Markers of dementia-related health in primary care electronic health records

References

• Alzheimer’s Association. (2015). 2015 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia: The Journal  of the Alzheimer’s Association, 11(3), 332–384.doi: 10.1016/j.jalz.2015.02.003
   PubMed Web of Science ®Google Scholar
• Baker, N. L., Cook, M. N., Arrighi, H. M., & Bullock, R. (2011). Hip fracture risk and subsequent mortality among Alzheimer's disease patients in the United Kingdom, 1988-2007. Age and Ageing, 40(1), 49–54. doi:10.1093/ageing/afq146
   PubMed Web of Science ®Google Scholar
• Brown, A., Kirichek, O., Balkwill, A., Reeves, G., Beral, V., Sudlow, C., … Green, J. (2016). Comparison of dementia recorded in routinely collected hospital admission data in England with dementia recorded in primary care. Emerging Themes in Epidemiology, 13(1), 11. doi:10.1186/s12982-016-0053-z
   PubMedGoogle Scholar
• Browne, J., Edwards, D. A., Rhodes, K. M., Brimicombe, D. J., & Payne, R. A. (2017). Association of comorbidity and health service usage among patients with dementia in the UK: A population-based study. BMJ Open, 7(3), e012546. doi:10.1136/bmjopen-2016-012546
   PubMed Web of Science ®Google Scholar
• Burns, A. (2012). The benefits of early diagnosis of dementia. BMJ (Clinical Research ed.), 344, e3556. doi:10.1136/bmj.e3556
   PubMedGoogle Scholar
• Burton, C., Campbell, P., Jordan, K., Strauss, V., & Mallen, C. (2013). The association of anxiety and depression with future dementia diagnosis: A case-control study in primary care. Family Practice, 30(1), 25–30. doi:10.1093/fampra/cms044
   PubMed Web of Science ®Google Scholar
• Cahill, S. (2020). WHO’s global action plan on the public health response to dementia: Some challenges and opportunities. Aging & Mental Health, 24(2), 197–193. doi:10.1080/13607863.2018.1544213
   PubMed Web of Science ®Google Scholar
• Christensen, M. D., & White, H. K. (2006). Dementia assessment and management. Journal of the American Medical Directors Association, 7(2), 109–118. doi:10.1016/j.jamda.2005.09.009
   PubMed Web of Science ®Google Scholar
• Clegg, A., Bates, C., Young, J., Ryan, R., Nichols, L., Ann Teale, E., … Marshall, T. (2016). Development and validation of an electronic frailty index using routine primary care electronic health record data. Age and Ageing, 45(3), 353–360. doi:10.1093/ageing/afw039
   PubMed Web of Science ®Google Scholar
• Connors, M. H., Ames, D., Boundy, K., Clarnette, R., Kurrle, S., Mander, A., … Brodaty, H. (2016). Predictors of mortality in dementia: The PRIME study. Journal of Alzheimer's Disease, 52(3), 967–974. doi:10.3233/JAD-150946
   PubMed Web of Science ®Google Scholar
• Cook, M., Baker, N., Lanes, S., Bullock, R., Wentworth, C., & Arrighi, H. M. (2015). Incidence of stroke and seizure in Alzheimer’s disease dementia. Age and Ageing, 44(4), 695–699. doi:10.1093/ageing/afv061
   PubMed Web of Science ®Google Scholar
• Cooper, C., Lodwick, R., Walters, K., Raine, R., Manthorpe, J., Iliffe, S., & Petersen, I. (2016). Observational cohort study: Deprivation and access to anti-dementia drugs in the UK. Age and Ageing, 45(1), 148–154. doi:10.1093/ageing/afv154
   PubMed Web of Science ®Google Scholar
• Davies, N. M., Kehoe, P. G., Ben-Shlomo, Y., & Martin, R. M. (2011). Associations of anti-hypertensive treatments with Alzheimer’s disease, vascular dementia, and other dementias. Journal of Alzheimer's Disease, 26(4), 699–708. doi:10.3233/JAD-2011-110347
   PubMed Web of Science ®Google Scholar
• Dell’Agnello, G., Desai, U., Kirson, N. Y., Wen, J., Meiselbach, M. K., Reed, C. C., … Rasmussen, J. (2018). Reliability of coded data to identify earliest indications of cognitive decline, cognitive evaluation and Alzheimer's disease diagnosis: A pilot study in England. BMJ Open, 8(3), e019684. doi:10.1136/bmjopen-2017-019684
   PubMed Web of Science ®Google Scholar
• Dennis, M., Shine, L., John, A., Marchant, A., McGregor, J., Lyons, R. A., & Brophy, S. (2017). Risk of adverse outcomes for older people with dementia prescribed antipsychotic medication: A population based e-cohort Study. Neurology and Therapy, 6(1), 57–77. doi:10.1007/s40120-016-0060-6
   PubMed Web of Science ®Google Scholar
• Department of Health. (2009). Living well with dementia: A national dementia strategy. Department of Health, London.
   Google Scholar
• Department of Health. (2012). Prime Minister’s challenge on dementia: Delivering major improvements in dementia care and research by 2015. Department of Health, London, UK.
   Google Scholar
• Dodd, E., Cheston, R., & Ivanecka, A. (2015). The assessment of dementia in primary care. Journal of Psychiatric and Mental Health Nursing, 22(9), 731–737. doi:10.1111/jpm.12250
   PubMed Web of Science ®Google Scholar
• Dunn, N., Mullee, M., Perry, V. H., & Holmes, C. (2005). Association between dementia and infectious disease: Evidence from a case-control study. Alzheimer Disease & Associated Disorders, 19(2), 91–94. doi:10.1097/01.wad.0000165511.52746.1f
   PubMed Web of Science ®Google Scholar
• Eichler, T., Thyrian, J. R., Hertel, J., Köhler, L., Wucherer, D., Dreier, A., … Hoffmann, W. (2014). Rates of formal diagnosis in people screened positive for dementia in primary care: Results of the DelpHi-Trial. Journal of Alzheimer's Disease, 42(2), 451–458. doi:10.3233/JAD-140354
   PubMed Web of Science ®Google Scholar
• Eichler, T., Thyrian, J. R., Hertel, J., Michalowsky, B., Wucherer, D., Dreier, A., … Hoffmann, W. (2015). Rates of formal diagnosis of dementia in primary care: The effect of screening. Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring, 1(1), 87–93. doi:10.1016/j.dadm.2014.11.007
   PubMedGoogle Scholar
• Garcia-Ptacek, S., Farahmand, B., Kåreholt, I., Religa, D., Cuadrado, M. L., & Eriksdotter, M. (2014). Mortality risk after dementia diagnosis by dementia type and underlying factors: A cohort of 15,209 patients based on the Swedish Dementia Registry. Journal of Alzheimer's Disease, 41(2), 467–477. doi:10.3233/JAD-131856
   PubMed Web of Science ®Google Scholar
• Grant, R. L., Drennan, V. M., Rait, G., Petersen, I., & Iliffe, S. (2013). First diagnosis and management of incontinence in older people with and without dementia in primary care: A cohort study using The Health Improvement Network primary care database. PLoS Medicine, 10(8), e1001505doi:10.1371/journal.pmed.1001505
   PubMed Web of Science ®Google Scholar
• Greaves, I., Greaves, N., Walker, E., Greening, L., Benbow, S. M., & Jolley, D. (2015). Gnosall primary care memory clinic: Eldercare facilitator role description and development. Dementia (London, England)), 14(4), 389–408. doi:10.1177/1471301213497737
   PubMedGoogle Scholar
• Guthrie, B., Clark, S. A., & McCowan, C. (2010). The burden of psychotropic drug prescribing in people with dementia: A population database study. Age and Ageing, 39(5), 637–642. doi:10.1093/ageing/afq090
   PubMed Web of Science ®Google Scholar
• ICHOM. The ICHOM Standard Set for Dementia version 1.0 (2016). The International Consortium for Health Outcomes Measurement. London, UK.
   Google Scholar
• Imfeld, P., Bodmer, M., Schuerch, M., Jick, S. S., & Meier, C. R. (2013). Risk of incident stroke in patients with Alzheimer disease or vascular dementia. Neurology, 81(10), 910–919. doi:10.1212/WNL.0b013e3182a35151
   PubMed Web of Science ®Google Scholar
• Jordan, K., Clarke, A. M., Symmons, D. P., Fleming, D., Porcheret, M., Kadam, U. T., & Croft, P. (2007). Measuring disease prevalence: A comparison of musculoskeletal disease using four general practice consultation databases. The British Journal of General Practice: The Journal of the Royal College of General Practitioners, 57(534), 7–14.
   PubMed Web of Science ®Google Scholar
• Jordan, K. P., Jöud, A., Bergknut, C., Croft, P., Edwards, J. J., Peat, G., … Englund, M. (2014). International comparisons of the prevalence of health care for musculoskeletal disorders using population-based health care data from England and Sweden. Annals of the Rheumatic Diseases, 73(1), 212–218. doi:10.1136/annrheumdis-2012-202634
   PubMed Web of Science ®Google Scholar
• Kulmala, J., Nykänen, I., Mänty, M., & Hartikainen, S. (2014). Association between frailty and dementia: A population-based study. Gerontology, 60(1), 16–21. doi:10.1159/000353859
   PubMed Web of Science ®Google Scholar
• Lang, L., Clifford, A., Wei, L., Zhang, D., Leung, D., Augustine, G., … Chen, R. (2017). Prevalence and determinants of undetected dementia in the community: A systematic literature review and a meta-analysis. BMJ Open, 7(2), e011146. doi:10.1136/bmjopen-2016-011146
   PubMed Web of Science ®Google Scholar
• Lewis, G., Werbeloff, N., Hayes, J. F., Howard, R., & Osborn, D. P. (2018). Diagnosed depression and sociodemographic factors as predictors of mortality in patients with dementia. The British Journal of Psychiatry : The Journal of Mental Science, 213(2), 471–476. doi:10.1192/bjp.2018.86
   PubMed Web of Science ®Google Scholar
• Matthews, F. E., Stephan, B. C. M., Robinson, L., Jagger, C., Barnes, L. E., Arthur, A., & Brayne, C. (2016). A two decade dementia incidence comparison from the Cognitive Function and Ageing Studies I and II. Nature Communications, 7, 11398. doi:10.1038/ncomms11398
   PubMed Web of Science ®Google Scholar
• Olivier, J., & Bell, M. L. (2013). Effect sizes for 2 × 2 contingency tables. PLoS One, 8(3), e58777. doi:10.1371/journal.pone.0058777
   PubMed Web of Science ®Google Scholar
• Parmar, J., Dobbs, B., McKay, R., Kirwan, C., Cooper, T., Marin, A., & Gupta, N. (2014). Diagnosis and management of dementia in primary care: Exploratory study. Canadian Family Physician Medecin de Famille Canadien, 60(5), 457–465.
   PubMed Web of Science ®Google Scholar
• Pham, T. M., Petersen, I., Walters, K., Raine, R., Manthorpe, J., Mukadam, N., & Cooper, C. (2018). Trends in dementia diagnosis rates in UK ethnic groups: Analysis of UK primary care data. Clinical Epidemiology, 10, 949–960. doi:10.2147/CLEP.S152647
   PubMed Web of Science ®Google Scholar
• Pickett, J., Bird, C., Ballard, C., Banerjee, S., Brayne, C., Cowan, K., … Walton, C. (2018). A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025. International Journal of Geriatric Psychiatry, 33(7), 900–906. doi:10.1002/gps.4868
   PubMed Web of Science ®Google Scholar
• Pink, J., O’Brien, J., Robinson, L., & Longson, D. (2018). Dementia: Assessment, management and support: Summary of updated NICE guidance. BMJ (Clinical Research ed.), 361, k2438. doi:10.1136/bmj.k2438
   PubMedGoogle Scholar
• Poblador-Plou, B., Calderón-Larrañaga, A., Marta-Moreno, J., Hancco-Saavedra, J., Sicras-Mainar, A., Soljak, M., & Prados-Torres, A. (2014). Comorbidity of dementia: A cross-sectional study of primary care older patients. BMC Psychiatry, 14(1), 84. doi:10.1186/1471-244X-14-84
   PubMed Web of Science ®Google Scholar
• Porcheret, M., Hughes, R., Evans, D., Jordan, K., Whitehurst, T., Ogden, H., & Croft, P. (2004). Data quality of general practice electronic health records: The impact of a program of assessments, feedback, and training. Journal of the American Medical Informatics Association, 11(1), 78–86. doi:10.1197/jamia.M1362
   PubMed Web of Science ®Google Scholar
• Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer's & Dementia, 9(1), 63–75. doi:10.1016/j.jalz.2012.11.007
   PubMed Web of Science ®Google Scholar
• Pujades-Rodriguez, M., Assi, V., Gonzalez-Izquierdo, A., Wilkinson, T., Schnier, C., Sudlow, C., … Whiteley, W. N. (2018). The diagnosis, burden and prognosis of dementia: A record-linkage cohort study in England. PLoS One, 13(6), e0199026. doi:10.1371/journal.pone.0199026
   PubMed Web of Science ®Google Scholar
• Rait, G., Walters, K., Bottomley, C., Petersen, I., Iliffe, S., & Nazareth, I. (2010). Survival of people with clinical diagnosis of dementia in primary care: Cohort study. BMJ (Clinical Research ed.), 341, c3584. doi:10.1136/bmj.c3584
   PubMedGoogle Scholar
• Springate, D. A., Kontopantelis, E., Ashcroft, D. M., Olier, I., Parisi, R., Chamapiwa, E., & Reeves, D. (2014). ClinicalCodes: An online clinical codes repository to improve the validity and reproducibility of research using electronic medical records. PLoS One, 9(6), e99825. doi:10.1371/journal.pone.0099825
   PubMed Web of Science ®Google Scholar
• Thyrian, J. R., Eichler, T., Pooch, A., Albuerne, K., Dreier, A., Michalowsky, B., … Hoffmann, W. (2016). Systematic, early identification of dementia and dementia care management are highly appreciated by general physicians in primary care - results within a cluster-randomized-controlled trial (DelpHi). Journal of Multidisciplinary Healthcare, 9, 183–190. doi:10.2147/JMDH.S96055
   PubMed Web of Science ®Google Scholar
• Walters, K., Hardoon, S., Petersen, I., Iliffe, S., Omar, R. Z., Nazareth, I., & Rait, G. (2016). Predicting dementia risk in primary care: Development and validation of the dementia risk score using routinely collected data. BMC Medicine, 14(1), 6. doi:10.1186/s12916-016-0549-y
   PubMedGoogle Scholar
• World Health Organization. (2017). Global action plan on the public health response to dementia 2017–2025. World Health Organization, Geneva, Switzerland.
   Google Scholar