Family conflict over illness beliefs and care strategies: implications for burden in family caregivers

References

• Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052–1059. https://doi.org/10.1001/jama.2014.304
   PubMed Web of Science ®Google Scholar
• Ashida, S., Marcum, C. S., & Koehly, L. M. (2018). Unmet expectations in Alzheimer’s family caregiving: Interactional characteristics associated with perceived under-contribution. The Gerontologist, 58(2), e46–e55. https://doi.org/10.1093/geront/gnx141
   PubMed Web of Science ®Google Scholar
• Boss, P., Caron, W., Horbal, J., & Mortimer, J. (1990). Predictors of depression in caregivers of dementia patients: Boundary ambiguity and mastery. Family Process, 29(3), 245–254. https://doi.org/10.1111/j.1545-5300.1990.00245.x
   PubMed Web of Science ®Google Scholar
• Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Lawrence Earlbaum Associates.
   Google Scholar
• Couture, M., Ducharme, F., Sasseville, M., Bradette, C., & Gaudet, K. (2020). A qualitative systematic review of factors affecting caregivers’ decision-making for care setting placements for individuals with dementia. Geriatric Nursing, 41(2), 172–180. https://doi.org/10.1016/j.gerinurse.2019.09.002
   PubMed Web of Science ®Google Scholar
• Czaja, S. J., Lee, C. C., Perdomo, D., Loewenstein, D., Bravo, M., Moxley, PhD, J. H., & Schulz, R. (2018). Community REACH: An implementation of an evidence-based caregiver program. The Gerontologist, 58(2), e130–e137. https://doi.org/10.1093/geront/gny001
   PubMed Web of Science ®Google Scholar
• Ducharme, F., Lévesque, L., Lachance, L., Kergoat, M. J., & Coulombe, R. (2011). Challenges associated with transition to caregiver role following diagnostic disclosure of Alzheimer disease: A descriptive study. International Journal of Nursing Studies, 48(9), 1109–1119. https://doi.org/10.1016/j.ijnurstu.2011.02.011
   PubMed Web of Science ®Google Scholar
• Fisher, L., & Lieberman, M. A. (1996). The effects of family context on adult offspring of patients with Alzheimer’s disease: A longitudinal study. Journal of Family Psychology, 10(2), 180–191. https://doi.org/10.1037/0893-3200.10.2.180
   Web of Science ®Google Scholar
• Gaugler, J. E., & Burgio, L. D. (2016). Caregiving for individuals with Alzheimer’s disease and related disorders. In L. D. Burgio, J. E. Gaugler, & M. M. Hilgeman (Eds.), Spectrum of family caregiving for adults and elders with chronic illness (pp. 15–56). Oxford University Press.
   Google Scholar
• Gaugler, J. E., Reese, M., & Mittelman, M. S. (2016). Effects of the Minnesota adaptation of the NYU Caregiver Intervention on primary subjective stress of adult child caregivers of persons with dementia. The Gerontologist, 56(3), 461–474. https://doi.org/10.1093/geront/gnv503.13
   PubMed Web of Science ®Google Scholar
• Heru, A. M., Ryan, C. E., & Iqbal, A. (2004). Family functioning in the care­givers of patients with dementia. International Journal of Geriatric Psychiatry, 19(6), 533–537. https://doi.org/10.1002/gps.1119.i
   PubMed Web of Science ®Google Scholar
• Ingersoll-Dayton, A. B., Neal, M. B., Ha, J., & Hammer, L. B. (2003). Redressing inequity in parent care among siblings. Journal of Marriage and Family, 65(1), 201–212. https://doi.org/10.1111/j.1741-3737.2003.00201.x
   Web of Science ®Google Scholar
• Isik, A. T., Soysal, P., Solmi, M., & Veronese, N. (2019). Bidirectional relationship between caregiver burden and neuropsychiatric symptoms in patients with Alzheimer’s disease: A narrative review. International Journal of Geriatric Psychiatry, 34(9), 1326–1334. https://doi.org/10.1002/gps.4965
   PubMed Web of Science ®Google Scholar
• Kramer, B. J., Boelk, A. Z., & Auer, C. (2006). Family conflict at the end of life: Lessons learned in a model program for vulnerable older adults. Journal of Palliative Medicine, 9(3), 791–801. https://doi.org/10.1089/jpm.2006.9.791
   PubMed Web of Science ®Google Scholar
• Kwak, M., Ingersoll-Dayton, B., & Kim, J. (2012). Family conflict from the perspective of adult child caregivers: The influence of gender. Journal of Social and Personal Relationships, 29(4), 470–487. https://doi.org/10.1177/0265407511431188
   Web of Science ®Google Scholar
• Lashewicz, B., & Keating, N. (2009). Tensions among siblings in parent care. European Journal of Ageing, 6(2), 127–135. https://doi.org/10.1007/s10433-009-0109-9
   PubMed Web of Science ®Google Scholar
• Lieberman, M. A., & Fisher, L. (1999). The effects of family conflict resolution and decision making on the provision of help for an elder with Alzheimer’s disease. The Gerontologist, 39(2), 159–166. https://doi.org/10.1093/geront/39.2.159
   PubMed Web of Science ®Google Scholar
• Lindsey Davis, L. (1997). Family conflicts around dementia home-care. Families, Systems, & Health, 15(1), 85–98. https://doi.org/10.1037/h0089810
   Google Scholar
• Mitrani, V. B., Lewis, J. E., Feaster, D. J., Czaja, S. J., Eisdorfer, C., Schulz, R., & Szapocznik, J. (2006). The role of family functioning in the stress process of dementia caregivers: A structural family framework. The Gerontologist, 46(1), 97–105. https://doi.org/10.1093/geront/46.1.97
   PubMed Web of Science ®Google Scholar
• Mott, J., Schmidt, B., & MacWilliams, B. (2019). Male caregivers: Shifting roles among family caregivers. Clinical Journal of Oncology Nursing, 23(1), E17–E24. https://doi.org/10.1188/19.CJON.E17-E2
   PubMed Web of Science ®Google Scholar
• Neufeld, A., & Harrison, M. J. (2003). Unfulfilled expectations and negative interactions: Nonsupport in the relationships of women caregivers. Journal of Advanced Nursing, 41(4), 323–331. https://doi.org/10.1046/j.1365-2648.2003.02530.x
   PubMed Web of Science ®Google Scholar
• O’Malley, K. A., & Qualls, S. H. (2022). Validation of a comprehensive measure of the family caregiver experience: The Caregiver Reaction Scale. Clinical Gerontologist, 45(3), 503–513. https://doi.org/10.1080/07317115.2020.1774455
   PubMed Web of Science ®Google Scholar
• Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30(5), 583–594. https://doi.org/10.1093/geront/30.5.583
   PubMed Web of Science ®Google Scholar
• Pinquart, M., & Sörensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26(1), 1–14. https://doi.org/10.1037/a0021863
   PubMed Web of Science ®Google Scholar
• Qualls, S. H., & Williams, A. A. (2013). Caregiver family therapy: Empowering families to meet the challenges of aging. American Psychological Association. https://doi.org/10.1037/13943-000
   Google Scholar
• Scharlach, A., Li, W., & Dalvi, T. B. (2006). Family conflict as a mediator of caregiver strain. Family Relations, 55(5), 625–635. https://doi.org/10.1111/j.1741-3729.2006.00431.x
   Web of Science ®Google Scholar
• Semple, S. J. (1992). Conflict in Alzheimer’s caregiving families: Its dimensions and consequences1. The Gerontologist, 32(5), 648–655. https://doi.org/10.1093/geront/32.5.648
   PubMed Web of Science ®Google Scholar
• Strawbridge, W. J., & Wallhagen, M. I. (1991). Impact of family conflict on adult child caregivers. The Gerontologist, 31(6), 770–777. https://doi.org/10.1093/geront/31.6.770
   PubMed Web of Science ®Google Scholar
• Speice, J., Shields, C. G., & Blieszner, R. (1998). The effects of family communication patterns during middle-phase Alzheimer’s disease. Families, Systems, & Health, 16(3), 233–248. https://doi.org/10.1037/h0089852
   Google Scholar
• Stokes, L., Combes, H., & Stokes, G. (2015). The dementia diagnosis: A literature review of information, understanding, and attributions. Psychogeriatrics, 15(3), 218–225. https://doi.org/10.1111/psyg.12095
   PubMed Web of Science ®Google Scholar
• Sutter, M., Perrin, P. B., Chang, Y., Hoyos, G. R., Buraye, J. A., & Arango-Lasprilla, J. C. (2014). Linking family dynamics and the mental health of Colombian dementia caregivers. American Journal of Alzheimer’s Disease & Other Dementias®, 29(1), 67–75. https://doi.org/10.1177/1533317513505128
   PubMed Web of Science ®Google Scholar
• Tatangelo, G., McCabe, M., Macleod, A., & Konis, A. (2018). I just can’t please them all and stay sane: Adult child caregivers’ experiences of family dynamics in care-giving for a parent with dementia in Australia. Health & Social Care in the Community, 26(3), e370–e377. https://doi.org/10.1111/hsc.12534
   PubMed Web of Science ®Google Scholar
• Tremont, G., Davis, J. D., & Bishop, D. S. (2006). Unique contribution of family functioning in caregivers of patients with mild to moderate dementia. Dementia and Geriatric Cognitive Disorders, 21(3), 170–174. https://doi.org/10.1159/000090699
   PubMed Web of Science ®Google Scholar
• Whitlatch, C. J., & Orsulic-Jeras, S. (2018). Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers. The Gerontologist, 58(1), S58–S73. https://doi.org/10.1093/geront/gnx162
   PubMedGoogle Scholar
• Xiong, C., Biscardi, M., Astell, A., Nalder, E., Cameron, J. I., Mihailidis, A., & Colantonio, A. (2020). Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review. PLoS One, 15(4), e0231848. https://doi.org/10.1371/journal.pone.0231848
   PubMed Web of Science ®Google Scholar