Understanding the caregiving experiences of Asian Indian, Chinese, Korean, and Vietnamese American family care partners of persons living with dementia

References

• Alzheimer’s Association. (2022). 2022 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 18(4), 700–789. https://doi.org/10.1002/alz.12638
   PubMed Web of Science ®Google Scholar
• Ashida, S., Marcum, C. S., & Koehly, L. M. (2018). Unmet expectations in Alzheimer’s family caregiving: Interactional characteristics associated with perceived under-contribution. Gerontologist, 58(2), e46–e55. https://doi.org/10.1093/geront/gnx141
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Guo, M., Kim, S., & Dong, X. (2019). Sense of filial obligation and caregiving burdens among Chinese immigrants in the United States. Journal of the American Geriatrics Society, 67(S3), S564–S570. https://doi.org/10.1111/jgs.15735
   PubMedGoogle Scholar
• Hu, M., Ma, C., Sadarangani, T., & Wu, B. (2021). Social-behavioral interventions for Asian and Hispanic American dementia caregivers: An integrative review. Aging and Health Research, 1(3), 100027. https://doi.org/10.1016/j.ahr.2021.100027
   Google Scholar
• Jang, Y., Yoon, H., Park, N. S., Rhee, M.-K., & Chiriboga, D. A. (2018). Asian Americans’ concerns and plans about Alzheimer’s disease: The role of exposure, literacy and cultural beliefs. Health & Social Care in the Community, 26(2), 199–206. https://doi.org/10.1111/hsc.12509
   PubMed Web of Science ®Google Scholar
• Kasper, J. D., Freedman, V. A., Spillman, B. C., & Wolff, J. L. (2015). The disproportionate impact of dementia on family and unpaid caregiving to older adults. Health Affairs (Project Hope), 34(10), 1642–1649. https://doi.org/10.1377/hlthaff.2015.0536
   PubMed Web of Science ®Google Scholar
• Kasper, J. D., Freedman, V. A., Spillman, B. C. (2014). Disability and care needs of older Americans by dementia status: An analysis of the 2011 National Health and Aging Trends Study. https://aspe.hhs.gov/reports/disability-care-needs-older-americans-dementia-status-analysis-2011-national-health-aging-trends-1
   Google Scholar
• Kim, H. J., Kehoe, P., Gibbs, L. M., & Lee, J.-A. (2019). Caregiving experience of dementia among Korean American family caregivers. Issues in Mental Health Nursing, 40(2), 158–165. https://doi.org/10.1080/01612840.2018.1534909
   PubMed Web of Science ®Google Scholar
• Krueger, R. A., Casey, M. A. (2014). Focus Groups: A Practical Guide for Applied Research. United States: SAGE Publications.
   Google Scholar
• Lee Casado, B., Lee, S. E., Hong, M., & Hong, S. (2015). The experience of family caregivers of older Korean Americans with dementia symptoms. Clinical Gerontologist, 38(1), 32–48. https://doi.org/10.1080/07317115.2014.970316
   Web of Science ®Google Scholar
• Lee, S. E., Diwan, S., & Yeo, G. (2010). Causal attributions of dementia among Korean American immigrants. Journal of Gerontological Social Work, 53(8), 743–759. https://doi.org/10.1080/01634372.2010.515290
   PubMedGoogle Scholar
• Liu, D., Hinton, L., Tran, C., Hinton, D., & Barker, J. C. (2008). Reexamining the Relationships Among Dementia, Stigma, and Aging in Immigrant Chinese and Vietnamese Family Caregivers. Journal of Cross-Cultural Gerontology, 23(3), 283–299. https://doi.org/10.1007/s10823-008-9075-5
   Google Scholar
• Liu, C., Badana, A. N. S., Burgdorf, J., Fabius, C. D., Roth, D. L., & Haley, W. E. (2021). Systematic review and meta-analysis of racial and ethnic differences in dementia caregivers’ well-being. Gerontologist, 61(5), e228–e243. https://doi.org/10.1093/geront/gnaa028
   PubMed Web of Science ®Google Scholar
• Liu, J., Lou, Y., Wu, B., & Mui, A. C. Y.-S. (2021). “I’ve been always strong to conquer any suffering:” Challenges and resilience of Chinese American dementia caregivers in a life course perspective. Aging & Mental Health, 25(9), 1716–1724. https://doi.org/10.1080/13607863.2020.1793900
   PubMed Web of Science ®Google Scholar
• Manly, J. J., & Mayeux, R. (2004). Ethnic differences in dementia and Alzheimer’s disease. In N. B. Anderson, R. A. Bulatao, & B. Cohen (Eds.). Critical perspectives on racial and ethnic differences in health in late life. National Academies Press.
   Google Scholar
• Meyer, O. L., Nguyen, K. H., Dao, T. N., Vu, P., Arean, P., & Hinton, L. (2015). The sociocultural context of caregiving experiences for Vietnamese dementia family caregivers. Asian American Journal of Psychology, 6(3), 263–272. https://doi.org/10.1037/aap0000024
   PubMed Web of Science ®Google Scholar
• Montenegro, X. (2014). Caregiving among Asian Americans and Pacific Islanders Age 50. AARP Report. https://doi.org/10.26419/res.00092.001
   Google Scholar
• Mueller, A., Thao, L., Condon, O., Liebzeit, D., & Fields, B. (2022). A systematic review of the needs of dementia caregivers across care settings. Home Health Care Management & Practice, 34(2), 133–147. https://doi.org/10.1177/10848223211056928
   Web of Science ®Google Scholar
• Nguyen, H., Zaragoza, M., Wussler, N., & Lee, J.-A. (2020). “I was confused about how to take care of mom because this disease is different everyday”: Vietnamese American caregivers’ understanding of Alzheimer’s disease. Journal of Cross-Cultural Gerontology, 35(2), 217–234. https://doi.org/10.1007/s10823-020-09396-7
   PubMed Web of Science ®Google Scholar
• Spillman, B., Wolff, J., Freedman, V. A., Kasper, J. D. (2014). Informal caregiving for older Americans: An analysis of the 2011 National Health and Aging Trends Study. https://aspe.hhs.gov/reports/informal-caregiving-older-americans-analysis-2011-national-study-caregiving
   Google Scholar
• Steenland, K., Goldstein, F. C., Levey, A., & Wharton, W. (2016). A meta-analysis of Alzheimer’s disease incidence and prevalence comparing African-Americans and Caucasians. Journal of Alzheimer’s Disease: JAD, 50(1), 71–76. https://doi.org/10.3233/JAD-150778
   PubMed Web of Science ®Google Scholar
• Ta Park, V., Grill, J. D., Zhu, J., Nguyen, K., Nam, B., Tsoh, J., Kanaya, A., Vuong, Q., Bang, J., Nguyen, N., Cho, I. H., Gallagher-Thompson, D., Hinton, L., & Meyer, O. L. (2021). Asian Americans and Pacific Islanders’ perspectives on participating in the CARE recruitment research registry for Alzheimer’s disease and related dementias, aging, and caregiving research. Alzheimer’s & Dementia (New York, N. Y.), 7(1), e12195. https://doi.org/10.1002/trc2.12195
   PubMedGoogle Scholar
• Ta Park, V., Nguyen, K., Tran, Y., Yeo, G., Tiet, Q., Suen, J., & Gallagher-Thompson, D. (2018). Perspectives and insights from Vietnamese American mental health professionals on how to culturally tailor a Vietnamese dementia caregiving program. Clinical Gerontologist, 41(3), 184–199. https://doi.org/10.1080/07317115.2018.1432734
   PubMed Web of Science ®Google Scholar