References
- Abrahams, R., Liu, K. P., Bissett, M., Fahey, P., Cheung, K. S., Bye, R., Chaudhary, K., & Chu, L. W. (2018). Effectiveness of interventions for co-residing family caregivers of people with dementia: Systematic review and meta-analysis . Australian Occupational Therapy Journal, 65(3), 208–224. doi:https://doi.org/10.1111/1440-1630.12464
- Ahmad, F., Jhajj, A. K., Stewart, D. E., Burghardt, M., & Bierman, A. S. (2014). Single item measures of self-rated mental health: A scoping review. BMC Health Services Research, 14(1), 1–11. doi:https://doi.org/10.1186/1472-6963-14-398
- Alzheimer’s Association. (2020). 2020 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 16(3), 391–460. doi:https://doi.org/10.1002/alz.12068
- Avison, C., Brock, D., Campione, J., Hassell, S., Rabinovich, B., Ritter, R., Severynse, J., Yang, D., & Zebrak, K. (2018). Outcome evaluation of the National Family Caregiver Support Program. Administration for Community Living. https://acl.gov/sites/default/files/programs/2018-12/Caregiver_Outcome_Evaluation_Final_Report.pdf
- Beach, S. R., & Schulz, R. (2017). Family caregiver factors associated with unmet needs for care of older adults. Journal of the American Geriatrics Society, 65(3), 560–566. doi:https://doi.org/10.1111/jgs.14547
- Benefield, L. E., & Beck, C. (2007). Reducing the distance in distance-caregiving by technology innovation. Clinical Interventions in Aging, 2(2), 267–272.
- Berg-Weger, M., Rubio, D. M., & Tebb, S. S. (2000). Living with and caring for older family members: Issues related to caregiver well-being. Journal of Gerontological Social Work, 33(2), 47–62. doi:https://doi.org/10.1300/J083v33n02_04
- Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228. https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty
- Cagle, J. G., & Munn, J. C. (2012). Long-distance caregiving: A systematic review of the literature. Journal of Gerontological Social Work, 55(8), 682–707. doi:https://doi.org/10.1080/01634372.2012.703763
- Cary, M. S., Rubright, J. D., Grill, J. D., & Karlawish, J. (2015). Why are spousal caregivers more prevalent than nonspousal caregivers as study partners in AD dementia clinical trials?Alzheimer Disease & Associated Disorders, 29(1), 70–74. doi:https://doi.org/10.1097/WAD.0000000000000047
- Cheng, S. T., Li, K. K., Losada, A., Zhang, F., Au, A., Thompson, L. W., & Gallagher-Thompson, D. (2020). The effectiveness of nonpharmacological interventions for informal dementia caregivers: An updated systematic review and meta-analysis. Psychology and Aging, 35(1), 55–77. doi:https://doi.org/10.1037/pag0000401
- Chiao, C. Y., Wu, H. S., & Hsiao, C. Y. (2015). Caregiver burden for informal caregivers of patients with dementia: A systematic review. International Nursing Review, 62(3), 340–350. doi:https://doi.org/10.1111/inr.12194
- Chu, H., Yang, C. Y., Liao, Y. H., Chang, L. I., Chen, C. H., Lin, C. C., & Chou, K. R. (2011). The effects of a support group on dementia caregivers’ burden and depression. Journal of Aging and Health, 23(2), 228–241. doi:https://doi.org/10.1177/0898264310381522
- Demiris, G., Parker Oliver, D. R., Hensel, B., Dickey, G., Rantz, M., & Skubic, M. (2008). Use of videophones for distant caregiving: An enriching experience for families and residents in long-term care. Journal of Gerontological Nursing, 34(7), 50–55. doi:https://doi.org/10.3928/00989134-20080701-02
- Douglas, S. L., Mazanec, P., Lipson, A., & Leuchtag, M. (2016). Distance caregiving a family member with cancer: A review of the literature on distance caregiving and recommendations for future research. World Journal of Clinical Oncology, 7(2), 214–219. doi:https://doi.org/10.5306/wjco.v7.i2.214
- Duong, M. T., & Karlawish, J. (2020). Caregiving at a physical distance: Initial Thoughts for COVID-19 and beyond. Journal of the American Geriatrics Society, 68(6), 1170–1172. doi:https://doi.org/10.1111/jgs.16495
- Edwards, M. (2014). Distance caregivers of people with Alzheimer’s disease and related dementia: A phenomenological study. British Journal of Occupational Therapy, 77(4), 174–180. doi:https://doi.org/10.4276/030802214X13968769798719
- Family Caregiver Alliance. (2016). Caregiver statistics: Health, technology, and caregiving resources. https://www.caregiver.org/caregiver-statistics-health-technology-and-caregiving-resources
- Hansen, T., Slagsvold, B., & Ingebretsen, R. (2013). The strains and gains of caregiving: An examination of the effects of providing personal care to a parent on a range of indicators of psychological well-being. Social Indicators Research, 114(2), 323–343. doi:https://doi.org/10.1007/s11205-012-0148-z
- Hepburn, K. W., Tornatore, J., Center, B., & Ostwald, S. W. (2001). Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49(4), 450–457. doi:https://doi.org/10.1046/j.1532-5415.2001.49090.x
- Joseph, A. E., & Hallman, B. C. (1998). Over the hill and far away: Distance as a barrier to the provision of assistance to elderly relatives. Social Science & Medicine (1982), 46(6), 631–639. doi:https://doi.org/10.1016/S0277-9536(97)00181-0
- Kim, Y., & Schulz, R. (2008). Family caregivers’ strains: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. Journal of Aging and Health, 20(5), 483–503. doi:https://doi.org/10.1177/0898264308317533
- Kitamura, T., Tanimoto, C., Oe, S., Kitamura, M., & Hino, S. (2019). Familial caregivers’ experiences with home-visit nursing for persons with dementia who live alone. Psychogeriatrics: The Official Journal of the Japanese Psychogeriatric Society, 19(1), 3–9. doi:https://doi.org/10.1111/psyg.12352
- Lee, H. S., Kim, D. K., & Kim, J. H. (2006). Stress in caregivers of demented people in Korea-a modification of Pearlin and colleagues’ stress model. International Journal of Geriatric Psychiatry, 21(8), 784–791. doi:https://doi.org/10.1002/gps.1563
- Li, M., Mao, W., Chi, I., & Lou, V. W. (2019). Geographical proximity and depressive symptoms among adult child caregivers: Social support as a moderator. Aging & Mental Health, 23(2), 205–213. doi:https://doi.org/10.1080/13607863.2017.1399349
- Marziali, E., & Donahue, P. (2006). Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. The Gerontologist, 46(3), 398–403. doi:https://doi.org/10.1093/geront/46.3.398
- Mazanec, P. (2012). Distance caregiving a parent with cancer. Seminars in Oncology Nursing, 28(4), 271–278. doi:https://doi.org/10.1016/j.soncn.2012.09.010
- Mazanec, P., Daly, B. J., Ferrell, B. R., & Prince-Paul, M. (2011). Lack of communication and control: Experiences of distance caregivers of parents with advanced cancer. Oncology Nursing Forum, 38(3), 307–313. doi:https://doi.org/10.1188/11.ONF.307-313
- National Alliance for Caregiving [NAC] and the AARP Public Policy Institute. (2015). Caregiving in the U.S. 2015 report.https://www.caregiving.org/wp-content/uploads/2020/05/2015_CaregivingintheUS_Final-Report-June-4_WEB.pdf
- Noyes, B. B., Hill, R. D., Hicken, B. L., Luptak, M., Rupper, R., Dailey, N. K., & Bair, B. D. (2010). The role of grief in dementia caregiving. American Journal of Alzheimer’s Disease and Other Dementias®, 25(1), 9–17. doi:https://doi.org/10.1177/1533317509333902
- Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177–186. doi:https://doi.org/10.1093/geront/39.2.177
- Parker, M. W., Call, V. R., Dunkle, R., & Vaitkus, M. (2002). “Out of sight” but not “out of mind”: Parent care contact and worry among military officers who live long distances from parents. Military Psychology, 14(4), 257–277. doi:https://doi.org/10.1207/S15327876MP1404_3
- Pearlin, L. I., Menaghan, E. G., Lieberman, M. A., & Mullan, J. T. (1981). The stress process. Journal of Health and Social Behavior, 22(4), 337–356. doi:https://doi.org/10.2307/2136676
- Peterson, K., Hahn, H., Lee, A. J., Madison, C. A., & Atri, A. (2016). In the information age, do dementia caregivers get the information they need? Semi-structured interviews to determine informal caregivers’ education needs, barriers, and preferences. BMC Geriatrics, 16(1), 164. doi:https://doi.org/10.1186/s12877-016-0338-7.
- Sadak, T., Korpak, A., Wright, J. D., Lee, M. K., Noel, M., Buckwalter, K., & Borson, S. (2017). Psychometric evaluation of Kingston Caregiver Stress Scale. Clinical Gerontologist, 40(4), 268–280. doi:https://doi.org/10.1080/07317115.2017.1313349
- Schneider, U., & Kleindienst, J. (2016). Monetising the provision of informal long-term care by elderly people: estimates for European out-of-home caregivers based on the well-being valuation method. Health & Social Care in the Community, 24(5), e81–e91. doi:https://doi.org/10.1111/hsc.12250
- Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K. (2020). Family caregiving for older adults. Annual Review of Psychology, 71(1), 635–659. doi:https://doi.org/10.1146/annurev-psych-010419-050754
- Schulz, R., Beach, S. R., Cook, T. B., Martire, L. M., Tomlinson, J. M., & Monin, J. K. (2012). Predictors and consequences of perceived lack of choice in becoming an informal caregiver. Aging & Mental Health, 16(6), 712–721. doi:https://doi.org/10.1080/13607863.2011.651439
- Schulz, R., & Eden, J. (2016). Older adults who need caregiving and the family caregivers who help them. In R. Schulz & J. Eden (Eds.), Families caring for an aging America (pp. 43–72). National Academies Press.
- Sparks, L., Bevan, J. L., & Rogers, K. (2012). An intergroup communication approach to understanding the function of compliance, outgroup typicality, and honest explanations in distant caregiving relationships: Validation of a health-care communication scale. Journal of Communication in Healthcare, 5(1), 12–22. doi:https://doi.org/10.1179/1753807612Y.0000000002
- Stirling, C. M., Dwan, C. A., & McKenzie, A. R. (2014). Why carers use adult day respite: A mixed method case study. BMC Health Services Research, 14(1), 245–248. doi:https://doi.org/10.1186/1472-6963-14-245
- Valadez, A. A., Lumadue, C., Gutierrez, B., & de Vries-Kell, S. (2006). Las Comadres and adult day care centers: The perceived impact of socialization on mental wellness. Journal of Aging Studies, 20(1), 39–53. doi:https://doi.org/10.1016/j.jaging.2005.02.003
- van der Lee, J., Bakker, T. J., Duivenvoorden, H. J., & Dröes, R. M. (2017). Do determinants of burden and emotional distress in dementia caregivers change over time?Aging & Mental Health, 21(3), 232–240. doi:https://doi.org/10.1080/13607863.2015.1102196
- Vandepitte, S., Putman, K., Van Den Noortgate, N., Verhaeghe, S., & Annemans, L. (2019). Effectiveness of an in-home respite care program to support informal dementia caregivers: A comparative study . International Journal of Geriatric Psychiatry, 34(10), 1534–1544. doi:https://doi.org/10.1002/gps.5164
- Vega, W. A., Aranda, M. P., & Rodriguez, F. S. (2017). Millennials and dementia caregiving in the United States. https://www.usagainstalzheimers.org/sites/default/files/Dementia%20Caregiver%20Report_Final.pdf
- Whitlatch, C. J., & Orsulic-Jeras, S. (2018). Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers. The Gerontologist, 58(suppl_1), S58–S73. https://doi.org/10.1093/geront/gnx162.
- Winter, L., & Gitlin, L. N. (2007). Evaluation of a telephone-based support group intervention for female caregivers of community-dwelling individuals with dementia. American Journal of Alzheimer’s Disease and Other Dementias®, 21(6), 391–397. doi:https://doi.org/10.1177/1533317506291371
- Yamada, M., Hagihara, A., & Nobutomo, K. (2009). Family caregivers and care manager support under long-term care insurance in rural Japan. Psychology, Health & Medicine, 14(1), 73–85. doi:https://doi.org/10.1080/13548500802068990
- Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649–655. doi:https://doi.org/10.1093/geront/20.6.649