Caregiver experience of the Norwegian manual for individual cognitive stimulation therapy (iCST): a qualitative study

References

• Aguirre, E., Spector, A., & Orrell, M. (2014). Guidelines for adapting cognitive stimulation therapy to other cultures. Clinical Interventions in Aging, 9, 1003–1007. https://doi.org/10.2147/CIA.S61849
   PubMed Web of Science ®Google Scholar
• Braun, V., Clarke, V., Hayfield, N., Terry, G. (2019). Thematic analysis. In Handbook of Research Methods in Health Social Sciences (pp. 843–860). Springer. https://url12.mailanyone.net/scanner?m=1q6piN-00069v-63&d=4%7Cmail/90/1686130800/1q6piN-00069v-63%7Cin12e%7C57e1b682%7C28538618%7C14196068%7C6480517BF16B7BEFFEDE7F1BD173E36D&o=/phto%3A/dts0ri.1/1.og-/00878979501–5211-301_4&s=uc1OC7aL1m-mXRI7Oucn6L4y4Rk
   Google Scholar
• Cheng, S. T. (2017). Dementia caregiver burden: A research update and critical analysis. Current Psychiatry Reports, 19(9), 64. https://doi.org/10.1007/s11920-017-0818-2
   PubMed Web of Science ®Google Scholar
• Gibbor, L., Forde, L., Yates, L., Orfanos, S., Komodromos, C., Page, H., Harvey, K., & Spector, A. (2021). A feasibility randomised control trial of individual cognitive stimulation therapy for dementia: Impact on cognition, quality of life and positive psychology. Aging & Mental Health, 25(6), 999–1007. https://doi.org/10.1080/13607863.2020.1747048
   PubMed Web of Science ®Google Scholar
• Gibbor, L., Yates, L., Volkmer, A., & Spector, A. (2021). Cognitive stimulation therapy (CST) for dementia: A systematic review of qualitative research. Aging & Mental Health, 25(6), 980–990. https://doi.org/10.1080/13607863.2020.1746741
   PubMed Web of Science ®Google Scholar
• Greene, J. G., Smith, R., Gardiner, M., & Timbury, G. C. (1982). Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: A factor analytic study. Age and Ageing, 11(2), 121–126. https://doi.org/10.1093/ageing/11.2.121
   PubMedGoogle Scholar
• Hughes, C. P., Berg, L., Danziger, W. L., Coben, L. A., & Martin, R. L. (1982). A new clinical scale for the staging of dementia. The British Journal of Psychiatry: The Journal of Mental Science, 140(6), 566–572. https://doi.org/10.1192/bjp.140.6.566
   PubMed Web of Science ®Google Scholar
• Laliberte Rudman, D. (2012). Governing through occupation: Shaping expectations and possibilities. In Whiteford & Hocking (Eds.), Occupational Science. Society, Inclusion, Participation. Wiley-Blackwell.
   Google Scholar
• Leung, P., Orgeta, V., & Orrell, M. (2017). The effects on carer well-being of carer involvement in cognition-based interventions for people with dementia: A systematic review and meta-analysis. International Journal of Geriatric Psychiatry, 32(4), 372–385. https://doi.org/10.1002/gps.4654
   PubMed Web of Science ®Google Scholar
• Leung, P., Yates, L., Orgeta, V., Hamidi, F., & Orrell, M. (2017). The experiences of people with dementia and their carers participating in individual cognitive stimulation therapy. International Journal of Geriatric Psychiatry, 32(12), e34–e42. https://doi.org/10.1002/gps.4648
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence (NICE). (2018). Dementia: Assessment, management and support for people living with dementia and their carers. NICE guideline [NG97].
   Google Scholar
• Norwegian Directorate of Health. (2022). Demens. Nasjonal faglig retningslinje. [Dementia, National guidelines] Oslo, Norway. https://www.helsedirektoratet.no/retningslinjer/demens
   Google Scholar
• Orgeta, V., Leung, P., Yates, L., Kang, S., Hoare, Z., Henderson, C., Whitaker, C., Burns, A., Knapp, M., Leroi, I., Moniz-Cook, E. D., Pearson, S., Simpson, S., Spector, A., Roberts, S., Russell, I. T., de Waal, H., Woods, R. T., & Orrell, M. (2015). Individual cognitive stimulation therapy for dementia: A clinical effectiveness and cost-effectiveness pragmatic, multicentre, randomised controlled trial. Health Technology Assessment (Winchester, England), 19(64), 1–108. https://doi.org/10.3310/hta19640
   PubMed Web of Science ®Google Scholar
• Orrell, M., Yates, L., Leung, P., Kang, S., Hoare, Z., Whitaker, C., Burns, A., Knapp, M., Leroi, I., Moniz-Cook, E., Pearson, S., Simpson, S., Spector, A., Roberts, S., Russell, I., de Waal, H., Woods, R. T., & Orgeta, V. (2017). The impact of individual Cognitive Stimulation Therapy (iCST) on cognition, quality of life, caregiver health, and family relationships in dementia: A randomised controlled trial. PLoS Medicine, 14(3), e1002269. https://doi.org/10.1371/journal.pmed.1002269
   PubMed Web of Science ®Google Scholar
• Pickens, N. D., & Pizur-Barnekow, K. (2009). Co-occupation: Extending the dialogue. Journal of Occupational Science, 16(3), 151–156. https://doi.org/10.1080/14427591.2009.9686656
   Google Scholar
• QSR International Pty Ltd. (2020). NVivo (released in March 2020). https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home.
   Google Scholar
• Silva, R., Bobrowicz-Campos, E., Santos-Costa, P., Cruz, A. R., & Apóstolo, J. (2021). A Home-Based Individual Cognitive Stimulation Program for Older Adults With Cognitive Impairment: A Randomized Controlled Trial. Frontiers in Psychology, 12, 741955. https://doi.org/10.3389/fpsyg.2021.741955
   PubMed Web of Science ®Google Scholar
• Smith, J. A., & Fieldsend, M. (2021). Interpretative phenomenological analysis. In P. M. Camic (Ed.), Qualitative research in psychology: Expanding perspectives in methodology and design (pp. 147–166). American Psychological Association. https://doi.org/10.1037/0000252-008
   Google Scholar
• Spector, A., Thorgrimsen, L., Woods, B., Royan, L., Davies, S., Butterworth, M., & Orrell, M. (2003). Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia: Randomised Controlled Trial. The British Journal of Psychiatry: The Journal of Mental Science, 183(3), 248–254. https://doi.org/10.1192/bjp.183.3.248
   PubMed Web of Science ®Google Scholar
• Terry, G., Braun, V., Hayfield, N., & Clarke, V. (2017). Thematic Analysis. In C. Willig, & Rogers, W. (Ed.), The SAGE Handbook of Qualitative Research in Psychology (pp. 17–37). SAGE Publications Ltd.
   Google Scholar
• Ulstein, I., Wyller, T. B., & Engedal, K. (2007). High score on the Relative Stress Scale, a marker of possible psychiatric disorder in family carers of patients with dementia. International Journal of Geriatric Psychiatry, 22(3), 195–202. https://doi.org/10.1002/gps.1660
   PubMed Web of Science ®Google Scholar
• Wilcock, A. A., & Hocking, C. (2015). An occupational perspective of health (3rd ed.). Slack.
   Google Scholar
• Woods, B., Rai, H. K., Elliott, E., Aguirre, E., Orrell, M., & Spector, A, Cochrane Dementia and Cognitive Improvement Group. (2023). Cognitive stimulation to improve cognitive functioning in people with dementia (Review) [Art. No.: CD005562.]. Cochrane Database of Systematic Reviews, 2023(1), 1–190. https://doi.org/10.1002/14651858.CD005562.pub3
   Google Scholar
• Yates, L. A., Leung, P., Orgeta, V., Spector, A., & Orrell, M. (2015). The development of individual cognitive stimulation therapy (iCST) for dementia. Clinical Interventions in Aging, 10, 95–104.https://doi.org/10.2147/CIA.S73844
   PubMed Web of Science ®Google Scholar
• Yates, L., Orrell, M., Leung, P., Spector, A., Woods, B., & Orgeta, V. (2019). Making a difference 3. Individual Cognitive Stimulation Therapy. A manual for carers (2nd ed.) Hawker Publications.
   Google Scholar
• Yates, L., Orrell, M., Leung, P., Spector, A., Woods, B., & Orgeta, V. (2021). Å gjøre en forskjell 3. Individuell kognitiv stimuleringsterapi. En manual for pårørende og omsorgspersoner (T. Holthe, Weum, R., Rønqvist, T.K., Trans.). Forlaget aldring og helse.
   Google Scholar