References
- Alzheimer’s Disease International. (2019). World Alzheimer Report 2019: Attitudes to dementia, London.
- Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. Academic Press.
- Arai, Y., Arai, A., & Zarit, S. H. (2008). What do we know about dementia?: A survey on knowledge about dementia in the general public of Japan. International Journal of Geriatric Psychiatry, 23(4), 433–438.
- Bindoff, A. (2018). stmQuality. Github. https://github.com/ABindoff/stmQuality
- Blei, D. M. (2012). Probabilistic topic models. Communications of the ACM, 55(4), 77–84. https://doi.org/10.1145/2133806.2133826
- Blusi, M., Asplund, K., & Jong, M. (2013). Older family carers in rural areas: Experiences from using caregiver support services based on Information and Communication Technology (ICT). European Journal of Ageing, 10(3), 191–199. https://doi.org/10.1007/s10433-013-0260-1
- Bowen, G. A. (2008). Naturalistic inquiry and the saturation concept: A research note. Qualitative Research, 8(1), 137–152. https://doi.org/10.1177/1468794107085301
- Bozkurt, A., Akgün-Özbek, E., & Zawacki-Richter, O. (2017). Trends and patterns in massive open online courses: Review and content analysis of research on MOOCs (2008–2015). International Review of Research in Open and Distributed Learning: IRRODL, 18(5), 118–147. https://doi.org/10.19173/irrodl.v18i5.3080
- Cacioppo, J. T., Hawkley, L. C., & Thisted, R. A. (2010). Perceived social isolation makes me sad: 5-year cross-lagged analyses of loneliness and depressive symptomatology in the Chicago Health, Aging, and Social Relations Study. Psychology and Aging, 25(2), 453–463. https://doi.org/10.1037/a0017216
- Carter, G., McLaughlin, D., Kernohan, W. G., Hudson, P., Clarke, M., Froggatt, K., Passmore, P., & Brazil, K. (2018). The experiences and preparedness of family carers for best interest decision‐making of a relative living with advanced dementia: A qualitative study. Journal of Advanced Nursing, 74(7), 1595–1604.
- Carter, G., Monaghan, C., & Santin, O. (2020). What is known from the existing literature about peer support interventions for carers of individuals living with dementia: A scoping review. Health & Social Care in the Community, 28(4), 1134–1151.
- Courtin, E., & Knapp, M. (2017). Social isolation, loneliness and health in old age: A scoping review. Health & Social Care in the Community, 25(3), 799–812.
- Davies, N., Walker, N., Hopwood, J., Iliffe, S., Rait, G., & Walters, K. (2019). A “separation of worlds”: The support and social networks of family carers of people with dementia at the end of life, and the possible role of the internet. Health & Social Care in the Community, 27(4), e223–e232.
- Derksen, E., Vernooij-Dassen, M., Gillissen, F., Olde Rikkert, M., & Scheltens, P. (2006). Impact of diagnostic disclosure in dementia on patients and carers: Qualitative case series analysis. Aging and Mental Health, 10(5), 525–531.
- DiGiacomo, M., Chang, S., Luckett, T., Agar, M., Phillips, J., & Lam, L. (2020). Financial stress experienced by informal carers of adults with a chronic disease: Results from an Australian population‐based cross‐sectional survey. Australasian Journal on Ageing, 39(3), 254–262.
- Duggleby, W., Ploeg, J., McAiney, C., Fisher, K., Ruiz, K. J., Ghosh, S., Peacock, S., Markle-Reid, M., Williams, A., & Triscott, J. (2019). A comparison of users and nonusers of a web-based intervention for carers of older persons with Alzheimer disease and related dementias: Mixed methods secondary analysis. Journal of Medical Internet Research, 21(10), e14254.
- Eccleston, C., Doherty, K., Bindoff, A., Robinson, A., Vickers, J., & McInerney, F. (2019). Building dementia knowledge globally through the understanding dementia Massive Open Online Course (MOOC). NPJ Science of Learning, 4(1), 1–6.
- Greenwood, N., Mezey, G., & Smith, R. (2018). Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness. Maturitas, 112, 39–45. https://doi.org/10.1016/j.maturitas.2018.03.011
- Hecking, T., Chounta, I. A., & Hoppe, H. U. (2015). Analysis of user roles and the emergence of themes in discussion forums. 2015 Second European Network Intelligence Conference, 114–121. https://doi.org/10.1109/ENIC.2015.24
- Iliffe, S., & Wilcock, J. (2005). The identification of barriers to the recognition of, and response to, dementia in primary care using a modified focus group approach. Dementia, 4(1), 73–85. https://doi.org/10.1177/1471301205049191
- Jeong, J. S., Kim, S. Y., & Kim, J.-N. (2020). Ashamed caregivers: Self-stigma, information, and coping among dementia patient families. Journal of Health Communication, 25(11), 870–878.
- Jeong, J. S., Kim, Y., & Chon, M.-G. (2018). Who is caring for the caregiver? The role of cybercoping for dementia caregivers. Health communication, 33(1), 5–13.
- Kim, J. N., & Lee, S. (2014). Communication and cybercoping: Coping with chronic illness through communicative action in online support networks. Journal of Health Communication, 19(7), 775–794.
- Kraut, R., Kiesler, S., Boneva, B., Cummings, J., Helgeson, V., & Crawford, A. (2002). Internet paradox revisited. Journal of Social Issues, 58(1), 49–74.
- Mahoney, R., Regan, C., Katona, C., & Livingston, G. (2005). Anxiety and depression in family caregivers of people with Alzheimer disease: The LASER-AD study. The American Journal of Geriatric Psychiatry, 13(9), 795–801.
- McCabe, M., You, E., & Tatangelo, G. (2016). Hearing their voice: A systematic review of dementia family caregivers’ needs. The Gerontologist, 56(5), 70–88.
- McInerney, F., Doherty, K., Bindoff, A., Robinson, A., & Vickers, J. (2018). How is palliative care understood in the context of dementia? Results from a massive open online course. Palliative Medicine, 32(3), 594–602.
- McKechnie, V., Barker, C., & Stott, J. (2014). The effectiveness of an Internet support forum for carers of people with dementia: A pre-post cohort study. Journal of Medical Internet Research, 16(2), e68.
- Melunsky, N., Crellin, N., Dudzinski, E., Orrell, M., Wenborn, J., Poland, F., Woods, B., & Charlesworth, G. (2015). The experience of family carers attending a joint reminiscence group with people with dementia: A thematic analysis. Dementia, 14(6), 842–859. https://doi.org/10.1177/1471301213516332
- Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: A meta-analysis. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 62(2), 126–137.
- Porter, M. F. (2001). Snowball: A language for stemming algorithms. http://snowball.tartarus.org/texts/introduction.html
- R Development Core Team. (2013). R: A language and environment for statistical computing (Version 4.0.2) [computer software]. https://www.r-project.org/
- Reich, J., & Ruipérez-Valiente, J. A. (2019). The MOOC pivot. Science, 363(6423), 130–131.
- Roberts, M. E., Stewart, B. M., & Tingley, D. (2019). Stm: An R package for structural topic models. Journal of Statistical Software, 91(1), 1–40.
- Roberts, M. E., Stewart, B. M., Tingley, D., Lucas, C., Leder‐Luis, J., Gadarian, S. K., Albertson, B., & Rand, D. G. (2014). Structural topic models for open‐ended survey responses. American Journal of Political Science, 58(4), 1064–1082.
- Schofield, A., Magnusson, M., & Mimno, D. (2017). Pulling out the stops: Rethinking stopword removal for topic models. Proceedings of the 15th Conference of the European Chapter of the Association for Computational Linguistics: Volume 2, Short Papers, 432–436.
- Schulz, R., & Martire, L. M. (2004). Family caregiving of persons with dementia: Prevalence, health effects, and support strategies. The American Journal of Geriatric Psychiatry, 12(3), 240–249.
- Smyth, W., Fielding, E., Beattie, E., Gardner, A., Moyle, W., Franklin, S., Hines, S., & MacAndrew, M. (2013). A survey-based study of knowledge of Alzheimer’s disease among health care staff. BMC Geriatrics, 13(1), 2.
- Sunar, A. S., White, S., Abdullah, N. A., & Davis, H. C. (2016). How learners’ interactions sustain engagement: A MOOC case study. IEEE Transactions on Learning Technologies, 10(4), 475–487.
- Vasileiou, K., Barnett, J., Barreto, M., Vines, J., Atkinson, M., Lawson, S., & Wilson, M. (2017). Experiences of loneliness associated with being an informal caregiver: A qualitative investigation. Frontiers in Psychology, 8, 585.
- Vernooij-Dassen, M., Derksen, E., Scheltens, P., & Moniz-Cook, E. (2006). Receiving a diagnosis of dementia: The experience over time. Dementia, 5(3), 397–410.
- Victor, C. R., Rippon, I., Quinn, C., Nelis, S. M., Martyr, A., Hart, N., Lamont, R., & Clare, L. (2020). The prevalence and predictors of loneliness in caregivers of people with dementia: Findings from the IDEAL programme. Aging & Mental Health, 1–7.
- Vitaliano, P. P., Echeverria, D., Yi, J., Phillips, P. E., Young, H., & Siegler, I. C. (2005). Psychophysiological mediators of caregiver stress and differential cognitive decline. Psychology and Aging, 20(3), 402.
- Wang, X., Yang, D., Wen, M., Koedinger, K., & Rosé, C. P. (2015). Investigating how student’s cognitive behavior in MOOC discussion forums affect learning gains. Proceedings of the 8th International Conference on Educational Data Mining, 226–233.
- Wang, Y., McKee, M., Torbica, A., & Stuckler, D. (2019). Systematic literature review on the spread of health-related misinformation on social media. Social Science & Medicine, 240, 112552.
- Werner, P., Goldstein, D., & Buchbinder, E. (2010). Subjective experience of family stigma as reported by children of Alzheimer’s disease patients. Qualitative Health Research, 20(2), 159–169.
- Wise, A. F., & Cui, Y. (2018). Unpacking the relationship between discussion forum participation and learning in MOOCs: Content is key. Proceedings of the 8th International Conference on Learning Analytics and Knowledge, 330–339. https://doi.org/10.1145/3170358.3170403
- Wood, S. N. (2004). Stable and efficient multiple smoothing parameter estimation for generalized additive models. Journal of the American Statistical Association, 99(467), 673–686. https://doi.org/10.1198/016214504000000980
- Wood, S. N. (2017). Generalized additive models: An introduction with R. CRC Press.