EmpRess: an eHealth implementation readiness checklist for dementia developed through an interview study of stakeholder needs

References

• Alzheimer Nederland. (2020). Resultaten Corona peiling onder mantelzorgers van mensen met dementie. https://www.alzheimervrijwilligers.nl/sites/default/files/users/user912/resultaten-coronapeiling-alzheimer-nederland%20(1).pdf
   Google Scholar
• Bianchin, M., & Heylighen, A. (2017). Fair by design. Addressing the paradox of inclusive design approaches. The Design Journal, 20(1), S3162–S3170. https://doi.org/10.1080/14606925.2017.1352822
   Google Scholar
• Boddy, C. R. (2016). Sample size for qualitative research. Qualitative Market Research: An International Journal, 19(4), 426–432. https://doi.org/10.1108/QMR-06-2016-0053
   Web of Science ®Google Scholar
• Boogerd, E. A., Arts, T., Engelen, L. J., & van De Belt, T. H. (2015). “What is eHealth”: Time for an update? JMIR Research Protocols, 4(1), e4065. https://doi.org/10.2196/resprot.4065
   Google Scholar
• Boots, L. M., de Vugt, M. E., Van Knippenberg, R., Kempen, G., & Verhey, F. (2014). A systematic review of Internet‐based supportive interventions for caregivers of patients with dementia. International Journal of Geriatric Psychiatry, 29(4), 331–344. https://doi.org/10.1002/gps.4016
   PubMed Web of Science ®Google Scholar
• Boots, L. M., de Vugt, M. E., Kempen, G. I., & Verhey, F. R. (2018). Effectiveness of a blended care self-management program for caregivers of people with early-stage dementia (partner in balance): Randomized controlled trial. Journal of Medical Internet Research, 20(7), e10017. https://doi.org/10.2196/10017
   PubMed Web of Science ®Google Scholar
• Brătucu, G., Tudor, A. I. M., Dovleac, L., Sumedrea, S., Chițu, I. B., & Trifan, A. (2020). The impact of new technologies on individuals’ health perceptions in the European Union. Sustainability, 12(24), 10349. https://doi.org/10.3390/su122410349
   Web of Science ®Google Scholar
• Bruinsma, J., Peetoom, K., Boots, L., Daemen, M., Verhey, F., Bakker, C., & de Vugt, M. (2021). Tailoring the web-based ‘Partner in balance’intervention to support spouses of persons with frontotemporal dementia. Internet Interventions, 26, 100442. https://doi.org/10.1016/j.invent.2021.100442
   PubMedGoogle Scholar
• Chiu, T. M., & Eysenbach, G. (2011). Theorizing the health service usage behavior of family caregivers: A qualitative study of an internet-based intervention. International Journal of Medical Informatics, 80(11), 754–764. https://doi.org/10.1016/j.ijmedinf.2011.08.010
   PubMed Web of Science ®Google Scholar
• Christie, H., Martin, J., Connor, J., Tange, H., Verhey, F., de Vugt, M., & Orrell, M. (2019). eHealth interventions to support caregivers of people with dementia may be proven effective, but are they implementation-ready? Internet Interventions, 18, 100260. https://doi.org/10.1016/j.invent.2019.100260
   PubMedGoogle Scholar
• Christie, H. L., Bartels, S. L., Boots, L. M., Tange, H. J., Verhey, F. R., & de Vugt, M. E. (2018). A systematic review on the implementation of eHealth interventions for informal caregivers of people with dementia. Internet Interventions, 13, 51–59. https://doi.org/10.1016/j.invent.2018.07.002
   PubMedGoogle Scholar
• Christie, H. L., Boots, L. M., Hermans, I., Govers, M., Tange, H. J., Verhey, F. R. J., & de Vugt, M. (2021). Business models of eHealth interventions to support informal caregivers of people with dementia in the Netherlands: Analysis of case studies. JMIR Aging, 4(2), e24724. https://doi.org/10.2196/24724
   PubMedGoogle Scholar
• Christie, H. L., Dam, A. E. H., van Boxtel, M., Köhler, S., Verhey, F., & de Vugt, M. E. (2022). Lessons learned from an effectiveness evaluation of inlife, a web-based social support intervention for caregivers of people with dementia: Randomized controlled trial. JMIR Aging, 5(4), e38656. https://doi.org/10.2196/38656
   PubMedGoogle Scholar
• Craig, P., Dieppe, P., Macintyre, S., Michie, S., Nazareth, I., & Petticrew, M. (2008). Developing and evaluating complex interventions: The new Medical Research Council guidance. BMJ, 337, a1655. https://doi.org/10.1136/bmj.a1655
   PubMed Web of Science ®Google Scholar
• Cristancho-Lacroix, V., Wrobel, J., Cantegreil-Kallen, I., Dub, T., Rouquette, A., & Rigaud, A. S. (2015). A web-based psychoeducational program for informal caregivers of patients with Alzheimer’s disease: A pilot randomized controlled trial. Journal of Medical Internet Research, 17(5), e117. https://doi.org/10.2196/jmir.3717
   PubMed Web of Science ®Google Scholar
• Damschroder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: A consolidated framework for advancing implementation science. Implementation Science, 4(1), 1–15. https://doi.org/10.1186/1748-5908-4-50
   PubMed Web of Science ®Google Scholar
• Evers, J. (2015). Kwalitatief interviewen: Kunst én kunde. Boom Lemma Uitgevers Amsterdam.
   Google Scholar
• Forbat, L., Black, L., & Dulgar, K. (2015). What clinicians think of manualized psychotherapy interventions: Findings from a systematic review. Journal of Family Therapy, 37(4), 409–428. https://doi.org/10.1111/1467-6427.12036
   Web of Science ®Google Scholar
• Gibson, G., Dickinson, C., Brittain, K., & Robinson, L. (2019). Personalisation, customisation and bricolage: How people with dementia and their families make assistive technology work for them. Ageing and Society, 39(11), 2502–2519. https://doi.org/10.1017/S0144686X18000661
   Web of Science ®Google Scholar
• Glasgow, R. E., Vogt, T. M., & Boles, S. M. (1999). Evaluating the public health impact of health promotion interventions: The RE-AIM framework. American Journal of Public Health, 89(9), 1322–1327. https://doi.org/10.2105/ajph.89.9.1322
   PubMed Web of Science ®Google Scholar
• Greenhalgh, T., & Abimbola, S. (2019). The NASSS framework-a synthesis of multiple theories of technology implementation. Studies in Health Technology and Informatics, 263, 193–204. https://doi.org/10.3233/SHTI190123
   PubMedGoogle Scholar
• Greenhalgh, T., Maylor, H., Shaw, S., Wherton, J., Papoutsi, C., Betton, V., Nelissen, N., Gremyr, A., Rushforth, A., Koshkouei, M., & Taylor, J. (2020). The NASSS-CAT tools for understanding, guiding, monitoring, and researching technology implementation projects in health and social care: Protocol for an evaluation study in real-world settings. JMIR Research Protocols, 9(5), e16861. https://doi.org/10.2196/16861
   PubMed Web of Science ®Google Scholar
• Greenhalgh, T., Wherton, J., Papoutsi, C., Lynch, J., Hughes, G., A’Court, C., Hinder, S., Procter, R., & Shaw, S. (2018). Analysing the role of complexity in explaining the fortunes of technology programmes: Empirical application of the NASSS framework. BMC Medicine, 16(1), 66. https://doi.org/10.1186/s12916-018-1050-6
   PubMedGoogle Scholar
• Keane, D., Lang, A. R., Craven, M., & Sharples, S. (2012). The use of vignettes for conducting healthcare research. Advances in human aspects of healthcare (pp. 451–460). Independent Publisher.
   Google Scholar
• Mair, F. S., May, C., O’Donnell, C., Finch, T., Sullivan, F., & Murray, E. (2012). Factors that promote or inhibit the implementation of e-health systems: An explanatory systematic review. Bulletin of the World Health Organization, 90(5), 357–364. https://doi.org/10.2471/BLT.11.099424
   PubMed Web of Science ®Google Scholar
• Neal, D., Engelsma, T., Tan, J., Craven, M. P., Marcilly, R., Peute, L., Dening, T., Jaspers, M., & Dröes, R.-M. (2022). Limitations of the new ISO standard for health and wellness apps. The Lancet Digital Health, 4(2), e80–e82. https://doi.org/10.1016/S2589-7500(21)00273-9
   PubMedGoogle Scholar
• Schaller, S., Marinova-Schmidt, V., Gobin, J., Criegee-Rieck, M., Griebel, L., Engel, S., Stein, V., Graessel, E., & Kolominsky-Rabas, P. L. (2015). Tailored e-Health services for the dementia care setting: A pilot study of ‘eHealthMonitor. BMC Medical Informatics and Decision Making, 15(1), 58. https://doi.org/10.1186/s12911-015-0182-2
   PubMedGoogle Scholar
• Shin, H. D., Hamovitch, E., Gatov, E., MacKinnon, M., Samawi, L., Boateng, R., Thorpe K., & Barwick, M. (2023). The NASSS (non-adoption, abandonment, scale-up, spread and sustainability) framework use over time: A scoping review. medRxiv 2023.2011. 2022.23298897. https://doi.org/10.1101/2023.11.22.23298897
   Google Scholar
• Sin, J., Henderson, C., Spain, D., Cornelius, V., Chen, T., & Gillard, S. (2018). eHealth interventions for family carers of people with long term illness: A promising approach? Clinical Psychology Review, 60, 109–125. https://doi.org/10.1016/j.cpr.2018.01.008
   PubMed Web of Science ®Google Scholar
• Standardization I. O. F. (2021). Health software—part 2: Health and wellness apps—quality and reliability (ISO/TS 82304-2). https://www.iso.org/standard/78182.html
   Google Scholar
• Streater, A., Spector, A., Aguirre, E., Stansfeld, J., & Orrell, M. (2016). ImpRess: An Implementation Readiness checklist developed using a systematic review of randomised controlled trials assessing cognitive stimulation for dementia. BMC Medical Research Methodology, 16(1), 167. https://doi.org/10.1186/s12874-016-0268-2
   PubMed Web of Science ®Google Scholar
• Svendsen, M. T., Tiedemann, S. N., & Andersen, K. E. (2021). Pros and cons of eHealth: A systematic review of the literature and observations in Denmark. SAGE Open Medicine, 9, 20503121211016179. https://doi.org/10.1177/20503121211016179
   Google Scholar