In-home dementia caregiving is associated with greater psychological burden and poorer mental health than out-of-home caregiving: a cross-sectional study

References

• Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052–1060. doi:https://doi.org/10.1001/jama.2014.304
   PubMed Web of Science ®Google Scholar
• Bachner, Y. G., & O’Rourke, N. (2007). Reliability generalization of responses by care providers to the Zarit Burden Interview. Aging & Mental Health, 11(6), 678–685. doi:https://doi.org/10.1080/13607860701529965
   PubMed Web of Science ®Google Scholar
• Balardy, L., Voisin, T., Cantet, C., & Vellas, B. (2005). Predictive factors of emergency hospitalisation in Alzheimer’s patients: Results of one-year follow-up in the REAL. FR Cohort. The Journal of Nutrition, Health & Aging, 9(2), 112–116. https://europepmc.org/article/med/15791355
   PubMed Web of Science ®Google Scholar
• Banerjee, S., Murray, J., Foley, B., Atkins, L., Schneider, J., & Mann, A. (2003). Predictors of institutionalisation in people with dementia. Journal of Neurology, Neurosurgery, and Psychiatry, 74(9), 1315–1316. doi:https://doi.org/10.1136/jnnp.74.9.1315
   PubMed Web of Science ®Google Scholar
• Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228. doi:https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty
   PubMedGoogle Scholar
• Conde-Sala, J. L., Garre-Olmo, J., Turró-Garriga, O., Vilalta-Franch, J., & López-Pousa, S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative design. International Journal of Nursing Studies, 47(10), 1262–1273. doi:https://doi.org/10.1016/j.ijnurstu.2010.03.001
   PubMed Web of Science ®Google Scholar
• Cooke, D., McNally, L., Mulligan, K., Harrison, M., & Newman, S. P. (2001). Psychosocial interventions for caregivers of people with dementia: A systematic review. Aging & Mental Health, 5(2), 120–135. doi:https://doi.org/10.1080/713650019.
   PubMed Web of Science ®Google Scholar
• Cooper, C., Balamurali, T., & Livingston, G. (2007). A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. International Psychogeriatrics, 19(02), 175–195. doi:https://doi.org/10.1017/S1041610206004297
   PubMed Web of Science ®Google Scholar
• Costa, N., Ferlicoq, L., Derumeaux-Burel, H., Rapp, T., Garnault, V., Gillette-Guyonnet, S., … Grand, A. (2012). Comparison of informal care time and costs in different age-related dementias: A review. BioMed Research International, 2013, 852368. doi:https://doi.org/10.1155/2013/852368
   PubMed Web of Science ®Google Scholar
• Cuijpers, P. (2005). Depressive disorders in caregivers of dementia patients: A systematic review. Aging & Mental Health, 9(4), 325–330. doi:https://doi.org/10.1080/13607860500090078
   PubMed Web of Science ®Google Scholar
• Cumming, G. (2014). The new statistics: Why and how. Psychological Science, 25(1), 7–29. doi:https://doi.org/10.1177/0956797613504966
   PubMed Web of Science ®Google Scholar
• Donders, A. R. T., Van Der Heijden, G. J., Stijnen, T., & Moons, K. G. (2006). Review: A gentle introduction to imputation of missing values. Journal of Clinical Epidemiology, 59(10), 1087–1091. doi:https://doi.org/10.1016/j.jclinepi.2006.01.014
   PubMed Web of Science ®Google Scholar
• Dorenlot, P., Harboun, M., Bige, V., Henrard, J. C., & Ankri, J. (2005). Major depression as a risk factor for early institutionalization of dementia patients living in the community. International Journal of Geriatric Psychiatry, 20(5), 471–478. doi:https://doi.org/10.1002/gps.1238
   PubMed Web of Science ®Google Scholar
• Egilstrod, B., Ravn, M. B., & Petersen, K. S. (2019). Living with a partner with dementia: A systematic review and thematic synthesis of spouses’ lived experiences of changes in their everyday lives. Aging & Mental Health, 23(5), 541–550. doi:https://doi.org/10.1080/13607863.2018.1433634
   PubMed Web of Science ®Google Scholar
• Eid, R. S., Gobinath, A. R., & Galea, L. A. (2019). Sex differences in depression: Insights from clinical and preclinical studies. Progress in Neurobiology, 176, 86–102. doi:https://doi.org/10.1016/j.pneurobio.2019.01.006
   PubMed Web of Science ®Google Scholar
• Gaugler, J. E., Yu, F., Krichbaum, K., & Wyman, J. F. (2009). Predictors of nursing home admission for persons with dementia. Medical Care, 47, 191–198.  doi:https://doi.org/10.1097/MLR.0b013e31818457ce
   PubMed Web of Science ®Google Scholar
• Gilhooly, K. J., Gilhooly, M. L. M., Sullivan, M. P., McIntyre, A., Wilson, L., Harding, E., … Crutch, S. (2016). A meta-review of stress, coping and interventions in dementia and dementia caregiving. BMC Geriatrics, 16(1), 106. doi:https://doi.org/10.1186/s12877-016-0280-8
   PubMed Web of Science ®Google Scholar
• Girgus, J. S., Yang, K., & Ferri, C. V. (2017). The gender difference in depression: Are elderly women at greater risk for depression than elderly men? Geriatrics, 2(4), 35. doi:https://doi.org/10.3390/geriatrics2040035
   PubMed Web of Science ®Google Scholar
• Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68(4), 846–855. doi:https://doi.org/10.1111/j.1365-2648.2011.05787.x
   PubMed Web of Science ®Google Scholar
• Leroi, I., Woolham, J., Gathercole, R., Howard, R., Dunk, B., Fox, C., … Ritchie, C. (2013). Does telecare prolong community living in dementia? A study protocol for a pragmatic, randomised controlled trial. Trials, 14(1), 349. doi:https://doi.org/10.1186/1745-6215-14-349
   PubMed Web of Science ®Google Scholar
• Loh, A. Z., Tan, J. S., Zhang, M. W., & Ho, R. C. (2017). The global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. Journal of the American Medical Directors Association, 18(2), 111–116. doi:https://doi.org/10.1016/j.jamda.2016.08.014
   PubMed Web of Science ®Google Scholar
• Luppa, M., Luck, T., Weyerer, S., König, H. H., Brähler, E., & Riedel-Heller, S. G. (2010). Prediction of institutionalization in the elderly. A systematic review. Age Ageing, 39(1), 31–38. doi:https://doi.org/10.1093/ageing/afp202
   PubMed Web of Science ®Google Scholar
• Mahler, M., Sarvimäki, A., Clancy, A., Stenbock-Hult, B., Simonsen, N., Liveng, A., … Hörder, H. (2014). Home as a health promotion setting for older adults. Scandinavian Journal of Public Health, 42(15), 36–40. doi:https://doi.org/10.1177/1403494814556648
   PubMedGoogle Scholar
• Nichols, E., Szoeke, C. E. I., Vollset, S. E., Abbasi, N., Abd-Allah, F., Abdela, J., … Murray, C. J. L. (2019). Global, regional, and national burden of Alzheimer’s disease and other dementias, 1990–2016: A systematic analysis for the Global burden of disease study 2016. The Lancet Neurology, 18(1), 88–106. doi:https://doi.org/10.1016/S1474-4422(18)30403-4
   PubMed Web of Science ®Google Scholar
• Prince, M., Bryce, R., Albanese, E., Wimo, A., Ribeiro, W., & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer’s & Dementia, 9(1), 63–75.e62. doi:https://doi.org/10.1016/j.jalz.2012.11.007
   PubMed Web of Science ®Google Scholar
• Raccichini, A., Castellani, S., Civerchia, P., Fioravanti, P., & Scarpino, O. (2009). The caregiver’s burden of Alzheimer patients: Differences between live-in and non-live-in. American Journal of Alzheimer’s Disease & Other Dementiasr, 24(5), 377–383. doi:https://doi.org/10.1177/1533317509340025
   PubMed Web of Science ®Google Scholar
• Reed, C., Belger, M., Dell’agnello, G., Wimo, A., Argimon, J. M., Bruno, G., … Vellas, B. (2014). Caregiver burden in Alzheimer's disease: Differential associations in adult-child and spousal caregivers in the GERAS observational study. Dementia and Geriatric Cognitive Disorders Extra, 4(1), 51–64. doi:https://doi.org/10.1159/000358234
   PubMedGoogle Scholar
• Richardson, T. J., Lee, S. J., Berg-Weger, M., & Grossberg, G. T. (2013). Caregiver health: Health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(7), 367. doi:https://doi.org/10.1007/s11920-013-0367-2
   PubMed Web of Science ®Google Scholar
• Rivera, J., Bermejo, F., Franco, M., Morales‐González, J. M., & Benito‐León, J. (2009). Understanding care of people with dementia in Spain: Cohabitation arrangements, rotation and rejection to long term care institution. International Journal of Geriatric Psychiatry, 24(2), 142–148. doi:https://doi.org/10.1002/gps.2081
   PubMed Web of Science ®Google Scholar
• Sallim, A. B., Sayampanathan, A. A., Cuttilan, A., & Ho, R. C.M. (2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034–1041. doi:https://doi.org/10.1016/j.jamda.2015.09.007
   PubMed Web of Science ®Google Scholar
• Schafer, J. L. (1997). Analysis of incomplete multivariate data. Boca Raton, FL: Chapman and Hall/CRC.
   Google Scholar
• Stall, N. M., Kim, S. J., Hardacre, K. A., Shah, P. S., Straus, S. E., Bronskill, S. E., … Rochon, P. A. (2019). Association of informal caregiver distress with health outcomes of community-dwelling dementia care recipients: A systematic review. Journal of the American Geriatrics Society, 67(3), 609–617. doi:https://doi.org/10.1111/jgs.15690
   PubMed Web of Science ®Google Scholar
• Tay, K. C. P., Seow, C. C. D., Xiao, C., Lee, H. M. J., Chiu, H. F., & Chan, S. W. C. (2016). Structured interviews examining the burden, coping, self-efficacy, and quality of life among family caregivers of persons with dementia in Singapore. Dementia (London, England), 15(2), 204–220. doi:https://doi.org/10.1177/1471301214522047
   PubMedGoogle Scholar
• Toutenburg, H. (1990). Multiple imputation. In D. B. Rubin (Ed.), Multiple imputation for nonresponse in surveys (pp. 15-17). Berlin, Germany: Springer.
   Google Scholar
• van der Lee, J., Bakker, T. J., Duivenvoorden, H. J., & Dröes, R. M. (2014). Multivariate models of subjective caregiver burden in dementia: A systematic review. Ageing Research Reviews, 15, 76–93. doi:https://doi.org/10.1016/j.arr.2014.03.003
   PubMed Web of Science ®Google Scholar
• Vandepitte, S., Van den Noortgate, N., Putman, K., Verhaeghe, S., Faes, K., & Annemans, L. (2016). Effectiveness of supporting informal caregivers of people with dementia: A systematic review of randomized and non-randomized controlled trials. Journal of Alzheimer’s Disease, 52(3), 929–965. doi:https://doi.org/10.3233/JAD-151011
   PubMed Web of Science ®Google Scholar
• Vandepitte, S., Van Den Noortgate, N., Putman, K., Verhaeghe, S., Verdonck, C., & Annemans, L. (2016). Effectiveness of respite care in supporting informal caregivers of persons with dementia: A systematic review. International Journal of Geriatric Psychiatry, 31(12), 1277–1288. doi:https://doi.org/10.1002/gps.4504
   PubMed Web of Science ®Google Scholar
• Viñas‐Diez, V., Turró‐Garriga, O., Portellano‐Ortiz, C., Gascón‐Bayarri, J., Reñé‐Ramírez, R., Garre‐Olmo, J., & Conde‐Sala, J. L. (2017). Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer’s disease: A 24‐month longitudinal study. International Journal of Geriatric Psychiatry, 32(12), e72–e82. doi:https://doi.org/10.1002/gps.4656
   PubMed Web of Science ®Google Scholar
• Vinters, H. V. (2015). Emerging concepts in Alzheimer’s disease. Annual Review of Pathology, 10, 291–319. doi:https://doi.org/10.1146/annurev-pathol-020712-163927
   PubMed Web of Science ®Google Scholar
• Von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., Gøtzsche, P. C., Vandenbroucke, J. P., & Initiative, S, STROBE Initiative. (2014). The strengthening the reporting of observational studies in epidemiology (STROBE) statement: Guidelines for reporting observational studies. International Journal of Surgery, 12(12), 1495–1499. doi:https://doi.org/10.1016/j.ijsu.2014.07.013
   PubMed Web of Science ®Google Scholar
• Watson, B., Tatangelo, G., & McCabe, M. (2019). Depression and anxiety among partner and offspring carers of people with dementia: A systematic review. The Gerontologist, 59(5), e597–e610. doi:https://doi.org/10.1093/geront/gny049
   PubMed Web of Science ®Google Scholar
• WHO. (2012). Supporting informal caregivers of people living with dementia. Alzheimer’s disease international. Geneva, Switzerland: WHO.
   Google Scholar
• Wimo, A., Guerchet, M., Ali, G. C., Wu, Y. T., Prina, A. M., Winblad, B., … Prince, M. (2017). The worldwide costs of dementia 2015 and comparisons with 2010. Alzheimer’s & Dementia : The Journal of the Alzheimer’s Association, 13(1), 1–7. doi:https://doi.org/10.1016/j.jalz.2016.07.150
   PubMed Web of Science ®Google Scholar
• Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260–266. doi:https://doi.org/10.1093/geront/26.3.260
   PubMed Web of Science ®Google Scholar