doi:10.1007/s00127-003-0680-x
  • Bogardus, E. S. (1925). Measuring Social Distances. Journal of Applied Sociology, 9, 299–308.
  • Bogardus, E. S. (1933). A Social Distance Scale. Sociology & Social Research, 17, 265–271.
  • Corrigan, P., Markowitz, F. E., Watson, A., Rowan, D., & Kubiak, M. (2003). An Attribution Model of Public Discrimination Towards Persons with Mental Illness. Journal of Health and Social Behavior, 44(2), 162–179. doi:10.2307/1519806
  • Corrigan, P., & Watson, A. C. (2006). The Paradox of Self-Stigma and Mental Illness. Clinical Psychology: Science and Practice, 9(1), 35–53. doi:10.1093/clipsy.9.1.35
  • Ekman, P. (1992). An argument for basic emotions. Cognition and Emotion, 6(3-4), 169–200. doi:10.1080/02699939208411068
  • Ekman, P., & Cordaro, D. (2011). What is Meant by Calling Emotions Basic. Emotion Review, 3(4), 364–370. doi:10.1177/1754073911410740
  • Federal Statistical Office of Germany (2011). Demographischer Wandel in Deutschland - Heft 1: Bevölkerungs- und Haushaltsentwicklung im Bund und in den Ländern [Demographic change in Germany - Issue 1: Development of population and households in the federation and states] Vol. 1.
  • Field, A. (2013). Discovering Statistics Using IBM SPSS Statistics. Newcastle upon Tyne: SAGE.
  • Goffman, E. (1967). Stigma. Über Techniken der Bewältigung beschädigter Identität - Theorie 2 [Stigma. About Techniques of Managing Damaged Identity - Theory 2]. Berlin, Germany: Suhrkamp Verlag.
  • Hajek, A., Lehnert, T., Wegener, A., Riedel-Heller, S. G., & König, H.-H. (2018). Langzeitpflegepräferenzen der Älteren in Deutschland – Ergebnisse einer bevölkerungsrepräsentativen Umfrage. [Long-Term Care Preferences Among Individuals of Advanced Age in Germany: Results of a Population-Based Study]. Das Gesundheitswesen, 80(08/09), 685–692. doi:10.1055/s-0042-124663
  • Heuchert, M., König, H. H., & Lehnert, T. (2017). Die Rolle von Präferenzen für Langzeitpflege in der sozialen Pflegeversicherung - Ergebnisse von Experteninterviews [The role of long-term care preferences in the social nursing insurance - results of expert interviews]. Das Gesundheitswesen, 79(12), 1052–1057. doi:10.1055/s-0041-111839
  • Kahn, P. V., Wishart, H. A., Randolph, J. S., & Santulli, R. B. (2016). Caregiver Stigma and Burden in Memory Disorders: An Evaluation of the Effects of Caregiver Type and Gender. Current Gerontology and Geriatrics Research, 2016, 1–5. doi:10.1155/2016/8316045
  • Katz, I. (1981). Stigma: A social psychological analysis. Hillsdale, NJ: Lawrence Erlbaum.
  • Link, B. G., Cullen, F. T., Frank, J., & Wozniak, J. F. (1987). The Social Rejection of Former Mental Patients: Understanding Why Labels Matter. American Journal of Sociology, 92(6), 1461–1500. doi:10.1086/228672
  • Link, B. G., & Phelan, J. C. (2001). Conceptualizing Stigma. Annual Review of Sociology, 27(1), 363–385. doi:10.1146/annurev.soc.27.1.363
  • Link, B. G., Yang, L. H., Phelan, J. C., & Collins, P. Y. (2004). Measuring Mental Illness Stigma. Schizophrenia Bulletin, 30(3), 511–541. doi:10.1093/oxfordjournals.schbul.a007098
  • Navab, E., Negarandeh, R., Peyrovi, H., & Navab, P. (2013). Stigma among Iranian family caregivers of patients with Alzheimer’s disease: A hermeneutic study. Nursing & Health Sciences, 15(2), 201–206. doi:10.1111/nhs.12017
  • Ouyang, P., Sun, W., & Wang, C. (2019). Well-being loss in informal care for the elderly people: Empirical study from China national baseline CHARLS. Asia-Pacific Psychiatry, 11(2), e12336. doi:10.1111/appy.12336
  • Phelan, S. M., Bangerter, L. R., Friedemann-Sanchez, G., Lackore, K. A., Morris, M. A., Van Houtven, C. H., … Griffin, J. M. (2018). The Impact of Stigma on Community Reintegration of Veterans With Traumatic Brain Injury and the Well-Being of Their Caregivers. Archives of Physical Medicine and Rehabilitation, 99(11), 2222–2229. doi:10.1016/j.apmr.2018.04.007
  • Phelan, S. M., Griffin, J. M., Hellerstedt, W. L., Sayer, N. A., Jensen, A. C., Burgess, D. J., & van Ryn, M. (2011). Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury. Disability and Health Journal, 4(3), 177–184. doi:10.1016/j.dhjo.2011.03.003
  • Russell, R. (2001). In sickness and in health: A qualitative study of elderly men who care for wives with dementia. Journal of Aging Studies, 15(4), 351–367. doi:10.1016/S0890-4065(01)00028-7
  • Russell, R. (2007). Men doing “women’s work:” elderly men caregivers and the gendered construction of care work. The Journal of Men's Studies, 15(1), 1–18. doi:10.3149/jms.1501.1
  • Schnyder, N., Panczak, R., Groth, N., & Schultze-Lutter, F. (2017). Association between mental health-related stigma and active help-seeking: Systematic review and meta-analysis. British Journal of Psychiatry, 210(4), 261–268. doi:10.1192/bjp.bp.116.189464
  • Sowislo, J. F., Lange, C., Euler, S., Hachtel, H., Walter, M., Borgwardt, S., … Huber, C. G. (2017). Stigmatization of psychiatric symptoms and psychiatric service use: A vignette-based representative population survey. European Archives of Psychiatry and Clinical Neuroscience, 267(4), 351–357. doi:10.1007/s00406-016-0729-y
  • Taddicken, M. (2009). Methodeneffekte von Web-Befragungen: Soziale Erwünschtheit vs. Soziale Entkontextualisierung [Method Effects of Web Surveys: Social Desirability vs. Social Decontextualization]. In Österreichische Zeitschrift für Soziologie - Sonderheft 9/2009, 9. Berlin, Germany: Springer
  • Weaver, C. N. (2008). Social Distance as a Measure of Prejudice Among Ethnic Groups in the United States. Journal of Applied Social Psychology, 38(3), 779–795. doi:10.1111/j.1559-1816.2007.00326.x
  • Weisman de Mamani, A., Weintraub, M. J., Maura, J., Martinez de Andino, A., & Brown, C. A. (2018). Stigma, expressed emotion, and quality of life in caregivers of individuals with dementia. Family Process, 57(3), 694–706. doi:10.1111/famp.12325
  • Werner, P., & Heinik, J. (2008). Stigma by association and Alzheimer’s disease. Aging & Mental Health, 12(1), 92–99. doi:10.1080/13607860701616325
  • Werner, P., Mittelman, M. S., Goldstein, D., & Heinik, J. (2012). Family stigma and caregiver burden in Alzheimer’s disease. The Gerontologist, 52(1), 89–97. doi:10.1093/geront/gnr117
  • Zwar, L., König, H. H., & Hajek, A. (2019). Life satisfaction of informal care recipients: Findings from the German Ageing Survey. British Journal of Health Psychology, 24(4), 859–875. doi:10.1111/bjhp.12383
  • Zwar, L., König, H., & Hajek, A. (2018). Consequences of different types of informal caregiving for mental, self-rated, and physical health: Longitudinal findings from the German Ageing Survey. Quality of Life Research, 27(10), 2667–2679. doi:10.1007/s11136-018-1926-0

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.