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Dementia

Barriers in access to dementia care in minority ethnic groups in Denmark: a qualitative study

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Pages 1424-1432 | Received 19 Feb 2020, Accepted 22 Jun 2020, Published online: 03 Jul 2020

References

  • All Party Parliamentary Group (APPG) on Dementia. (2013). Dementia does not discriminate. The experience of black, Asian and minority ethnic communities. London: Alzheimer’s Society.
  • Alzheimer’s Disease International (ADI). (2015). World Alzheimer Report 2015: The Global Impact of Dementia. An analysis of prevalence, incidence, cost and trends. London: Alzheimer’s Disease International.
  • Berdai Chaouni, S., & De Donder, L. (2018). Invisible realities: Caring for older Moroccan migrants with dementia in Belgium. Dementia (London, England), 18(7–8), 3113–3129. doi:10.1177/1471301218768923
  • Boughtwood, D., Shanley, C., Adams, J., Santalucia, Y., Kyriazopoulos, H., Pond, D., & Rowland, J. (2011). Culturally and linguistically diverse (CALD) families dealing with dementia: An examination of the experiences and perceptions of multicultural community link workers. Journal of Cross-Cultural Gerontology, 26(4), 365–377. doi:10.1007/s10823-011-9155-9
  • Cooper, C., Tandy, A. R., Balamurali, T. B., & Livingston, G. (2010). A systematic review and meta-analysis of ethnic differences in use of dementia treatment, care, and research. The American Journal of Geriatric Psychiatry, 18(3), 193–203. doi:10.1097/JGP.0b013e3181bf9caf
  • Daker-White, G., Beattie, A. M., Gilliard, J., & Means, R. (2002). Minority ethnic groups in dementia care: A review of service needs, service provision and models of good practice. Aging & Mental Health, 6(2), 101–108. doi:10.1080/13607860220126835
  • Diaz, E., Kumar, B. N., & Engedal, K. (2015). Immigrant patients with dementia and memory impairment in primary health care in Norway: A national registry study. Dementia and Geriatric Cognitive Disorders, 39(5-6), 321–331. doi:10.1159/000375526
  • European Commission. (2013). Ethics for researchers. Facilitating Research Excellence in FP7. Luxembourg: European Commission
  • Kenning, C., Daker-White, G., Blakemore, A., Panagioti, M., & Waheed, W. (2017). Barriers and facilitators in accessing dementia care by ethnic minority groups: A meta-synthesis of qualitative studies. BMC Psychiatry, 17(1), 316. doi:10.1186/s12888-017-1474-0
  • Knapp, M., Comas-Herrera, A., Somani, A., & Bannerjee, S. (2007). Dementia: International comparisons. Summary report for the National Audit Office. London: Personal Social Services Research.
  • Kvale, S. (1983). The qualitative research interview: A phenomenological and a hermeneutical mode of understanding. Journal of Phenomenological Psychology, 14(1–2), 171–196. doi:10.1163/156916283X00090
  • Lambert, S. D., & Loiselle, C. G. (2008). Combining individual interviews and focus groups to enhance data richness. Journal of Advanced Nursing, 62(2), 228–237. doi:10.1111/j.1365-2648.2007.04559.x
  • Lawrence, V., Samsi, K., Banerjee, S., Morgan, C., & Murray, J. (2011). Threat to valued elements of life: The experience of dementia across three ethnic groups. The Gerontologist, 51(1), 39–50. doi:10.1093/geront/gnq073
  • Levesque, J. F., Harris, M. F., & Russell, G. (2013). Patient-centred access to health care: Conceptualising access at the interface of health systems and populations. International Journal for Equity in Health, 12, 18. doi:10.1186/1475-9276-12-18
  • Mukadam, N., Cooper, C., & Livingston, G. (2011). A systematic review of ethnicity and pathways to care in dementia. International Journal of Geriatric Psychiatry, 26(1), 12–20. doi:10.1002/gps.2484
  • Mukadam, N., Waugh, A., Cooper, C., & Livingston, G. (2015). What would encourage help-seeking for memory problems among UK-based South Asians? A qualitative study. BMJ Open, 5(9), e007990. doi:10.1136/bmjopen-2015-007990
  • Nielsen, T. R., Antelius, E., Spilker, R. S., Torkpoor, R., Toresson, H., Lindholm, C., & Plejert, C. (2015). Dementia care for people from ethnic minorities: A Nordic perspective. International Journal of Geriatric Psychiatry, 30(2), 217–218. doi:10.1002/gps.4206
  • Nielsen, T. R., Nielsen, D. S., & Waldemar, G. (2019). Barriers to post-diagnostic care and support in minority ethnic communities: A survey of Danish primary care dementia coordinators. Dementia. doi:10.1177/1471301219853945
  • Nielsen, T. R., Vogel, A., Phung, T. K., Gade, A., & Waldemar, G. (2011). Over- and under-diagnosis of dementia in ethnic minorities: A nationwide register-based study. International Journal of Geriatric Psychiatry, 26(11), 1128–1135. doi:10.1002/gps.2650
  • Nielsen, T. R., & Waldemar, G. (2016). Knowledge and perceptions of dementia and Alzheimer's disease in four ethnic groups in Copenhagen, Denmark. International Journal of Geriatric Psychiatry, 31(3), 222–230. doi:10.1002/gps.4314
  • Nielsen, T. R., Waldemar, G., & Nielsen, D. S. (2020). Rotational care practices in minority ethnic families managing dementia: A qualitative study. Dementia. doi:10.1177/1471301220914751
  • Naess, A., & Moen, B. (2015). Dementia and migration: Pakistani immigrants in the Norwegian welfare state. Ageing & Society, 35, 26.
  • Parveen, S., Peltier, C., & Oyebode, J. R. (2017). Perceptions of dementia and use of services in minority ethnic communities: A scoping exercise. Health & Social Care in the Community, 25(2), 734–742. doi:10.1111/hsc.12363
  • Sagbakken, M., Spilker, R. S., & Ingebretsen, R. (2018). Dementia and migration: Family care patterns merging with public care services. Qualitative Health Research, 28(1), 16–29. doi:10.1177/1049732317730818
  • Sagbakken, M., Spilker, R. S., & Nielsen, T. R. (2018). Dementia and immigrant groups: A qualitative study of challenges related to identifying, assessing, and diagnosing dementia. BMC Health Services Research, 18(1), 910. doi:10.1186/s12913-018-3720-7
  • Stephan, A., Bieber, A., Hopper, L., Joyce, R., Irving, K., Zanetti, O., … Actifcare Consortium. (2018). Barriers and facilitators to the access to and use of formal dementia care: Findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries. BMC Geriatrics, 18(1), 131. doi:10.1186/s12877-018-0816-1
  • Stevnsborg, L., Jensen-Dahm, C., Nielsen, T. R., Gasse, C., & Waldemar, G. (2016). Inequalities in access to treatment and care for patients with dementia and immigrant background: A Danish nationwide study. Journal of Alzheimer's Disease, 54(2), 505–514. doi:10.3233/JAD-160124
  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. doi:10.1093/intqhc/mzm042
  • van Wezel, N., Francke, A. L., Kayan-Acun, E., Ljm Deville, W., van Grondelle, N. J., & Blom, M. M. (2016). Family care for immigrants with dementia: The perspectives of female family carers living in The Netherlands. Dementia (London, England), 15(1), 69–84. doi:10.1177/1471301213517703
  • Vissenberg, R., Uysal, O., Goudsmit, M., van Campen, J., & Buurman-van Es, B. (2018). Barriers in providing primary care for immigrant patients with dementia: GPs' perspectives. BJGP Open, 2(4). doi:10.3399/bjgpopen18X101610