References
- AboJabel, H., Kermel Schiffman, I., & Werner, P. (2020). The Arabic and Hebrew versions of the caregiving ambivalence scale (CAS): Examining its reliability, validity, and correlates among Israeli caregivers of individuals with Alzheimer’s disease. Aging & Mental Health, 25(4), 749–755. doi:https://doi.org/10.1080/13607863.2020.1715341
- Almeida, J., Molnar, B. E., Kawachi, I., & Subramanian, S. V. (2009). Ethnicity and nativity status as determinants of perceived social support: Testing the concept of familism. Social Science & Medicine (1982), 68(10), 1852–1858. doi:https://doi.org/10.1016/j.socscimed.2009.02.029
- Alquwez, N., & Alzhahrani, A. M. (2020). Influence of spiritual coping and social support on the mental health and quality of life of the Saudi informal caregivers of patients with Stroke. Journal of Religion and Health, 60, 787–803. doi:https://doi.org/10.1007/s10943-020-01081-w
- Ayalon, L. (2018). Family relations and elder care among Arabs in the North of Israel. Research on Aging, 40(9), 839–858. doi:https://doi.org/10.1177/0164027517749612
- Ayalon, L., Karkabi, K., Bleichman, I., Fleischmann, S., & Goldfracht, M. (2015). Between modern and traditional values: Informal mental health help-seeking attitudes according to Israeli Arab women, primary care patients and their providers. International Journal of Social Psychiatry, 61(4), 386–396. doi:https://doi.org/10.1177/0020764014549082
- Bachner, Y. G. (2013). Preliminary assessment of the psychometric properties of the abridged Arabic version of the Zarit Burden Interview among caregivers of cancer patients. European Journal of Oncology Nursing : The Official Journal of European Oncology Nursing Society, 17(5), 657–660. doi:https://doi.org/10.1016/j.ejon.2013.06.005
- Bahar, S. M., & Bigdeli, I. (2020). Stigma phenomenon to dementia in Iranian population: A phenomenological study. Dementia, 19(2), 319–329. doi:https://doi.org/10.1177/1471301218774081
- Bédard, M., Molloy, D. W., Squire, L., Dubois, S., Lever, J. A., & O’Donnell, M. (2001). The Zarit Burden Interview: A new short version and screening version. The Gerontologist, 41(5), 652–657. doi:https://doi.org/10.1093/geront/41.5.652
- Bozgeyik, G., Ipekcioglu, D., Yazar, M. S., & Ilnem, M. C. (2019). Behavioural and psychological symptoms of Alzheimer’s disease associated with caregiver burden and depression. Psychiatry and Clinical Psychopharmacology, 29(4), 656–664. doi:https://doi.org/10.1080/24750573.2018.1541646
- Chen, H. M., Huang, M. F., Yeh, Y. C., Huang, W. H., & Chen, C. H. (2015). Effectiveness of coping strategies intervention on caregiver burden among caregivers of elderly patients with dementia. Psychogeriatrics : The Official Journal of the Japanese Psychogeriatric Society, 15(1), 20–25. doi:https://doi.org/10.1111/psyg.12071
- Chiao, C. Y., Wu, H. S., & Hsiao, C. Y. (2015). Caregiver burden for informal caregivers of patients with dementia: A systematic review. International Nursing Review, 62(3), 340–355. doi:https://doi.org/10.1111/inr.12194
- Cho, J., Ory, M. G., & Stevens, A. B. (2016). Socioecological factors and positive aspects of caregiving: Findings from the REACH II intervention. Aging & Mental Health, 20(11), 1190–1201. doi:https://doi.org/10.1080/13607863.2015.1068739
- Chronister, J., Chou, C. C., & Liao, H. Y. (2013). The role of stigma coping and social support in mediating the effect of societal stigma on internalized stigma, mental health recovery, and quality of life among people with serious mental illness. Journal of Community Psychology, 41(5), 582–600. doi:https://doi.org/10.1002/jcop.21558
- Cohen, M., Werner, P., & Azaiza, F. (2009). Emotional reactions of Arab lay persons to a person with Alzheimer’s disease. Aging & Mental Health, 13(1), 31–37. doi:https://doi.org/10.1080/13607860802154440
- Connors, M. H., Seeher, K., Teixeira-Pinto, A., Woodward, M., Ames, D., & Brodaty, H. (2020). Dementia and caregiver burden: A three-year longitudinal study . International Journal of Geriatric Psychiatry, 35(2), 250–258. doi:https://doi.org/10.1002/gps.5244.
- Dauphinot, V., Delphin-Combe, F., Mouchoux, C., Dorey, A., Bathsavanis, A., Makaroff, Z., … Krolak-Salmon, P. (2015). Risk factors of caregiver burden among patients with Alzheimer’s disease or related disorders: A cross-sectional study. Journal of Alzheimer’s Disease, 44(3), 907–916. doi:https://doi.org/10.3233/JAD-142337
- del-Pino-Casado, R., Cardosa, M. R., López-Martínez, C., & Orgeta, V. (2019). The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. Plose One, 14(5), e0217648. doi:https://doi.org/10.1371/journal.pone.0217648
- Devellis, R. F. (2003). Scale development: Theory and applications: applied social research methods (2nd ed.). Thousand Oaks, CA: Sage Publications.
- D’Onofrio, G., Sancarlo, D., Addante, F., Ciccone, F., Cascavilla, L., Paris, F., … Pilotto, A. (2015). Caregiver burden characterization in patients with Alzheimer’s disease or vascular dementia. International Journal of Geriatric Psychiatry, 30(9), 891–899. doi:https://doi.org/10.1002/gps.4232
- El Sayed, N. N. F., Khalil, E. A. W., Osman, Z. A. H., & Abdelsalam, Z. A. M. (2018). Stigma and quality of life among caregivers of mentally ill patients: Family and nursing staff. Journal of Nursing and Health Science, 7(3), 57–66. doi:https://doi.org/10.9790/1959-0703045766
- Geiger, J. R., Wilks, S. E., Lovelace, L. L., Chen, Z., & Spivey, C. A. (2015). Burden among male Alzheimer’s caregivers: Effects of distinct coping strategies. American Journal of Alzheimer’s Disease & Other Dementiasr, 30(3), 238–246. doi:https://doi.org/10.1177/1533317514552666
- Gilhooly, K. J., Gilhooly, M. L. M., Sullivan, M. P., McIntyre, A., Wilson, L., Harding, E., … Crutch, S. (2016). A meta-review of stress, coping and interventions in dementia and dementia caregiving. BMC Geriatrics, 16, 106 doi:https://doi.org/10.1186/s12877-016-0280-8
- Gray, H. L., Jimenez, D. E., Cucciare, M. A., Tong, H.-Q., & Gallagher-Thompson, D. (2009). Ethnic differences in beliefs regarding Alzheimer’s disease among dementia family caregivers. The American Journal of Geriatric Psychiatry, 17(11), 925–933. doi:https://doi.org/10.1097/JGP.0b013e3181ad4f3c
- Hayes, A. F. (2013). An introduction to mediation, moderation, and conditional process analysis: A regression-based approach. New York, NY: Guilford Press.
- Hinton, L., Guo, Z., Hillygus, J., & Levkoff, S. (2000). Working with culture: A qualitative analysis of barriers to the recruitment of Chinese-American family caregivers for dementia research. Journal of Cross-Cultural Gerontology, 15(2), 119–137. doi:https://doi.org/10.1023/A:100679831
- Huang, M. F., Huang, W. H., Su, Y. C., Hou, S. Y., Chen, H. M., Yeh, Y. C., & Chen, C. S. (2015). Coping strategy and caregiver burden among caregivers of patients with dementia. American Journal of Alzheimer’s Disease & Other Dementiasr, 30(7), 694–698. doi:https://doi.org/10.1177/1533317513494446
- Iavarone, A., Ziello, A. R., Pastore, F., Fasanaro, A. M., & Poderico, C. (2014). Caregiver burden and coping strategies in caregivers of patients with Alzheimer’s disease. Neuropsychiatric Disease and Treatment, 10, 1407–1413. doi:https://doi.org/10.2147/NDT.S58063
- Isik, A. T., Soysal, P., Solmi, M., & Veronese, N. (2019). Bidirectional relationship between caregiver burden and neuropsychiatric symptoms in patients with Alzheimer’s disease: A narrative review. Int J Geriatr Psychiatry, 34(9), 1326–1334. doi:https://doi.org/10.1002/gps.4965
- Israel Bureau of Statistics. (2019). Israel’s Independence Day 2019. http://cbs.gov.il.
- James, G., Witten, D., Hastie, T., & Tibshirani, R. (2013). An Introduction to Statistical Learning. New York: Springer.
- Kahn, P. V., Wishart, H. A., Randolph, J. S., & Santulli, R. B. (2016). Caregiver stigma and burden in memory disorders: An evaluation of the effects of caregiver type and gender. Current Gerontology and Geriatrics Research, 2016, 1–5. doi:https://doi.org/10.1155/2016/8316045
- Kaufman, A. V., Kosberg, J. I., Leeper, J. D., & Tang, M. (2010). Social support, caregiver burden, and life satisfaction in a sample of rural African American and White caregivers of older persons with dementia. Journal of Gerontological Social Work, 53(3), 251–269. doi:https://doi.org/10.1080/01634370903478989
- Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer, New York: USA.
- Lien, Y. J., & Kao, Y. C. (2019). Public beliefs and attitudes toward schizophrenia and depression in Taiwan: A nationwide survey. Psychiatry Research, 273, 435–442. doi:https://doi.org/10.1016/j.psychres.2019.01.062
- Liu, D., Hinton, L., Tran, C., Hinton, D., & Barker, J. C. (2008). Reexamining the relationships among dementia, stigma, and aging in immigrant Chinese and Vietnamese family caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283–299. doi:https://doi.org/10.1007/s10823-008-9075-5
- Lloyd, J., Muers, J., Patterson, T. G., & Marczak, M. (2019). Self-compassion, coping strategies, and caregiver burden in caregivers of people with dementia. Clinical Gerontologist, 42(1), 47–59. doi:https://doi.org/10.1080/07317115.2018.1461162
- Lopez, R. P., Rose, K. M., Kenney, L., Sanborn, V., & Davis, J. D. (2020). Managing shame: A grounded theory of how stigma manifests in families living with dementia. Journal of the American Psychiatric Nurses Association, 26(2), 181–188. doi:https://doi.org/10.1177/1078390319832965
- Macdonald, M., Martin-Misener, R., Helwig, M., Weeks, L., & Maclean, H. (2017). Experiences of unpaid family/friend caregivers of community-dwelling adults with dementia: A systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports, 15(5), 1298–1305. doi:https://doi.org/10.11124/JBISRIR-2016-002979
- Major, B., & O’Brien, L. T. (2005). The social psychology of stigma. Annual Review of Psychology, 56(1), 393–421. doi:https://doi.org/10.1146/annurev.psych.56.091103.070137
- Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545. doi:https://doi.org/10.1111/j.1468-3148.2008.00426.x
- Monteiro, A. M. F., Santos, R. L., Kimura, N., Baptista, M. A. T., & Dourado, M. C. N. (2018). Coping strategies among caregivers of people with Alzheimer disease: A systematic review. Trends in Psychiatry and Psychotherapy, 40(3), 258–268. doi:https://doi.org/10.1590/2237-6089-2017-0065
- Navab, E., Negarandeh, R., Peyrovi, H., & Navab, P. (2013). Stigma among Iranian family caregivers of patients with Alzheimer’s disease: A hermeneutic study. Nursing & Health Sciences, 15(2), 201–206. doi:https://doi.org/10.1111/nhs.12017
- Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. doi:https://doi.org/10.1093/geront/30.5.583
- Picco, L., Pang, S., Lau, Y. W., Jeyagurunathan, A., Satghare, P., Abdin, E., … Subramaniam, M. (2016). Internalized stigma among psychiatric outpatients: Associations with quality of life, functioning, hope and self-esteem. Psychiatry Research, 246, 500–506. doi:https://doi.org/10.1016/j.psychres.2016.10.041
- Preacher, K. J., & Hayes, A. F. (2008). Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models. Behavior Research Methods, 40(3), 879–891. doi:https://doi.org/10.3758/BRM.40.3.879
- Pudelewicz, A., Talarska, D., & Bączyk, G. (2019). Burden of caregivers of patients with Alzheimer’s disease. Scandinavian Journal of Caring Sciences, 33(2), 336–341. doi:https://doi.org/10.1111/scs.12626
- Ridzuan, S. A., Darussalam, S. E., Hisham, N. H. M., Namsivayam, P., Nichole, Y. M. Y., Zaid, D. S. S., … Sulaiman, W. A. W. (2018). A review of burden of caregivers of patients with Alzheimer’s disease. Malang Neurology Journal, 5(1), 42–45. doi:https://doi.org/10.21776/ub.mnj.2019.005.01.7
- Roth, D. L., Dilworth-Anderson, P., Huang, J., Gross, A. L., & Gitlin, L. N. (2015). Positive aspects of family caregiving for dementia: Differential item functioning by race. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 70(6), 813–819. doi:https://doi.org/10.1093/geronb/gbv034
- Rüsch, N., Heekeren, K., Theodoridou, A., Müller, M., Corrigan, P. W., Mayer, B., … Rössler, W. (2015). Stigma as a stressor and transition to schizophrenia after one year among young people at risk of psychosis. Schizophrenia Research, 166(1–3), 43–48. doi:https://doi.org/10.1016/j.schres.2015.05.027
- Schumann, C., Alexopoulos, P., & Perneczky, R. (2019). Determinants of self- and carer-rated quality of life and caregiver burden in Alzheimer disease . International Journal of Geriatric Psychiatry, 34(10), 1378–1385. doi:https://doi.org/10.1002/gps.5126
- Scott, E. W., & Beth, C. (2007). Perceived stress and resilience in Alzheimer’s disease caregivers: Testing moderation and mediation models of social support. Aging & Mental Health, 12(3), 357–365. doi:https://doi.org/10.1080/13607860801933323
- Singh, A., Mattoo, S. K., & Grover, S. (2016). Stigma and its correlates among caregivers of schizophrenia: A study from North India. Psychiatry Research, 241, 302–308. doi:https://doi.org/10.1016/j.psychres.2016.04.108
- Somer, E., Golan, D., Dishon, S., Cuzin-Disegni, L., Lavi, I., & Miller, A. (2010). Patients with multiple sclerosis in a war zone: Coping strategies associated with reduced risk for relapse. Multiple Sclerosis Journal, 16(4), 463–471. doi:https://doi.org/10.1177/1352458509358714
- Stagg, B., & Larner, A. J. (2015). Zarit Burden Interview: Pragmatic study in a dedicated cognitive function clinic. Progress in Neurology and Psychiatry, 19(4), 23–27. doi:https://doi.org/10.1002/pnp.390
- Su, J. A., & Chang, C. H. (2020). Association between family caregiver burden and affiliate stigma in the families of people with dementia. International Journal of Environmental Research and Public Health, 17(8), 2772. doi:https://doi.org/10.3390/ijerph17082772
- Taha-Fahum, A. (2002). Coping patterns, social support, attitudes towards divorce and sense of well-being among Moslem Arab divorced men and women(in Hebrew) [Master’s thesis for M.A degree]. University of Haifa.
- van der Lee, J., Bakker, T. J. E. M., Duivenvoorden, H. J., & Dröes, R. M. (2014). Multivariate models of subjective caregiver burden in dementia: A systematic review. Ageing Research Reviews, 15, 76–93. doi:https://doi.org/10.1016/j.arr.2014.03.003
- van der Sanden, R. L. M., Pryor, J. B., Stutterheim, S. E., Kok, G., & Bos, A. E. R. (2016). Stigma by association and family burden among family members of people with mental illness: The mediating role of coping. Social Psychiatry and Psychiatric Epidemiology, 51(9), 1233–1245. doi:https://doi.org/10.1007/s00127-016-1256-x
- Wang, Z., Ma, C., Han, H., He, R., Zhou, L., Liang, R., & Yu, H. (2018). Caregiver burden in Alzheimer’s disease: Moderation effects of social support and mediation effects of positive aspects of caregiving. International Journal of Geriatric Psychiatry, 33(9), 1198–1206. doi:https://doi.org/10.1002/gps.4910
- Werner, P., & AboJabel, H. (2020). Who internalizes courtesy stigma and how? A study among Israeli Arab family caregivers of persons with dementia. Aging & Mental Health, 24(7), 1153–1160. doi:https://doi.org/10.1080/13607863.2019.1584790
- Werner, P., Friedland, R. P., & Inzelberg, R. (2015). Alzheimer’s disease and the elderly in Israel: Are we paying enough attention to the topic in the Arab population?American Journal of Alzheimer’s Disease & Other Dementiasr, 30(5), 448–453. doi:https://doi.org/10.1177/1533317515577130
- Werner, P., Mittelman, M. S., Goldstein, D., & Heinik, J. (2012). Family stigma and caregiver burden in Alzheimer’s disease. The Gerontologist, 52(1), 89–97. doi:https://doi.org/10.1093/geront/gnr117
- Woo, B. K. (2017). Family history and its relationship with dementia stigma beliefs among Chinese Americans. Geriatrics & Gerontology International, 17(1), 122–125. doi:https://doi.org/10.1111/ggi.12686
- Wood, S. M., Morales, K. H., Metzger, D., Davis, A., Fiore, D., Petsis, D., … Frank, I. (2020). Mental health, social influences, and HIV Pre-exposure Prophylaxis (PrEP) utilization among men and transgender individuals screening for HIV prevention trials. AIDS and Behavior, 25, 524–531. doi:https://doi.org/10.1007/s10461-020-03004-y
- Xiao, L. D., Habel, L., & De Bellis, A. (2015). Perceived challenges in dementia care by vietnamese family caregivers and care workers in South Australia. Journal of Cross-Cultural Gerontology, 30(3), 333–352. doi:https://doi.org/10.1007/s10823-015-9264-y
- Yu, H., Wang, X., He, R., Liang, R., & Zhou, L. (2015). Measuring the caregiver burden of caring for community-residing people with Alzheimer’s disease. Plos One, 10(7), e0132168. doi:https://doi.org/10.1371/journal.pone.0132168
- Zeidner, M., & Ben-Zur, H. (1993). Coping with a national crisis: The Israeli experience with the threat of missile attacks. Personality and Individual Differences, 14(1), 209–224. doi:https://doi.org/10.1016/0191-8869(93)90191-5
- Zhan, L. (2004). Caring for family members with Alzheimer’s disease. Journal of Gerontological Nursing, 30(8), 19–29. doi:https://doi.org/10.3928/0098-9134-20040801-06
- Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30–41. doi:https://doi.org/10.1207/s15327752jpa5201_2