1,111
Views
0
CrossRef citations to date
0
Altmetric
General

Transferring people with dementia to severe challenging behavior specialized units, an in-depth exploration

, , , &
Pages 838-848 | Received 16 May 2023, Accepted 16 Oct 2023, Published online: 22 Nov 2023

References

  • Afram, B., Stephan, A., Verbeek, H., Bleijlevens, M. H. C., Suhonen, R., Sutcliffe, C., Raamat, K., Cabrera, E., Soto, M. E., Hallberg, I. R., Meyer, G., & Hamers, J. P. H, RightTimePlaceCare Consortium. (2014). Reasons for institutionalization of people with dementia: Informal caregiver reports from 8 European countries. Journal of the American Medical Directors Association, 15(2), 108–116. https://doi.org/10.1016/j.jamda.2013.09.012
  • Alzheimer’s Association. (2018). 2018 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 14(3), 367–429. https://doi.org/10.1016/j.jalz.2018.02.001
  • Bellantonio, S., Kenny, A. M., Fortinsky, R. H., Kleppinger, A., Robison, J., Gruman, C., Kulldorff, M., & Trella, P. M. (2008). Efficacy of a geriatrics team intervention for residents in dementia-specific assisted living facilities: Effect on unanticipated transitions. Journal of the American Geriatrics Society, 56(3), 523–528. https://doi.org/10.1111/j.1532-5415.2007.01591.x
  • Borsje, P., Wetzels, R. B., Lucassen, P. L., Pot, A. M., & Koopmans, R. T. (2015). The course of neuropsychiatric symptoms in community-dwelling patients with dementia: A systematic review. International Psychogeriatrics, 27(3), 385–405. https://doi.org/10.1017/S1041610214002282
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Brodaty, H., Draper, B. M., & Low, L. F. (2003). Behavioural and psychological symptoms of dementia: A seven-tiered model of service delivery. Medical Journal of Australia, 178(5), 231–234. https://doi.org/10.5694/j.1326-5377.2003.tb05169.x
  • Carrarini, C., Russo, M., Dono, F., Barbone, F., Rispoli, M. G., Ferri, L., Di Pietro, M., Digiovanni, A., Ajdinaj, P., Speranza, R., Granzotto, A., Frazzini, V., Thomas, A., Pilotto, A., Padovani, A., Onofrj, M., Sensi, S. L., & Bonanni, L. (2021). Agitation and dementia:L prevention and treatment strategies in acute and chronic conditions. Frontiers in Neurology, 12, 644317. https://doi.org/10.3389/fneur.2021.644317
  • Castle, N. G. (2001). Relocation of the elderly. Medical Care Research and Review: MCRR, 58(3), 291–333. https://doi.org/10.1177/107755870105800302
  • CCE. https://www.cce.nl/english
  • Dutch-Alzheimer-Society. (2021). Factsheet cijfers en feiten over dementie. https://www.alzheimer-nederland.nl/factsheet-cijfers-en-feiten-over-dementie
  • Edvardsson, D., Sandman, P. O., Nay, R., & Karlsson, S. (2009). Predictors of job strain in residential dementia care nursing staff. Journal of Nursing Management, 17(1), 59–65. https://doi.org/10.1111/j.1365-2834.2008.00891.x
  • Elo, S, & Kyngas, H. (2008) The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–15.
  • Falk, H., Wijk, H., & Persson, L. O. (2011). Frail older persons’ experiences of interinstitutional relocation. Geriatric Nursing (New York, N.Y.), 32(4), 245–256. https://doi.org/10.1016/j.gerinurse.2011.03.002
  • Garcia-Martin, V., Canto de Hoyos-Alonso, M., Delgado-Puebla, R., Ariza-Cardiel, G., & Del Cura-Gonzalez, I. (2023). Burden in caregivers of primary care patients with dementia: Influence of neuropsychiatric symptoms according to disease stage (NeDEM project). BMC Geriatrics, 23(1), 525. https://doi.org/10.1186/s12877-023-04234-0
  • Hazelhof, T. J., Schoonhoven, L., van Gaal, B. G., Koopmans, R. T., & Gerritsen, D. L. (2016). Nursing staff stress from challenging behaviour of residents with dementia: A concept analysis. International Nursing Review, 63(3), 507–516. https://doi.org/10.1111/inr.12293
  • Hopkinson, J. B., King, A., Mullins, J., Young, L., Kumar, S., Hydon, K., Muthukrishnan, S., Elliott, F., & Hopkinson, M. (2021). What happens before, during and after crisis for someone with dementia living at home: A systematic review. Dementia, 20(2), 570–612. https://doi.org/10.1177/1471301220901634
  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
  • Kahlke, R. M. (2014). Generic qualitative approaches: Pitfalls and benefits of methodological mixology. International Journal of Qualitative Methods, 13(1), 37–52. https://doi.org/10.1177/160940691401300119
  • Koopmans, R., Pellegrom, M., van der Geer, E. R. (2017). The Dutch move beyond the concept of nursing home physician specialists. Journal of the American Medical Directors Association, 18(9), 746–9.
  • Koopmans, R. T., Leerink, B., & Festen, D. A. (2022). Dutch long-term care in transition: A guide for other countries. Journal of the American Medical Directors Association, 23(2), 204–206. https://doi.org/10.1016/j.jamda.2021.09.013
  • Korstjens, I., & Moser, A. (2018). Series: Practical guidance to qualitative research. Part 4: Trustworthiness and publishing. European Journal of General Practice, 24(1), 120–124. https://doi.org/10.1080/13814788.2017.1375092
  • Lagerlund, H., Thunborg, C., & Sandborgh, M. (2022). Behaviour-directed interventions for problematic person transfer situations in two dementia care dyads: A single case design study. BMC Geriatrics, 22(1), 261. https://doi.org/10.1186/s12877-022-02952-5
  • Mallick, M. J., & Whipple, T. W. (2000). Validity of the nursing diagnosis of relocation stress syndrome. Nursing Research, 49(2), 97–100. https://doi.org/10.1097/00006199-200003000-00006
  • McKinney, A. A., & Melby, V. (2002). Relocation stress in critical care: A review of the literature. Journal of Clinical Nursing, 11(2), 149–157. https://doi.org/10.1046/j.1365-2702.2002.00577.x
  • Merriam, S. B. (2009). Qualitative research: A guide to design and implementation. Jossey – Bass.
  • Mirotznik, J., & Kamp, L. L. (2000). Cognitive status and relocation stress: A test of the vulnerability hypothesis. The Gerontologist, 40(5), 531–539. https://doi.org/10.1093/geront/40.5.531
  • Morse, D. L. (2000). Relocation stress syndrome is real. American Journal of Nursing, 100(8), 24AAAA. https://doi.org/10.2307/3522152
  • Palm, R., Sorg, C. G. G., Strobel, A., Gerritsen, D. L., & Holle, B. (2018). Severe agitation in dementia: An explorative secondary data analysis on the prevalence and associated factors in nursing home residents. Journal of Alzheimer’s Disease: JAD, 66(4), 1463–1470. https://doi.org/10.3233/JAD-180647
  • Ryman, F. V. M., Erisman, J. C., Darvey, L. M., Osborne, J., Swartsenburg, E., & Syurina, E. V. (2018). Health effects of the relocation of patients with dementia: A scoping review to inform medical and policy decision-making. The Gerontologist, 59(6), e674–e682. https://doi.org/10.1093/geront/gny031
  • Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907. https://doi.org/10.1007/s11135-017-0574-8
  • Savva, G. M., Zaccai, J., Matthews, F. E., Davidson, J. E., McKeith, I., & Brayne, C, Medical Research Council Cognitive Function and Ageing Study. (2009). Prevalence, correlates and course of behavioural and psychological symptoms of dementia in the population. British Journal of Psychiatry: Journal of Mental Science, 194(3), 212–219. https://doi.org/10.1192/bjp.bp.108.049619
  • Schaefer, J. A., & Moos, R. H. (1996). Effects of work stressors and work climate on long-term care staff’s job morale and functioning. Research in Nursing & Health, 19(1), 63–73. https://doi.org/10.1002/(sici)1098-240x(199602)19:1<63::Aid-nur7>3.0.Co;2-j
  • Selbæk, G., Engedal, K., & Bergh, S. (2013). The prevalence and course of neuropsychiatric symptoms in nursing home patients with dementia: A systematic review. Journal of the American Medical Directors Association, 14(3), 161–169. https://doi.org/10.1016/j.jamda.2012.09.027
  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care: Journal of the International Society for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
  • van Duinen-van den IJssel, J. C. L., Mulders, A. J. M. J., Smalbrugge, M., Zwijsen, S. A., Appelhof, B., Zuidema, S. U., de Vugt, M. E., Verhey, F. R. J., Bakker, C., & Koopmans, R. T. C. M. (2018). Nursing staff distress associated with neuropsychiatric symptoms in young-onset dementia and late-onset dementia. Journal of the American Medical Directors Association, 19(7), 627–632. https://doi.org/10.1016/j.jamda.2017.10.004
  • van Voorden, G., Koopmans, R. T. C. M., Smalbrugge, M., Zuidema, S. U., van den Brink, A. M. A., Persoon, A., Oude Voshaar, R. C., & Gerritsen, D. L. (2023). Well-being, multidisciplinary work and a skillful team: Essential elements of succesful treatment in severe challenging behavior in dementia. Aging & Mental Health, 27(12), 2482–2489. https://doi.org/10.1080/13607863.2023.2169248
  • Veldwijk-Rouwenhorst, A. E., Smalbrugge, M., Wetzels, R., Bor, H., Zuidema, S. U., Koopmans, R., & Gerritsen, D. L. (2017). Nursing home residents with dementia and very frequent agitation: A particular group. American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 25(12), 1339–1348. https://doi.org/10.1016/j.jagp.2017.08.002
  • Veldwijk-Rouwenhorst, A. E., Zuidema, S. U., Smalbrugge, M., Bor, H., Wetzels, R., Gerritsen, D. L., & Koopmans, R. T. C. M. (2021). Very frequent physical aggression and vocalizations in nursing home residents with dementia. Aging & Mental Health, 25(8), 1442–1451. https://doi.org/10.1080/13607863.2020.1786799
  • Veldwijk-Rouwenhorst, A. E., Zuidema, S. U., Smalbrugge, M., Persoon, A., Koopmans, R. T. C. M., & Gerritsen, D. L. (2022). Losing hope or keep searching for a golden solution: An in-depth exploration of experiences with extreme challenging behavior in nursing home residents with dementia. BMC Geriatrics, 22(1), 758. https://doi.org/10.1186/s12877-022-03438-0
  • Vroomen, J. M., Bosmans, J. E., van Hout, H. P. J., & Rooij de, S. E. (2013). Reviewing the definition of crisis in demantia care. BMC Geriatrics, 13(1), 10. https://doi.org/10.1186/1471-2318-13-10
  • Walker, C. A., Curry, L. C., & Hogstel, M. O. (2007). Relocation stress syndrome in older adults transitioning from home to a long-term care facility: Myth or reality? Journal of Psychosocial Nursing and Mental Health Services, 45(1), 38–45. https://doi.org/10.3928/02793695-20070101-09
  • WHO. (2023). Alzheimer’s disease facts and figures. https://www.alz.org/media/documents/alzheimers-facts-and-figures.pdf
  • World-Medical-Association. (2013). World Medical Association Declaration of Helsinki: Ethical principles for medical resarch involving human subjects. JAMA, 310(20),2191–2194. https://doi.org/10.1001/jama.2013.281053.
  • Zwijsen, S. A., Kabboord, A., Eefsting, J. A., Hertogh, C. M., Pot, A. M., Gerritsen, D. L., & Smalbrugge, M. (2014). Nurses in distress? An explorative study into the relation between distress and individual neuropsychiatric symptoms of people with dementia in nursing homes. International Journal of Geriatric Psychiatry, 29(4), 384–391. https://doi.org/10.1002/gps.4014
  • Zwijsen, S. A., Smalbrugge, M., Eefsting, J. A., Twisk, J. W. R., Gerritsen, D. L., Pot, A. M., & Hertogh, C. (2014). Coming to grips with challenging behavior: A cluster randomized controlled trial on the effects of a multidisciplinary care program for challenging behavior in dementia. Journal of the American Medical Directors Association, 15(7), e531-531–531.e10. https://doi.org/10.1016/j.jamda.2014.04.007