633
Views
0
CrossRef citations to date
0
Altmetric
Caregiving

Effects of nursing home placement on the mental health trajectories of family caregivers of people with dementia: findings from the Tele.TAnDem intervention study

, ORCID Icon &
Pages 101-109 | Received 24 Aug 2021, Accepted 20 Dec 2021, Published online: 05 Jan 2022

References

  • Alzheimer’s Association. (2019). 2019 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 15(3), 321–387. https://doi.org/10.1016/j.jalz.2019.01.010
  • Angermeyer, M. C., Kilian, R., & Matschinger, H. (2000). WHOQOL-100 und WHOQOL-BREF: Handbuch für die deutschsprachigen Versionen der WHO Instrumente zur Erfassung von Lebensqualität [WHOQOL-100 and WHOQOL-BREF. Handbook for the German version of the WHO instruments for the assessment of quality of life]. Hogrefe.
  • Bangerter, L. R., Liu, Y., & Zarit, S. H. (2019). Longitudinal trajectories of subjective care stressors: The role of personal, dyadic, and family resources. Aging & Mental Health, 23(2), 255–262. https://doi.org/10.1080/13607863.2017.1402292
  • Bond, M. J., Clark, M. S., & Davies, S. (2003). The quality of life of spouse dementia caregivers: Changes associated with yielding to formal care and widowhood. Social Science & Medicine, 57(12), 2385–2395. https://doi.org/10.1016/S0277-9536(03)00133-3
  • Brini, S., Hodkinson, A., Davies, A., Hirani, S., Gathercole, R., Howard, R., & Newman, S. P. (2021). In-home dementia caregiving is associated with greater psychological burden and poorer mental health than out-of-home caregiving: A cross-sectional study. Aging & Mental Health, 1–7. https://doi.org/10.1080/13607863.2021.1881758
  • Chan, D., Livingston, G., Jones, L., & Sampson, E. L. (2013). Grief reactions in dementia carers: A systematic review. International Journal of Geriatric Psychiatry, 28(1), 1–17. https://doi.org/10.1002/gps.3795
  • Collins, R. N., & Kishita, N. (2020). Prevalence of depression and burden among informal caregivers of people with dementia: A meta-analysis. Ageing and Society, 40(11), 2355–2392. https://doi.org/10.1017/S0144686X19000527
  • Crawford, K., Digby, R., Bloomer, M., Tan, H., & Williams, A. (2015). Transitioning from caregiver to visitor in a long-term care facility: The experience of caregivers of people with dementia. Aging & Mental Health, 19(8), 739–746. https://doi.org/10.1080/13607863.2014.962008
  • Douglas, B., Mächler, M., Bolker, B., & Walker, S. (2015). Fitting linear mixed-effect models using lme4. Journal of Statistical Software, 67(1), 1–48. https://doi.org/10.18637/jss.v067.i01
  • Francke, A. L., Verkaik, R., Peeters, J. M., Spreeuwenberg, P., de Lange, J., & Pot, A. M. (2017). Dementia case management through the eyes of informal carers: A national evaluation study. Dementia (London, England), 16(5), 642–655. https://doi.org/10.1177/1471301215614165
  • Gaugler, J. E., Mittelman, M. S., Hepburn, K., & Newcomer, R. (2009). Predictors of change in caregiver burden and depressive symptoms following nursing home admission. Psychology and Aging, 24(2), 385–396. https://doi.org/10.1037/a0016052
  • Gaugler, J. E., Mittelman, M. S., Hepburn, K., & Newcomer, R. (2010). Clinically significant changes in burden and depression among dementia caregivers following nursing home admission. BMC Medicine, 8(1), 85. https://doi.org/10.1186/1741-7015-8-85
  • Gaugler, J. E., Pot, A. M., & Zarit, S. H. (2007). Long-term adaptation to institutionalization in dementia caregivers. The Gerontologist, 47(6), 730–740. https://doi.org/10.1093/geront/47.6.730
  • Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce burden and depressive symptoms in caregivers of people with Alzheimer’s disease during the transition to institutionalization? Results from the New York University Caregiver Intervention Study. Journal of the American Geriatrics Society, 56(3), 421–428. https://doi.org/10.1111/​j.1532-5415.2007.01593.x
  • Grant, I., Adler, K. A., Patterson, T. L., Dimsdale, J. E., Ziegler, M. G., & Irwin, M. R. (2002). Health consequences of Alzheimer’s caregiving transitions: Effects of placement and bereavement. Psychosomatic Medicine, 64(3), 477–486. https://doi.org/10.1097/00006842-200205000-00012
  • Gräsel, E. (2002). When home care ends-changes in the physical health of informal caregivers caring for dementia patients: A longitudinal study. Journal of the American Geriatrics Society, 50(5), 843–849. https://doi.org/10.1046/j.1532-5415.2002.50209.x
  • Gupta, S. K. (2011). Intention-to-treat concept: A review. Perspectives in Clinical Research, 2(3), 109–112. https://doi.org/10.4103/2229-3485.83221
  • Hanssen, I., & Tran, P. T. M. (2019). The influence of individualistic and collectivistic morality on dementia care choices. Nursing Ethics, 26(7–8), 2047–2057. https://doi.org/10.1177/0969733018791342
  • Hautzinger, M., Bailer, M., Hofmeister, D., & Keller, F. (2012). Allgemeine depressions skala. Manual [German version of the center for epidemiologic studies depression scale. Hogrefe.
  • Hermann-Lingen, C., Buss, U., & Snaith, P. (2011). Hospital anxiety and depression scale deutsche version (HADS-D). Huber.
  • Hillebrand, M. C., Töpfer, N. F., Weise, L., & Wilz, G. (2021). Psychotherapeutische Kompetenz in der kognitiven Verhaltenstherapie mit pflegenden Angehörigen von Menschen mit Demenz [Therapeutic competence in a cognitive-behavioral intervention for family caregivers of people with dementia]. Psychotherapie im Alter, 18(3), 349–365. https://doi.org/10.30820/1613-2637-2021-3-349
  • Hopkinson, M. D., Reavell, J., Lane, D. A., & Mallikarjun, P. (2019). Cognitive behavioral therapy for depression, anxiety, and stress in caregivers of dementia patients: A systematic review and meta-analysis. The Gerontologist, 59(4), e343–e362. https://doi.org/10.1093/geront/gnx217
  • Kaddour, L., & Kishita, N. (2020). Anxiety in informal dementia carers: A meta-analysis of prevalence. Journal of Geriatric Psychiatry and Neurology, 33(3), 161–172. https://doi.org/10.1177/0891988719868313
  • Kaddour, L., Kishita, N., & Schaller, A. (2019). A meta-analysis of low-intensity cognitive behavioral therapy-based interventions for dementia caregivers. International Psychogeriatrics, 31(7), 961–976. https://doi.org/10.1017/S1041610218001436
  • Kiwi, M., Hydén, L.-C., & Antelius, E. (2018). Deciding upon transition to residential care for persons living with dementia: Why do Iranian family caregivers living in Sweden cease caregiving at home? Journal of Cross-Cultural Gerontology, 33(1), 21–42. https://doi.org/10.1007/s10823-017-9337-1
  • Lee, M., Ryoo, J. H., Chung, M., Anderson, J. G., Rose, K., & Williams, I. C. (2020). Effective interventions for depressive symptoms among caregivers of people with dementia: A systematic review and meta-analysis. Dementia, 19(7), 2368–2398. https://doi.org/10.1177/1471301218822640
  • Ma, M., Dorstyn, D., Ward, L., & Prentice, S. (2018). Alzheimers’ disease and caregiving: A meta-analytic review comparing the mental health of primary carers to controls. Aging & Mental Health, 22(11), 1395–1405. https://doi.org/10.1080/13607863.2017.1370689
  • Mausbach, B. T., Aschbacher, K., Patterson, T. L., von Känel, R., Dimsdale, J. E., Mills, P. J., Ancoli-Israel, S., & Grant, I. (2007). Effects of placement and bereavement on psychological well-being and cardiovascular risk in Alzheimer’s caregivers: A longitudinal analysis. Journal of Psychosomatic Research, 62(4), 439–445. https://doi.org/10.1016/j.jpsychores.2006.10.011
  • Meichsner, F., Schinköthe, D., & Wilz, G. (2016). The Caregiver Grief Scale: Development, exploratory and confirmatory factor analysis, and validation. Clinical Gerontologist, 39(4), 342–361. https://doi.org/10.1080/07317115.2015.1121947
  • Meichsner, F., Töpfer, N. F., Reder, M., Soellner, R., & Wilz, G. (2019). Telephone-based cognitive behavioral intervention improves dementia Caregivers’ Quality of Life. American Journal of Alzheimer’s Disease and Other Dementias, 34(4), 236–246. https://doi.org/10.1177/1533317518822100
  • Meichsner, F., & Wilz, G. (2018). Dementia caregivers’ coping with pre-death grief: Effects of a CBT-based intervention. Aging & Mental Health, 22(2), 218–225. https://doi.org/10.1080/13607863.2016.1247428
  • Meuser, T. M., & Marwit, S. J. (2001). A comprehensive, stage-sensitive model of grief in dementia caregiving. The Gerontologist, 41(5), 658–670. https://doi.org/10.1093/geront/41.5.658
  • Moon, H., Dilworth-Anderson, P., & Graske, J. (2017). The effects of placement on dementia care recipients’ and family caregivers’ quality of life: A literature review. Quality in Ageing and Older Adults, 18(1), 44–57. https://doi.org/10.1108/QAOA-01-2016-0009
  • Nikzad-Terhune, K. A., Anderson, K. A., Newcomer, R., & Gaugler, J. E. (2010). Do trajectories of at-home dementia caregiving account for burden after nursing home placement? A growth curve analysis. Social Work in Health Care, 49(8), 734–752. https://doi.org/10.1080/00981381003635296
  • Nunez, F. E. (2021). Factors influencing decisions to admit family members with dementia to long-term care facilities. Nursing Forum, 56(2), 372–381. https://doi.org/10.1111/nuf.12555
  • Ott, C. H., Sanders, S., & Kelber, S. T. (2007). Grief and personal growth experience of spouses and adult-child caregivers of individuals with Alzheimer’s disease and related dementias. The Gerontologist, 47(6), 798–809. https://doi.org/10.1093/geront/47.6.798
  • Pfeiffer, K., Theurer, C., Büchele, G., Babac, A., Dick, H., & Wilz, G, ReDiCare study group (2021). Relieving distressed caregivers (ReDiCare study): Study protocol of a randomized pragmatic trial. BMC Geriatrics, 21(1), 4. https://doi.org/10.1186/s12877-020-01941-w
  • R Core Team. (2020). R: A language and environment for statistical computing (Version 4.0.0). R Foundation for Statistical Computing. https://www.R-project.org/
  • Reisberg, B., Ferris, S. H., de Leon, M. J., & Crook, T. (1982). The Global Deterioration Scale for assessment of primary degenerative dementia. The American Journal of Psychiatry, 139(9), 1136–1139. https://doi.org/10.1176/ajp.139.9.1136
  • Schinköthe, D., & Wilz, G. (2014). The assessment of treatment integrity in a cognitive behavioral telephone intervention study with dementia caregivers. Clinical Gerontologist, 37(3), 211–234. https://doi.org/10.1080/07317115.2014.886653
  • Schmiedek, F., & Wolff, J. K. (2010). Latente Wachstumskurvenmodelle. In H. Best & C. Wolf (Eds.), Handbuch der sozialwissenschaftlichen Datenanalyse (pp. 1017–1029). VS Verlag für Sozialwissenschaften.
  • Schulz, R., Belle, S. H., Czaja, S. J., McGinnis, K. A., Stevens, A., & Zhang, S. (2004). Long-term care placement of dementia patients and caregiver health and well-being. JAMA, 292(8), 961–967. https://doi.org/10.1001/jama.292.8.961
  • Soellner, R., Reder, M., Machmer, A., Holle, R., & Wilz, G. (2015). The Tele.TAnDem intervention: Study protocol for a psychotherapeutic intervention for family caregivers of people with dementia. BMC Nursing, 14, 11. https://doi.org/10.1186/s12912-015-0059-9
  • Stephens, M. P., Kinney, J. M., & Ogrocki, P. K. (1991). Stressors and well-being among caregivers to older adults with dementia: The in-home versus nursing home experience. The Gerontologist, 31(2), 217–223. https://doi.org/10.1093/geront/31.2.217
  • Sury, L., Burns, K., & Brodaty, H. (2013). Moving in: Adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics, 25(6), 867–876. https://doi.org/10.1017/S1041610213000057
  • Töpfer, N. F., Hoppe, K., & Wilz, G. (2020). Ressourcenaktivierung und komplementäre Beziehungsgestaltung in der Psychotherapie mit pflegenden Angehörigen [Resource activation and motivational attunement in psychotherapy with family caregivers. Psychotherapie im Alter, 17(2), 197–218. ]. https://doi.org/10.30820/1613-2637-2020-2-197
  • Töpfer, N. F., Sittler, M. C., Lechner-Meichsner, F., Theurer, C., & Wilz, G. (2021). Long-term effects of telephone-based cognitive-behavioral intervention for family caregivers of people with dementia: Findings at 3-year follow-up. Journal of Consulting and Clinical Psychology, 89(4), 341–349. https://doi.org/10.1037/ccp0000640
  • Töpfer, N. F., & Wilz, G. (2018). Tele.TAnDem increases the psychosocial resource utilization of dementia caregivers. GeroPsych, 31(4), 173–183. https://doi.org/10.1024/1662-9647/a000197
  • Töpfer, N. F., & Wilz, G. (2021). Increases in utilization of psychosocial resources mediate effects of cognitive-behavioural intervention on dementia caregivers’ quality of life. The Journal of Positive Psychology, 16(3), 356–366. https://doi.org/10.1080/17439760.2020.1716047
  • van der Heide, I., Heins, M. J., van Hout, H. P. J., Verheij, R. A., Francke, A. L., & Joling, K. J. (2021). How transitions in dementia care trajectories affect health problems in partners: A longitudinal analysis with linked health and administrative data. The Journals of Gerontology Series B, Psychological Sciences and Social Sciences, 76(6), 1186–1194. https://doi.org/10.1093/geronb/gbaa204
  • Verreault, P., Turcotte, V., Ouellet, M. C., Robichaud, L. A., & Hudon, C. (2021). Efficacy of cognitive-behavioural therapy interventions on reducing burden for caregivers of older adults with a neurocognitive disorder: A systematic review and meta-analysis. Cognitive Behaviour Therapy, 50(1), 19–46. https://doi.org/10.1080/16506073.2020.1819867
  • Vroomen, J. M. N., Bosmans, J. E., Eekhout, I., Joling, K. J., Van Mierlo, L. D., Meiland, F. J. M., Van Hout, H. P. J., & De Rooij, S. E. (2016). The cost-effectiveness of two forms of case management compared to a control group for persons with dementia and their informal caregivers from a societal perspective. PLoS One, 11(9), e0160908–20. https://doi.org/10.1371/journal.pone.0160908
  • Waller, A., Dilworth, S., Mansfield, E., & Sanson-Fisher, R. (2017). Computer and telephone delivered interventions to support caregivers of people with dementia: A systematic review of research output and quality. BMC Geriatrics, 17(1), 265. https://doi.org/10.1186/s12877-017-0654-6
  • Wilz, G., Reder, M., Meichsner, F., & Soellner, R. (2018). The Tele.TAnDem intervention: Telephone-based CBT for family caregivers of people with dementia. The Gerontologist, 58(2), e118–e129. https://doi.org/10.1093/geront/gnx183

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.