Informal care and mental health in Germany: What are the differences between non-migrants and ethnic German immigrants? A longitudinal comparative analysis

References

• Andersen, H. H., Mühlbacher, A., Nübling, M., Schupp, J., & Wagner, G. G. (2007). Computation of standard values for physical and mental health scale scores using the SOEP version of SF-12v2. Journal of Contextual Economics—Schmollers Jahrbuch, 127(1), 171–182. https://doi.org/10.3790/schm.127.1.171
   Google Scholar
• Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (2010). Profiles in caregiving: The unexpected career. Academic Press. https://www.sciencedirect.com/science/book/9780120595402
   Google Scholar
• Allison, Paul D. (2009): Fixed effects regression models. Los Angeles/London/New Delhi/Singapore/Washington DC: Sage.
   Google Scholar
• Austin, P. C., & Stuart, E. A. (2015). Moving towards best practice when using inverse probability of treatment weighting (IPTW) using the propensity score to estimate causal treatment effects in observational studies. Statistics in Medicine, 34(28), 3661–3679. https://doi.org/10.1002/sim.6607
   PubMed Web of Science ®Google Scholar
• Bohlender, A., Rathje, M., Glemser, A. (2020). SOEP-Core - 2018: Report of survey methodology and fieldwork (SOEP Survey Papers No. 824). Berlin. German Institute for Economic Research (DIW Berlin). https://www.econstor.eu/bitstream/10419/214745/1/1691966843.pdf
   Google Scholar
• Bolger, N., & Zuckerman, A. (1995). A framework for studying personality in the stress process. Journal of Personality and Social Psychology, 69(5), 890–902. https://doi.org/10.1037//0022-3514.69.5.890
   PubMed Web of Science ®Google Scholar
• Chang, C. D. (2019). Social determinants of health and health disparities among immigrants and their children. Current Problems in Pediatric and Adolescent Health Care, 49(1), 23–30. https://doi.org/10.1016/j.cppeds.2018.11.009
   PubMed Web of Science ®Google Scholar
• Cobb-Clark, D. A., & Schurer, S. (2012). The stability of big-five personality traits. Economics Letters, 115(1), 11–15. https://doi.org/10.1016/j.econlet.2011.11.015
   Web of Science ®Google Scholar
• Corey Magan, K., McCurry, M. K., Sethares, K. A., Bourbonniere, M., Meghani, S. H., & Hirschman, K. B. (2020). The post-caregiving health model: A theoretical framework for understanding the health of former family caregivers of persons with dementia. ANS. Advances in Nursing Science, 43(4), 292–305. https://doi.org/10.1097/ANS.0000000000000316
   PubMed Web of Science ®Google Scholar
• Cui, J. (2007). QIC program and model selection in GEE analyses. The Stata Journal: Promoting Communications on Statistics and Stata, 7(2), 209–220. https://doi.org/10.1177/1536867X0700700205
   Google Scholar
• Dietz, B. (2006). Aussiedler in Germany: From smooth adaptation to tough integration. In D. Feldman, J. Oltmer, & L. Lucassen (Eds.), IMISCOE research. Paths of integration: Migrants in Western Europe (1880–2004 ) (pp. 116–138). Amsterdam University Press.
   Google Scholar
• Federal Statistical Office. (2020). People in need of long-term care. https://www.destatis.de/EN/Themes/Society-Environment/Health/Long-Term-Care/Tables/people-long-term-care.html
   Google Scholar
• Ehrlich, U., Kelle, N. (2019). Hilfe- und Pflegetätigkeit im Lebensverlauf: wer pflegt, für wen, wo und wie? [Help and care activities over the life course: who cares, for whom, where and how?]. Deutsches Zentrum für Altersfragen (German Centre of Gerontology). DZA-Fact Sheet. https://nbn-resolving.org/urn:nbn:de:0168-ssoar-62585-3
   Google Scholar
• Federal Ministry of Health. (2020). Long-Term Care Guide: Everything you need to know about long-term care. Berlin. Bundesministerium für Gesundheit (Federal Ministry of Health). https://www.bundesgesundheitsministerium.de/fileadmin/Dateien/5_Publikationen/Pflege/Broschueren/200320_BMG_Ratgeber-Pflege_DINA5_ENG_bf.pdf
   Google Scholar
• Federal Statistical Office. (2021). Bevölkerung und Erwerbstätigkeit: Bevölkerung mit Migrationshintergrund - Ergebnisse des Mikrozensus 2020 [Population and employment: Population with a migration background - results of the 2020 microcensus]. Federal Statistical Office of Germany.
   Google Scholar
• Fewell, Z., Hernán, M. A., Wolfe, F., Tilling, K., Choi, H., & Sterne, J. A. C. (2004). Controlling for time-dependent confounding using marginal structural models. The Stata Journal: Promoting Communications on Statistics and Stata, 4(4), 402–420. https://doi.org/10.1177/1536867X0400400403
   Google Scholar
• Georges, D. (2022). The effect of informal caregiving on physical health among non-migrants and ethnic German Immigrants in Germany: A cohort analysis based on the GSOEP 2000-2018. BMC Public Health, 22(1), 121. https://doi.org/10.1186/s12889-022-12550-0
   PubMed Web of Science ®Google Scholar
• Gerlitz, J.Y., Schupp, J. (2005). Zur Erhebung der Big-Five-basierten Persönlichkeitsmerkmale im SOEP: Dokumentation der Instrumentenentwicklung BFI-S auf der Basis des SOEP-Pretests 2005 [On the Survey of Big Five-Based Personality Traits in the SOEP - Documentation of the BFI-S Instrument Development on the Basis of the 2005 SOEP Pretest] ‑ (Research Notes No. 4). Berlin. DIW Berlin. https://www.diw.de/documents/publikationen/73/diw_01.c.43490.de/rn4.pdf
   Google Scholar
• Geyer, J., & Schulz, E. (2014). Who cares? Die Bedeutung der informallen Pflege durch Erwerbstätige in Deutschland [Who cares? The importance of informal care by the working population in Germany]. (DIW Wochenbericht No. 14).
   Google Scholar
• Gramlich, T. (2008). Analyse der Panelausfälle im Sozio-oekonomischen Panel SOEP [Analysis of panel attrition in the socio-economic panel SOEP] (SOEP Survey Papers No. 129). Berlin. German Institute for Economic Research (DIW Berlin). https://www.diw.de/documents/publikationen/73/diw_01.c.89659.de/diw_sp0129.pdf
   Google Scholar
• Greenhaus, J. H., & Beutell, N. J. (1985). Sources of conflict between work and family roles. The Academy of Management Review, 10(1), 76. https://doi.org/10.2307/258214
   Web of Science ®Google Scholar
• Hajek, A., & König, H. ‑H. (2016). Informal caregiving and subjective well-being: Evidence of a population-based longitudinal study of older adults in Germany. Journal of the American Medical Directors Association, 17(4), 300–305. https://doi.org/10.1016/j.jamda.2015.10.015
   PubMed Web of Science ®Google Scholar
• Hajek, A., & König, H. ‑H. (2018b). The relation between personality, informal caregiving, life satisfaction and health-related quality of life: Evidence of a longitudinal study. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 27(5), 1249–1256. https://doi.org/10.1007/s11136-018-1787-6
   PubMed Web of Science ®Google Scholar
• Hajek, A, & König, H. H. ‑ (2018a). Informal caregiving and personality: Results of a population-based longitudinal study in Germany. PLoS One, 13(9), e0203586. https://doi.org/10.1371/journal.pone.0203586
   PubMed Web of Science ®Google Scholar
• Hoffmann, R., & Doblhammer, G. (2021). Approaches and methods for causal analysis of panel data in the area of morbidity and mortality. Comparative Population Studies, 46. https://doi.org/10.12765/CPoS-2021-03
   Web of Science ®Google Scholar
• Hooker, K., Monahan, D. J., Bowman, S. R., Frazier, L. D., & Shifren, K. (1998). Personality counts for a lot: Predictors of mental and physical health of spouse caregivers in two disease groups. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 53(2), P73–85. https://doi.org/10.1093/geronb/53b.2.p73
   PubMed Web of Science ®Google Scholar
• Jenkinson, C., Chandola, T., Coulter, A., & Bruster, S. (2001). An assessment of the construct validity of the SF-12 summary scores across ethnic groups. Journal of Public Health Medicine, 23(3), 187–194. https://doi.org/10.1093/pubmed/23.3.187
   PubMedGoogle Scholar
• Jokela, M. (2014). Personality and the realization of migration desires. In P. J. Rentfrow (Ed.), Geographical psychology: Exploring the interaction of environment and behavior (pp. 71–87). American Psychological Association. https://doi.org/10.1037/14272-005
   Google Scholar
• Kaschowitz, J., & Brandt, M. (2017). Health effects of informal caregiving across Europe: A longitudinal approach. Social Science & Medicine (1982), 173, 72–80. https://doi.org/10.1016/j.socscimed.2016.11.036
   PubMed Web of Science ®Google Scholar
• Kim, G., Allen, R. S., Wang, S. Y., Park, S., Perkins, E. A., & Parmelee, P. (2019). The relation between multiple informal caregiving roles and subjective physical and mental health status among older adults: Do racial/ethnic differences exist? The Gerontologist, 59(3), 499–508. https://doi.org/10.1093/geront/gnx196
   PubMed Web of Science ®Google Scholar
• Kornischka, J., Assion, H. ‑J., Ziegenbein, M., & Agelink, M. W. (2008). Psychosoziale Belastungsfaktoren und psychische Erkrankungen bei Spätaussiedlern [Psychosocial problems and mental disorders among immigrants of German origin]. Psychiatrische Praxis, 35(2), 60–66. https://doi.org/10.1055/s-2007-971023
   PubMedGoogle Scholar
• Lamers, S. M., Westerhof, G. J., Kovács, V., & Bohlmeijer, E. T. (2012). Differential relationships in the association of the big five personality traits with positive mental health and psychopathology. Journal of Research in Personality, 46(5), 517–524. https://doi.org/10.1016/j.jrp.2012.05.012
   Web of Science ®Google Scholar
• Lautenschlager, N. T., Kurz, A. F., Loi, S., & Cramer, B. (2013). Personality of mental health caregivers. Current Opinion in Psychiatry, 26(1), 97–101. https://doi.org/10.1097/YCO.0b013e32835997b3
   PubMedGoogle Scholar
• Le, D. D., & Ibuka, Y. (2023). Understanding the effects of informal caregiving on health and well-being: Heterogeneity and mechanisms. Social Science & Medicine (1982), 317, 115630. https://doi.org/10.1016/j.socscimed.2022.115630
   PubMed Web of Science ®Google Scholar
• Leigh, A. (2010). Informal care and labor market participation. Labour Economics, 17(1), 140–149. https://doi.org/10.1016/j.labeco.2009.11.005
   Web of Science ®Google Scholar
• Marmot, M., Allen, J., Bell, R., Bloomer, E., & Goldblatt, P, Consortium for the European Review of Social Determinants of Health and the Health Divide. (2012). WHO European review of social determinants of health and the health divide. Lancet (London, England), 380(9846), 1011–1029. https://doi.org/10.1016/S0140-6736(12)61228-8
   PubMed Web of Science ®Google Scholar
• McCrae, R. R., & Costa, P. T. (2006). Personality in adulthood: A five-factor theory perspective. Guilford Press.
   Google Scholar
• Pacheco Barzallo, D. (2018). Spillover effects of long-term disabilities on close family members. Applied Health Economics and Health Policy, 16(3), 347–355. https://doi.org/10.1007/s40258-018-0391-9
   PubMed Web of Science ®Google Scholar
• Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Penning, M. J., & Wu, Z. (2016). Caregiver stress and mental health: Impact of caregiving relationship and gender. The Gerontologist, 56(6), 1102–1113. https://doi.org/10.1093/geront/gnv038
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250–267. https://doi.org/10.1037/0882-7974.18.2.250
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. The Gerontologist, 45(1), 90–106. https://doi.org/10.1093/geront/45.1.90
   PubMed Web of Science ®Google Scholar
• Rafnsson, S. B., Shankar, A., & Steptoe, A. (2017). Informal caregiving transitions, subjective well-being and depressed mood: Findings from the English longitudinal study of ageing. Aging & Mental Health, 21(1), 104–112. https://doi.org/10.1080/13607863.2015.1088510
   PubMed Web of Science ®Google Scholar
• Raina, P., O’Donnell, M., Schwellnus, H., Rosenbaum, P., King, G., Brehaut, J., Russell, D., Swinton, M., King, S., Wong, M., Walter, S. D., & Wood, E. (2004). Caregiving process and caregiver burden: Conceptual models to guide research and practice. BMC Pediatrics, 4(1). https://doi.org/10.1186/1471-2431-4-1
   Google Scholar
• Reis, M. F., Gold, D. P., Andres, D., Markiewicz, D., & Gauthier, S. (1994). Personality traits as determinants of burden and health complaints in caregiving. International Journal of Aging & Human Development, 39(3), 257–271. https://doi.org/10.2190/6LYN-YFWQ-P87D-MKWX
   PubMed Web of Science ®Google Scholar
• Richardson, T. J., Lee, S. J., Berg-Weger, M., & Grossberg, G. T. (2013). Caregiver health: Health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(7), 367. https://doi.org/10.1007/s11920-013-0367-2
   PubMed Web of Science ®Google Scholar
• Rohr, M. K., Wagner, J., & Lang, F. R. (2013). Effects of personality on the transition into caregiving. Psychology and Aging, 28(3), 692–700. https://doi.org/10.1037/a0034133
   PubMed Web of Science ®Google Scholar
• Roth, D. L., Perkins, M., Wadley, V. G., Temple, E. M., & Haley, W. E. (2009). Family caregiving and emotional strain: Associations with quality of life in a large national sample of middle-aged and older adults. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation, 18(6), 679–688. https://doi.org/10.1007/s11136-009-9482-2
   PubMed Web of Science ®Google Scholar
• Rothgang, H., & Müller, R. (2021). Wirkungen der Pflegereformen und Zukunftstrends [Effects of care reforms and future trends]. Schriftenreihe zur Gesundheitsanalyse (Vol. 32).
   Google Scholar
• Savage, S., & Bailey, S. (2004). The impact of caring on caregivers’ mental health: A review of the literature. Australian Health Review: A Publication of the Australian Hospital Association, 27(1), 111–117. https://doi.org/10.1071/ah042710111
   PubMedGoogle Scholar
• Schmidt, M., & Schneekloth, U. (2011). Abschlussbericht zur Studie "Wirkungen des Pflege-Weiterentwicklungsgesetzes" [Final report on the study "Effects of the Further Development of Care Act"] Berlin. Bundesministerium für Gesundheit (Federal Ministry of Health).
   Google Scholar
• Schmitz, H., & Westphal, M. (2015). Short- and medium-term effects of informal care provision on female caregivers’ health. Journal of Health Economics, 42, 174–185. https://doi.org/10.1016/j.jhealeco.2015.03.002
   PubMed Web of Science ®Google Scholar
• Schulz, R., & Sherwood, P. R. (2008). Physical and mental health effects of family caregiving. The American Journal of Nursing, 108(9 Suppl), 23–27; quiz 27. https://doi.org/10.1097/01.NAJ.0000336406.45248.4c
   PubMed Web of Science ®Google Scholar
• Siegler, I. C., Brummett, B. H., Williams, R. B., Haney, T. L., & Dilworth-Anderson, P. (2010). Caregiving, residence, race, and depressive symptoms. Aging & Mental Health, 14(7), 771–778. https://doi.org/10.1080/13607861003713257
   PubMed Web of Science ®Google Scholar
• Sklenarova, H., Krümpelmann, A., Haun, M. W., Friederich, H. ‑C., Huber, J., Thomas, M., Winkler, E. C., Herzog, W., & Hartmann, M. (2015). When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors. Cancer, 121(9), 1513–1519. https://doi.org/10.1002/cncr.29223
   PubMed Web of Science ®Google Scholar
• Sowa, A., Tobiasz-Adamczyk, B., Topór-Mądry, R., Poscia, A., & La Milia, D. I. (2016). Predictors of healthy ageing: Public health policy targets. BMC Health Services Research, 16(S5), 289. https://doi.org/10.1186/s12913-016-1520-5
   PubMedGoogle Scholar
• Specht, J., Egloff, B., & Schmukle, S. C. (2011). Stability and change of personality across the life course: The impact of age and major life events on mean-level and rank-order stability of the big five. Journal of Personality and Social Psychology, 101(4), 862–882. https://doi.org/10.1037/a0024950
   PubMed Web of Science ®Google Scholar
• Specht, J., Luhmann, M., & Geiser, C. (2014). On the consistency of personality types across adulthood: Latent profile analyses in two large-scale panel studies. Journal of Personality and Social Psychology, 107(3), 540–556. https://doi.org/10.1037/a0036863
   PubMed Web of Science ®Google Scholar
• Stenberg, J., & Hjelm, K. (2023). Migrant informal caregiver perceptions and experiences of caring for a family member with dementia: A systematic review and thematic synthesis. Journal of Clinical Nursing, 32(9-10), 2178–2192. https://doi.org/10.1111/jocn.16390
   PubMed Web of Science ®Google Scholar
• Stolpe, S., Ouma, M., Winkler, V., Meisinger, C., Becher, H., & Deckert, A. (2018). Self-rated health among migrants from the former Soviet Union in Germany: A cross-sectional study. BMJ Open, 8(10), e022947. https://doi.org/10.1136/bmjopen-2018-022947
   PubMed Web of Science ®Google Scholar
• Sundström, G., Jegermalm, M., Abellán, A., Ayala, A., Pérez, J., Pujol, R., & Souto, J. (2018). Men and older persons also care, but how much? Assessing amounts of caregiving in Spain and Sweden. International Journal of Ageing and Later Life, 12(1), 75–90. https://doi.org/10.3384/ijal.1652-8670.17356
   Google Scholar
• Tennstedt, S., & Chang, B. H. (1998). The relative contribution of ethnicity versus socioeconomic status in explaining differences in disability and receipt of informal care. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 53(2), S61–S70. https://doi.org/10.1093/geronb/53b.2.s61
   PubMed Web of Science ®Google Scholar
• Trivedi, R., Beaver, K., Bouldin, E. D., Eugenio, E., Zeliadt, S. B., Nelson, K., Rosland, A. ‑M., Szarka, J. G., & Piette, J. D. (2014). Characteristics and well-being of informal caregivers: Results from a nationally-representative US survey. Chronic Illness, 10(3), 167–179. https://doi.org/10.1177/1742395313506947
   PubMedGoogle Scholar
• Ulusoy, N., & Graessel, E. (2017). Subjektive Belastung pflegender Angehöriger mit türkischem Migrationshintergrund in Deutschland: Validierung der türkischsprachigen Fassung der Häusliche-Pflege-Skala [Subjective burden of family caregivers with Turkish immigration background in Germany: Validation of the Turkish version of the Burden Scale for Family Caregivers]. Zeitschrift fur Gerontologie und Geriatrie, 50(4), 339–346. https://doi.org/10.1007/s00391-016-1044-y
   PubMedGoogle Scholar
• van Oyen, H., Nusselder, W., Jagger, C., Kolip, P., Cambois, E., & Robine, J. ‑M. (2013). Gender differences in healthy life years within the EU: An exploration of the "health-survival" paradox. International Journal of Public Health, 58(1), 143–155. https://doi.org/10.1007/s00038-012-0361-1
   PubMed Web of Science ®Google Scholar
• Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one’s physical health? A meta-analysis. Psychological Bulletin, 129(6), 946–972. https://doi.org/10.1037/0033-2909.129.6.946
   PubMed Web of Science ®Google Scholar
• Vlachantoni, A., Evandrou, M., Falkingham, J., & Robards, J. (2013). Informal care, health and mortality. Maturitas, 74(2), 114–118. https://doi.org/10.1016/j.maturitas.2012.10.013
   PubMed Web of Science ®Google Scholar
• Vogt, T., Pope, C., Mullooly, J., & Hollis, J. (1994). Mental health status as a predictor of morbidity and mortality: A 15-year follow-up of members of a health maintenance organization. American Journal of Public Health, 84(2), 227–231. https://doi.org/10.2105/AJPH.84.2.227
   PubMed Web of Science ®Google Scholar
• Worbs, S., Bund, E., Kohls, M., & Babka von Gostomski, C. (2013). (Spät-) Aussiedler in Deutschland. Eine Analyse aktueller Daten und Forschungsergebnisse: [Ethnic German Immigrants in Germany. An Analysis of Current Data and Research Results]. Universitätsbibliothek Tübingen. https://doi.org/10.15496/PUBLIKATION-1586
   Google Scholar
• World Health Organization. (2018). Report on the health of refugees and migrants in the WHO European Region: No public health without refugee and migrant health.
   Google Scholar