Engage coaching for caregivers: a pilot trial to reduce loneliness in dementia caregivers

References

• Alexopoulos, G. S., Raue, P. J., Banerjee, S., Marino, P., Renn, B. N., Solomonov, N., Adeagbo, A., Sirey, J. A., Hull, T. D., Kiosses, D. N., Mauer, E., & Arean, P. A. (2021). Comparing the streamlined psychotherapy “Engage” with problem-solving therapy in late-life major depression. A randomized clinical trial. Molecular Psychiatry, 26(9), 5180–5189. https://doi.org/10.1038/s41380-020-0832-3
   PubMed Web of Science ®Google Scholar
• Ausin, B., Munoz, M., Martin, T., Perez-Santos, E., & Castellanos, M. A. (2019). Confirmatory factor analysis of the Revised UCLA Loneliness Scale (UCLA LS-R) in individuals over 65. Aging & Mental Health, 23(3), 345–351. https://doi.org/10.1080/13607863.2017.1423036
   PubMed Web of Science ®Google Scholar
• Beeson, R. A. (2003). Loneliness and depression in spousal caregivers of those with Alzheimer’s disease versus non-caregiving spouses. Archives of Psychiatric Nursing, 17(3), 135–143. https://www.ncbi.nlm.nih.gov/pubmed/12840806 https://doi.org/10.1016/s0883-9417(03)00057-8
   PubMed Web of Science ®Google Scholar
• Cella, D., Lai, J. S., Jensen, S. E., Christodoulou, C., Junghaenel, D. U., Reeve, B. B., & Stone, A. A. (2016). PROMIS fatigue item bank had clinical validity across diverse chronic conditions. Journal of Clinical Epidemiology, 73, 128–134. https://doi.org/10.1016/j.jclinepi.2015.08.037
   PubMed Web of Science ®Google Scholar
• Clark, M. S., & Bond, M. J. (2000). The effect on lifestyle activities of caring for a person with dementia. Psychology Health & Medicine, 5(1), 13–27. https://doi.org/10.1080/135485000105972
   Google Scholar
• Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24(4), 385–396.
   PubMed Web of Science ®Google Scholar
• Eldridge, S. M., Chan, C. L., Campbell, M. J., Bond, C. M., Hopewell, S., Thabane, L., & Lancaster, G. A. (2016). CONSORT 2010 statement: Extension to randomised pilot and feasibility trials. BMJ, 355, i5239. https://doi.org/10.1136/bmj.i5239
   PubMed Web of Science ®Google Scholar
• Griffiths, P. C., Kovaleva, M., Higgins, M., Langston, A. H., & Hepburn, K. (2018). Tele-Savvy: An online program for dementia caregivers. American Journal of Alzheimer’s Disease and Other Dementias, 33(5), 269–276. https://doi.org/10.1177/1533317518755331
   PubMedGoogle Scholar
• Hahn, E. A., Beaumont, J. L., Pilkonis, P. A., Garcia, S. F., Magasi, S., DeWalt, D. A., & Cella, D. (2016). The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations. Journal of Clinical Epidemiology, 73, 135–141. https://doi.org/10.1016/j.jclinepi.2015.08.034
   PubMed Web of Science ®Google Scholar
• Hahn, E. A., Devellis, R. F., Bode, R. K., Garcia, S. F., Castel, L. D., Eisen, S. V., Bosworth, H. B., Heinemann, A. W., Rothrock, N., Cella, D., & Group, P. C.(2010). Measuring social health in the patient-reported outcomes measurement information system (PROMIS): Item bank development and testing. Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 19(7), 1035–1044. https://doi.org/10.1007/s11136-010-9654-0
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Scott, K. W., Lebo, L., Hassan, N., Lightner, C., & Pulley, J. (2012). ResearchMatch: A national registry to recruit volunteers for clinical research. Academic Medicine: journal of the Association of American Medical Colleges, 87(1), 66–73. https://doi.org/10.1097/ACM.0b013e31823ab7d2
   PubMed Web of Science ®Google Scholar
• Harris, P. A., Taylor, R., Thielke, R., Payne, J., Gonzalez, N., & Conde, J. G. (2009). Research electronic data capture (REDCap)–A metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics, 42(2), 377–381. https://doi.org/10.1016/j.jbi.2008.08.010
   PubMed Web of Science ®Google Scholar
• Hepburn, K. W., Lewis, M., Sherman, C. W., & Tornatore, J. (2003). The savvy caregiver program: Developing and testing a transportable dementia family caregiver training program. The Gerontologist, 43(6), 908–915. https://doi.org/10.1093/geront/43.6.908
   PubMed Web of Science ®Google Scholar
• Holt-Lunstad, J. (2021). The major health implications of social connection. Current Directions in Psychological Science, 30(3), 251–259. https://doi.org/10.1177/0963721421999630
   Web of Science ®Google Scholar
• Holt-Lunstad, J., Robles, T. F., & Sbarra, D. A. (2017). Advancing social connection as a public health priority in the United States. The American Psychologist, 72(6), 517–530. https://doi.org/10.1037/amp0000103
   PubMed Web of Science ®Google Scholar
• Hughes, M. E., Waite, L. J., Hawkley, L. C., & Cacioppo, J. T. (2004). A short scale for measuring loneliness in large surveys: results from two population-based studies. Research on Aging, 26(6), 655–672. https://doi.org/10.1177/0164027504268574
   PubMed Web of Science ®Google Scholar
• Insel, T. R., & Gogtay, N. (2014). National Institute of Mental Health clinical trials: New opportunities, new expectations. JAMA Psychiatry, 71(7), 745–746. https://doi.org/10.1001/jamapsychiatry.2014.426
   PubMed Web of Science ®Google Scholar
• Karayannis, N. V., Baumann, I., Sturgeon, J. A., Melloh, M., & Mackey, S. C. (2019). The impact of social isolation on pain interference: A longitudinal study. Annals of Behavioral Medicine: a Publication of the Society of Behavioral Medicine, 53(1), 65–74. https://doi.org/10.1093/abm/kay017
   PubMed Web of Science ®Google Scholar
• Knopman, D. S., Roberts, R. O., Geda, Y. E., Pankratz, V. S., Christianson, T. J., Petersen, R. C., & Rocca, W. A. (2010). Validation of the telephone interview for cognitive status-modified in subjects with normal cognition, mild cognitive impairment, or dementia. Neuroepidemiology, 34(1), 34–42. https://doi.org/10.1159/000255464
   PubMed Web of Science ®Google Scholar
• Kovaleva, M., Spangler, S., Clevenger, C., & Hepburn, K. (2018). Chronic stress, social isolation, and perceived loneliness in dementia caregivers. Journal of Psychosocial Nursing and Mental Health Services, 56(10), 36–43. https://doi.org/10.3928/02793695-20180329-04
   PubMed Web of Science ®Google Scholar
• Lee, E. E., Depp, C., Palmer, B. W., Glorioso, D., Daly, R., Liu, J., Tu, X. M., Kim, H. C., Tarr, P., Yamada, Y., & Jeste, D. V. (2019). High prevalence and adverse health effects of loneliness in community-dwelling adults across the lifespan: Role of wisdom as a protective factor. International Psychogeriatrics, 31(10), 1447–1462. https://doi.org/10.1017/S1041610218002120
   PubMed Web of Science ®Google Scholar
• Leggett, A. N., Meyer, O. L., Bugajski, B. C., & Polenick, C. A. (2021). Accentuate the positive: The association between informal and formal supports and caregiving gains. Journal of Applied Gerontology : The Official Journal of the Southern Gerontological Society, 40(7), 763–771. https://doi.org/10.1177/0733464820914481
   PubMedGoogle Scholar
• National Academies of Sciences. (2021). Meeting the challenge of caring for persons living with dementia and their care partners and caregivers: A way forward. Washington, D.C: T. N. A. Press.
   Google Scholar
• Onken, L. (2022). Implementation science at the national institute on aging: The principles of It. Public Policy & Aging Report, 32(1), 39–41. https://doi.org/10.1093/ppar/prab034
   Google Scholar
• Onken, L. S., Carroll, K. M., Shoham, V., Cuthbert, B. N., & Riddle, M. (2014). Reenvisioning clinical science: Unifying the discipline improve the public health. Clinical Psychological Science : a Journal of the Association for Psychological Science, 2(1), 22–34. https://doi.org/10.1177/2167702613497932
   PubMedGoogle Scholar
• Pinquart, M., & Sorensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45(1), 90–106. https://doi.org/10.1093/geront/45.1.90
   PubMed Web of Science ®Google Scholar
• Revicki, D. A., Cella, D., Hays, R. D., Sloan, J. A., Lenderking, W. R., & Aaronson, N. K. (2006). Responsiveness and minimal important differences for patient reported outcomes. Health and Quality of Life Outcomes, 4(1), 70. https://doi.org/10.1186/1477-7525-4-70
   PubMed Web of Science ®Google Scholar
• Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A broader view of family caregiving: Effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 64(6), 788–798. https://doi.org/10.1093/geronb/gbp015
   PubMed Web of Science ®Google Scholar
• Russell, D. W. (1996). UCLA loneliness scale (Version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66(1), 20–40. https://doi.org/10.1207/s15327752jpa6601_2
   PubMed Web of Science ®Google Scholar
• Schalet, B. D., Pilkonis, P. A., Yu, L., Dodds, N., Johnston, K. L., Yount, S., Riley, W., & Cella, D. (2016). Clinical validity of PROMIS depression, anxiety, and Anger across diverse clinical samples. Journal of Clinical Epidemiology, 73, 119–127. https://doi.org/10.1016/j.jclinepi.2015.08.036
   PubMed Web of Science ®Google Scholar
• Sidani, S., Epstein, D. R., Bootzin, R. R., Moritz, P., & Miranda, J. (2009). Assessment of preferences for treatment: Validation of a measure. Research in Nursing & Health, 32(4), 419–431. https://doi.org/10.1002/nur.20329
   PubMed Web of Science ®Google Scholar
• Skevington, S. M., Lotfy, M., & O’Connell, K. A. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 13(2), 299–310. https://doi.org/10.1023/B:QURE.0000018486.91360.00
   PubMed Web of Science ®Google Scholar
• Thornton, M., & Travis, S. S. (2003). Analysis of the reliability of the modified caregiver strain index. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 58(2), S127–S132. https://doi.org/10.1093/geronb/58.2.s127
   PubMed Web of Science ®Google Scholar
• Van Orden, K. A., Areán, P. A., & Conwell, Y. (2021). A pilot randomized trial of engage psychotherapy to increase social connection and reduce suicide risk in later life. The American Journal of Geriatric Psychiatry : official Journal of the American Association for Geriatric Psychiatry, 29(8), 789–800. https://doi.org/10.1016/j.jagp.2021.03.009
   PubMed Web of Science ®Google Scholar
• Van Orden, K. A., & Heffner, K. L. (2022). Promoting social connection in dementia caregivers: A call for empirical development of targeted interventions. The Gerontologist, 62(9), 1258–1265. https://doi.org/10.1093/geront/gnac032
   PubMed Web of Science ®Google Scholar
• Vasileiou, K., Barnett, J., Barreto, M., Vines, J., Atkinson, M., Lawson, S., & Wilson, M. (2017). Experiences of loneliness associated with being an informal caregiver: A qualitative investigation. Frontiers in Psychology, 8, 585. https://doi.org/10.3389/fpsyg.2017.00585
   PubMed Web of Science ®Google Scholar
• Wang, Z., Ma, C., Han, H., He, R., Zhou, L., Liang, R., & Yu, H. (2018). Caregiver burden in Alzheimer’s disease: Moderation effects social support and mediation effects of positive aspects of caregiving. International Journal of Geriatric Psychiatry, 33(9), 1198–1206. https://doi.org/10.1002/gps.4910
   Web of Science ®Google Scholar