The effect of a performing arts intervention on caregivers of people with mild to moderately severe dementia

References

• Aoun, S. M., Toye, C., Slatyer, S., Robinson, A., & Beattie, E. (2018). A person-centered approach to family carer needs assessment and support in dementia community care in Western Australia. Health & Social Care in the Community, 26(4), e578–e586. doi:https://doi.org/10.1111/hsc.12575
   PubMedGoogle Scholar
• Alzheimer's Association. (2016). Alzheimer's disease facts and figures: Statistical resource for data related to Alzheimer's disease. Alzheimer's Dement, 11(3), 1–88.
   Google Scholar
• Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O'donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. The Gerontologist, 41(5), 652–657. Retrieved from . doi:https://doi.org/10.1093/geront/41.5.652
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi:https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Brown, K. W., Coogle, C. L., & Wegelin, J. (2016). A pilot randomized controlled trial of mindfulness-based stress reduction for caregivers of family members with dementia. Aging & Mental Health, 20(11), 1157–1166. doi:https://doi.org/10.1080/13607863.2015.1065790
   PubMed Web of Science ®Google Scholar
• Burnside, L. D., Knecht, M. J., Hopley, E. K., & Logsdon, R. G. (2017). Conceptual model of the impact of an experiential arts program on persons with dementia and their care partners. Dementia (London, England), 16(1), 29–45. doi:https://doi.org/10.1177/1471301215577220
   PubMedGoogle Scholar
• Camic, P. M., Williams, C. M., & Meeten, F. (2013). Does a 'Singing Together Group' improve the quality of life of people with a dementia and their carers? A pilot evaluation study. Dementia (London, England), 12(2), 157–176. doi:https://doi.org/10.1177/1471301211422761
   PubMedGoogle Scholar
• Family Caregiver Alliance. (2019, April). Caregiver statistics. Demographics. Retrieved from: https://www.caregiver.org.
   Google Scholar
• Fraser, K. D., O'Rourke, H. M., Wiens, H., Lai, J., Howell, C., & Brett-MacLean, P. (2015). A scoping review of research on the arts, aging, and quality of life. The Gerontologist, 55(4), 719–729. doi:https://doi.org/10.1093/geront/gnv027
   PubMed Web of Science ®Google Scholar
• George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26(3), 253–259. doi:https://doi.org/10.1093/geront/26.3.253
   PubMed Web of Science ®Google Scholar
• Gross, S. M., Danilova, D., Vandehey, M. A., & Diekhoff, G. M. (2015). Creativity and dementia: Does artistic activity affect well-being beyond the art class? Dementia (London, England), 14(1), 27–46. doi:https://doi.org/10.1177/1471301213488899
   PubMedGoogle Scholar
• Gutterman, E. M., Markowitz, J. S., Lewis, B., & Fillit, H. (1999). Cost of Alzheimer's disease and related dementia in managed‐Medicare. Journal of the American Geriatrics Society, 47(9), 1065–1071. doi:https://doi.org/10.1111/j.1532-5415.1999.tb05228.x
   PubMed Web of Science ®Google Scholar
• Hellman, C. M., Worley, J. A., & Munoz, R. T. (2018). Hope as a coping resource for caregiver resilience and well-being. In Family caregiving (pp. 81–98). Cham: Springer.
   Google Scholar
• Houser, W. S., George, D. R., & Chinchilli, V. M. (2014). Impact of TimeSlips creative expression program on behavioral symptoms and psychotropic medication use in persons with dementia in long-term care: A cluster-randomized pilot study. The American Journal of Geriatric Psychiatry : Official Journal of the American Association for Geriatric Psychiatry, 22(4), 337–340. doi:https://doi.org/10.1016/j.jagp.2012.12.005
   PubMed Web of Science ®Google Scholar
• Karg, N., Graessel, E., Randzio, O., & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: A cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatrics, 18(1), 1–9. doi:https://doi.org/10.1186/s12877-018-0885-1
   PubMedGoogle Scholar
• Kidd, L. I., Zauszniewski, J. A., & Morris, D. L. (2011). Benefits of a poetry writing intervention for family caregivers of elders with dementia. Issues in Mental Health Nursing, 32(9), 598–604. doi:https://doi.org/10.3109/01612840.2011.576801
   PubMedGoogle Scholar
• Kinney, J. M., & Rentz, C. A. (2005). Observed well-being among individuals with dementia: Memories in the Making, an art program, versus other structured activity. American Journal of Alzheimer's Disease and Other Dementias, Jul-Aug 20(4), 220–227. doi:https://doi.org/10.1177/153331750502000406
   PubMedGoogle Scholar
• Lethin, C., Renom-Guiteras, A., Zwakhalen, S., Soto-Martin, M., Saks, K., Zabalegui, A., … Karlsson, S. (2017). Psychological well-being over time among informal caregivers caring for persons with dementia living at home. Aging & Mental Health, 21(11), 1138–1146. doi:https://doi.org/10.1080/13607863.2016.1211621
   PubMed Web of Science ®Google Scholar
• Liu, H. Y., & Huang, L. H. (2018). The relationship between family functioning and caregiving appraisal of dementia family caregivers: Caregiving self-efficacy as a mediator. Aging & Mental Health, 22(4), 558–567. doi:https://doi.org/10.1080/13607863.2016.1269148
   PubMed Web of Science ®Google Scholar
• Logsdon, R., G., Gibbons, L. E., McCurry, S. M., & Teri, L. (1999). Quality of life in Alzheimer's disease: Patient and caregiver reports. Journal of Mental Health and Aging, 5, 21–32.
   Google Scholar
• McCormack, L., Tillock, K., & Walmsley, B. D. (2017). Holding on while letting go: Trauma and growth on the pathway of dementia care in families. Aging & Mental Health, 21(6), 658–667. doi:https://doi.org/10.1080/13607863.2016.1146872
   PubMed Web of Science ®Google Scholar
• Nay, R., Bauer, M., Fetherstonhaugh, D., Moyle, W., Tarzia, L., & McAuliffe, L. (2015). Social participation and family carers of people living with dementia in Australia. Health & Social Care in the Community, 23(5), 550–558. doi:https://doi.org/10.1111/hsc.12163
   PubMed Web of Science ®Google Scholar
• Pertl, M., Sooknarine-Rajpatty, A., Brennan, S., Robertson, I. H., & Lawlor, B. A. (2019). Caregiver choice and caregiver outcomes: A longitudinal study of Irish spousal dementia caregivers. Frontiers in Psychology, 10, 1801. doi:https://doi.org/10.3389/fpsyg.2019.01801
   PubMed Web of Science ®Google Scholar
• Qiu, D., Hu, M., Yu, Y., Tang, B., & Xiao, S. (2019). Acceptability of psychosocial interventions for dementia caregivers: A systematic review. BMC Psychiatry, 19(1), 1-14. doi:https://doi.org/10.1186/s12888-018-1976-4
   Google Scholar
• Rahman, A., Anjum, R., & Sahakian, Y. (2019). Impact of caregiving for dementia patients on healthcare utilization of caregivers. Pharmacy, 7(4), 138. doi:https://doi.org/10.3390/pharmacy7040138
   Google Scholar
• Schulz, R., & Cook, T. (2011). Caregiving costs: Declining health in the Alzheimer's caregiver as dementia increases in the care recipient. National Alliance for Caregiving, 1-8.
   Google Scholar
• Smith, B. W., Dalen, J., Wiggins, K., Tooley, E., Christopher, P., & Bernard, J. (2008). The brief resilience scale: Assessing the ability to bounce back. International Journal of Behavioral Medicine, 15(3), 194–200. doi:https://doi.org/10.1080/10705500802222972
   PubMed Web of Science ®Google Scholar
• Tatangelo, G., McCabe, M., Macleod, A., & Konis, A. (2018). I just can't please them all and stay sane: Adult child caregivers' experiences of family dynamics in caregiving for a parent with dementia in Australia. Health & Social Care in the Community, 26(3), e370–e377. doi:https://doi.org/10.1111/hsc.12534
   PubMedGoogle Scholar
• Wilz, G., Meichsner, F., & Soellner, R. (2017). Are psychotherapeutic effects on family caregivers of people with dementia sustainable? Two-year long-term effects of a telephone-based cognitive behavioral intervention. Aging & Mental Health, 21(7), 774–781. doi:https://doi.org/10.1080/13607863.2016.1156646
   PubMed Web of Science ®Google Scholar
• Zarit, S. H., Femia, E. E., Watson, J., Rice-Oeschger, L., & Kakos, B. (2004). Memory club: A group intervention for people with early-stage dementia and their care partners. The Gerontologist, 44(2), 262–269. doi:https://doi.org/10.1093/geront/44.2.262
   PubMed Web of Science ®Google Scholar
• Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. doi:https://doi.org/10.1093/geront/20.6.649
   PubMed Web of Science ®Google Scholar