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Caregiving

Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review

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Pages 110-123 | Received 05 Aug 2021, Accepted 12 Jan 2022, Published online: 15 Feb 2022

References

  • Blandin, K., & Pepin, R. (2017). Dementia grief: A theoretical model of a unique grief experience. Dementia (London, England), 16(1), 67–78. https://doi.org/10.1177/1471301215581081
  • Carduff, E., Finucane, A., Kendall, M., Jarvis, A., Harrison, N., Greenacre, J., & Murray, S. A. (2014). Understanding the barriers to identifying carers of people with advanced illness in primary care: Triangulating three data sources. BMC Family Practice, 15(1), 1–10. https://doi.org/10.1186/1471-2296-15-48
  • Chan, D., Livingston, G., Jones, L., & Sampson, E. L. (2013). Grief reactions in dementia carers: A systematic review. International Journal of Geriatric Psychiatry, 28(1), 1–17. https://doi.org/10.1002/gps.3795
  • Chan, I., Yap, P., Wee, S. L., & Liew, T. M. (2020). The three dimensions of caregiver grief in dementia caregiving: Validity and utility of the subscales of the Marwit-Meuser Caregiver Grief Inventory. International Journal of Geriatric Psychiatry, 35(2), 213–222. https://doi.org/10.1002/gps.5238
  • Cheng, S. T., Ma, D. Y., & Lam, L. C. W. (2019). A brief measure of predeath grief in dementia caregivers: The Caregiver Grief Questionnaire. International Psychogeriatrics, 31(8), 1099–1107. https://doi.org/10.1017/S1041610219000309
  • Cheung, D. S. K., Ho, K. H. M., Cheung, T. F., Lam, S. C., & Tse, M. M. Y. (2018). Anticipatory grief of spousal and adult children caregivers of people with dementia 11 Medical and Health Sciences 1117 Public Health and Health Services 11 Medical and Health Sciences 1103 Clinical Sciences. BMC Palliative Care, 17(1), 124. https://doi.org/10.1186/s12904-018-0376-3
  • Coelho, A., De Brito, M., & Barbosa, A. (2018). Caregiver anticipatory grief: Phenomenology, assessment and clinical interventions. Current Opinion in Supportive and Palliative Care, 12(1), 52–57. https://doi.org/10.1097/SPC.0000000000000321
  • Coelho, A., Silva, C., & Barbosa, A. (2017). Portuguese validation of the Prolonged Grief Disorder Questionnaire-Predeath (PG-12): Psychometric properties and correlates. Palliative & Supportive Care, 15(5), 544–553. Cambridge University Press,https://doi.org/10.1017/S1478951516001000
  • Collins, R. N., & Kishita, N. (2020). Prevalence of depression and burden among informal care-givers of people with dementia: A meta-analysis. Ageing and Society, 40(11), 2355–2392. https://doi.org/10.1017/S0144686X19000527
  • Dempsey, M., & Baago, S. (1998). Latent grief: The unique and hidden grief of carers of loved ones with dementia. American Journal of Alzheimer’s Disease, 13(2), 84–91. https://doi.org/10.1177/153331759801300206
  • Ellis-Smith, C., Evans, C. J., Bone, A. E., Henson, L. A., Dzingina, M., Kane, P. M., Higginson, I. J., & Daveson, B. A., BuildCARE. (2016). Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: A systematic review. BMC Medicine, 14(1), 38 https://doi.org/10.1186/s12916-016-0582-x
  • Frank, J. B. (2008). Evidence for grief as the major barrier faced by Alzheimer caregivers: A qualitative analysis. American Journal of Alzheimer’s Disease & Other Dementias, 22(6), 516–527. SAGE Publications Inc.,https://doi.org/10.1177/1533317507307787
  • Gilsenan, J., Gorman, C., & Shevlin, M. (2022). Exploratory factor analysis of the caregiver grief inventory in a large UK sample of dementia carers. Aging & Mental Health, ), 26(2), 320-327. https://doi.org/10.1080/13607863.2020.1839856
  • Holley, C. K., & Mast, B. T. (2009). The impact of anticipatory grief on caregiver burden in Dementia caregivers. The Gerontologist, 49(3), 388–396. https://doi.org/10.1093/geront/gnp061
  • Holm, M., Alvariza, A., Fürst, C.-J., Öhlen, J., & Årestedt, K. (2019). Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care. Health and Quality of Life Outcomes, 17(1), 42 https://doi.org/10.1186/s12955-019-1110-4
  • Kiely, D. K., Prigerson, H., & Mitchell, S. L. (2008). Health care proxy grief symptoms before the death of nursing home residents with advanced dementia. The American Journal of Geriatric Psychiatry, 16(8), 664–673. https://doi.org/10.1097/JGP.0b013e3181784143
  • Large, S., & Slinger, R. (2015). Grief in caregivers of persons with Alzheimer’s disease and related dementia: a qualitative synthesis. Dementia (London, England), 14(2), 164–183. https://doi.org/10.1177/1471301213494511
  • Liew, T. M. (2016). Applicability of the pre-death grief concept to dementia family caregivers in Asia. International Journal of Geriatric Psychiatry, 31(7), 749–754. John Wiley and Sons Ltd,https://doi.org/10.1002/gps.4387
  • Liew, T. M., Yap, P., Luo, N., Hia, S. B., Koh, G. C.-H., & Tai, B. C. (2018a). Detecting pre-death grief in family caregivers of persons with dementia: Measurement equivalence of the Mandarin-Chinese version of Marwit-Meuser caregiver grief inventory. BMC Geriatrics, 18(1), 114 https://doi.org/10.1186/s12877-018-0804-5
  • Liew, T. M., Yeap, B. I., Koh, G. C.-H., Gandhi, M., Tan, K. S., Luo, N., & Yap, P. (2018b). Detecting predeath grief in family caregivers of persons with dementia: Validity and utility of the marwit-meuser caregiver grief inventory in a multiethnic Asian population. The Gerontologist, 58(2), e150–e159. https://doi.org/10.1093/geront/gnx097
  • Liew, T. M., & Lee, C. S. (2019). Reappraising the Efficacy and Acceptability of Multicomponent Interventions for Caregiver Depression in Dementia: The Utility of Network Meta-Analysis. The Gerontologist, 59(4), e380–e392. 16https://doi.org/10.1093/geront/gny061
  • Liew, T. M., Tai, B. C., Yap, P., & Koh, G. C. (2019a). Contrasting the risk factors of grief and burden in caregivers of persons with dementia: Multivariate analysis. Int J Geriatr Psychiatry, 34(2), 258–264. https://doi.org/10.1002/gps.5014
  • Liew, T. M., Tai, B. C., Yap, P., & Koh, G. C. (2019b). Comparing the Effects of Grief and Burden on Caregiver Depression in Dementia Caregiving: A Longitudinal Path Analysis over 2.5 Years. Journal of the American Medical Directors Association, 20(8), 977–983.e4. https://doi.org/10.1016/j.jamda.2018.11.016
  • Liew, T. M., Tai, B. C., Yap, P., & Koh, G. C. (2019c). Development and validation of a simple screening tool for caregiver grief in dementia caregiving. BMC Geriatrics, 19(1), 54 https://doi.org/10.1186/s12877-019-1070-x
  • Liew, T. M., Tai, B. C., Wee, S. L., Koh, G. C., & Yap, P. (2020). The Longitudinal Effects of Caregiver Grief in Dementia and the Modifying Effects of Social Services: A Prospective Cohort Study. Journal of the American Geriatrics Society, 68(10), 2348–2353. https://doi.org/10.1111/jgs.16717
  • Liew, T. M., & Yap, P. (2020). A Brief, 6-Item Scale for Caregiver Grief in Dementia Caregiving. The Gerontologist, 60(1), e1–e10. https://doi.org/10.1093/geront/gny161 PMID: 30544229.
  • Lwi, S. J., Ford, B. Q., Casey, J. J., Miller, B. L., & Levenson, R. W. (2017). Poor caregiver mental health predicts mortality of patients with neurodegenerative disease. Proceedings of the National Academy of Sciences of the United States of America, 114(28), 7319–7324. https://doi.org/10.1073/pnas.1701597114
  • Marwit, S. J., & Meuser, T. M. (2002). Development and initial validation of an inventory to assess grief in caregivers of persons with Alzheimer’s disease. The Gerontologist, 42(6), 751–765. https://doi.org/10.1093/geront/42.6.751
  • Marwit, S. J., & Meuser, T. M. (2005). Development of a short form inventory to assess grief in caregivers of dementia patients. Death Studies, 29(3), 191–205. https://doi.org/10.1080/07481180590916335
  • Mayeux, R., & Stern, Y. (2012). Epidemiology of Alzheimer disease. Cold Spring Harbor Perspectives in Medicine, 2(8), a006239–a006239. https://doi.org/10.1101/cshperspect.a006239
  • Meichsner, F., Köhler, S., & Wilz, G. (2019). Moving through predeath grief: Psychological support for family caregivers of people with dementia. Dementia (London, England), 18(7-8), 2474–2493. https://doi.org/10.1177/1471301217748504
  • Meichsner, F., Schinköthe, D., & Wilz, G. (2016a). Managing Loss and Change: Grief Interventions for Dementia Caregivers in a CBT-Based Trial. American Journal of Alzheimer’s Disease and Other Dementias, 31(3), 231–240. https://doi.org/10.1177/1533317515602085
  • Meichsner, F., Schinköthe, D., & Wilz, G. (2016b). The Caregiver Grief Scale: Development, Exploratory and Confirmatory Factor Analysis, and Validation. Clinical Gerontologist, 39(4), 342–361. https://doi.org/10.1080/07317115.2015.1121947
  • Meichsner, F., & Wilz, G. (2018). Dementia caregivers’ coping with pre-death grief: effects of a CBT-based intervention. Aging & Mental Health, 22(2), 218–225. https://doi.org/10.1080/13607863.2016.1247428
  • Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G., The PRISMA Group. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. PLoS Medicine, 6(7), e1000097. https://doi.org/10.1371/journal.pmed.1000097
  • Mulligan, E. A. (2010). Measuring predeath grief among dementia caregivers. Alzheimer’s & Dementia, Elsevier BV, 6(4), S314. https://doi.org/10.1016/j.jalz.2010.05.1026
  • NICE. (2018). ‘Recommendations | Dementia: Assessment, management and support for people living with dementia and their carers | Guidance | NICE’, National Institute for Health and Care Excellence. NICE, p. 1. Retrieved December 11, 2019, from https://www.nice.org.uk/guidance/ng97/chapter/Recommendations#interventions-to-promote-cognition-independence-and-wellbeing.
  • Paun, O., Farran, C. J., Fogg, L., Loukissa, D., Thomas, P. E., & Hoyem, R. (2015). A Chronic Grief Intervention for Dementia Family Caregivers in Long-Term Care. Western Journal of Nursing Research, 37(1), 6–27. SAGE Publications Inc.,https://doi.org/10.1177/0193945914521040
  • Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
  • Prigerson, H. G., Horowitz, M. J., Jacobs, S. C., Parkes, C. M., Aslan, M., Goodkin, K., Raphael, B., Marwit, S. J., Wortman, C., Neimeyer, R. A., Bonanno, G. A., Bonanno, G., Block, S. D., Kissane, D., Boelen, P., Maercker, A., Litz, B. T., Johnson, J. G., First, M. B., & Maciejewski, P. K. (2009). Prolonged Grief Disorder: Psychometric Validation of Criteria Proposed for DSM-V and ICD-11 . PLoS Medicine, 6(8), e1000121 https://doi.org/10.1371/journal.pmed.1000121
  • Prigerson, H. G., Maciejewski, P. K., Reynolds, C. F., Bierhals, A. J., Newsom, J. T., Fasiczka, A., Frank, E., Doman, J., & Miller, M. (1995). Inventory of complicated grief: A scale to measure maladaptive symptoms of loss. Psychiatry Research, 59(1-2), 65–79. Elsevier, https://doi.org/10.1016/0165-1781(95)02757-2
  • Sanders, S., Marwit, S. J., Meuser, T. M., & Harrington, P. (2007). Caregiver grief in end-stage dementia:using the Marwit and Meuser Caregiver Grief Inventory for assessment and intervention in social work practice . Soc Work Health Care, 46(1), 47–65. https://doi.org/10.1300/J010v46n01_04
  • Sleeman, K. E., de Brito, M., Etkind, S., Nkhoma, K., Guo, P., Higginson, I. J., Gomes, B., & Harding, R. (2019). The escalating global burden of serious health-related suffering: Projections to 2060 by world regions, age groups, and health conditions. The Lancet Global Health, 7(7), e883–e892. https://doi.org/10.1016/S2214-109X(19)30172-X
  • Terwee, C. B., Bot, S. D. M., de Boer, M. R., van der Windt, D. A. W. M., Knol, D. L., Dekker, J., Bouter, L. M., & de Vet, H. C. W. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34–42. https://doi.org/10.1016/j.jclinepi.2006.03.012
  • Theut, S. K., Jordan, L., Ross, L. A., & Deutsch, S. I. (1991). Caregiver’s anticipatory grief in dementia: a pilot study. International Journal of Aging & Human Development, 33(2), 113–118. https://doi.org/10.2190/4KYG-J2E1-5KEM-LEBA
  • Toot, S., Swinson, T., Devine, M., Challis, D., & Orrell, M. (2017). Causes of nursing home placement for older people with dementia: A systematic review and meta-analysis. International Psychogeriatrics, 29(2), 195–208. https://doi.org/10.1017/S1041610216001654
  • Ying, J., Yap, P., Gandhi, M., & Liew, T. M. (2018). Iterating a framework for the prevention of caregiver depression in dementia: A multi-method approach. International Psychogeriatrics, 30(8), 1119–1130. https://doi.org/10.1017/S1041610217002629